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Seeking Grainne's Parents

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Hi,

My name is Donna and I have 2 daughters who have both

been diagnosed with RSS by Dr. Harbison. my

youngest is 3 and Dr.H is amazed at much she looks and

acts like Grainne. She was very adamant at the

convention that I contact you.

has only been on Periactin for 1 month and

showed no weight gain. I think it is due to her high

energy level.

I know through recent e-mails that Grainne had a

g-tube put in. Are you happy with the decision and

how has Grainne handled it? Also, Dr.H mentioned that

Grainne has a high energy level. Have you had her

evaluated for ADD? Dr.H is wanting us to have

evaluated and I am trying to decide what is

normal 3yr old behavior and what is considered

abnormal.

If you don't mind answering my questions, I would

appreciate it. Please e-mail privately too:

Dsklamer@....

Thanks,

Donna (mom to 12 and 3 both RSS)

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Donna,

I didn't get a chance to mention it to you, but I really thought

looked very much like Grainne also! I couldn't believe the resemblance!

Carmen

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Hi ! You've found me I'm Grianne's mom. I'll email you privately and try to

answeer your questions. Your daughter must be beautiful and a real charmer

and often a real handful if she's anything like my girl

Maggie Halliday Mom to Grainne

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