Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 www.recipezaar.com gives lots of good recipes for what you need. good luck with your daughter's treatment, it can be hard sometimes to stick to it. andrea New-child with hypothyroidism-complicated medical history-information appreciate Hello-My daughter (age 10) was just diagnosed with hypothyroidism today. In addition to hypothyroidism she also suffers from insulin resistance and a host of other problems as a result of a brainstem tumor (part of which is still there )and its treatment. The nurse who called today did give me her lab results but I was caught off guard and did not write them down. I do remember her saying that her TSH is rising from last time (six months ago) and her T4 is falling. She is being started on 50mcg levothyroxine. She will begin taking the levothyroxine tomorrow. What can I expect? We have had a lot of problem with weight gain despite an active lifestyle and a strict diabetic/low fat diet. Will the new meds help fight this problem? Is this a typical starting dosage? Are there any side effects I should be aware of? Any other information that would be helpful?Thanks for the information.Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Patty, What type of brainstem tumor did your daughter have? I was diagnosed with a benign menigioma located on the left side of my brain near the base of my skull about 10 years ago. I had been diagnosed as hypothyroid several years before this was discovered. During test with an Ear, Nose, Throat specialist before surgery to remove the brain tumor they discovered that I also had a very large tumor on my thryoid. The needle biopsy came back showing suspicous cells, so two weeks after the brain tumor was removed, I had half of my thyroid removed. I had to have the other half of my thyroid removed 2 years ago. I have asked all of my doctors about a relationship between the brain tumor and the thyroid problems I have experienced, but can't get them to say yes or no about a relation between the two. However, I belong to a menigioma brain tumor support group and many of the people who have these types of brain tumors also have thyroid issues. Jeannie New-child with hypothyroidism-complicated medical history-information appreciate Hello-My daughter (age 10) was just diagnosed with hypothyroidism today. In addition to hypothyroidism she also suffers from insulin resistance and a host of other problems as a result of a brainstem tumor (part of which is still there )and its treatment. The nurse who called today did give me her lab results but I was caught off guard and did not write them down. I do remember her saying that her TSH is rising from last time (six months ago) and her T4 is falling. She is being started on 50mcg levothyroxine. She will begin taking the levothyroxine tomorrow. What can I expect? We have had a lot of problem with weight gain despite an active lifestyle and a strict diabetic/low fat diet. Will the new meds help fight this problem? Is this a typical starting dosage? Are there any side effects I should be aware of? Any other information that would be helpful?Thanks for the information.Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedy No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 's is a ganglioglioma benign but considered malignant by location. Basically good pathology worst location since your brainstem controls, heartrate, respiration, blood pressure-all the things that keep you alive that you don't have to think about. 's metabolic problems came immediately after her last surgery so there is no doubt the two are related just not sure exactly what the mechanisms are. There are still so many things about the body they don't understand and any neurological damage causes so many complex problems it is tough to sort out exact causes. I think they don't give answers sometimes because they just don't know. Many people with brain tumor have endocrine problems but usually following radiation. In 's case she has never had radiation so I am not exactly sure why her body has become extremely resistant to insulin or why her thyroid is producing less and less. You would think that if her pituitary was injured in the surgery she would produce less TSH not more. Who knows. Other than the thyroid problems are you doing well since your brain tumor surgery? Where they able to get it all? Any side effects of treatment? Thanks. Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedy Jeannie wrote: Patty, What type of brainstem tumor did your daughter have? I was diagnosed with a benign menigioma located on the left side of my brain near the base of my skull about 10 years ago. I had been diagnosed as hypothyroid several years before this was discovered. During test with an Ear, Nose, Throat specialist before surgery to remove the brain tumor they discovered that I also had a very large tumor on my thryoid. The needle biopsy came back showing suspicous cells, so two weeks after the brain tumor was removed, I had half of my thyroid removed. I had to have the other half of my thyroid removed 2 years ago. I have asked all of my doctors about a relationship between the brain tumor and the thyroid problems I have experienced, but can't get them to say yes or no about a relation between the two. However, I belong to a menigioma brain tumor support group and many of the people who have these types of brain tumors also have thyroid issues. Jeannie New-child with hypothyroidism-complicated medical history-information appreciate Hello-My daughter (age 10) was just diagnosed with hypothyroidism today. In addition to hypothyroidism she also suffers from insulin resistance and a host of other problems as a result of a brainstem tumor (part of which is still there )and its treatment. The nurse who called today did give me her lab results but I was caught off guard and did not write them down. I do remember her saying that her TSH is rising from last time (six months ago) and her T4 is falling. She is being started on 50mcg levothyroxine. She will begin taking the levothyroxine tomorrow. What can I expect? We have had a lot of problem with weight gain despite an active lifestyle and a strict diabetic/low fat diet. Will the new meds help fight this problem? Is this a typical starting dosage? Are there any side effects I should be aware of? Any other information that would be helpful?Thanks for the information.Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedy No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 Patti J. Kennedy Support Pediatric Brain Tumor Research http://www.justgiving.com/pfp/elizabethkennedy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Thanks. It looks like they have some good recipes. Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedy Teague wrote: www.recipezaar.com gives lots of good recipes for what you need. good luck with your daughter's treatment, it can be hard sometimes to stick to it. andrea New-child with hypothyroidism-complicated medical history-information appreciate Hello-My daughter (age 10) was just diagnosed with hypothyroidism today. In addition to hypothyroidism she also suffers from insulin resistance and a host of other problems as a result of a brainstem tumor (part of which is still there )and its treatment. The nurse who called today did give me her lab results but I was caught off guard and did not write them down. I do remember her saying that her TSH is rising from last time (six months ago) and her T4 is falling. She is being started on 50mcg levothyroxine. She will begin taking the levothyroxine tomorrow. What can I expect? We have had a lot of problem with weight gain despite an active lifestyle and a strict diabetic/low fat diet. Will the new meds help fight this problem? Is this a typical starting dosage? Are there any side effects I should be aware of? Any other information that would be helpful?Thanks for the information.Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedy Patti J. Kennedy Support Pediatric Brain Tumor Research http://www.justgiving.com/pfp/elizabethkennedy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Patty, I just had my 10 year MRI in December and it shows no regrowth. My Neurosurgeon said that if it didn't come back in 10 years that it probably won't. My tumor was about the size of a half-dollar and located in the area that controls hearing. The only lasting effects I have is some hearing loss, mostly low pitch and my sense of balance is not real good, so I don't climb ladders, etc.. My hearing bothers me if I am in crowded, noisey places. I was 38 years old when they found the tumor. I am very thankful they were able to get all it and that I have not had many lasting problems. I didn't have any radiation. I wasn't diagnosed with a thryoid problem until I was in my early 30's, but I suspect that I had thyoid problems as a child. My NS said that the type of brain tumor I had was very slow growing and that I had probably had it since childhood. Were they able to get all of 's tumor? It is hard enough to understand all that is happening when your are an adult, but it must really be difficult for a child to understand. Have they checked her pituitary with a MRI? When they discovered my brain tumor, they also thought that I might have one on my pituitary, but determined that it was just enlarged, not a tumor. This is another reason that I suspect that the two problems are related. I hope does good with her thyroid treatment. It may take time to reach the correct medication dosage. Jeannie New-child with hypothyroidism-complicated medical history-information appreciate Hello-My daughter (age 10) was just diagnosed with hypothyroidism today. In addition to hypothyroidism she also suffers from insulin resistance and a host of other problems as a result of a brainstem tumor (part of which is still there )and its treatment. The nurse who called today did give me her lab results but I was caught off guard and did not write them down. I do remember her saying that her TSH is rising from last time (six months ago) and her T4 is falling. She is being started on 50mcg levothyroxine. She will begin taking the levothyroxine tomorrow. What can I expect? We have had a lot of problem with weight gain despite an active lifestyle and a strict diabetic/low fat diet. Will the new meds help fight this problem? Is this a typical starting dosage? Are there any side effects I should be aware of? Any other information that would be helpful?Thanks for the information.Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedy No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 Patti J. Kennedy Support Pediatric Brain Tumor Research http://www.justgiving.com/pfp/elizabethkennedy No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 's last surgery her neurosurgeon was able to remove 95% of the tumor, which was about 6cm across at it's largest part. is very aware and very accepting of her brain tumor and all that has come with it. I am always amazed at how well she handles it all. She also has balance problems, (she adores her three wheel bike), left sided weakness, swallowing problems and a host of other neuro problems, but they never slow her down and she is so outgoing that her friends and classmates are very good about it all. She was even elected to the student council this year. In the beginning kids would ask her why she talked funny or why she had to thicken her drinks etc. She just answers them matter-of-factly. Although once a boy asked her why she talked funny who she had explained it to before she got exasperated with him and looked him straight in the eye and said "I have a brain tumor, DUH!" has been getting MRIs every three months since diagnosis in March 2003 (wow three years this Monday). We live in the Kansas City area but go to Chicago for treatment, so she has one of the best pediatric brain tumor teams in the world. I am sure if there were anything with her pituitary they would catch it. They have saved her life more than once these last three years. I am glad to hear you are doing well. Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedyJeannie'>http://www.justgiving.com/pfp/elizabethkennedyJeannie wrote: Patty, I just had my 10 year MRI in December and it shows no regrowth. My Neurosurgeon said that if it didn't come back in 10 years that it probably won't. My tumor was about the size of a half-dollar and located in the area that controls hearing. The only lasting effects I have is some hearing loss, mostly low pitch and my sense of balance is not real good, so I don't climb ladders, etc.. My hearing bothers me if I am in crowded, noisey places. I was 38 years old when they found the tumor. I am very thankful they were able to get all it and that I have not had many lasting problems. I didn't have any radiation. I wasn't diagnosed with a thryoid problem until I was in my early 30's, but I suspect that I had thyoid problems as a child. My NS said that the type of brain tumor I had was very slow growing and that I had probably had it since childhood. Were they able to get all of 's tumor? It is hard enough to understand all that is happening when your are an adult, but it must really be difficult for a child to understand. Have they checked her pituitary with a MRI? When they discovered my brain tumor, they also thought that I might have one on my pituitary, but determined that it was just enlarged, not a tumor. This is another reason that I suspect that the two problems are related. I hope does good with her thyroid treatment. It may take time to reach the correct medication dosage. Jeannie New-child with hypothyroidism-complicated medical history-information appreciate Hello-My daughter (age 10) was just diagnosed with hypothyroidism today. In addition to hypothyroidism she also suffers from insulin resistance and a host of other problems as a result of a brainstem tumor (part of which is still there )and its treatment. The nurse who called today did give me her lab results but I was caught off guard and did not write them down. I do remember her saying that her TSH is rising from last time (six months ago) and her T4 is falling. She is being started on 50mcg levothyroxine. She will begin taking the levothyroxine tomorrow. What can I expect? We have had a lot of problem with weight gain despite an active lifestyle and a strict diabetic/low fat diet. Will the new meds help fight this problem? Is this a typical starting dosage? Are there any side effects I should be aware of? Any other information that would be helpful?Thanks for the information.Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedy No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 Patti J. Kennedy Support Pediatric Brain Tumor Research http://www.justgiving.com/pfp/elizabethkennedy No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 Patti J. Kennedy Support Pediatric Brain Tumor Research http://www.justgiving.com/pfp/elizabethkennedy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 I do remember her saying that her TSH is rising from last time (six months ago) and her T4 is falling. She is being started on 50mcg levothyroxine. She will begin taking the levothyroxine tomorrow. What can I expect? We have had a lot of problem with weight gain despite an active lifestyle and a strict diabetic/low fat diet. Will the new meds help fight this problem? Is this a typical starting dosage? Are there any side effects I should be aware of? Any other information that would be helpful? Thanks for the information. Patti J. Kennedy Support Pediatric Brain Tumor Research http://www.justgiving.com/pfp/elizabethkennedy TSH is a pituary gland hormone, it stimulates the thyroid to produce more or less hormone.. T4 and T3 are thyroid hormones.. T4 is considered the storage hormone, T3 is considered the active hormone.. The thyroid produces T4 and some T3, the body then converts T4 to T3 on a as needed basis.. T3 regulates the body's metabolism, it effects body temperature, heart rate, body wieght and even sugar metabolism. 50mcg is an average starting dose but it really depends on your daughters health..wieght and how well she responses to medication. Being diabetic you are going to want to keep a close eye on that also as her thyroid levels go up she may or may not need less or more insulin. Make sure they run labs in 6 weeks after starting the meds..it takes the body 6 weeks to level out at that dose..it does not mean it is the optimal dose for her but the optimal blood levels she will achieve at that strength. Make sure the doctor also runs a free T3 test on her.. being insulin resistance and with everything else going on she has a chance of being thyroid resistance too, meaning she may need a higher than normal dose of replacement medication. The pituary gland is responsible for other hormones also so if she has nto had it yet it would be a good idea to do a full hormone work up..estrogen, androgen, growth etc. The main signs you want to watch for is hyper thyroidism..menaing she is getting too much hormone..high heart rate..sweating, shakey etc. Mind you do not be too surprised if her body reacts quickly for the good with in the first week or two and then takes a step back.. this generally happens as the body adjusts to hormone levels.. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Jeannie.... could you post the link to the brain tumor support group? It may be of help to others.... Topper ()Proud Group Owner On Tue, 14 Mar 2006 21:40:18 -0600 Jeannie writes: Patty, What type of brainstem tumor did your daughter have? I was diagnosed with a benign menigioma located on the left side of my brain near the base of my skull about 10 years ago. I had been diagnosed as hypothyroid several years before this was discovered. During test with an Ear, Nose, Throat specialist before surgery to remove the brain tumor they discovered that I also had a very large tumor on my thryoid. The needle biopsy came back showing suspicous cells, so two weeks after the brain tumor was removed, I had half of my thyroid removed. I had to have the other half of my thyroid removed 2 years ago. I have asked all of my doctors about a relationship between the brain tumor and the thyroid problems I have experienced, but can't get them to say yes or no about a relation between the two. However, I belong to a menigioma brain tumor support group and many of the people who have these types of brain tumors also have thyroid issues. Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Thanks for all the info kats. The nurse said yesterday that we need to go to the outpatient lab in six weeks so that is in place. Our pediatric endo has run a full panel and everything else seems to be okay. With all of 's problems I am sometimes more well read than 's doctors and they have gotten used to me asking questions and closely following her care. I always wonder if I drive them crazy since I have been know to bring in medical journal articles to back up my points when I feel something might need more follow-up or could be related to something else going on with her. They seem to take it all in stride though. I just figure I am her advocate and it is my job to make sure she receives the best care possible. Patti Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedykats3boys wrote: I do remember her saying thather TSH is rising from last time (six months ago) and her T4 isfalling. She is being started on 50mcg levothyroxine. She willbegin taking the levothyroxine tomorrow. What can I expect? Wehave had a lot of problem with weight gain despite an activelifestyle and a strict diabetic/low fat diet. Will the new medshelp fight this problem? Is this a typical starting dosage? Arethere any side effects I should be aware of? Any other informationthat would be helpful?Thanks for the information.Patti J. KennedySupport Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedyTSH is a pituary gland hormone, it stimulates the thyroid to produce more or less hormone.. T4 and T3 are thyroid hormones..T4 is considered the storage hormone, T3 is considered the active hormone..The thyroid produces T4 and some T3, the body then converts T4 to T3 on a as needed basis..T3 regulates the body's metabolism, it effects body temperature, heart rate, body wieght and even sugar metabolism.50mcg is an average starting dose but it really depends on your daughters health..wieght and how well she responses to medication.Being diabetic you are going to want to keep a close eye on that also as her thyroid levels go up she may or may not need less or more insulin.Make sure they run labs in 6 weeks after starting the meds..it takes the body 6 weeks to level out at that dose..it does not mean it is the optimal dose for her but the optimal blood levels she will achieve at that strength.Make sure the doctor also runs a free T3 test on her.. being insulin resistance and with everything else going on she has a chance of being thyroid resistance too, meaning she may need a higher than normal dose of replacement medication.The pituary gland is responsible for other hormones also so if she has nto had it yet it would be a good idea to do a full hormone work up..estrogen, androgen, growth etc.The main signs you want to watch for is hyper thyroidism..menaing she is getting too much hormone..high heart rate..sweating, shakey etc.Mind you do not be too surprised if her body reacts quickly for the good with in the first week or two and then takes a step back.. this generally happens as the body adjusts to hormone levels..Kats3boys Patti J. Kennedy Support Pediatric Brain Tumor Research http://www.justgiving.com/pfp/elizabethkennedy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 who cares if they think you're crazy... as an advocate, you rock! andrea Re: Re: New-child with hypothyroidism-complicated medical history-information appreciate Thanks for all the info kats. The nurse said yesterday that we need to go to the outpatient lab in six weeks so that is in place. Our pediatric endo has run a full panel and everything else seems to be okay. With all of 's problems I am sometimes more well read than 's doctors and they have gotten used to me asking questions and closely following her care. I always wonder if I drive them crazy since I have been know to bring in medical journal articles to back up my points when I feel something might need more follow-up or could be related to something else going on with her. They seem to take it all in stride though. I just figure I am her advocate and it is my job to make sure she receives the best care possible. Patti Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedykats3boys wrote: I do remember her saying thather TSH is rising from last time (six months ago) and her T4 isfalling. She is being started on 50mcg levothyroxine. She willbegin taking the levothyroxine tomorrow. What can I expect? Wehave had a lot of problem with weight gain despite an activelifestyle and a strict diabetic/low fat diet. Will the new medshelp fight this problem? Is this a typical starting dosage? Arethere any side effects I should be aware of? Any other informationthat would be helpful?Thanks for the information.Patti J. KennedySupport Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedyTSH is a pituary gland hormone, it stimulates the thyroid to produce more or less hormone.. T4 and T3 are thyroid hormones..T4 is considered the storage hormone, T3 is considered the active hormone..The thyroid produces T4 and some T3, the body then converts T4 to T3 on a as needed basis..T3 regulates the body's metabolism, it effects body temperature, heart rate, body wieght and even sugar metabolism.50mcg is an average starting dose but it really depends on your daughters health..wieght and how well she responses to medication.Being diabetic you are going to want to keep a close eye on that also as her thyroid levels go up she may or may not need less or more insulin.Make sure they run labs in 6 weeks after starting the meds..it takes the body 6 weeks to level out at that dose..it does not mean it is the optimal dose for her but the optimal blood levels she will achieve at that strength.Make sure the doctor also runs a free T3 test on her.. being insulin resistance and with everything else going on she has a chance of being thyroid resistance too, meaning she may need a higher than normal dose of replacement medication.The pituary gland is responsible for other hormones also so if she has nto had it yet it would be a good idea to do a full hormone work up..estrogen, androgen, growth etc.The main signs you want to watch for is hyper thyroidism..menaing she is getting too much hormone..high heart rate..sweating, shakey etc.Mind you do not be too surprised if her body reacts quickly for the good with in the first week or two and then takes a step back.. this generally happens as the body adjusts