Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Yes, temperature extremes either hot or cold are difficult for mito folks. This excerpt is from one of Dr. Cohen's articles. Avoidance of Physiologic “Stress” Physiologic stress are external factors that may result in worsening the metabolic situation, which may result in temporary, or in sometimes, permanent worsening of the condition. It is impossible to avoid all physiologic stressful conditions, so one should not attempt to do so. However, recognizing what may be stressful for a patients allows one to adjust the lifestyle. Many patients and their parents have already identified these stresses, despite not knowing why the stresses were important, and avoid them. • Cold Stress is extremely important. Thermal regulation (temperature control) is not always normal in people with mitochondrial diseases and exposure to cold can result in severe heat loss and trigger an energy crisis. When going out into the cold, all exposed body parts should be covered, and exposure to extreme cold be avoided for anything more than a short period. Over bundling can be a problem too (see below). • Heat Stress can be a problem in some people. This is especially true of those with an inability to sweat normally. Heat exhaustion and heat stroke may occur on hot days. An example of a typical scenario for this situation would be a child would seems to “wilt” in situations like hot classrooms, whereas the other students function normally. Light clothing is important. Patients should avoid direct sunlight on hot days and stay indoors if it is too warm outside. An air conditioned environment may be needed. • Starvation .see above about fasting • Lack of sleep may be possibly be harmful. • Individual distinctive stresses Avoidance of Toxins • Alcohol has been known to hasten the progression of some conditions. • Cigarette smoke, probably due to the carbon monoxide is known to hasten the progression of some conditions. Remember that carbon monoxide kills by inhibiting complex IV of the OXPHOS chain. If there is already a dysfunction of OXPHOS, why make it worse. Cigarette smoke will make it worse. • MSG (monosodium glutamate) has for years been known to cause migraine headaches in otherwise healthy individuals, and may trigger these events in susceptible people with mitochondrial diseases. MSG is frequently added to Chinese (and other Asian) foods, and is also found in high levels in dried and canned soups. Read the label and avoid MSG. Bruce H. Cohen, MD cghng888 wrote: >Dear Groupies, I have a question about mito and the cold, partially wondering if it could be related to my present crash. What about >the cold is bad for mito? Is it merely living in a cold climiate, even if you are warm inside? Should one keep the thermostat up because >of mito. Can an exposure to the cold outside air, perhaps not properly dressed, even for a short time be bad for mito. Could it be >important to always wear a hat when out in the winter? Is it better to live in a warmer climate? Should one be careful with >airconditioning? Just wondering how impartant all this is to mito health.Thanks Celia > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Celia It takes a lot of cellular energy to heat and cool the body. With mito, we quickly are in an energy crisis with trying to heat or cool. You don't want to get too hot, or too cold. I have to have an air conditioner during the summer. I don't keep it real cold, but the heat really makes me crash. I try not to stay out in the cold and always wear hat and gloves. laurie > > Reply-To: > Date: Fri, 06 Feb 2004 18:11:31 -0000 > To: > Subject: mito and the cold > > Dear Groupies, I have a question about mito and the cold, partially wondering > if it could be related to my present crash. What about > the cold is bad for mito? Is it merely living in a cold climiate, even if you > are warm inside? Should one keep the thermostat up because > of mito. Can an exposure to the cold outside air, perhaps not properly > dressed, even for a short time be bad for mito. Could it be > important to always wear a hat when out in the winter? Is it better to live in > a warmer climate? Should one be careful with > airconditioning? Just wondering how impartant all this is to mito > health.Thanks Celia > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > ---------------------------------------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 I cannot tolerate cold or hot--both are bad for me. Anything below 40 F and above 75 F is bad for me. I grew up in northern WI and still cannot go outside for more than a little while even like yesterday when it was 20 F. My hands and feet get ice cold and stay that way for hours even with a heating pad on. The last couple years the cold and heat have effected me worse. Now, my 11 year old son runs around the house with a tshirt and shorts on at the same time I am in a sweatshirt and sweatpants and huddled in a blanket. The kid was out shoveling snow without any gloves on this morning. I did not know he was doing it and promptly sent him in. He will wear a hat though. Anyway, the regulating of body temp seems to be a problem. We have mild cases of MELAS. Janet Sample in Wisconsin mito and the cold > Dear Groupies, I have a question about mito and the cold, partially wondering if it could be related to my present crash. What about > the cold is bad for mito? Is it merely living in a cold climiate, even if you are warm inside? Should one keep the thermostat up because > of mito. Can an exposure to the cold outside air, perhaps not properly dressed, even for a short time be bad for mito. Could it be > important to always wear a hat when out in the winter? Is it better to live in a warmer climate? Should one be careful with > airconditioning? Just wondering how impartant all this is to mito health.Thanks Celia> > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.> > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 -Thanks , this was really informative, Celia -- In , <dgregori@w...> wrote: > Yes, temperature extremes either hot or cold are difficult for mito > folks. This excerpt is from one of Dr. Cohen's articles. > > > > Avoidance of Physiologic " Stress " Physiologic stress are external > factors that may result in worsening the metabolic situation, which may > result in temporary, or in sometimes, permanent worsening of the > condition. It is impossible to avoid all physiologic stressful > conditions, so one should not attempt to do so. However, recognizing > what may be stressful for a patients allows one to adjust the lifestyle. = > Many patients and their parents have already identified these stresses, > despite not knowing why the stresses were important, and avoid them. > • Cold Stress is extremely important. Thermal regulation (temperature > control) is not always normal in people with mitochondrial diseases and > exposure to cold can result in severe heat loss and trigger an energy > crisis. When going out into the cold, all exposed body parts should be > covered, and exposure to extreme cold be avoided for anything more than > a short period. Over bundling can be a problem too (see below). > • Heat Stress can be a problem in some people. This is especially true > of those with an inability to sweat normally. Heat exhaustion and heat > stroke may occur on hot days. An example of a typical scenario for this > situation would be a child would seems to " wilt " in situations like hot > classrooms, whereas the other students function normally. Light clothing = > is important. Patients should avoid direct sunlight on hot days and stay = > indoors if it is too warm outside. An air conditioned environment may be = > needed. • Starvation….see above about fasting > • Lack of sleep may be possibly be harmful. > • Individual distinctive stresses Avoidance of Toxins > • Alcohol has been known to hasten the progression of some conditions. > • Cigarette smoke, probably due to the carbon monoxide is known to > hasten the progression of some conditions. Remember that carbon monoxide = > kills by inhibiting complex IV of the OXPHOS chain. If there is already > a dysfunction of OXPHOS, why make it worse. Cigarette smoke will make it = > worse. > • MSG (monosodium glutamate) has for years been known to cause migraine > headaches in otherwise healthy individuals, and may trigger these events = > in susceptible people with mitochondrial diseases. MSG is frequently > added to Chinese (and other Asian) foods, and is also found in high > levels in dried and canned soups. Read the label and avoid MSG. > Bruce H. Cohen, MD > > > cghng888 wrote: > > >Dear Groupies, I have a question about mito and the cold, partially wond= ering if it could be related to my present crash. What about > >the cold is bad for mito? Is it merely living in a cold climiate, even i= f you are warm inside? Should one keep the thermostat up because > >of mito. Can an exposure to the cold outside air, perhaps not properly d= ressed, even for a short time be bad for mito. Could it be > >important to always wear a hat when out in the winter? Is it better to l= ive in a warmer climate? Should one be careful with > >airconditioning? Just wondering how impartant all this is to mito health= ..Thanks Celia > > > > > > > >Medical advice, information, opinions, data and statements contained her= ein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members= are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their o= wn treatment. > > > >Personal attacks are not permitted on the list and anyone who sends one = is automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 -Thanks laurie, I'm thinking I've always been too casual with my approach to the cold when I'm outside- and up here in Canada it gets very chilly, so maybe I better start wrapping up more carefully.Just before this crash I came back from Dominican Republic and wasn't nearly warmly dressed enough for being outside, for quite a bit of time. Celia-- In , Laureta Fitzgerald <lfitzger@j...> wrote: > Celia > > It takes a lot of cellular energy to heat and cool the body. With mito, we > quickly are in an energy crisis with trying to heat or cool. You don't want > to get too hot, or too cold. > > I have to have an air conditioner during the summer. I don't keep it real > cold, but the heat really makes me crash. I try not to stay out in the cold > and always wear hat and gloves. > > laurie > > > From: " cghng888 " <cghng888@y...> > > Reply-To: > > Date: Fri, 06 Feb 2004 18:11:31 -0000 > > To: > > Subject: mito and the cold > > > > Dear Groupies, I have a question about mito and the cold, partially wondering > > if it could be related to my present crash. What about > > the cold is bad for mito? Is it merely living in a cold climiate, even if you > > are warm inside? Should one keep the thermostat up because > > of mito. Can an exposure to the cold outside air, perhaps not properly > > dressed, even for a short time be bad for mito. Could it be > > important to always wear a hat when out in the winter? Is it better to live in > > a warmer climate? Should one be careful with > > airconditioning? Just wondering how impartant all this is to mito > > health.Thanks Celia > > > > > > > > Medical advice, information, opinions, data and statements contained herein > > are not necessarily those of the list moderators. The author of this e mail is > > entirely responsible for its content. List members are reminded of their > > responsibility to evaluate the content of the postings and consult with their > > physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is > > automatically moderated or removed depending on the severity of the attack. > > > > > > > > ---------------------------------------------------------------------------- > > > > Quote Link to comment Share on other sites More sharing options...
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