Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Hi ; I have just subscribed to the list and come in to middle of your conversation thread to Angie, regarding having to hold down for pt. When my son (now 14 yo) was young, we used to make games out of physiotherapy time. Put on the music and beat to it and sing to it during pt time. Say nursery rhymes to the beat or make up your own rhymes. One we had went something like this: I'm going out for a walk I think I'll go to the park [or wherever you want to go to make it personal] Walk, walk, walk, walk, [percuss to the beat of walking] Walk, walk, walk, walk, Uh oh! Pitter patter goes the rain [percuss to the beat of pitter patter, starting off slowly] Pitter patter goes the rain [with each pitter patter, start to do percussions a little faster] Pitter patter goes the rain Uh oh, I think I'd better run home again [another minute of fast percussions while running home]. When is used to the fact that you are playing a game, you can involve him: I'm going out for a walk Do you want to come? Where shall we go? Okay We'll go to the park This is just one example. You can put on tapes and learn songs or other rhymes that will work well. There are some great rap tapes that teach adding and multiplication that can even be introduced at an early age and have a good pt beat ... ask at a educational supply store ... do you have a Scholar's Choice or Moyer's? If your son is already into negative associations with pt time, you might try gradually reversing this by letting him do pt on you for a few minutes, then say (with a big smile), " Oh, thank-you -- 's turn. " Try combining pt with relaxing massage that feels good. Make sure, when doing percussions that you keep your hand well-cupped so it doesn't hurt. Also, do you use a small, folded hand towel between your hand and 's body? Sometimes that can make the percussions more comfortable. Each position, for my son, was (and sometimes still is) finished off with a short tickle session. The tickling induces laughter, good feelings and, often, coughing. With Dad, pt was often finished off with a fun wrestling session. We took the same approach to doing mask ... either I would read to my son during mask or preplan a fun craft ... finger painting, drawing in chocolate pudding, etc. The only drawback is that, now at 14 years old, my son still considers mask to be " fun time " and will play computer games, board games, watch T.V. -- anything leisure, but REFUSES to do any form of chore or work (such as schoolwork) during mask time. He also, still, much prefers me to do his physio percussions than to be more independent and do PEP mask on his own. In the morning he likes to sleep through mask and therapy. Later in the day or evening, he prefers to have more action ... we do therapy where he can watch T.V. or his brothers in activity. Sometimes we do therapy outside, on the deck or beach at the cottage. I am not saying that everytime went smoothly, especially during baby years ( I remember some holding down, screaming, crying, squirmy episodes), but for the most part, our fun routines worked. Have patience ... it may take awhile for to turn a negative into a positive. Good luck, pt > angie, > > my son is 17months old! > my son has to be held down to do pt. do you have this problem? > > kimberly-jason 17mn w/cf and kalvin 8 w/ot > p.s they only word he will say is dad! ot kal! or hi > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > months I > > took him to the doctor because he had a slight fever and was not > eating > > well. They could find nothing wrong. He seemed to get better over > the next > > few days. But then he stopped eating well again and acted like he > didn't > > feel well. I took him back to the doctor and he was hospitalized > for > > dehydration and this was when he was diagnosed with cf. So if you > still > > feel something is wrong take him back to the doctor! > > > > Angie (mom to JC, 16 months, wcf) > > > > PS Yesterday was exactly a year since he was diagnosed with the > first sweat > > test. > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 We are fighting with the nebulizer too. It's tough and we don't want him to hate, but it HAS to be done. Any ideas anybody? > >Reply-To: cfparents >To: cfparents >Subject: pt >Date: Thu, 19 Jul 2001 23:01:33 -0000 > >angie, > >my son is 17months old! >my son has to be held down to do pt. do you have this problem? > >kimberly-jason 17mn w/cf and kalvin 8 w/ot >p.s they only word he will say is dad! ot kal! or hi > > > > Definitely listen to mommy instincts. When JC was just shy of 4 >months I > > took him to the doctor because he had a slight fever and was not >eating > > well. They could find nothing wrong. He seemed to get better over >the next > > few days. But then he stopped eating well again and acted like he >didn't > > feel well. I took him back to the doctor and he was hospitalized >for > > dehydration and this was when he was diagnosed with cf. So if you >still > > feel something is wrong take him back to the doctor! > > > > Angie (mom to JC, 16 months, wcf) > > > > PS Yesterday was exactly a year since he was diagnosed with the >first sweat > > test. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 What a lovely way to do CPT. I love the singing and going to the park bit. Dont mind if I try those on my 14 month old, who is at the point of being a screamer and wiggler during his CPT times. I feel better that you have given me some ideas to try. Thanks Take Care, Stein........mom to CF (14 mo) & Tori wo/CF (4 yr) pt > angie, > > my son is 17months old! > my son has to be held down to do pt. do you have this problem? > > kimberly-jason 17mn w/cf and kalvin 8 w/ot > p.s they only word he will say is dad! ot kal! or hi > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > months I > > took him to the doctor because he had a slight fever and was not > eating > > well. They could find nothing wrong. He seemed to get better over > the next > > few days. But then he stopped eating well again and acted like he > didn't > > feel well. I took him back to the doctor and he was hospitalized > for > > dehydration and this was when he was diagnosed with cf. So if you > still > > feel something is wrong take him back to the doctor! > > > > Angie (mom to JC, 16 months, wcf) > > > > PS Yesterday was exactly a year since he was diagnosed with the > first sweat > > test. > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 -shannon, per previous message, we put veggie tales on and baby songs( ask me about any tape i have all of the memorized )(sP) somedays are better then others, this morring jason got a hold of his nebulizer, i went to give him his albuteraol this afternoon, i can't find part of the piece, luckley i have a back up one,. i let him watch his favorite video, i sing along, i have his brother ( kalvin 8- w/out cf) try to make him laugh. i think the worst postion is the stomach flat. he hates it@@@@ kimberly-jason 17months c.f and kalvin 8 w.out i can't wait till he can get the vest.!! or the thumper -- In cfparents@y..., " Keslar " <sjcpd33@h...> wrote: > We are fighting with the nebulizer too. It's tough and we don't > want him to hate, but it HAS to be done. Any ideas anybody? > > > > > >From: " kimberly " <kimmerrill@t...> > >Reply-To: cfparents@y... > >To: cfparents@y... > >Subject: pt > >Date: Thu, 19 Jul 2001 23:01:33 -0000 > > > >angie, > > > >my son is 17months old! > >my son has to be held down to do pt. do you have this problem? > > > >kimberly-jason 17mn w/cf and kalvin 8 w/ot > >p.s they only word he will say is dad! ot kal! or hi > > > > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > >months I > > > took him to the doctor because he had a slight fever and was not > >eating > > > well. They could find nothing wrong. He seemed to get better over > >the next > > > few days. But then he stopped eating well again and acted like he > >didn't > > > feel well. I took him back to the doctor and he was hospitalized > >for > > > dehydration and this was when he was diagnosed with cf. So if you > >still > > > feel something is wrong take him back to the doctor! > > > > > > Angie (mom to JC, 16 months, wcf) > > > > > > PS Yesterday was exactly a year since he was diagnosed with the > >first sweat > > > test. > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Hi . Pattimae is 8 months old. We have trouble doing her pt and nebs if she is very awake. It helps us to do them when she is a little sleepy. Then we give her a blanky and she pops in her thumb and goes to sleep. Of course this doesn't work every time as her stomach has to be quite empty when we begin as she has reflux and we let her eat on demand instead of having a set schedule. Right now we do blow by treatments with her nebs. She was doing the mask as a tiny baby, but the respiratory therapists wanted her to have blow bys when we were in the hospital in January and now I can't give her a mask with out a terrible fight. So I give her one of the ridged tubes to hold while I hold the other by her nose. She has learned to blow through it and make noises in it and in general keeps herself occupied. As for pt, we do her on a pillow in our lap and she watches tv. Yes at 8 months she watches tv and if we try to have it off during pt she screams until we turn it on. So in the morning we watch Martha and in the evenings Letterman. :-) There are times when she won't cooperate and we have to hold her arms out of the way and holding her down in any way makes her furious. When pt is like this I remind myself that screaming is as good a way as any of moving mucus, and I try to sing softly to her. These have worked for us and they may work for you or they may not, but it's just a suggestion. :-) Dawn, mom of 4, 5 and under, the youngest with cf pt > angie, > > my son is 17months old! > my son has to be held down to do pt. do you have this problem? > > kimberly-jason 17mn w/cf and kalvin 8 w/ot > p.s they only word he will say is dad! ot kal! or hi > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > months I > > took him to the doctor because he had a slight fever and was not > eating > > well. They could find nothing wrong. He seemed to get better over > the next > > few days. But then he stopped eating well again and acted like he > didn't > > feel well. I took him back to the doctor and he was hospitalized > for > > dehydration and this was when he was diagnosed