Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 , What kind of tests are they doing? Do you have a port-a-cath or are you going to have a PICC line put in for the TPN? Have you researched the gastric pacemaker? Betsy Re: MNGIE I may have to go on TPN which Dr. Cohen said could maybe help with the motility as it would give me more muscle tone. I won't know about that until after all the tests are complete. Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Dear ,Just wanted to add my birthday wishes too. I hope it's a good one. Thanks for answering my question about muscle mass. i sure hopethe TPN can help you with this. Mestinon is a drug used to treat myasthenia gravis. In some cases of mito it has been found to help muscle strength somewhat. It is the side effects of Mestinon that help the gut. But hey- if it works and its not harmful.... Take care, Celia > Thank you Dawn. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Thank you Celia! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Thank you Betsy! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Happy Birthday, early Re: MNGIE Betsy- I will be 20 on Sunday. Thanks for sharing your symptoms. Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 thankyou for the information. That could be very helpful in the future for me. Good luck with you test. Re: MNGIE Betsy, I'm having the MNGIE test, creatine test, anorectal manometry, barium enema, colonic transit test, defography and TSH blood test. I will also have my trace mineral's measured as well. I have a broviac central line that I recieve my carnitine through so I would recieve the TPN the same way. I have researched the gastric pacemaker but it's just for the stomach and generally they won't use them in people who have motility probs. throughout their GI tracts. Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
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