Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Everyone....sorry I forgot to tell you, her name is Kelsie Nichole . Hubbys great grandma passed away about a mo. ago and they were close...her name was Elsie, so we named her Kelsie after his grandma. -I am exhausted, and my body's muscles are still sore and a little weak but other than that...I feel great...just feel like I ran a couple miles or something! She is so beautiful and I just can't wait to bring her home. I don't know if I will stay there or not....it is 2 hours away from here, and I have the 4 other children who need me here, and hubby who has to work sometime this week. We live pay check to pay check and so far, he has not worked at all this week with everything going on. Thank goodness his work is understanding with all this. NZ-sorry to hear that you are alone and that the children are both sick. You are inmy thoughts today:) Dawn-Thank you for " remembering " her today...that is the best I could ask for of you and it really means a lot to me and the family:) FG-thank you for the info on your daughter Shantell having mecc. illi, and thanks for hte best wishes. I am doing well as I always recover quickly, but hubby and I are emotionally a wreck. Feels like we are going thru our oldest daughters diagnosis all over again:( Even tho we know this will pass and things will get better, it still manages to consume us! It is just terrible to be a parent of a sick child but I am thankful there are people like everyone on the list cause really, no one else understands...they can act like they feel sorry for what Kelsie has to go thru, but honestly they don't have a clue, and when they go home, they can go on like nothing has ever happened, but when you're the parent....you can't do that. So, thankgoodness for this list of people who really do understand, and who have been there. You all are a life saver!! Hope everyone else is doing well. -mom of 5, ..8 yr. old na with CF and newborn Kelsie with poss. CF and mecc. illi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 writes: <<<< It is just terrible to be a parent of a sick child but I am thankful there are people like everyone on the list cause really, no one else understands...they can act like they feel sorry for what Kelsie has to go thru, but honestly they don't have a clue, and when they go home, they can go on like nothing has ever happened, but when you're the parent....you can't do that. So, thankgoodness for this list of people who really do understand, and who have been there. You all are a life saver!! >>>> This is just so true, --it gets so frustrating sometimes! I have had a few people who have handled it pretty well. They have said things like, " I can imagine how you feel, but to tell you honestly, I hope I never have to really know " . This is a comment that is honest and I can understand--I hope they never have to know too!! Then there are those others that say " I know how you feel " --have they been there? If that answer is no, then NO they do not know how I feel! I sound like a real b---- when I say that, and I know in my head that people are not meaning to be mean, and they are only trying to help, which is why I have never gotten angry at any of them, but the feelings are still inside me. It is really nice to have this group to turn to instead--I know a few other CF parents here, and that helps too. Thanks everyone! , mom to Codybug (pwcf, 5-1/2), a (wocf, 12-1/2) and DJ (wocf, 7) smichelle15@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 , That's a very pretty name. My niece is called Keelie, which means beautiful I looked up kelsey and in my book it says'from the ship' maybe the mother ship? I think babies are lovely and they smell great. I hope she's home soon and I bet she'll have so many people to spoil her and you have lots of little helpers. Re: baby update > Everyone....sorry I forgot to tell you, her name is Kelsie Nichole > . Hubbys great grandma passed away about a mo. ago and they were > close...her name was Elsie, so we named her Kelsie after his grandma. > > -I am exhausted, and my body's muscles are still sore and a little > weak but other than that...I feel great...just feel like I ran a couple > miles or something! She is so beautiful and I just can't wait to bring > her home. I don't know if I will stay there or not....it is 2 hours > away from here, and I have the 4 other children who need me here, and > hubby who has to work sometime this week. We live pay check to pay > check and so far, he has not worked at all this week with everything > going on. Thank goodness his work is understanding with all this. > > NZ-sorry to hear that you are alone and that the children are both > sick. You are inmy thoughts today:) > > Dawn-Thank you for " remembering " her today...that is the best I could > ask for of you and it really means a lot to me and the family:) > > FG-thank you for the info on your daughter Shantell having mecc. > illi, and thanks for hte best wishes. I am doing well as I always > recover quickly, but hubby and I are emotionally a wreck. Feels like we > are going thru our oldest daughters diagnosis all over again:( Even tho > we know this will pass and things will get better, it still manages to > consume us! > It is just terrible to be a parent of a sick child but I am thankful > there are people like everyone on the list cause really, no one else > understands...they can act like they feel sorry for what Kelsie has to > go thru, but honestly they don't have a clue, and when they go home, > they can go on like nothing has ever happened, but when you're the > parent....you can't do that. So, thankgoodness for this list of people > who really do understand, and who have been there. You all are a life > saver!! > > Hope everyone else is doing well. > -mom of 5, ..8 yr. old na with CF and newborn Kelsie with > poss. CF and mecc. illi. > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2001 Report Share Posted July 12, 2001 , Congratulations on the new baby! I know exactly how you feel. I have two with CF and it is hard at times and you right know one really knows what you are going through except for the people on here that know what it is like to have kids with CF and how much we worry and pray that they will live a normal, and healthy live like other kid. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2001 Report Share Posted July 12, 2001 , I think the one thing that someone said to me that pissed me off was are you afraid that your middle child that doesn't have it yet will get it. I about blew my top. People can be so ignorant. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2001 Report Share Posted July 13, 2001 DEB & RENEE, You both will do just fine. Your thinking in the right way & asking for help from the right places & the right people. Those who love you & care & the folks that " been there----done that " as you said in your post. It is truly wonderful sooooo many people feel the need to come together & share. That shows great concern. Your sweet precious families will be NORMAL, there is love & faith within.Write, vent, cry, laugh, ask anytime here & on any of the CF lists.I hold you both AND all others in my thoughts daily.. LOVE & HUGS, grandmomBEV Re: Re: baby update , Congratulations on the new baby! I know exactly how you feel. I have two with CF and it is hard at times and you right know one really knows what you are going through except for the people on here that know what it is like to have kids with CF and how much we worry and pray that they will live a normal, and healthy live like other kid. Deb PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
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