with cf. So if you > still > > feel something is wrong take him back to the doctor! > > > > Angie (mom to JC, 16 months, wcf) > > > > PS Yesterday was exactly a year since he was diagnosed with the > first sweat > > test. > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 , Welcome to the list! And what a wonderful post! I used some of those same ideas on Cody, too. And like your husband, my husband often followed PT with wrestling! LOL LOL That is STILL both of my boys (and my daughter's too) favorite time--if I happen to be sitting on the floor for ANY reason, I am often tackled from behind! LOL Another thing we did for during the mask time was we got the Sesame Street set of CD-Roms for the computer--that was Cody's " special " time at the computer--he was playing the computer and using the mouse proficiently by the time he was 15 months--it amazed people! If I was unable to sit there with him, such as if supper was being made, my daughter would often sit with him and help him--it really helped their relationship. She would also sit and read to him while we did PT--as she was in 1st grade when he was born, this was a wonderful boost for her reading skills! It also helped her to feel " needed " . To this day, she loves to sit down and read stories to the boys, which is wonderful. We also picked one certain video that we would watch ONLY while doing treatment--his very favorite one was a Barney one for the longest time. Then he got into Scooby. We did a lot of singing during it, too--he is a music lover bigtime! LOL , mom to Codybug (pwcf, 5-1/2), a (wocf, 12-1/2) and DJ (wocf, 7) smichelle15@... pt > angie, > > my son is 17months old! > my son has to be held down to do pt. do you have this problem? > > kimberly-jason 17mn w/cf and kalvin 8 w/ot > p.s they only word he will say is dad! ot kal! or hi > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > months I > > took him to the doctor because he had a slight fever and was not > eating > > well. They could find nothing wrong. He seemed to get better over > the next > > few days. But then he stopped eating well again and acted like he > didn't > > feel well. I took him back to the doctor and he was hospitalized > for > > dehydration and this was when he was diagnosed with cf. So if you > still > > feel something is wrong take him back to the doctor! > > > > Angie (mom to JC, 16 months, wcf) > > > > PS Yesterday was exactly a year since he was diagnosed with the > first sweat > > test. > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2001 Report Share Posted July 19, 2001 Dawn, How WELL I remember having to work the treatment in around the feedings because of the reflux! Cody's was so severe, too. If we even TOUCHED him within an hour after eating, he would barf ALL over!!!! I am SO glad those days are behind us! Cody, we found out during his last hospital stay, is still refluxing, but it's more like what we do when we have terrible heartburn--and we have those " vurps " . It's bad enough that he has had to go back on Reglan (metachlopramide), but at least he's not giving Blair a run for her money anymore! LOL , mom to Codybug (pwcf, 5-1/2), a (wocf, 12-1/2) and DJ (wocf, 7) smichelle15@... pt > angie, > > my son is 17months old! > my son has to be held down to do pt. do you have this problem? > > kimberly-jason 17mn w/cf and kalvin 8 w/ot > p.s they only word he will say is dad! ot kal! or hi > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > months I > > took him to the doctor because he had a slight fever and was not > eating > > well. They could find nothing wrong. He seemed to get better over > the next > > few days. But then he stopped eating well again and acted like he > didn't > > feel well. I took him back to the doctor and he was hospitalized > for > > dehydration and this was when he was diagnosed with cf. So if you > still > > feel something is wrong take him back to the doctor! > > > > Angie (mom to JC, 16 months, wcf) > > > > PS Yesterday was exactly a year since he was diagnosed with the > first sweat > > test. > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 , Have you tried the Nebuliser when he is asleep. Harry screamed when we tried using it but then we did it when he was asleep and it was so much better. Barry Father of Harry 9 months wcf and Jack 5 1/2 ncf. pt >Date: Thu, 19 Jul 2001 23:01:33 -0000 > >angie, > >my son is 17months old! >my son has to be held down to do pt. do you have this problem? > >kimberly-jason 17mn w/cf and kalvin 8 w/ot >p.s they only word he will say is dad! ot kal! or hi > > > > Definitely listen to mommy instincts. When JC was just shy of 4 >months I > > took him to the doctor because he had a slight fever and was not >eating > > well. They could find nothing wrong. He seemed to get better over >the next > > few days. But then he stopped eating well again and acted like he >didn't > > feel well. I took him back to the doctor and he was hospitalized >for > > dehydration and this was when he was diagnosed with cf. So if you >still > > feel something is wrong take him back to the doctor! > > > > Angie (mom to JC, 16 months, wcf) > > > > PS Yesterday was exactly a year since he was diagnosed with the >first sweat > > test. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp <http://explorer.msn.com/intl.asp> PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 , How old is . Eilish used to be held down (but only twice). Now we sit on a bar stool, put our space masks on, count down then blast off........ Then she happily sits there till its finished whilst I nip into another room to do whatever. It does get better as they get used to it. But thank God for TV! pt > >Date: Thu, 19 Jul 2001 23:01:33 -0000 > > > >angie, > > > >my son is 17months old! > >my son has to be held down to do pt. do you have this problem? > > > >kimberly-jason 17mn w/cf and kalvin 8 w/ot > >p.s they only word he will say is dad! ot kal! or hi > > > > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > >months I > > > took him to the doctor because he had a slight fever and was not > >eating > > > well. They could find nothing wrong. He seemed to get better over > >the next > > > few days. But then he stopped eating well again and acted like he > >didn't > > > feel well. I took him back to the doctor and he was hospitalized > >for > > > dehydration and this was when he was diagnosed with cf. So if you > >still > > > feel something is wrong take him back to the doctor! > > > > > > Angie (mom to JC, 16 months, wcf) > > > > > > PS Yesterday was exactly a year since he was diagnosed with the > >first sweat > > > test. > > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 Patti is still on Reglan and Zantac, but her refluxing decresed a lot when we finally got the docs to ok a switch to lacto free formula. And like you said, she is still doing it, but it is mostly internal. My Sammye used to do that to, and rather than put her on propulsid (the med. at the time) we would give her half a teaspoon of children's Mylanta about 20 minutes before eating. Now with all the bad things coming out about propulsid I'm glad we didn't go ahead and have her put on it. Dawn mom of 4, 5 and under, the youngest wcf pt > > > > angie, > > > > my son is 17months old! > > my son has to be held down to do pt. do you have this problem? > > > > kimberly-jason 17mn w/cf and kalvin 8 w/ot > > p.s they only word he will say is dad! ot kal! or hi > > > > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > > months I > > > took him to the doctor because he had a slight fever and was not > > eating > > > well. They could find nothing wrong. He seemed to get better over > > the next > > > few days. But then he stopped eating well again and acted like he > > didn't > > > feel well. I took him back to the doctor and he was hospitalized > > for > > > dehydration and this was when he was diagnosed with cf. So if you > > still > > > feel something is wrong take him back to the doctor! > > > > > > Angie (mom to JC, 16 months, wcf) > > > > > > PS Yesterday was exactly a year since he was diagnosed with the > > first sweat > > > test. > > > > > > > > PLEASE do not post religious emails to the list. > > > > > > ------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 With , we eventually discovered that we were doing pt a bit too hard. Remember, it's not the force, it's the popping sound you want. See if you can lighten up and still get a good popping sound. Dori, mom of , 21, wcf; and Adriel, 19, wocf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 dawn, what is a blow by?? we only have the neb cup that has the long plastic tube that you put in jason mouth! he has hidden this from me ( he open the compressor when i was not looking and it has been lost for a couple of days ) i was useing the pari(sp) neb from the cf pharamacy, now i have the use the one the sell at the local drup store until i find out what he did with the rest of it. when jason was in the hospital i brought some veggie tales tapes( we already had some baby songs from my older son ( he is 8 w.out cf) and jason now will only watch those! my husband gives him his treartments on the weekend, he waits till 12pm to give them to him and then he puts him down for a nap we cannot give jason his treatments till after he has eaten or drank a bottle or he will throw up! kimberly- jason 17months w/cf and kalvin 8 w./out > > > Definitely listen to mommy instincts. When JC was just shy of 4 > > months I > > > took him to the doctor because he had a slight fever and was not > > eating > > > well. They could find nothing wrong. He seemed to get better over > > the next > > > few days. But then he stopped eating well again and acted like he > > didn't > > > feel well. I took him back to the doctor and he was hospitalized > > for > > > dehydration and this was when he was diagnosed with cf. So if you > > still > > > feel something is wrong take him back to the doctor! > > > > > > Angie (mom to JC, 16 months, wcf) > > > > > > PS Yesterday was exactly a year since he was diagnosed with the > > first sweat > > > test. > > > > > > > > PLEASE do not post religious emails to the list. > > > > > > ------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 I too, had to hold Micah down to do his treatments when he was about two. It gave me a good case of tendonitis, in fact. However, it didn't last long and we learned to watch tv or play games when we did pt. Usually, Micah fell asleep during cpt, especially at night. I think that he wasn't fighting his treatment so much as he was fighting going to sleep!!! He slept through it most every time!!!!! Try playing games with your 17 mo old. Or telling him stories or " playing " him like a drum. Micah used to love it and cpt became " our time " . Good luck, a ::Mom to Micah, 12,wcf, , 14,nocf and , 26,nocf::: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 That's actually a good idea, but the drs have asked us to do cpt right after the nebulizer. I actually like him crying, because then we don't have to ask him to cough afterwards. He usually does it on his own, but the problem is him hating the treatments........ shannon > >Reply-To: cfparents >To: " 'cfparents ' " <cfparents > >Subject: RE: pt >Date: Fri, 20 Jul 2001 08:28:31 +0100 > >, > >Have you tried the Nebuliser when he is asleep. Harry screamed when we >tried >using it but then we did it when he was asleep and it was so much better. > >Barry >Father of Harry 9 months wcf and Jack 5 1/2 ncf. > > pt > >Date: Thu, 19 Jul 2001 23:01:33 -0000 > > > >angie, > > > >my son is 17months old! > >my son has to be held down to do pt. do you have this problem? > > > >kimberly-jason 17mn w/cf and kalvin 8 w/ot > >p.s they only word he will say is dad! ot kal! or hi > > > > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > >months I > > > took him to the doctor because he had a slight fever and was not > >eating > > > well. They could find nothing wrong. He seemed to get better over > >the next > > > few days. But then he stopped eating well again and acted like he > >didn't > > > feel well. I took him back to the doctor and he was hospitalized > >for > > > dehydration and this was when he was diagnosed with cf. So if you > >still > > > feel something is wrong take him back to the doctor! > > > > > > Angie (mom to JC, 16 months, wcf) > > > > > > PS Yesterday was exactly a year since he was diagnosed with the > >first sweat > > > test. > > > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp ><http://explorer.msn.com/intl.asp> > > > >PLEASE do not post religious emails to the list. > > >------------------------------------------- > > >The opinions and information exchanged on this list should >IN NO WAY >be construed as medical advice. > >PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR >TREATMENTS. > >-------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 We have been told to do cpt " before " the nebulizer. The explanation was that you don't want them to cough up the antibiotics they have just breathed in.!!!! But that the UK way I suppose. RE: pt > That's actually a good idea, but the drs have asked us to do cpt right after > the nebulizer. I actually like him crying, because then we don't have to ask > him to cough afterwards. He usually does it on his own, but the problem is > him hating the treatments........ > > shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 We do Connor's ventilin before cpt to open the airways but not usually his neb antibiotic. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 Margaret, The way that we are told to do it is to do the neb with the albuterol in it before (or as in the case of the vest, during) CPT, as it opens up the lungs and allows them to cough everything out. BUT, we are supposed to wait to do his TOBI or other inhaled antibiotics (Colistin, etc.) until after CPT, as then the lungs are clearer and the antibiotics can hopefully get deeper in there to do a good job. , mom to Codybug (pwcf, 5-1/2), a (wocf, 12-1/2) and DJ (wocf, 7) smichelle15@... RE: pt > That's actually a good idea, but the drs have asked us to do cpt right after > the nebulizer. I actually like him crying, because then we don't have to ask > him to cough afterwards. He usually does it on his own, but the problem is > him hating the treatments........ > > shannon PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 , When we started doing the cpt at 4 months JC really cried and cried and my husband and I would get upset, so we started doing it while he is asleep. We let him fall asleep for his morning nap and at night on a pillow. Then when he is sound asleep we start the cpt. He will generally sleep right through it as long as we are gentle when we turn him to the different positions. We have been told that when he gets older and can be taught to cough we need to do the cpt while he is awake so that he can cough while we are doing it. But for now this is what works for us. So far he has had no problems with his lungs, not even a chest cold. ( I attribute this to breastfeeding and no daycare). We do pat his chest and back during the day while we are playing with him also. He will tolerate it for a couple of minutes at a time. I don't know how he will do when we start doing the cpt while he is awake. This child never stops while he is awake. He is constantly moving, exploring, and generally being a boy. Angie (mom to JC, 16 months, wcf) pt > angie, > > my son is 17months old! > my son has to be held down to do pt. do you have this problem? > > kimberly-jason 17mn w/cf and kalvin 8 w/ot > p.s they only word he will say is dad! ot kal! or hi > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 michelle, can re-send me the e-mail?? long story( jason its mouse , i am out the room, !@ to all those who have e-mailed me privately, i am sorry i have not replyed, something is wroung , none of my e-mails are going though, i have to have my husband look into it, kimberly, jason-17 months w/cf and kalvin 8 w/out > > > > Definitely listen to mommy instincts. When JC was just shy of 4 > > > months I > > > > took him to the doctor because he had a slight fever and was not > > > eating > > > > well. They could find nothing wrong. He seemed to get better > over > > > the next > > > > few days. But then he stopped eating well again and acted like > he > > > didn't > > > > feel well. I took him back to the doctor and he was > hospitalized > > > for > > > > dehydration and this was when he was diagnosed with cf. So if > you > > > still > > > > feel something is wrong take him back to the doctor! > > > > > > > > Angie (mom to JC, 16 months, wcf) > > > > > > > > PS Yesterday was exactly a year since he was diagnosed with the > > > first sweat > > > > test. > > > > > > > > > > > > PLEASE do not post religious emails to the list. > > > > > > > > > ------------------------------------------- > > > > > > > > > The opinions and information exchanged on this list should > > > IN NO WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > -------------------------------------------------- > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 You are probably correct as you are using antibiotics. Patti is only on albuterol and saline though. All that is used for is the thining of mucus, which of course makes the cpt easier in the aspect of her mucus draining. Dawn mom of 4, 5 and under the youngest wcf RE: pt > > > > That's actually a good idea, but the drs have asked us to do cpt right > after > > the nebulizer. I actually like him crying, because then we don't have to > ask > > him to cough afterwards. He usually does it on his own, but the problem is > > him hating the treatments........ > > > > shannon > > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 We were told do do antibiotic's in neb. after physio so the mucus is moved and they have a better chance at getting down there, But with ventolin we do it before to loosen up the mucus. RE: pt > > > > That's actually a good idea, but the drs have asked us to do cpt right > after > > the nebulizer. I actually like him crying, because then we don't have to > ask > > him to cough afterwards. He usually does it on his own, but the problem is > > him hating the treatments........ > > > > shannon > > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 Re: pt > > > We have been told to do cpt " before " the nebulizer. The explanation was > that you don't want them to cough up the antibiotics they have just breathed > in.!!!! > But that the UK way I suppose. > I understand now!! We don't have anything to nebulise that opens the airways at the moment. I think because her airways are reasonably clear at the moment. We do cpt then we nebulise the antibiotics. Thanks for the info everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2001 Report Share Posted July 23, 2001 angie, i was doing jason night treatment at 6pm, before he ate dinner, he goes to sleep between 7:30 and 8 pm. my husband started doing it a 7:30 and i notice this weekend he sat still . must of been because he was sleepy! but, in the am i still have to do it at 6am kimberly- jason 17 monts w/cf kalvin 8 no cf > , > > When we started doing the cpt at 4 months JC really cried and cried and my > husband and I would get upset, so we started doing it while he is asleep. > We let him fall asleep for his morning nap and at night on a pillow. Then > when he is sound asleep we start the cpt. He will generally sleep right > through it as long as we are gentle when we turn him to the different > positions. We have been told that when he gets older and can be taught to > cough we need to do the cpt while he is awake so that he can cough while we > are doing it. But for now this is what works for us. So far he has had no > problems with his lungs, not even a chest cold. ( I attribute this to > breastfeeding and no daycare). We do pat his chest and back during the day > while we are playing with him also. He will tolerate it for a couple of > minutes at a time. I don't know how he will do when we start doing the cpt > while he is awake. This child never stops while he is awake. He is > constantly moving, exploring, and generally being a boy. > > Angie (mom to JC, 16 months, wcf) > > > pt > > > > angie, > > > > my son is 17months old! > > my son has to be held down to do pt. do you have this problem? > > > > kimberly-jason 17mn w/cf and kalvin 8 w/ot > > p.s they only word he will say is dad! ot kal! or hi > > > > > ------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2001 Report Share Posted July 24, 2001 I've seen kids suck on pacifiers while the nebs are under the nose. They probably breathe in more than they would if they are fighting you all the way. And a lot of it goes into the air, anyway, when they exhale. Dori Quote Link to comment Share on other sites More sharing options...
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