Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 , I have to say that even I am at a loss of what to say about this. Hmmmm.... It does make sense to go with one thing at a time so you know what is working and what is not, on the one hand; on the other hand, they could be working together...... I don't think, however, that Dr. H. would jeopardize the health of a child/baby for the sake of research, however. She is approaching this more from a scientific point of view, I would imagine. That being said, to be perfectly blunt, why are you fighting the g-tube? Every single person I know who has gone this route has been very happy and relieved with it. It has changed their lives. All of a sudden you don't have to worry about the amount takes in on her own. I know that most worry about their child not eating at all, but if you offer food first and then use the tube, she will not lose that ability. The best person to consult with this is Barker. Colin has his and it has made her so much happier and able to enjoy her two babies. I don't know if I am helping or not. It's just from my point of view, and that of an " older " woman compared to most of you, do whatever makes things easier and safer for your baby. The g-tube is very SAFE and will turn your life into a much happier and calmer state. Trust me on that one. And you won't have to use those herbs and supplements which we just don't know too much about with babies. Jodi Dr. H visit - scared to death...help!!! > Hi all - After waiting for three and three quater hours to see Dr. H > on a NON CLINIC day, we finally, after three months of anticipating > our appointment with her, discovered that does not have RSS but > she is just very very small (141/2 lbs at one year) and will have to > have a tube placed if she doesn't quickly turn things around. (She > is giving us three months to do it) THe big thing that happened at > this visit is that she is making us stop all the supplements which we > believe caused 's 12 1/2 ounce weight gain over the past two > weeks after not having gained, but only lost, for the past THREE > MONTHS!) I am, as you can imagine, scared to death. Dr. H explained > that she wanted to isolate each thing we were giving her and junk > some of them totally (like the herb " ginger bitters " for appetite > enhancement which she said is not regulated, therefore not safe...My > question is since when does the FDA put only safe things on the > market!?). If we give her one thing at a time, then we can see what > is causing the weight gain. Another question: WHat if all are > causing the weight gain in conjunction with eachother. I know Dr H > is very very smart, but she is also into research. Might she be > doing a research exercise, more than she is actually trying to help > my daughter?? I know that this is paranoid, but after going to > perhaps two dozen doctors over the past year, all of whom treated me > like I was some sort of idiot who didn't know how to feed my child > enough calories (despite my explanation to them that even with a 1000 > calories a day she didn't gain weight), when in fact it was these > doctors that didn't know anything, I am somewhat skittish about the > whole profession. Please help with any input you can. I know how > busy you all are, but just a simple one line note on input would be > greatly appreciated. Sending you all good eating vibes. Saul > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 , First, Take a deep breath! Okay, Dr. H does come on strong, but like Jodi said, she would NOT jeapordize the health of your child for the sake of research. (She wouldn't let several children join a double- blind study for Gh, because some of them would receive placebo and she knew they needed the real thing!) Just on a side note! Hang in there! I know it is hard. Why did she say your child does NOT have RSS? (Just curious) I have to agree that herbs are not always safe (especially for children). I do use some herbs myself so I'm not one of those crazy people that is against them all together. Storm never got a g-tube, but there are times when I look back and wonder if it would have helped him. If he had had more weight back at 2 years old then maybe he wouldn't have been so sick all the time, and actually had a better start. He is now almost 6 years old and is just now (with the help of Dr. H) starting to really grow for the first time in his life! Last year when Dr. H first saw Storm he had NO subcutanious fat on his body. Within 6 months he started storing some fat on his body! Now he is so much healthier. He looks healthier, he plays more and he doesn't tire out as quickly! It is just amazing to see the change in him! I know it is scary, but of all the Dr's we've seen we trust Dr. H the most! She knows her stuff and she absolutely loves these kids! Give it a try for 3 months! If she absolutely says you need a g-tube then you probably do! She actually is the one that said Storm did NOT need a g-tube, because he will eat! So once again, take a deep breath, cry alot, and do what you feel is the best thing for your child! Hang in there! Carmen, Mom to Paisley(8.5 years) and Storm (5y 11m) RSS, 32.5 lbs. 40 inches tall! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 , Hi! I'm the mom of a 9 yr. old, and even now are trying to still have our daughter gain weight!! But it's a whole lot easier for us just because of age alone. My question to you, which I don't belive you mentioned, is, did Dr. H give you a prescription for periactin to help in the weight gain? I guess I would hope she would have since it is her protocol and not just say " get more weight on or in 3 months we'll start getting a g-tube. " Other than that, yes, it is hard to trust a doctor when you've run into so many who did not take the time to truly care and properly diagnose your child. And, as Jodi said, a g-tube seems to be the answer for so many children. You will hear so many supportive, reassuring messages from others if that is what it comes to. Cheryl V. mom to , age 9, RSS Dr. H visit - scared to death...help!!! >Hi all - After waiting for three and three quater hours to see Dr. H >on a NON CLINIC day, we finally, after three months of anticipating >our appointment with her, discovered that does not have RSS but >she is just very very small (141/2 lbs at one year) and will have to >have a tube placed if she doesn't quickly turn things around. (She >is giving us three months to do it) THe big thing that happened at >this visit is that she is making us stop all the supplements which we >believe caused 's 12 1/2 ounce weight gain over the past two >weeks after not having gained, but only lost, for the past THREE >MONTHS!) I am, as you can imagine, scared to death. Dr. H explained >that she wanted to isolate each thing we were giving her and junk >some of them totally (like the herb " ginger bitters " for appetite >enhancement which she said is not regulated, therefore not safe...My >question is since when does the FDA put only safe things on the >market!?). If we give her one thing at a time, then we can see what >is causing the weight gain. Another question: WHat if all are >causing the weight gain in conjunction with eachother. I know Dr H >is very very smart, but she is also into research. Might she be >doing a research exercise, more than she is actually trying to help >my daughter?? I know that this is paranoid, but after going to >perhaps two dozen doctors over the past year, all of whom treated me >like I was some sort of idiot who didn't know how to feed my child >enough calories (despite my explanation to them that even with a 1000 >calories a day she didn't gain weight), when in fact it was these >doctors that didn't know anything, I am somewhat skittish about the >whole profession. Please help with any input you can. I know how >busy you all are, but just a simple one line note on input would be >greatly appreciated. Sending you all good eating vibes. Saul > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 , My doctor says herbs are drugs and are not regulated by the FDA, so therefore, use with extreme caution. Although there are drugs on the market that can be dangerous, they are tested extensively and prescribed accordingly. Herbs - no one knows and especially on such a tiny little treasure. I would really give it some thought. The g-tube is a peace of cake now that I look back. I, too, was petrified of it. I am convinced it saved by child's life or at the very least greatly enhanced his quality of life and mine. This little one needs calories, that is the bottom line. She has the rest of her life to learn to eat. I was scared too, but my son, who is almost 6 has had the g-tube for almost 4 years. He is a new child. Is he huge, no, but MUCH healthier and playful and happy. He was sick CONSTANTLY before. I know you could use a big hug right about now. It is so hard to know what to do, especially when all the doctors contradict each other. I have been there too, I know. Give that g-tube some serious thought. It won't be forever and it can very well change her life immensely. Sincerely, Judy Dr. H visit - scared to death...help!!! > Hi all - After waiting for three and three quater hours to see Dr. H > on a NON CLINIC day, we finally, after three months of anticipating > our appointment with her, discovered that does not have RSS but > she is just very very small (141/2 lbs at one year) and will have to > have a tube placed if she doesn't quickly turn things around. (She > is giving us three months to do it) THe big thing that happened at > this visit is that she is making us stop all the supplements which we > believe caused 's 12 1/2 ounce weight gain over the past two > weeks after not having gained, but only lost, for the past THREE > MONTHS!) I am, as you can imagine, scared to death. Dr. H explained > that she wanted to isolate each thing we were giving her and junk > some of them totally (like the herb " ginger bitters " for appetite > enhancement which she said is not regulated, therefore not safe...My > question is since when does the FDA put only safe things on the > market!?). If we give her one thing at a time, then we can see what > is causing the weight gain. Another question: WHat if all are > causing the weight gain in conjunction with eachother. I know Dr H > is very very smart, but she is also into research. Might she be > doing a research exercise, more than she is actually trying to help > my daughter?? I know that this is paranoid, but after going to > perhaps two dozen doctors over the past year, all of whom treated me > like I was some sort of idiot who didn't know how to feed my child > enough calories (despite my explanation to them that even with a 1000 > calories a day she didn't gain weight), when in fact it was these > doctors that didn't know anything, I am somewhat skittish about the > whole profession. Please help with any input you can. I know how > busy you all are, but just a simple one line note on input would be > greatly appreciated. Sending you all good eating vibes. Saul > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 Hi , My son Colin has had his g-tube for just over 2 weeks now and it has been the best thing we've done. He is now able to sleep longer at night because he is being continously fed, take long naps during the day (instead of us constantly sticking a bottle in his mouth since that was the only way we could get food in him), and best of all he is gaining weight (14 oz. in two weeks)! We as a family are able to get out of the house, where before who could leave knowing your child had only had 5 oz. to eat all day. He is doing better developmentally and just started pulling himself up this week and is sitting and crawling with ease. So I would say go for it. It really will give you peace of mind. I wish you the best with your decision. Feel free to email me with any questions. Mom to Colin (RSS) and Hayden - 7.5 mo. twins > Hi all - After waiting for three and three quater hours to see Dr. H > on a NON CLINIC day, we finally, after three months of anticipating > our appointment with her, discovered that does not have RSS but > she is just very very small (141/2 lbs at one year) and will have to > have a tube placed if she doesn't quickly turn things around. (She > is giving us three months to do it) THe big thing that happened at > this visit is that she is making us stop all the supplements which we > believe caused 's 12 1/2 ounce weight gain over the past two > weeks after not having gained, but only lost, for the past THREE > MONTHS!) I am, as you can imagine, scared to death. Dr. H explained > that she wanted to isolate each thing we were giving her and junk > some of them totally (like the herb " ginger bitters " for appetite > enhancement which she said is not regulated, therefore not safe...My > question is since when does the FDA put only safe things on the > market!?). If we give her one thing at a time, then we can see what > is causing the weight gain. Another question: WHat if all are > causing the weight gain in conjunction with eachother. I know Dr H > is very very smart, but she is also into research. Might she be > doing a research exercise, more than she is actually trying to help > my daughter?? I know that this is paranoid, but after going to > perhaps two dozen doctors over the past year, all of whom treated me > like I was some sort of idiot who didn't know how to feed my child > enough calories (despite my explanation to them that even with a 1000 > calories a day she didn't gain weight), when in fact it was these > doctors that didn't know anything, I am somewhat skittish about the > whole profession. Please help with any input you can. I know how > busy you all are, but just a simple one line note on input would be > greatly appreciated. Sending you all good eating vibes. Saul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 Hi , I thought about emailing you personally and then thought, this is such a controversial topic I had better give people a chance to rebut me! lol In addition to being an ambulance paramedic, I trained and qualified as a naturopath. However, be aware that I have never used those skills in a clinical setting. (I was never interested in working for myself, too much like hard work ) YES herbs are drugs and not FDA approved, HOWEVER You can stop worrying about homeopathics, as looked at from a medical point of view they are more like a placebo, they don't contain any actual physical drug. They are not dangerous in any way. Herbs vary. Some are extremely toxic, most are fairly benign. Often the medical profession doesn't trust anything they don't understand. My GP is wonderful with this sort of stuff, and he also practices acupuncture. The medical association here don't like or approve of that at all Many drugs used these days were originally derived from herbs. There is debate over whether it is better to use something in its " natural " form or in conventional medicine where the dose can actually be regulated. Some examples of highly toxic herbs are foxglove and belladonna. The active ingredients of these herbs (digoxin and atropine) are used in medicine, usually for heart conditions, and in many countries the use of the herb is also restricted (to doctors & pharmacists, just like opium). Herbs that are usually considered to be safe are those that we might use in our diet anyway, such as ginger, chamomile, dandelion, mint, parsley.... the list goes on. Most 'normal' foods could be considered dangerous if eaten in too great a quantity. (eg carrots) The idea of bitter herbs to stimulate the appetite is very old. If you are reluctant to use a 'product', you could discuss with her using normal foods to acheive the same effect (maybe a small amount of juice with parsley for one example, or olives before dinner). With bitter herbs, it is the TASTE that stimulates (or is supposed to stimulate) the appetite, not any particular ingredients. If this is something you want to continue with, especially if it is working, discuss your concerns with your therapist. Dr. H can approve or disapprove of anything you do, but ultimately you are the one that has to make the decisions for your child. I don't envy you, I am very bad at confrontations!! Thinking of you, Steph (mum to Darcy 20 months ?RSS 6.6kg even with an appetite and Tessa, 6) > Hi all - After waiting for three and three quater hours to see Dr. H > on a NON CLINIC day, we finally, after three months of anticipating > our appointment with her, discovered that does not have RSS but > she is just very very small (141/2 lbs at one year) and will have to > have a tube placed if she doesn't quickly turn things around. (She > is giving us three months to do it) THe big thing that happened at > this visit is that she is making us stop all the supplements which we > believe caused 's 12 1/2 ounce weight gain over the past two > weeks after not having gained, but only lost, for the past THREE > MONTHS!) I am, as you can imagine, scared to death. Dr. H explained > that she wanted to isolate each thing we were giving her and junk > some of them totally (like the herb " ginger bitters " for appetite > enhancement which she said is not regulated, therefore not safe...My > question is since when does the FDA put only safe things on the > market!?). If we give her one thing at a time, then we can see what > is causing the weight gain. Another question: WHat if all are > causing the weight gain in conjunction with eachother. I know Dr H > is very very smart, but she is also into research. Might she be > doing a research exercise, more than she is actually trying to help > my daughter?? I know that this is paranoid, but after going to > perhaps two dozen doctors over the past year, all of whom treated me > like I was some sort of idiot who didn't know how to feed my child > enough calories (despite my explanation to them that even with a 1000 > calories a day she didn't gain weight), when in fact it was these > doctors that didn't know anything, I am somewhat skittish about the > whole profession. Please help with any input you can. I know how > busy you all are, but just a simple one line note on input would be > greatly appreciated. Sending you all good eating vibes. Saul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 As previously stated, we waited two years for a diagnosis (my GP is still not happy). We were investigated for all sorts from our parenting skills, even though my 6 year old boy is fine, to milk intolenance and the 'he is just going to be small'! Keep fighting your corner! Good luck. a (Ben 26mths) > Hi all - After waiting for three and three quater hours to see Dr. H > on a NON CLINIC day, we finally, after three months of anticipating > our appointment with her, discovered that does not have RSS