Re: Help: brace causes tears

[Guest guest]

Why did your son go from 45 degrees to 70 degrees? You can not put your son

in a 70 degree splint unless his last cast was set out at 70 degrees. This

can be extremely painful for a child. Did his last cast look almost backward

and awkward to you? If not is propably wasn't set at the right degrees. Is

your son bilateral or unilateral. If unilateral then the club foot should be

at 70 if and only IF the last cast was set at 70. The non-clubfoot should be

at 45 degrees. You could loose a lot of correction by just having him wear

it in his sleep this early on.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Help: brace causes tears

>Date: Fri, 31 Oct 2003 02:34:34 -0000

>

>My son was was born on September 4th, and they thought that his foot

>was positional because of being overdue. At one week, I was sent to a

>specialist who said it was club foot. She used the Ponsiti method

>with three casts and his foot looked normal. Now he is in the brace

>with two shoes and a heavy medal bar between. He is suppose to wear

>it for 3 months 24/7, but he screams the entire day with them on...he

>went from 45 degrees-70 degrees. My husband and I made the decision

>to have him wear it only at night time...any suggestions or comments

>about what to do?

>

>

_________________________________________________________________

Add MSN 8 Internet Software to your current Internet access and enjoy

patented spam control and more. Get two months FREE!

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[Guest guest]

Here is a couple of responses I received from Dr Ponseti in regards to the brace

and also a few links toward the bottom:

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

August 22, 2003

Dear Mr. and Mrs. Pruitt:

Thank you for taking the time to send me the photos of Olivia's feet and to

let me know that Dr. Dobbs was able to avoid the surgery recommended by your

previous physician. Her foot looks very good. I would stress to you,

however, that consistent use of the brace is most important to avoid a

relapse. Even if the foot is well corrected, without the brace it will

likely relapse until the age of three years. For reasons we do not fully

understand, after age 3 the process which causes a relapse seems to resolve

and that is why we generally feel it is safe to discontinue bracing at that

age.

I.V.Ponseti, M.D.

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

My Email to Dr. Ponseti;

Dr. Ponseti,

>

> Have you tried methods other than the bar (denise brown bar?) for holding

> the club foot in position with satisfactory results? I would think if a

cast

> works you should be able to design a device that emulates a cast but is

> removable.

Dr Ponseti's reply:

September 19, 2003

>

> Dear Mr. Pruitt:

>

> Years ago we tried different methods of bracing to maintain the corrected

> clubfoot and found none to be effective but the foot abduction brace. The

> foot abduction brace allows room for growth and allows full motion of the

> knees. The cast is effective because it immobilizes the knees to allow

for

> proper correction of the feet. However, prolonged immobilization of the

> knees would be detrimental to the growth and development of the legs.

>

> I.V.Ponseti, M.D.

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXx

Club Foot Treatment

http://www.uihealthcare.com/news/currents/vol1issue1/clubfoot.html

Club Foot Treatment Technical

http://www.vh.org/pediatric/provider/orthopaedics/Clubfoot/Clubfoot.html#TOC

Dr Ponseti;

http://www.uihealthcare.com/depts/med/orthopaedicsurgery/faculty/ponsetti.html

Dr Weinstein

http://www.uihealthcare.com/depts/med/orthopaedicsurgery/faculty/weinstein.html

http://www.slweinstein.com/

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Help: brace causes tears

My son was was born on September 4th, and they thought that his foot

was positional because of being overdue. At one week, I was sent to a

specialist who said it was club foot. She used the Ponsiti method

with three casts and his foot looked normal. Now he is in the brace

with two shoes and a heavy medal bar between. He is suppose to wear

it for 3 months 24/7, but he screams the entire day with them on...he

went from 45 degrees-70 degrees. My husband and I made the decision

to have him wear it only at night time...any suggestions or comments

about what to do?

[Guest guest]

Our doctor did not correct our son's to 70 degrees either with the cast. So

Dr. Ponsetti told me to slowly increase the degrees by 5 and now he is at 65

degrees and seems ok. You might e-mail Dr. Ponsetti directly and explain

the situation to him. Even though my doctor is on the Ponsetti method

trained list he tends to vary the treatment a little bit. I've learned more

from parents on this site. My doctor said to wear the braces at night

until a year. So I am meeting with him Monday and explaining that I would

like to have him wear the DBB until 3 years. I've found you have to be the

advocate for your child. Good luck!

Annie and

Help: brace causes tears

>Date: Fri, 31 Oct 2003 02:34:34 -0000

>

>My son was was born on September 4th, and they thought that his foot

>was positional because of being overdue. At one week, I was sent to a

>specialist who said it was club foot. She used the Ponsiti method

>with three casts and his foot looked normal. Now he is in the brace

>with two shoes and a heavy medal bar between. He is suppose to wear

>it for 3 months 24/7, but he screams the entire day with them on...he

>went from 45 degrees-70 degrees. My husband and I made the decision

>to have him wear it only at night time...any suggestions or comments

>about what to do?

>

>

_________________________________________________________________

Add MSN 8 Internet Software to your current Internet access and enjoy

patented spam control and more. Get two months FREE!

http://join.msn.com/?page=dept/byoa

[Guest guest]

I suggest you ask your doctor before cutting down on the hours he wears it.

My baby is 5 months and cried for the 1st week he had on his DBB but now he's

getting back to himself. Good luck!

[Guest guest]

I am sorry your son is having a hard time with the brace, but please do

not reduce the time yet. Also, the fact that your doctor says he will be

in the brace for 1 year (from your other post) is a red flag for me.

Doctors using the Ponseti method typically have the child wear the brace

23/7 for 3 months and then naps and nighttime until they are at least 3.

The chance of relapse is too great until then.

Do you mind if I ask who your doctor is? When my son was born we were

seeing a doctor that said she was using the Ponseti method, but she was

not following the procedure exactly. In fact, I don't think she was

following it at all, since what she was doing was totally different than

what our current doctor did. I ended up researching clubfoot treatments

online and after 3 months and 11 casts we switched to a " Ponseti

approved " doctor, Herzenberg in Baltimore. Dr. Ponseti actually

recommended we see Dr. Herzenberg since we couldn't go to Iowa. The

difference was amazing. My son did end up having the Anterior Tibial

Tendon Transfer surgery last Tuesday, but it was relatively minor

compared to what he could have ended up having. Anyway, I am rambling

now.

My point is, your doctor could be modifying the method and your child may

be having a difficult time because his feet aren't fully corrected. Maybe

you could call or email Dr. Ponseti. He should be able to help. Good

luck!

Bonnie B.

wife to Jack, 5/3/92

mom to Zachary, 8/3/93, , 12/29/97, and Dylan, 10/26/00-bilateral

CF, ATTT 10/28/03

On Fri, 31 Oct 2003 02:34:34 -0000 " adynsmom2003 "

writes:

My son was was born on September 4th, and they thought that his foot

was positional because of being overdue. At one week, I was sent to a

specialist who said it was club foot. She used the Ponsiti method

with three casts and his foot looked normal. Now he is in the brace

with two shoes and a heavy medal bar between. He is suppose to wear

it for 3 months 24/7, but he screams the entire day with them on...he

went from 45 degrees-70 degrees. My husband and I made the decision

to have him wear it only at night time...any suggestions or comments

about what to do?

[Guest guest]

I would also like to say that my daughter has been wearing the brace

since February 2003. She still hates it. Fortunatly we only have to

wear it at nights now, but she still hates them. She cries everytime

we put them on. Everytime! She is 13 months old now. I have always

made a very big deal about how special her braces were. We all call

them her " Dancing Shoes " . Since when she first got them we would put

them on and do a special dance. She still hates them and I dread to

put them on, but you just gotta do it. Someday it will be much more

important that we just did it and suffered thru rather than have a

relapse.

> I am sorry your son is having a hard time with the brace, but

please do

> not reduce the time yet. Also, the fact that your doctor says he

will be

> in the brace for 1 year (from your other post) is a red flag for me.

> Doctors using the Ponseti method typically have the child wear the

brace

> 23/7 for 3 months and then naps and nighttime until they are at

least 3.

> The chance of relapse is too great until then.

>

> Do you mind if I ask who your doctor is? When my son was born we

were

> seeing a doctor that said she was using the Ponseti method, but she

was

> not following the procedure exactly. In fact, I don't think she was

> following it at all, since what she was doing was totally different

than

> what our current doctor did. I ended up researching clubfoot

treatments

> online and after 3 months and 11 casts we switched to a " Ponseti

> approved " doctor, Herzenberg in Baltimore. Dr. Ponseti actually

> recommended we see Dr. Herzenberg since we couldn't go to Iowa. The

> difference was amazing. My son did end up having the Anterior Tibial

> Tendon Transfer surgery last Tuesday, but it was relatively minor

> compared to what he could have ended up having. Anyway, I am

rambling

> now.

>

> My point is, your doctor could be modifying the method and your

child may

> be having a difficult time because his feet aren't fully corrected.

Maybe

> you could call or email Dr. Ponseti. He should be able to help. Good

> luck!

>

> Bonnie B.

> wife to Jack, 5/3/92

> mom to Zachary, 8/3/93, , 12/29/97, and Dylan, 10/26/00-

bilateral

> CF, ATTT 10/28/03

>

>

> On Fri, 31 Oct 2003 02:34:34 -0000 " adynsmom2003 "

> <adynsmom2003@y...> writes:

> My son was was born on September 4th, and they thought that his

foot

> was positional because of being overdue. At one week, I was sent to

a

> specialist who said it was club foot. She used the Ponsiti method

> with three casts and his foot looked normal. Now he is in the brace

> with two shoes and a heavy medal bar between. He is suppose to

wear

> it for 3 months 24/7, but he screams the entire day with them

on...he

> went from 45 degrees-70 degrees. My husband and I made the

decision

> to have him wear it only at night time...any suggestions or

comments

> about what to do?

>

>

[Guest guest]

Thank you for your response. Yes, it makes me think about the

treatment we are getting. However, the orthapedic did say it was a

mild case of club foot...we only had three casts. My concern is that

the brace we had could be made better. I have looked at the photos

of others and our looks not like that. We have a heavy bar, with two

other bars on top of each other, very heavy. They are also

positioned that his feet are spread past his shoulders...Do you have

Dr Ponseti email address: I would love to contact him.

> Here is a couple of responses I received from Dr Ponseti in regards

to the brace and also a few links toward the bottom:

>

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

xx

> August 22, 2003

>

> Dear Mr. and Mrs. Pruitt:

>

> Thank you for taking the time to send me the photos of Olivia's

feet and to

> let me know that Dr. Dobbs was able to avoid the surgery

recommended by your

> previous physician. Her foot looks very good. I would stress to

you,

> however, that consistent use of the brace is most important to

avoid a

> relapse. Even if the foot is well corrected, without the brace it

will

> likely relapse until the age of three years. For reasons we do not

fully

> understand, after age 3 the process which causes a relapse seems to

resolve

> and that is why we generally feel it is safe to discontinue bracing

at that

> age.

>

> I.V.Ponseti, M.D.

>

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

xxxx

> XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

> My Email to Dr. Ponseti;

>

> Dr. Ponseti,

> >

> > Have you tried methods other than the bar (denise brown bar?) for

holding

> > the club foot in position with satisfactory results? I would

think if a

> cast

> > works you should be able to design a device that emulates a cast

but is

> > removable.

>

> Dr Ponseti's reply:

>

> September 19, 2003

> >

> > Dear Mr. Pruitt:

> >

> > Years ago we tried different methods of bracing to maintain the

corrected

> > clubfoot and found none to be effective but the foot abduction

brace. The

> > foot abduction brace allows room for growth and allows full

motion of the

> > knees. The cast is effective because it immobilizes the knees to

allow

> for

> > proper correction of the feet. However, prolonged immobilization

of the

> > knees would be detrimental to the growth and development of the

legs.

> >

> > I.V.Ponseti, M.D.

