Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 , When we were expecting Eme (our second) the cf team wanted ultrasounds completed regularly to watch for meconium ilius sp? Anyway they watch for this so that if the baby had it we delivered at a hospital that was able to handle any special needs she may have with it. She ended up not having it, but my understanding is if they do, some need emergent surgery and some need just enemas to clear it from the bowel. Check with your cf team for input, but I would consider getting the alternate ultrasound, just so you know, not all hospitals are equipped to deal with a newborn with these needs. Just my 2 cents worth. Kris in Idaho Morgen and Emerson bwcf Newbie > Hello. I was on this list a couple years ago, and am back again...but >I can't stay long, due to the amt. of emails:( > I am a mother of 4, and we are expecting our 5th baby in July. Our >childrens ages are 7.5 yr. old girl with CF, 6.5 girl, no CF...4 yr. old >boy, no CF... 3 yr. old girl, no CF. > Hubby and I live in the state of MN. and just celebrated our 9th year >anniv. yesterday:) > The reason I am rejoining is because I need some answers and I just >don't feel I am getting straight answers from the health team. > I am due with our 5th kid in July. I am dialated to one already, so >it won't be much longer. > I have had 2 ultrasounds and both times the docs are seeing " a lot of >mucous in the baby's intestines/bowels. " > Here are my questions....the doc wants me to go for a level 2 >ultrasound. Does anyone know if this will really show anything more >than the regular ultrasounds show? The place I have to go for the >ultrasound is 2 hours away, and there are many factors stopping us from >being able to go at this point. > Another questions...should the baby be born with CF, what am I looking >at here as far as complications from birth? Our oldest daughter...with >CF...her social worker said the baby would have to spend some time in >the hospital after birth if born with CF...what will she be staying in >for? I am very worried and do not know what to expect, as our oldest >wasn't diagnosed until she was 18 mo. old. I have more learning to do, >just in case. > If anyone has experienced the possibility of a CF child before birth >and on, please write to me and clue me in on what to expect...will she >be born with breathing problems...etc. etc, and any advice you might >have. > thanks, >-mom of 4, #5 due in July > > > >PLEASE do not post religious emails to the list. > > >------------------------------------------- > > >The opinions and information exchanged on this list should >IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > >-------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 The biggest concern, and probably the reason you are being sent for a Level II is that of a bowel blockage -- a meconium ileus. If your child is born with this, if he/she does not pass the meconium within a specific period of time, or if they cannot clear the blockage, then surgery will be needed. I know, my child (and several others on this list) went through this early in our child's lives. You certainly should have the Level II -- just to be prepared for this possibility. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hello. I was on this list a couple years ago, and am back again...but I can't stay long, due to the amt. of emails:( I am a mother of 4, and we are expecting our 5th baby in July. Our childrens ages are 7.5 yr. old girl with CF, 6.5 girl, no CF...4 yr. old boy, no CF... 3 yr. old girl, no CF. Hubby and I live in the state of MN. and just celebrated our 9th year anniv. yesterday:) The reason I am rejoining is because I need some answers and I just don't feel I am getting straight answers from the health team. I am due with our 5th kid in July. I am dialated to one already, so it won't be much longer. I have had 2 ultrasounds and both times the docs are seeing " a lot of mucous in the baby's intestines/bowels. " Here are my questions....the doc wants me to go for a level 2 ultrasound. Does anyone know if this will really show anything more than the regular ultrasounds show? The place I have to go for the ultrasound is 2 hours away, and there are many factors stopping us from being able to go at this point. Another questions...should the baby be born with CF, what am I looking at here as far as complications from birth? Our oldest daughter...with CF...her social worker said the baby would have to spend some time in the hospital after birth if born with CF...what will she be staying in for? I am very worried and do not know what to expect, as our oldest wasn't diagnosed until she was 18 mo. old. I have more learning to do, just in case. If anyone has experienced the possibility of a CF child before birth and on, please write to me and clue me