but > she is just very very small (141/2 lbs at one year) and will have to > have a tube placed if she doesn't quickly turn things around. (She > is giving us three months to do it) THe big thing that happened at > this visit is that she is making us stop all the supplements which we > believe caused 's 12 1/2 ounce weight gain over the past two > weeks after not having gained, but only lost, for the past THREE > MONTHS!) I am, as you can imagine, scared to death. Dr. H explained > that she wanted to isolate each thing we were giving her and junk > some of them totally (like the herb " ginger bitters " for appetite > enhancement which she said is not regulated, therefore not safe...My > question is since when does the FDA put only safe things on the > market!?). If we give her one thing at a time, then we can see what > is causing the weight gain. Another question: WHat if all are > causing the weight gain in conjunction with eachother. I know Dr H > is very very smart, but she is also into research. Might she be > doing a research exercise, more than she is actually trying to help > my daughter?? I know that this is paranoid, but after going to > perhaps two dozen doctors over the past year, all of whom treated me > like I was some sort of idiot who didn't know how to feed my child > enough calories (despite my explanation to them that even with a 1000 > calories a day she didn't gain weight), when in fact it was these > doctors that didn't know anything, I am somewhat skittish about the > whole profession. Please help with any input you can. I know how > busy you all are, but just a simple one line note on input would be > greatly appreciated. Sending you all good eating vibes. Saul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Dear Jodi - I don't think, however, that Dr. H. would jeopardize > the health of a child/baby for the sake of research, however. THANK YOU FOR SAYING THIS, I REALLY NEEDED TO HEAR THIS. > > That being said, to be perfectly blunt, why are you fighting the g- tube? WE'RE NOT DR. H IS JUST GIVING US TIL OCTOBER TO TURN THINGS AROUND. IF AT THAT TIME THE WEIGHT GAIN IS STILL AT A STANDSTILL THEN SHE WILL DO THE TUBE. IS SHE USUALLY AGGRESSIVE OR RELAXED ABOUT TUBE FEEDING. IT SEENS TO ME SHE MUST BE RELAZED SINCE SARAH IS A YEAR AND DOESN'T EVEN WEIGH 15 LBS .. And you> won't have to use those herbs and supplements which we just don't know too much about with babies. THIS IS A VERY VALID POINT, BUT I ALSO DON'T KNOW HOW GOOD IT IS FOR MY BABY TO BE TAKING ALL THAT ZANTAC/ I DO SO WORRY ABOUT HER LIVER > > Jodi, thank you so much for your help. Sending you much warmth and good eating vibes. CLaire > > Dr. H visit - scared to death...help!!! > > > > Hi all - After waiting for three and three quater hours to see Dr. H > > on a NON CLINIC day, we finally, after three months of anticipating > > our appointment with her, discovered that does not have RSS but > > she is just very very small (141/2 lbs at one year) and will have to > > have a tube placed if she doesn't quickly turn things around. (She > > is giving us three months to do it) THe big thing that happened at > > this visit is that she is making us stop all the supplements which we > > believe caused 's 12 1/2 ounce weight gain over the past two > > weeks after not having gained, but only lost, for the past THREE > > MONTHS!) I am, as you can imagine, scared to death. Dr. H explained > > that she wanted to isolate each thing we were giving her and junk > > some of them totally (like the herb " ginger bitters " for appetite > > enhancement which she said is not regulated, therefore not safe...My > > question is since when does the FDA put only safe things on the > > market!?). If we give her one thing at a time, then we can see what > > is causing the weight gain. Another question: WHat if all are > > causing the weight gain in conjunction with eachother. I know Dr H > > is very very smart, but she is also into research. Might she be > > doing a research exercise, more than she is actually trying to help > > my daughter?? I know that this is paranoid, but after going to > > perhaps two dozen doctors over the past year, all of whom treated me > > like I was some sort of idiot who didn't know how to feed my child > > enough calories (despite my explanation to them that even with a 1000 > > calories a day she didn't gain weight), when in fact it was these > > doctors that didn't know anything, I am somewhat skittish about the > > whole profession. Please help with any input you can. I know how > > busy you all are, but just a simple one line note on input would be > > greatly appreciated. Sending you all good eating vibes. Saul > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Carmen > First, Take a deep breath! Okay, Dr. H does come on strong, but like > Jodi said, she would NOT jeapordize the health of your child for the > sake of research. (She wouldn't let several children join a double- > blind study for Gh, because some of them would receive placebo and > she knew they needed the real thing!) THANK YOU SO MUCH FOR TELLING ME THIS, IT ABSOLUTELY MADE ME FEEL SAFER > Why did she say your child does NOT have RSS? JUST LOOKED AT HER FOR A SECOND AND SAID " DEFINITELY NOT " > If he had had more weight back at 2 years old then maybe he wouldn't have been so sick all the time and actually had a better start. WAS STORM SICK BEFORE HE WAS 2? sARAH SEEMS SO HEALTHY DESPITE HER DEPLORABLE EATING He is now almost 6 years old and is > just now (with the help of Dr. H) starting to really grow for the > first time in his life! Last year when Dr. H first saw Storm he had > NO subcutanious fat on his body. Within 6 months he started storing > some fat on his body! Now he is so much healthier. He looks > healthier, he plays more and he doesn't tire out as quickly! It is > just amazing to see the change in him! GOD, YOU MUST BE FLYING!!! > I know it is scary, but of all the Dr's we've seen we trust Dr. H the > most! She knows her stuff and she absolutely loves these kids! EVEN IF THEY'RE NOT RSS? (LOL!!!) > Give it a try for 3 months! If she absolutely says you need a g- tube > then you probably do! She actually is the one that said Storm did NOT > need a g-tube, because he will eat! SARAH EATS TOO, JUST PITIFUL AMOUNTS AND THAT'S HOW WE GOT INTO TROUBLE IN THE FIRST PLACE. SHE HAS GONE BACK TO THOSE PITIFUL AMOUNTS SINCE DR. H REMOVED ALL HER SUPPLEMENTS. IN FACT SHE'S EVEN CRYING BEFORE I GET HER IN THE HIGHCHAIR. Carmen, thank you so much for your kind words and encouragement. It has helped tremendously. May God bless you and your family. Saul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Judy, > , > > My doctor says herbs are drugs and are not regulated by the FDA, so > therefore, use with extreme caution. Although there are drugs on the market > that can be dangerous, they are tested extensively and prescribed > accordingly. Herbs - no one knows and especially on such a tiny little > treasure. A VERY VALID POINT. THANK YOU FOR YOUR INPUT I would really give it some thought. The g-tube is a peace of > cake now that I look back. I, too, was petrified of it. I am convinced it > saved by child's life or at the very least greatly enhanced his quality of > life and mine. This little one needs calories, that is the bottom line. > She has the rest of her life to learn to eat. ANOTHER EXCELLENT POINT. I was scared too, but my son, > who is almost 6 has had the g-tube for almost 4 years. He is a new child. > Is he huge, no, but MUCH healthier and playful and happy. He was sick > CONSTANTLY before. WAS HE EVER SICK BEFORE A YEAR? SARAH HAS BEEN SO HEALTHY, BUT I DON'T TAKE HER OUT MUCH AND I AM STILL BREASTFEEDING HER. I'M JUST WONDERING IF SHE WILL START GETTING SICK ONCE SHE GETS OLDER AND IS AROUND MORE KIDS I know you could use a big hug right about now YOU ARE OBVIOUSLY A DARLING PERSON. THANK YOU FOR SAYING THAT, YES... A BIG HUG WOULD BE GREAT AND YOU SHOULD KNOW THAT YOUR NOTE DEFINITELY SERVED AS ONE. Sending warmth and good eating vibes, CLaire > > Dr. H visit - scared to death...help!!! > > > > Hi all - After waiting for three and three quater hours to see Dr. H > > on a NON CLINIC day, we finally, after three months of anticipating > > our appointment with her, discovered that does not have RSS but > > she is just very very small (141/2 lbs at one year) and will have to > > have a tube placed if she doesn't quickly turn things around. (She > > is giving us three months to do it) THe big thing that happened at > > this visit is that she is making us stop all the supplements which we > > believe caused 's 12 1/2 ounce weight gain over the past two > > weeks after not having gained, but only lost, for the past THREE > > MONTHS!) I am, as you can imagine, scared to death. Dr. H explained > > that she wanted to isolate each thing we were giving her and junk > > some of them totally (like the herb " ginger bitters " for appetite > > enhancement which she said is not regulated, therefore not safe...My > > question is since when does the FDA put only safe things on the > > market!?). If we give her one thing at a time, then we can see what > > is causing the weight gain. Another question: WHat if all are > > causing the weight gain in conjunction with eachother. I know Dr H > > is very very smart, but she is also into research. Might she be > > doing a research exercise, more than she is