>

> XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXx

>

>

> Club Foot Treatment

> http://www.uihealthcare.com/news/currents/vol1issue1/clubfoot.html

>

> Club Foot Treatment Technical

>

http://www.vh.org/pediatric/provider/orthopaedics/Clubfoot/Clubfoot.ht

ml#TOC

>

> Dr Ponseti;

>

http://www.uihealthcare.com/depts/med/orthopaedicsurgery/faculty/ponse

tti.html

>

> Dr Weinstein

>

http://www.uihealthcare.com/depts/med/orthopaedicsurgery/faculty/weins

tein.html

> http://www.slweinstein.com/

>

>

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

> Help: brace causes tears

>

>

> My son was was born on September 4th, and they thought that his

foot

> was positional because of being overdue. At one week, I was sent

to a

> specialist who said it was club foot. She used the Ponsiti

method

> with three casts and his foot looked normal. Now he is in the

brace

> with two shoes and a heavy medal bar between. He is suppose to

wear

> it for 3 months 24/7, but he screams the entire day with them

on...he

> went from 45 degrees-70 degrees. My husband and I made the

decision

> to have him wear it only at night time...any suggestions or

comments

> about what to do?

>

>

>

>

[Guest guest]

Yes, my doctor said she does a few modifications from it. It was a

mild case of club foot, only three casts, maybe that's why only

wearing brace for one year. I would like to look into a different,

lighter cast after looking at the photos...our's is very heavy and

his legs are quite far apart. Do you have the dr email?

> I am sorry your son is having a hard time with the brace, but

please do

> not reduce the time yet. Also, the fact that your doctor says he

will be

> in the brace for 1 year (from your other post) is a red flag for me.

> Doctors using the Ponseti method typically have the child wear the

brace

> 23/7 for 3 months and then naps and nighttime until they are at

least 3.

> The chance of relapse is too great until then.

>

> Do you mind if I ask who your doctor is? When my son was born we

were

> seeing a doctor that said she was using the Ponseti method, but she

was

> not following the procedure exactly. In fact, I don't think she was

> following it at all, since what she was doing was totally different

than

> what our current doctor did. I ended up researching clubfoot

treatments

> online and after 3 months and 11 casts we switched to a " Ponseti

> approved " doctor, Herzenberg in Baltimore. Dr. Ponseti actually

> recommended we see Dr. Herzenberg since we couldn't go to Iowa. The

> difference was amazing. My son did end up having the Anterior Tibial

> Tendon Transfer surgery last Tuesday, but it was relatively minor

> compared to what he could have ended up having. Anyway, I am

rambling

> now.

>

> My point is, your doctor could be modifying the method and your

child may

> be having a difficult time because his feet aren't fully corrected.

Maybe

> you could call or email Dr. Ponseti. He should be able to help. Good

> luck!

>

> Bonnie B.

> wife to Jack, 5/3/92

> mom to Zachary, 8/3/93, , 12/29/97, and Dylan, 10/26/00-

bilateral

> CF, ATTT 10/28/03

>

>

> On Fri, 31 Oct 2003 02:34:34 -0000 " adynsmom2003 "

> <adynsmom2003@y...> writes:

> My son was was born on September 4th, and they thought that his

foot

> was positional because of being overdue. At one week, I was sent to

a

> specialist who said it was club foot. She used the Ponsiti method

> with three casts and his foot looked normal. Now he is in the brace

> with two shoes and a heavy medal bar between. He is suppose to

wear

> it for 3 months 24/7, but he screams the entire day with them

on...he

> went from 45 degrees-70 degrees. My husband and I made the

decision

> to have him wear it only at night time...any suggestions or

comments

> about what to do?

>

>

[Guest guest]

To contact Dr. Ponseti:

(ph)

or email: ignacio-ponseti @ uiowa.edu (without the spaces)

Good luck!

Bonnie B.

wife to Jack, 5/3/92

mom to Zachary, 8/3/93, , 12/29/97, and Dylan, 10/26/00-bilateral

CF, ATTT 10/28/03

On Mon, 03 Nov 2003 05:20:29 -0000 " adynsmom2003 "

writes:

Yes, my doctor said she does a few modifications from it. It was a

mild case of club foot, only three casts, maybe that's why only

wearing brace for one year. I would like to look into a different,

lighter cast after looking at the photos...our's is very heavy and

his legs are quite far apart. Do you have the dr email?