in on what to expect...will she be born with breathing problems...etc. etc, and any advice you might have. thanks, -mom of 4, #5 due in July Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 , I had level two ultra sounds last year when I was pregnant with Patti. They really are much clearer. These are the ones they use to check babies for things like spinabiffida and down's syndrome. They really are much clearer. They are done the same way as level 1 ultrasounds. I would get it done so that the doctors can see what is really going on with your baby. Also, the doctor they send you to do the ultra sound is generally a high risk ob-gyn. More than likely if something is wrong or terribly suspicious,this will be the doctor that will deliver you. This means a better equipped hospital and more knowledgeable doctors. If it was me I would go. My husband and I balked at going at first because ours was also a two hour drive. Then we figured it was either that or an amnio and I didn't want one of those either. So we went and much to our relief Patti had no signs of spinabiffida or down's syndrome. I think if you went you would feel relieved and you would get the answers you want, as the other doctor is more likely to talk straight. Dawn Newbie > Hello. I was on this list a couple years ago, and am back again...but > I can't stay long, due to the amt. of emails:( > I am a mother of 4, and we are expecting our 5th baby in July. Our > childrens ages are 7.5 yr. old girl with CF, 6.5 girl, no CF...4 yr. old > boy, no CF... 3 yr. old girl, no CF. > Hubby and I live in the state of MN. and just celebrated our 9th year > anniv. yesterday:) > The reason I am rejoining is because I need some answers and I just > don't feel I am getting straight answers from the health team. > I am due with our 5th kid in July. I am dialated to one already, so > it won't be much longer. > I have had 2 ultrasounds and both times the docs are seeing " a lot of > mucous in the baby's intestines/bowels. " > Here are my questions....the doc wants me to go for a level 2 > ultrasound. Does anyone know if this will really show anything more > than the regular ultrasounds show? The place I have to go for the > ultrasound is 2 hours away, and there are many factors stopping us from > being able to go at this point. > Another questions...should the baby be born with CF, what am I looking > at here as far as complications from birth? Our oldest daughter...with > CF...her social worker said the baby would have to spend some time in > the hospital after birth if born with CF...what will she be staying in > for? I am very worried and do not know what to expect, as our oldest > wasn't diagnosed until she was 18 mo. old. I have more learning to do, > just in case. > If anyone has experienced the possibility of a CF child before birth > and on, please write to me and clue me in on what to expect...will she > be born with breathing problems...etc. etc, and any advice you might > have. > thanks, > -mom of 4, #5 due in July > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 I can't speak to ultrasounds, etc., my daughter was born 19 years ago, long before levels of ultrasounds. However, she was born with meconium ileus, which is why the doctors are watching the mucous in her intestines. As you know, babies first stools are black, tarry and thick. Babies with CF are born with extra thick mucous throughout their entire bodies, including the mucous in the intestines. If the mucous causes the already thick black tarry stools to become so thick the baby cannot move her bowels, therefore, causing an obstruction called meconium ileus. My daughter's stools were like cement in her intestines, so they had to go in and surgically remove the blockage. This I say in Layman's terms so that I could understand it better (I wish then they would have told me like this). Surgery for any child with CF at any age is cautionary, especially a tiny newborn. I'm not trying to scare you, and please realize that a lot of advancement has taken place since my daughter was born two decades ago. Also, I have heard that not all children with Meconium Ileus have to have surgery now. Back then, it was done routinely. They've come a long way. About one in ten children born with CF, are born with meconium ileus. My daughter is doing quite well still, but she has had a lot of intestinal problems throughout her life. Take care, and I'll be praying that it all works out fine for you and baby. You have enough to worry about with 5 children! , mom of Shantell 19years Newbie Hello. I was on this list a couple years ago, and am back again...but I can't stay long, due to the amt. of emails:( I am a mother of 4, and we are expecting our 5th baby in July. Our childrens ages are 7.5 yr. old girl with CF, 6.5 girl, no CF...4 yr. old boy, no CF... 3 yr. old girl, no CF. Hubby and I live in the state of MN. and just celebrated our 9th year anniv. yesterday:) The reason I am rejoining is because I need some answers and I just don't feel I am getting straight answers from the health team. I am due with our 5th kid in July. I am dialated to one already, so it won't be much longer. I have had 2 ultrasounds and both times the docs are seeing " a lot of mucous in the baby's intestines/bowels. " Here are my questions....the doc wants me to go for a level 2 ultrasound. Does anyone know if this will really show anything more than the regular ultrasounds show? The place I have to go for the ultrasound is 2 hours away, and there are many factors stopping us from being able to go at this point. Another questions...should the baby be born with CF, what am I looking at here as far as complications from birth? Our oldest daughter...with CF...her social worker said the baby would have to spend some time in the hospital after birth if born with CF...what will she be staying in for? I am very worried and do not know what to expect, as our oldest wasn't diagnosed until she was 18 mo. old. I have more learning to do, just in case. If anyone has experienced the possibility of a CF child before birth and on, please write to me and clue me in on what to expect...will she be born with breathing problems...etc. etc, and any advice you might have. thanks, -mom of 4, #5 due in July PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hi from a fellow mom of many, HAPPY ANNIVERSARY! My 5th daughter was just diagnosed (but still waiting on identity of gene#2) at 19 mos old. All my other children are no CF. A few days before the ped told us she might have CF, I found out I was expecting #6 (due in Nov.). I have been offered but have refused CVS and amnio but I am doing a level 2 ultrasound in 2 weeks when I'm at 18 weeks gestation. The level 2 give a much more in-depth picture of the baby, making sure that major organ development is up to milestones, not just looking at size amd basic structure like a normal ultrasound. I was told it will be able to detect hydrocephalus, heart problems, brain, kidney and lung development much better than a normal scan. I have had one before at 30 wks when I had complications with my last child (and it didn't show the CF!). From my understanding, it probably would give an indication if the digestive track or lungs were obstructed. However, how would this knowledge change your birth plan, since you are so close to delivery? If they found a problem, would you deliver at a different hospital with more neonatal care? Would your regular hospital and doctor have more equipment on hand to help out if they knew in advance? Maybe ask what they perceive the practical benefit of the ultrasound to be before you drive all that way. All the best, Jane mom of (10), Tony (8), (6), Meredith (4), Eleanora (20 mos ) CF/RAD and one on the way Nov. 2001 blessedmomof5@... wrote: > Hello. I was on this list a couple years ago, and am back again...but > I can't stay long, due to the amt. of emails:( > I am a mother of 4, and we are expecting our 5th baby in July. Our > childrens ages are 7.5 yr. old girl with CF, 6.5 girl, no CF...4 yr. old > boy, no CF... 3 yr. old girl, no CF. > Hubby and I live in the state of MN. and just celebrated our 9th year > anniv. yesterday:) > The reason I am rejoining is because I need some answers and I just > don't feel I am getting straight answers from the health team. > I am due with our 5th kid in July. I am dialated to one already, so > it won't be much longer. > I have had 2 ultrasounds and both times the docs are seeing " a lot of > mucous in the baby's intestines/bowels. " > Here are my questions....the doc wants me to go for a level 2 > ultrasound. Does anyone know if this will really show anything more > than the regular ultrasounds show? The place I have to go for the > ultrasound is 2 hours away, and there are many factors stopping us from > being able to go at this point. > Another questions...should the baby be born with CF, what am I looking > at here as far as complications from birth? Our oldest daughter...with > CF...her social worker said the baby would have to spend some time in > the hospital after birth if born with CF...what will she be staying in > for? I am very worried and do not know what to expect, as our oldest > wasn't diagnosed until she was 18 mo. old. I have more learning to do, > just in case. > If anyone has experienced the possibility of a CF child before birth > and on, please write to me and clue me in on what to expect...will she > be born with breathing problems...etc. etc, and any advice you might > have. > thanks, > -mom of 4, #5 due in July > > PLEASE do not post religious emails to the list. > > ------------------------------------------- > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 I should add to my previous message that if the ultrasound can give you advance warning that your baby may need surgery right away for a block, I think it would be really valuable to do. Mental preparation for that sort of thing is very important and you'll be able to make plans for care of your other children while baby is in hospital for a longer stay. I know how hard it is to find overnight care for four young children while you stay with the little one! Jane Waldock Consulting wrote: > Hi from a fellow mom of many, > HAPPY ANNIVERSARY! > My 5th daughter was just diagnosed (but still waiting on identity of gene#2) at > 19 mos old. All my other children are no CF. A few days before the ped told us > she might have CF, I found out I was expecting #6 (due in Nov.). I have been > offered but have refused CVS and amnio but I am doing a level 2 ultrasound in 2 > weeks when I'm at 18 weeks gestation. The level 2 give a much more in-depth > picture of the baby, making sure that major organ development is up to > milestones, not just looking at size amd basic structure like a normal > ultrasound. I was told it will be able to detect hydrocephalus, heart problems, > brain, kidney and lung development much better than a normal scan. I have had > one before at 30 wks when I had complications with my last child (and it didn't > show the CF!). From my understanding, it probably would give an indication if > the digestive track or lungs were obstructed. However, how would this knowledge > change your birth plan, since you are so close to delivery? If they found a > problem, would you deliver at a different hospital with more neonatal care? > Would your regular hospital and doctor have more equipment on hand to help out > if they knew in advance? Maybe ask what they perceive the practical benefit of > the ultrasound to be before you drive all that way. > All the best, > Jane mom of (10), Tony (8), (6), Meredith (4), Eleanora (20 mos ) > CF/RAD and one on the way Nov. 2001 > > blessedmomof5@... wrote: > > > Hello. I was on this list a couple years ago, and am back again...but > > I can't stay long, due to the amt. of emails:( > > I am a mother of 4, and we are expecting our 5th baby in July. Our > > childrens ages are 7.5 yr. old girl with CF, 6.5 girl, no CF...4 yr. old > > boy, no CF... 3 yr. old girl, no CF. > > Hubby and I live in the state of MN. and just celebrated our 9th year > > anniv. yesterday:) > > The reason I am rejoining is because I need some answers and I just > > don't feel I am getting straight answers from the health team. > > I am due with our 5th kid in July. I am dialated to one already, so > > it won't be much longer. > > I have had 2 ultrasounds and both times the docs are seeing " a lot of > > mucous in the baby's intestines/bowels. " > > Here are my questions....the doc wants me to go for a level 2 > > ultrasound. Does anyone know if this will really show anything more > > than the regular ultrasounds show? The place I have to go for the > > ultrasound is 2 hours away, and there are many factors stopping us from > > being able to go at this point. > > Another questions...should the baby be born with CF, what am I looking > > at here as far as complications from birth? Our oldest daughter...with > > CF...her social worker said the baby would have to spend some time in > > the hospital after birth if born with CF...what will she be staying in > > for? I am very worried and do not know what to expect, as our oldest > > wasn't diagnosed until she was 18 mo. old. I have more learning to do, > > just in case. > > If anyone has experienced the possibility of a CF child before birth > > and on, please write to me and clue me in on what to expect...will she > > be born with breathing problems...etc. etc, and any advice you might > > have. > > thanks, > > -mom of 4, #5 due in July > > > > PLEASE do not post religious emails to the list. > > > > ------------------------------------------- > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 You should also make sure there is a pediatric surgeon IN RESIDENCE at the hospital where you deliver if it is not also your CF center. I had an ultrasound with my daughter to be positive she did/did not have CF so that if she did, I could deliver at our CF center. My local hospital does not have a pediatric surgeon in residence and would have transported her by helicopter to our CF center for surgery and I would not be present. That was something I wanted to avoid! Krishnan Mom of Santosh, almost 4wcf and Leela, almost 2wocf Re: Newbie I should add to my previous message that if the ultrasound can give you advance warning that your baby may need surgery right away for a block, I think it would be really valuable to do. Mental preparation for that sort of thing is very important and you'll be able to make plans for care of your other children while baby is in hospital for a longer stay. I know how hard it is to find overnight care for four young children while you stay with the little one! Jane Waldock Consulting wrote: > Hi from a fellow mom of many, > HAPPY ANNIVERSARY! > My 5th daughter was just diagnosed (but still waiting on identity of gene#2) at > 19 mos old. All my other children are no CF. A few days before the ped told us > she might have CF, I found out I was expecting #6 (due in Nov.). I have been > offered but have refused CVS and amnio but I am doing a level 2 ultrasound in 2 > weeks when I'm at 18 weeks gestation. The level 2 give a much more in-depth > picture of the baby, making sure that major organ development is up to > milestones, not just looking at size amd basic structure like a normal > ultrasound. I was told it will be able to detect hydrocephalus, heart problems, > brain, kidney and lung development much better than a normal scan. I have had > one before at 30 wks when I had complications with my last child (and it didn't > show the CF!). From my understanding, it probably would give an indication if > the digestive track or lungs were obstructed. However, how would this knowledge > change your birth plan, since you are so close to delivery? If they found a > problem, would you deliver at a different hospital with more neonatal care? > Would your regular hospital and doctor have more equipment on hand to help out > if they knew in advance? Maybe ask what they perceive the practical benefit of > the ultrasound to be before you drive all that way. > All the best, > Jane mom of (10), Tony (8), (6), Meredith (4), Eleanora (20 mos ) > CF/RAD and one on the way Nov. 2001 > > blessedmomof5@... wrote: > > > Hello. I was on this list a couple years ago, and am back again...but > > I can't stay long, due to the amt. of emails:( > > I am a mother of 4, and we are expecting our 5th baby in July. Our > > childrens ages are 7.5 yr. old girl with CF, 6.5 girl, no CF...4 yr. old > > boy, no CF... 3 yr. old girl, no CF. > > Hubby and I live in the state of MN. and just celebrated our 9th year > > anniv. yesterday:) > > The reason I am rejoining is because I need some answers and I just > > don't feel I am getting straight answers from the health team. > > I am due with our 5th kid in July. I am dialated to one already, so > > it won't be much longer. > > I have had 2 ultrasounds and both times the docs are seeing " a lot of > > mucous in the baby's intestines/bowels. " > > Here are my questions....the doc wants me to go for a level 2 > > ultrasound. Does anyone know if this will really show anything more > > than the regular ultrasounds show? The place I have to go for the > > ultrasound is 2 hours away, and there are many factors stopping us from > > being able to go at this point. > > Another questions...should the baby be born with CF, what am I looking > > at here as far as complications from birth? Our oldest daughter...with > > CF...her social worker said the baby would have to spend some time in > > the hospital after birth if born with CF...what will she be staying in > > for? I am very worried and do not know what to expect, as our oldest > > wasn't diagnosed until she was 18 mo. old. I have more learning to do, > > just in case. > > If anyone has experienced the possibility of a CF child before birth > > and on, please write to me and clue me in on what to expect...will she > > be born with breathing problems...etc. etc, and any advice you might > > have. > > thanks, > > -mom of 4, #5 due in July > > > > PLEASE do not post religious emails to the list. > > > > ------------------------------------------- > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hi , I don't know that there are 2 cases of CF exactly alike. Your child could be born and not have any problems right away. My son did have problems right away - he had meconium illieus (sp) which is when the thick meconium gets blocked up and in my son's case perferated a whole and he needed surgery right away. They knew this because he didn't have any interest in eating and no meconium had passed by the time he was about 12 hours old. He didn't have lung involvment at all until a few years old. We were not aware that he had CF while I was pregnant with him. I hope this helps... Wende (mom to Joe 9wcf) Newbie > Hello. I was on this list a couple years ago, and am back again...but > I can't stay long, due to the amt. of emails:( > I am a mother of 4, and we are expecting our 5th baby in July. Our > childrens ages are 7.5 yr. old girl with CF, 6.5 girl, no CF...4 yr. old > boy, no CF... 3 yr. old girl, no CF. > Hubby and I live in the state of MN. and just celebrated our 9th year > anniv. yesterday:) > The reason I am rejoining is because I need some answers and I just > don't feel I am getting straight answers from the health team. > I am due with our 5th kid in July. I am dialated to one already, so > it won't be much longer. > I have had 2 ultrasounds and both times the docs are seeing " a lot of > mucous in the baby's intestines/bowels. " > Here are my questions....the doc wants me to go for a level 2 > ultrasound. Does anyone know if this will really show anything more > than the regular ultrasounds show? The place I have to go for the > ultrasound is 2 hours away, and there are many factors stopping us from > being able to go at this point. > Another questions...should the baby be born with CF, what am I looking > at here as far as complications from birth? Our oldest daughter...with > CF...her social worker said the baby would have to spend some time in > the hospital after birth if born with CF...what will she be staying in > for? I am very worried and do not know what to expect, as our oldest > wasn't diagnosed until she was 18 mo. old. I have more learning to do, > just in case. > If anyone has experienced the possibility of a CF child before birth > and on, please write to me and clue me in on what to expect...will she > be born with breathing problems...etc. etc, and any advice you might > have. > thanks, > -mom of 4, #5 due in July > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hi . I see many people have already told you about meconium ileus. In many cases of meconium ileus, the ultrasound will show the baby has a distended abdomen. My daughter Rina had surgery within 12 hours of birth for meconium ileus and the surgeon said her meconium was so thick it was almost like asphalt! It's hard to believe a tiny newborn can undergo surgery so soon after birth - the good news is that newborns are incredibly tough and usually come through this type of surgery with flying colours. The procedure is called a laparotomy, where an incision is made in the abdomen and an ileostomy or colostomy performed (depending on where the major blockage is). The bowel is cleaned out with a substance called Mucomyst, which dissolves the meconium. One or both ends of the bowel incision are drawn out through the skin to form stomas - six months or so later another surgery re-connects the bowel. Although it is very rare, some kids have post-op complications with bowels leaking or bursting. Unfortunately this happened to Rina and she went through a long cycle of infections and complications. If your baby does need surgery, ask the surgeon NOT to suture the bowel with a Bishop-Koop anastomosis. Write me off-list if it comes to that. Best of luck and congratulations! Max, father of (11), Simon(9), (6) and Rina(almost 3 wcf) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hi , so happy to see you back on the list, although the reason isn't positive. I think you've gotten some informative mails about the level 2 ultrasound by now. We had it done for the amnio and the difference to a normal ultrasound is unbelievable. I really hope you can stay on the list for a while. How is na doing? Bye Torsten, dad of Fiona 4wcf e-mail: aberdeen95@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 HI !!!!!!! I think/assume you are , my long lost friend!!!!!! Anyway, nice to hear from you. Did they mention bright bowel? they got really concerned with ph when I was pregnant, saying he had bright bowel on ultrasound (fortunately, they do level 2 on site at our hospital) and they did weekly ultrasounds (no biggie, though, b/c they were already doing weekly ultrasounds and nonstress tests after 24 weeks anyway, b/c my pregnancies are high risk category due to postive anticardiolipen antibiodies, and hx of preterm labor and delivery. anyway, after he was born, they watched him close and he did not pass meconium, so they did enemas, the doc said at the time just to play it safe, basically. In spite of this, and in spite of him being a 33 weeker, he still went home with me at 3 days old. (on a monitor, but for other reasons than risk of CF, babies of moms with pos. anticardiolipen antibodoes are at risk of bradycardia, and had significant brady/apnea as an infant) They say that typically,a s long as they are full term, there are not alot of breathing difficulties initially. ph did develop some wheezing at about 3 weeks of age, and continued on and off til we had him sweat tested and diagnosed about a year of age. Good luck to you!!!! and congrats on the new b aby to come!!!!! Jen (remember me???) Mommy of 7, including ph 23 months with CF, Mallory 3 with CF, RAD, GERD, OSA, port-a-cath; 5 with CF, port-a-cath; 6, Miranda 9, Mollie 8 yo foster daughter with Type 1 diabetes (juvenile diabetes) soon to be adopted by us; Madison 5 yo foster daughter, soon to be adopted by us also ; also aunt to 4 yo with CF Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.