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Welcome back Jeannie,

Sounds like you were able to cope with the reunion, its nice to go to those

gatherings and be able to see family you havent seen for awhile. God bless to

you too. Sandy

I'm back

Hello Group,

I'm back home in New Jersey after going down to Virginia for a family

reunion on the 4th. of July......97 of us made it and it was great to see the

majority of my aunts/uncles and cousins on my mother's side of the family. It

was the first time most of them got to see my PLS walk. I wasn't sure how I

would feel with that many people watching me all at once, but I just bit the

bullet, and did what I needed to do and everything worked out fine. I think

meeting Ronnie in West Virginia the Wed. before helped alot to. She is such an

inspiration to me. She has such a positive attitude with all she has been

through over the years. Here I was whining and throwing my walker down the

driveway a few weeks ago, feeling bad about what I couldn't do anymore. After

spending a few hours with Ronnie I came away with a new perspective about this

whole PLS experience and I can't thank her enough. Now I appreciate what I

still can do and focus more on that, than what I used to could do. Thanks Ronnie

for being you. And thanks to this group, for you each have helped me to take

another step on this jouney. God Bless you all..........Jeannie/nj

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  • 7 months later...

Fantastic ~~~~ welcome home!

Ellen

**************************************

----- Original Message -----

From: Bill Manson

from what appears to have been a very successful ablation yesterday.(snip)

***********************

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  • 2 years later...

Hi Val and everyone...

I have been off the boards for a while. I was feeling much better and

had stopped my Cortef back in February. Well, this summer I've had

some stress going on and the doctor has been trying to talk me into

taking Cortef again for fatigue. I didn't want to (don't like to take

anything) but I finally agreed after trying another round of licorice,

b & C vitamins. I am taking 5 mg at 5 am, 2.5 at about 10 am, 2.5 at 3

pm and 2.5 at bedtime for a total of 12.5mg per day. It has helped in

that I don't want to stay in bed and hide. I have started exercising

again and getting much more done. I haven't had any low blood sugar

episodes with the exercise since starting the Cortef. I have been on

the Cortef for about 3 weeks. This week I am having trouble sleeping.

I am waking up really early and last night seems as though I tossed and

turned all night. I have also gained about 4 pounds. Now I wonder if

I need to dose differently, or stop altogether. Any thoughts from

anyone?

Thanks

Beebe

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