[Guest guest]

You may have this already, but here are a few website links that

might help you-

Here's Dr. Ponseti's site:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html

Here's a website with additional Internet information about the

Ponseti method of treating clubfoot:

http://pages.ivillage.com/ponseti_links

If you tell us what region you live in, we might be able to help you

find a qualified physician near you to get a second opinion. Not to

worry you, but just because your doctor says that the foot was " mild "

doesn't mean that it's completely corrected now. It is entirely

possible that there are still some aspects of the clubfoot that are

not corrected with the 3 casts that were applied by your doctor, and

maybe this (in addition to what sounds like a massive brace) might be

causing your son some problems. I was told that my daughter's foot

was " mild " too.....treatment was pretty minimal at first, 5 casts and

then an AFO brace...but after 3.5 months they wanted to do

surgery......at that point, I traveled to Iowa to have Dr. Ponseti

treat her.

I hope this information is helpful and I hope you're able to talk

with Dr. Ponseti soon.

Regards,

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 months old

http://ponseticlubfoot.freeservers.com/

[Guest guest]

My son's case could have been termed mild if the number of casts used to correct

it were the only thing taken into consideration - he also only had 3 casts

followed by the tenotomy. But it was not a mild or positional case, he simply

has a very maleable foot. There is more wrong with his foot than just the

traditional clubfoot, which makes him more prone to relapse than most, but

having dealt with this, I am more convinced than ever that proper use of the

brace - for 3+ years - is imperative to full and lasting correction.

Think of orthodontic (teeth) braces. If you pay $3000 to have you child's teeth

straightened, you are going to make sure they wear their retainer for the

correct number of years to keep the correction!

Angel and Kai

Re: Help: brace causes tears

Yes, my doctor said she does a few modifications from it. It was a

mild case of club foot, only three casts, maybe that's why only

wearing brace for one year. I would like to look into a different,

lighter cast after looking at the photos...our's is very heavy and

his legs are quite far apart. Do you have the dr email?

> I am sorry your son is having a hard time with the brace, but

please do

> not reduce the time yet. Also, the fact that your doctor says he

will be

> in the brace for 1 year (from your other post) is a red flag for me.

> Doctors using the Ponseti method typically have the child wear the

brace

> 23/7 for 3 months and then naps and nighttime until they are at

least 3.

> The chance of relapse is too great until then.

>

> Do you mind if I ask who your doctor is? When my son was born we

were

> seeing a doctor that said she was using the Ponseti method, but she

was

> not following the procedure exactly. In fact, I don't think she was

> following it at all, since what she was doing was totally different

than

> what our current doctor did. I ended up researching clubfoot

treatments

> online and after 3 months and 11 casts we switched to a " Ponseti

> approved " doctor, Herzenberg in Baltimore. Dr. Ponseti actually

> recommended we see Dr. Herzenberg since we couldn't go to Iowa. The

> difference was amazing. My son did end up having the Anterior Tibial

> Tendon Transfer surgery last Tuesday, but it was relatively minor

> compared to what he could have ended up having. Anyway, I am

rambling

> now.

>

> My point is, your doctor could be modifying the method and your

child may

> be having a difficult time because his feet aren't fully corrected.

Maybe

> you could call or email Dr. Ponseti. He should be able to help. Good

> luck!

>

> Bonnie B.

> wife to Jack, 5/3/92

> mom to Zachary, 8/3/93, , 12/29/97, and Dylan, 10/26/00-

bilateral

> CF, ATTT 10/28/03

>

>

> On Fri, 31 Oct 2003 02:34:34 -0000 " adynsmom2003 "

> <adynsmom2003@y...> writes:

> My son was was born on September 4th, and they thought that his

foot

> was positional because of being overdue. At one week, I was sent to

a

> specialist who said it was club foot. She used the Ponsiti method

> with three casts and his foot looked normal. Now he is in the brace

> with two shoes and a heavy medal bar between. He is suppose to

wear

> it for 3 months 24/7, but he screams the entire day with them

on...he

> went from 45 degrees-70 degrees. My husband and I made the

decision

> to have him wear it only at night time...any suggestions or

comments

> about what to do?

>

>

[Guest guest]

Hi there,

I just wanted to add something. When my daughter

first went into the shoes she screamed all day and

night. It was really awful. Turns out that her foot

wasn't turned the same degrees as the shoes. This

doctor,I guess, was expecting the shoes to correct and

turn the foot (like a cast) instead of maintaining the

position. I then did research and found out about

the Ponseti method. I would check and see if your

daughter's feet are turned the same degrees as the

shoes.

Helen (mom of Kaitlyn 1 1/2 old)

--- adynsmom2003 wrote:

> Thank you for your response. Yes, it makes me think

> about the

> treatment we are getting. However, the orthapedic

> did say it was a

> mild case of club foot...we only had three casts.

> My concern is that

> the brace we had could be made better. I have

> looked at the photos

> of others and our looks not like that. We have a

> heavy bar, with two

> other bars on top of each other, very heavy. They

> are also

> positioned that his feet are spread past his

> shoulders...Do you have

> Dr Ponseti email address: I would love to contact

> him.

>

>

> > Here is a couple of responses I received from Dr

> Ponseti in regards

> to the brace and also a few links toward the bottom:

> >

>

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

> xx

> > August 22, 2003

> >

> > Dear Mr. and Mrs. Pruitt:

> >

> > Thank you for taking the time to send me the

> photos of Olivia's

> feet and to

> > let me know that Dr. Dobbs was able to avoid the

> surgery

> recommended by your

> > previous physician. Her foot looks very good. I

> would stress to

> you,

> > however, that consistent use of the brace is most

> important to

> avoid a

> > relapse. Even if the foot is well corrected,

> without the brace it

> will

> > likely relapse until the age of three years. For

> reasons we do not

> fully

> > understand, after age 3 the process which causes a

> relapse seems to

> resolve

> > and that is why we generally feel it is safe to

> discontinue bracing

> at that

> > age.

> >

> > I.V.Ponseti, M.D.

> >

>

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

> xxxx

> >

>

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

> > My Email to Dr. Ponseti;

> >

> > Dr. Ponseti,

> > >

> > > Have you tried methods other than the bar

> (denise brown bar?) for

> holding

> > > the club foot in position with satisfactory

> results? I would

> think if a

> > cast

> > > works you should be able to design a device that

> emulates a cast

> but is

> > > removable.

> >

> > Dr Ponseti's reply:

> >

> > September 19, 2003

> > >

> > > Dear Mr. Pruitt:

> > >

> > > Years ago we tried different methods of bracing

> to maintain the

> corrected

> > > clubfoot and found none to be effective but the

> foot abduction

> brace. The

> > > foot abduction brace allows room for growth and

> allows full

> motion of the

> > > knees. The cast is effective because it

> immobilizes the knees to

> allow

> > for

> > > proper correction of the feet. However,

> prolonged immobilization

> of the

> > > knees would be detrimental to the growth and

> development of the

> legs.

> > >

> > > I.V.Ponseti, M.D.

> >

> >

>

XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXx

> >

> >

> > Club Foot Treatment

> >

>

http://www.uihealthcare.com/news/currents/vol1issue1/clubfoot.html

> >

> > Club Foot Treatment Technical

> >

>

http://www.vh.org/pediatric/provider/orthopaedics/Clubfoot/Clubfoot.ht

> ml#TOC

> >

> > Dr Ponseti;

> >

>

http://www.uihealthcare.com/depts/med/orthopaedicsurgery/faculty/ponse

> tti.html

> >

> > Dr Weinstein

> >

>

http://www.uihealthcare.com/depts/med/orthopaedicsurgery/faculty/weins

> tein.html

> > http://www.slweinstein.com/

> >

> >

>

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

> > Help: brace causes

> tears

> >

> >

> > My son was was born on September 4th, and they

> thought that his

> foot

> > was positional because of being overdue. At one

> week, I was sent

> to a

> > specialist who said it was club foot. She used

> the Ponsiti

> method

> > with three casts and his foot looked normal. Now

> he is in the

> brace

> > with two shoes and a heavy medal bar between.

