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Hi, I have recently begun taking our son Zeke (7 mos- adopted

internationally @ 6mos) to see Dr. Ponseti for his bilateral

clubfeet. We love him, and are so grateful for the opportunity to

have him treat Zeke's feet. Many thanks to this group for all your

information; I'm not certain I would have found out about Dr.

Ponseti another way, and your real life experiences were invaluable

in making a decision about care.

A question to aid our insurance coverage: how many visits did you

have after the feet were put in the brace? Did you visit more

frequently during the 23 hr. wearing period? How often did you

visit when wearing the brace only when sleeping? The doctor's

office has given some information, but I wanted to check this

against your experiences, since it sounds as though sometimes it

takes a few tries to get everything going smoothly.

Thanks!

Caroline

mom to Zeke, 7 mos, bilateral cf

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Hi there, It took 5 visits before she went into the DBB full time.

Then after she got in the DBB full time we didn't see the doctor

until 3 months then they reduced her time from 23 hours a day to 16-

18 hours a day until she was 11 months old. We saw the doctor every 3

months after she got in her DBB and now we go every 4 months. My

daughter is a year old. I was lucky that when she got in her DBB for

the first time we didn't have any problems so she wasn't seen until 3

months later. She is wearing the brace nightly now and it is every 4

months because she is doing so well but i think it depends on the

child. Some children go every 3 months and some go every 6 months.

HTH

(Isabella 10-12-02 bilateral cf)

> Hi, I have recently begun taking our son Zeke (7 mos- adopted

> internationally @ 6mos) to see Dr. Ponseti for his bilateral

> clubfeet. We love him, and are so grateful for the opportunity to

> have him treat Zeke's feet. Many thanks to this group for all your

> information; I'm not certain I would have found out about Dr.

> Ponseti another way, and your real life experiences were invaluable

> in making a decision about care.

>

> A question to aid our insurance coverage: how many visits did you

> have after the feet were put in the brace? Did you visit more

> frequently during the 23 hr. wearing period? How often did you

> visit when wearing the brace only when sleeping? The doctor's

> office has given some information, but I wanted to check this

> against your experiences, since it sounds as though sometimes it

> takes a few tries to get everything going smoothly.

>

> Thanks!

>

> Caroline

> mom to Zeke, 7 mos, bilateral cf

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Hi Caroline-

After we went into the DBB 23hrs we didn't see the doc for 3 months. He then

reduced our time to 16 hours a day and told us to come back in 6 months. We

go back every 6 months now and my son wears the DBB 12hrs. So twice a year.

Just so you know when I appealed my insurance company they agreed for my son

two see the doc twice a year for 2 years and then they would reevaluate

things for the remainder years.

I'm also curious where did you adopt Zeke from???

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: # of visits

>Date: Mon, 10 Nov 2003 16:14:50 -0000

>

>Hi, I have recently begun taking our son Zeke (7 mos- adopted

>internationally @ 6mos) to see Dr. Ponseti for his bilateral

>clubfeet. We love him, and are so grateful for the opportunity to

>have him treat Zeke's feet. Many thanks to this group for all your

>information; I'm not certain I would have found out about Dr.

>Ponseti another way, and your real life experiences were invaluable

>in making a decision about care.

>

>A question to aid our insurance coverage: how many visits did you

>have after the feet were put in the brace? Did you visit more

>frequently during the 23 hr. wearing period? How often did you

>visit when wearing the brace only when sleeping? The doctor's

>office has given some information, but I wanted to check this

>against your experiences, since it sounds as though sometimes it

>takes a few tries to get everything going smoothly.

>

>Thanks!

>

>Caroline

>mom to Zeke, 7 mos, bilateral cf

>

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Hey Caroline, congratulations on the adoption. We are from Ohio and went to

Iowa to see Dr. Ponseti. We didn't go during the 3 months 23 hours a day

period. We have had check ups at 6 months of age, 1 year and 2 years. We have

sent video and pictures a couple of times between visits. We saw a local ortho

at 18 months at the suggestion of our pediatrician because she wasn't walking

yet. He said there was no medical reason she wasn't walking, she was just

getting around too well crawling and cruising furniture to have to take steps.

HTH,

Joanne

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