[Fwd: RE: Welcome to nosurgery4clubfoot]

[Guest guest]

--- RE: Welcome to nosurgery4clubfoot

Date: Tue, 30 Dec 2003 22:25:25 +0000

To: nosurgery4clubfoot-owner

hi!

My name is Alana and my son age 19 weeks has clubfeet. I want to

talk to parents who have experienced the ponsetti treatment. What are

there views on it? Are there any problems encountered by using it? Is

it the best hope for ? I have met very few people who know much

about this, so to me this appears to be the best place for me to meet

people in the same boat.

yours faithfully,

alana_quigg

[Guest guest]

Ed,

I dont know about doctors in your area, but to your other question about

ideopathic v. genetic, genetic clubfoot comes in 2 categories - children whose

parents or relatives have clubfoot, and children who have syndromes that include

clubfoot (some heart defects, musculoskelatal defects like arthrogryposis, and

groups of seemingly unrelated defects like cleft lip/palate, ear tags,

hypospadias and clubfoot, which is a mutant defect of a chromosome whose number

I forget). Ideopathic clubfoot is the classification for a baby that is

otherwise completely healthy and has no family history of clubfoot. Ideopathic

just means that they dont know what caused the clubfoot.

Most cases of clubfoot are ideopathic.

Angel

[Fwd: RE: Welcome to nosurgery4clubfoot]

Hello,

I am Ed Cayetano from the Philippines. I have a 3 week old son born with

bilateral clubfeet. The orthopaedic surgeon referred to us says that my son

has idiopathic clubfeet and not congenital clubfeet. My son Marco was

immediately put on casts on his 2nd day and we've had 3 cast changes

already.

>From what I have researched on the internet so far (still have a lot to go),

I think the Ponseti method is the way to go - but it seems our doctor is

unaware of this method.

I would like to post questions to the group, or can I do it here now?

Some immediate questions are:

1. How does one know for sure if its not congenital clubfeet but rather

idiopathic?

2. Do you know / recommend any doctors here in the Philippines who

practices the Ponseti method?

Thanks.

Ed