> He is suppose to

> wear

> > it for 3 months 24/7, but he screams the entire

> day with them

> on...he

> > went from 45 degrees-70 degrees. My husband and

> I made the

> decision

> > to have him wear it only at night time...any

> suggestions or

> comments

> > about what to do?

> >

> >

> >

> >

[Guest guest]

We are in the same boat our little boy hates them, I am gradually

getting him used to them and building up the time, the only thing is

we get him used to them and he gets a blister. He is wear ing them

alday but will not sleep in them, we are still plodding on !

> > I am sorry your son is having a hard time with the brace, but

> please do

> > not reduce the time yet. Also, the fact that your doctor says he

> will be

> > in the brace for 1 year (from your other post) is a red flag for

me.

> > Doctors using the Ponseti method typically have the child wear

the

> brace

> > 23/7 for 3 months and then naps and nighttime until they are at

> least 3.

> > The chance of relapse is too great until then.

> >

> > Do you mind if I ask who your doctor is? When my son was born we

> were

> > seeing a doctor that said she was using the Ponseti method, but

she

> was

> > not following the procedure exactly. In fact, I don't think she

was

> > following it at all, since what she was doing was totally

different

> than

> > what our current doctor did. I ended up researching clubfoot

> treatments

> > online and after 3 months and 11 casts we switched to a " Ponseti

> > approved " doctor, Herzenberg in Baltimore. Dr. Ponseti

actually

> > recommended we see Dr. Herzenberg since we couldn't go to Iowa.

The

> > difference was amazing. My son did end up having the Anterior

Tibial

> > Tendon Transfer surgery last Tuesday, but it was relatively minor

> > compared to what he could have ended up having. Anyway, I am

> rambling

> > now.

> >

> > My point is, your doctor could be modifying the method and your

> child may

> > be having a difficult time because his feet aren't fully

corrected.

> Maybe

> > you could call or email Dr. Ponseti. He should be able to help.

Good

> > luck!

> >

> > Bonnie B.

> > wife to Jack, 5/3/92

> > mom to Zachary, 8/3/93, , 12/29/97, and Dylan, 10/26/00-

> bilateral

> > CF, ATTT 10/28/03

> >

> >

> > On Fri, 31 Oct 2003 02:34:34 -0000 " adynsmom2003 "

> > <adynsmom2003@y...> writes:

> > My son was was born on September 4th, and they thought that his

> foot

> > was positional because of being overdue. At one week, I was sent

to

> a

> > specialist who said it was club foot. She used the Ponsiti

method

> > with three casts and his foot looked normal. Now he is in the

brace

> > with two shoes and a heavy medal bar between. He is suppose to

> wear

> > it for 3 months 24/7, but he screams the entire day with them

> on...he

> > went from 45 degrees-70 degrees. My husband and I made the

> decision

> > to have him wear it only at night time...any suggestions or

> comments

> > about what to do?

> >

> >

[Guest guest]

The shoes should not cause sores or blisters. That's why he doesn't like

them, if they're causing blisters there's something there that presses on

his poor little foot and it hurts! You need to find out why they're

hurting him and fix the problem whatever it is. Where are the blisters

forming? Are you getting his heel all the way down in the shoe? Is the

tongue sticking up too high and helping to pull his heel up once they're

tied? Do you have any pics of his feet?

You must not continue to allow those shoes to hurt his feet but taking them

off isn't the answer other than the time it takes to heal a sore (which

could be considerable and you might consider re-casting - works for many of

us). There are lots of reasons why they might cause a blister (and thus

lots of different solutions), slipping is one of the most common reasons

and often slipping is caused by the heel not seating all the way down in

the shoe in the first place (then you tighten it up with the heel raised

and this causes either a pressure sore from the plastizode pressing in the

wrong spot or movement because when the heel is raised like that it feels

tight but it's actually loose and the heel can move up and down). Do his

feet turn purple/black before he gets the sore or does it fill with fluid

like a blister?

Let's try to figure out why this is happening and get it fixed. Tell me

more about how you put the shoes on and where problems are and we can do

some troubleshooting. If you can take pics you can send them to the CFPics

yahoogroup list attached to an email so we can take a look. I would hate

to see you give up the DBB because of something that could be fixed by

fitting the shoe properly or figuring out if your son's foot is fully

corrected. We had 8w of pure hell with a sore when we first got the DBB,

it included me putting the shoes back on and making everything worse time

and again, two casts so she could finally heal the sore, going back to the

boots and getting another sore in the same spot, cutting a hole in the back

of the shoes but leaving the padding, then back asking them to cut the

padding out and suddenly... realizing her foot wasn't even all the way

down in the shoe once I could see through the boot! OMG... What a

realization... and after modifying how I put them on her sore healed and

she never got another one.

Do you have the older style Markell boots that you need plastizode inserts

for or the new ones with the larger heel pocket?

Bottom line... listen to your baby and trust your instincts (as well as

him - he knows when his feet hurt). Don't give up, this can be fixed :~}

Kori

Mamma of

Kenton 6/18/98

Merek (Maki) 3/5/00

Darbi Ruth 3/28/03

http://www.users.qwest.net/~frogabog/

At 09:19 AM 11/4/2003 +0000, you wrote:

>We are in the same boat our little boy hates them, I am gradually

>getting him used to them and building up the time, the only thing is

>we get him used to them and he gets a blister. He is wear ing them

>alday but will not sleep in them, we are still plodding on !

>

>

> > > I am sorry your son is having a hard time with the brace, but

> > please do

> > > not reduce the time yet. Also, the fact that your doctor says he

> > will be

> > > in the brace for 1 year (from your other post) is a red flag for

>me.

> > > Doctors using the Ponseti method typically have the child wear

>the

> > brace

> > > 23/7 for 3 months and then naps and nighttime until they are at

> > least 3.

> > > The chance of relapse is too great until then.

> > >

> > > Do you mind if I ask who your doctor is? When my son was born we

> > were

> > > seeing a doctor that said she was using the Ponseti method, but

>she

> > was

> > > not following the procedure exactly. In fact, I don't think she

>was

> > > following it at all, since what she was doing was totally

>different

> > than

> > > what our current doctor did. I ended up researching clubfoot

> > treatments

> > > online and after 3 months and 11 casts we switched to a " Ponseti

> > > approved " doctor, Herzenberg in Baltimore. Dr. Ponseti

>actually

> > > recommended we see Dr. Herzenberg since we couldn't go to Iowa.

>The

> > > difference was amazing. My son did end up having the Anterior

>Tibial

> > > Tendon Transfer surgery last Tuesday, but it was relatively minor

> > > compared to what he could have ended up having. Anyway, I am

> > rambling

> > > now.

> > >

> > > My point is, your doctor could be modifying the method and your

> > child may

> > > be having a difficult time because his feet aren't fully

>corrected.

> > Maybe

> > > you could call or email Dr. Ponseti. He should be able to help.

>Good

> > > luck!

> > >

> > > Bonnie B.

> > > wife to Jack, 5/3/92

> > > mom to Zachary, 8/3/93, , 12/29/97, and Dylan, 10/26/00-

> > bilateral

> > > CF, ATTT 10/28/03

> > >

> > >

> > > On Fri, 31 Oct 2003 02:34:34 -0000 " adynsmom2003 "

> > > <adynsmom2003@y...> writes:

> > > My son was was born on September 4th, and they thought that his

> > foot

> > > was positional because of being overdue. At one week, I was sent

>to

> > a

> > > specialist who said it was club foot. She used the Ponsiti

>method

> > > with three casts and his foot looked normal. Now he is in the

>brace

> > > with two shoes and a heavy medal bar between. He is suppose to

> > wear

> > > it for 3 months 24/7, but he screams the entire day with them

> > on...he

> > > went from 45 degrees-70 degrees. My husband and I made the

> > decision

> > > to have him wear it only at night time...any suggestions or

> > comments

> > > about what to do?

> > >

> > >