actually trying to help > > my daughter?? I know that this is paranoid, but after going to > > perhaps two dozen doctors over the past year, all of whom treated me > > like I was some sort of idiot who didn't know how to feed my child > > enough calories (despite my explanation to them that even with a 1000 > > calories a day she didn't gain weight), when in fact it was these > > doctors that didn't know anything, I am somewhat skittish about the > > whole profession. Please help with any input you can. I know how > > busy you all are, but just a simple one line note on input would be > > greatly appreciated. Sending you all good eating vibes. Saul > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi , Yes, he was sick a lot. He had his first strep infection at 3 or 4 months if memory serves. The doctor was shocked, he said babies don't get strep. Hah! He went on to have 5 more before his first birthday! He had ear infections. He has 2 older brothers so I think that they were bringing home stuff from school. Unavoidable. He basically laid like a lump for quite awhile. He never rolled over, or did any of the normal infant stuff, he was too weak. We thought that once we put the tube in, he would get " fat " . He did not, but his immune system is soooo much stronger and as I said before he became more " normal " . I mean, he started walking and climbing and running and jumping and basically became a real pain in the butt!! I say that with all the affection in the world! Now, he is so active that we are sure he has ADHD. My other sons have it, so we know what it looks like. He is a real fireball. He screams and yells and does lots of naughty things. He couldn't sit still long enough last year in school to learn much of anything. We will have him tested this September and we are putting him in a Kindergarten Special Ed class and we will see how he does. Have you made any decisions on what to do? Judy Dr. H visit - scared to death...help!!! > > > > > > > Hi all - After waiting for three and three quater hours to see > Dr. H > > > on a NON CLINIC day, we finally, after three months of > anticipating > > > our appointment with her, discovered that does not have RSS > but > > > she is just very very small (141/2 lbs at one year) and will have > to > > > have a tube placed if she doesn't quickly turn things around. > (She > > > is giving us three months to do it) THe big thing that happened > at > > > this visit is that she is making us stop all the supplements > which we > > > believe caused 's 12 1/2 ounce weight gain over the past two > > > weeks after not having gained, but only lost, for the past THREE > > > MONTHS!) I am, as you can imagine, scared to death. Dr. H > explained > > > that she wanted to isolate each thing we were giving her and junk > > > some of them totally (like the herb " ginger bitters " for appetite > > > enhancement which she said is not regulated, therefore not > safe...My > > > question is since when does the FDA put only safe things on the > > > market!?). If we give her one thing at a time, then we can see > what > > > is causing the weight gain. Another question: WHat if all are > > > causing the weight gain in conjunction with eachother. I know Dr > H > > > is very very smart, but she is also into research. Might she be > > > doing a research exercise, more than she is actually trying to > help > > > my daughter?? I know that this is paranoid, but after going to > > > perhaps two dozen doctors over the past year, all of whom treated > me > > > like I was some sort of idiot who didn't know how to feed my child > > > enough calories (despite my explanation to them that even with a > 1000 > > > calories a day she didn't gain weight), when in fact it was these > > > doctors that didn't know anything, I am somewhat skittish about > the > > > whole profession. Please help with any input you can. I know how > > > busy you all are, but just a simple one line note on input would > be > > > greatly appreciated. Sending you all good eating vibes. > Saul > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Judy - I can't even imagine what that was like for you, during your son's first few months of life. My G-d you must be a strong individual now. (Three kids must also automatically qualify you for amazon status....frankly I don't know how you mom's do it! One totally takes the wind out of my sails.) Thank you once again for your educated and experienced input. I am much more inclined to be open to the tube now, following the responses I received.) Sending you much warmth and blessing for your family. Saul Quote Link to comment Share on other sites More sharing options...
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