to hormone levels..Kats3boys Patti J. Kennedy Support Pediatric Brain Tumor Research http://www.justgiving.com/pfp/elizabethkennedy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Patti, It sounds like is a very special person. I work at a school in Texas and see children with medical problems everyday. She seems to have a great attitude that will carry her through anything. I know you are very proud of her. My daughter and her almost 6 month old daughter are currently living with us. Her husband has decided after being in her life for 13 years, 7 years as her husband, that this is not really what he wants in life. My husband and I have adored this tiny little girl since the day she was born and never thought we could love her more, but having her with us daily has been such a joy for us. It is hard watching how much this is hurting our daughter. She is 31 years old, but no matter what, they are always your little girl. We would do anything for them. is very lucky to have a Mom that will fight for her and always be there for her. Working for a school with children everday, I have sadly discovered that not all children are as lucky as our daughters. Keep fighting for that darling daughter. Jeannie New-child with hypothyroidism-complicated medical history-information appreciate Hello-My daughter (age 10) was just diagnosed with hypothyroidism today. In addition to hypothyroidism she also suffers from insulin resistance and a host of other problems as a result of a brainstem tumor (part of which is still there )and its treatment. The nurse who called today did give me her lab results but I was caught off guard and did not write them down. I do remember her saying that her TSH is rising from last time (six months ago) and her T4 is falling. She is being started on 50mcg levothyroxine. She will begin taking the levothyroxine tomorrow. What can I expect? We have had a lot of problem with weight gain despite an active lifestyle and a strict diabetic/low fat diet. Will the new meds help fight this problem? Is this a typical starting dosage? Are there any side effects I should be aware of? Any other information that would be helpful?Thanks for the information.Patti J. Kennedy Support Pediatric Brain Tumor Researchhttp://www.justgiving.com/pfp/elizabethkennedy No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 Patti J. Kennedy Support Pediatric Brain Tumor Research http://www.justgiving.com/pfp/elizabethkennedy No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.1.385 / Virus D No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 This is also a yahoo group. It is for a specific type of brain tumor, a meningioma, but I have seen people with other types post before. There are a lot of people who have this type of brain tumor that also have thyroid problems. Most meningiomas have hormone receptors, so it seems to me that there is probably a relationship between the two. http://health.groups.yahoo.com/group/meningioma/ Re: New-child with hypothyroidism-complicated medical history-information appreciate Jeannie.... could you post the link to the brain tumor support group? It may be of help to others.... Topper ()Proud Group Owner On Tue, 14 Mar 2006 21:40:18 -0600 Jeannie writes: Patty, What type of brainstem tumor did your daughter have? I was diagnosed with a benign menigioma located on the left side of my brain near the base of my skull about 10 years ago. I had been diagnosed as hypothyroid several years before this was discovered. During test with an Ear, Nose, Throat specialist before surgery to remove the brain tumor they discovered that I also had a very large tumor on my thryoid. The needle biopsy came back showing suspicous cells, so two weeks after the brain tumor was removed, I had half of my thyroid removed. I had to have the other half of my thyroid removed 2 years ago. I have asked all of my doctors about a relationship between the brain tumor and the thyroid problems I have experienced, but can't get them to say yes or no about a relation between the two. However, I belong to a menigioma brain tumor support group and many of the people who have these types of brain tumors also have thyroid issues. Jeannie No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.385 / Virus Database: 268.2.3/281 - Release Date: 3/14/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Thanks Jeannie... I might swing by myself some time... Topper () On Wed, 15 Mar 2006 11:13:00 -0600 Jeannie writes: This is also a yahoo group. It is for a specific type of brain tumor, a meningioma, but I have seen people with other types post before. There are a lot of people who have this type of brain tumor that also have thyroid problems. Most meningiomas have hormone receptors, so it seems to me that there is probably a relationship between the two. http://health.groups.yahoo.com/group/meningioma/ Quote Link to comment Share on other sites More sharing options...
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