Re: mitoldies: MRI results ..worried

[Guest guest]

,

I'm sorry to hear of your report. I pray that the doc's will have wisdom as to what to do and for you to have a peace. Please let us know when you know something further.

HUgs,

[Guest guest]

,

I am new to this group but I do want you to know my prayers are with you. This must be a really scary thing to you about your back and neck. I am having low back problems right now. I myself have not been dx with mito, but my 2 year old granddaughter is severely affected. I hope to get to know many of you in the weeks ahead.

Thank you to Alice for inviting me to join,

Kathy B.

[Guest guest]

Oh ,

I'm so sorry to read this. Just more to add to the pile of worries. So many times, I've been told very scary things by doctors but when I went to them, things weren't so scary so I hope this is the case for you. You just don't need to be dealing with anything else, especially this.

Hugs... Prayers and best wishes go your way. Stay in touch as much as you can. I don't blame you for being scared.

Alice

well just wanted to share with you because this makes me nervous. it is very high up and if anything goes wrong it affects everything from the lesion down which is pretty much everything from the neck down. I was scared with my first surgery now this scares me more.well thanks S.

[Guest guest]

Hi ,

I wish I knew more about Lupus and could offer you something other

than my prayers for things to turn out alright with you.

Let us know after you read the report if you can figure out any more

of what is going on.

Hang in there and try to remain calm (I know it's hard). When will

you get in to see the neuro again?

Maggie

> Hello,

> Last week I went for a MRI of my neck. I had cervical surgery, a

strut graft.

> I have a plate in my neck at C4,5,6. I have been having alot of

pain in my

> neck and teh shoulder blades and down my arms, also my reflexes

are

> unbelievably hyper. they are starting to fly on their own. so my

Rheumatologist and

> neuro decided to get another neck MRI.

> My neuro called yesterday and said he wanted to talk to me so we

talked and

> he said there was a large disc protusion at C6,7. I thought ok so

that isnt so

> bad..then he said that isnt what I wanted to talk to you about.

> He said that there is a Lg increased high signal at C7, T1 and it

is coming

> from inside the cord, he also said that there is increased

swelling of the cord

> itself

> He said he called the Rheumy right away and they said it is either

MS or

> lupus induced transverse myelitis from what they see.

> I will go get the report myself today and will be able to get a

beter idea.

> well just wanted to share with you because this makes me nervous.

it is very

> high up and if anything goes wrong it affects everything from the

lesion down

> which is pretty much everything from the neck down. I was scared

with my

> first surgery now this scares me more.

> well thanks S.

[Guest guest]

,

I'm sorry your answers weren't better. I want you to remember how many people

have been misdiagnosed as having MS and Lupus and actually have Mito. My mom

and my sister and several other people are prime examples. I'm not saying I

think you have mito, but I'm saying it's likely.

HUGS!!!!!!!! Please keep me posted.

cindy

[Guest guest]

>Oh karen, As if you didn't have enough to deal with. I hope and pray it will be

OK for you, Celia

Hello,

> Last week I went for a MRI of my neck. I had cervical surgery, a strut graft.

> I have a plate in my neck at C4,5,6. I have been having alot of pain in my

> neck and teh shoulder blades and down my arms, also my reflexes are

> unbelievably hyper. they are starting to fly on their own. so my

Rheumatologist and

> neuro decided to get another neck MRI.

> My neuro called yesterday and said he wanted to talk to me so we talked and

> he said there was a large disc protusion at C6,7. I thought ok so that isnt so

> bad..then he said that isnt what I wanted to talk to you about.

> He said that there is a Lg increased high signal at C7, T1 and it is coming

> from inside the cord, he also said that there is increased swelling of the

cord

> itself

> He said he called the Rheumy right away and they said it is either MS or

> lupus induced transverse myelitis from what they see.

> I will go get the report myself today and will be able to get a beter idea.

> well just wanted to share with you because this makes me nervous. it is very

> high up and if anything goes wrong it affects everything from the lesion down

> which is pretty much everything from the neck down. I was scared with my

> first surgery now this scares me more.

> well thanks S.

[Guest guest]

I know this must be scary, but please try to stay calm until you have more

information. They may to do more testing to try to figure things out.

Take care and you will be in my thoughts.

laurie

> From: Mrsmurffy@...

> Reply-To:

> Date: Wed, 19 Nov 2003 08:10:09 EST

> To:

> Subject: : MRI results ..worried

>

> Hello,

> Last week I went for a MRI of my neck. I had cervical surgery, a strut graft.

> I have a plate in my neck at C4,5,6. I have been having alot of pain in my

> neck and teh shoulder blades and down my arms, also my reflexes are

> unbelievably hyper. they are starting to fly on their own. so my

> Rheumatologist and

> neuro decided to get another neck MRI.

> My neuro called yesterday and said he wanted to talk to me so we talked and

> he said there was a large disc protusion at C6,7. I thought ok so that isnt so

> bad..then he said that isnt what I wanted to talk to you about.

> He said that there is a Lg increased high signal at C7, T1 and it is coming

> from inside the cord, he also said that there is increased swelling of the

> cord

> itself

> He said he called the Rheumy right away and they said it is either MS or

> lupus induced transverse myelitis from what they see.

> I will go get the report myself today and will be able to get a beter idea.

> well just wanted to share with you because this makes me nervous. it is very

> high up and if anything goes wrong it affects everything from the lesion down

> which is pretty much everything from the neck down. I was scared with my

> first surgery now this scares me more.

> well thanks S.

>

[Guest guest]

Dear ,

I know I am late getting to you....Please know you are in our prayers...

Love, Lynda R.

: MRI results ..worried

Hello,Last week I went for a MRI of my neck. I had cervical surgery, a strut graft. I have a plate in my neck at C4,5,6. I have been having alot of pain in my neck and teh shoulder blades and down my arms, also my reflexes are unbelievably hyper. they are starting to fly on their own. so my Rheumatologist and neuro decided to get another neck MRI.My neuro called yesterday and said he wanted to talk to me so we talked and he said there was a large disc protusion at C6,7. I thought ok so that isnt so bad..then he said that isnt what I wanted to talk to you about.He said that there is a Lg increased high signal at C7, T1 and it is coming from inside the cord, he also said that there is increased swelling of the cord itselfHe said he called the Rheumy right away and they said it is either MS or lupus induced transverse myelitis from what they see.I will go get the report myself today and will be able to get a beter idea.well just wanted to share with you because this makes me nervous. it is very high up and if anything goes wrong it affects everything from the lesion down which is pretty much everything from the neck down. I was scared with my first surgery now this scares me more.well thanks S. Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack.