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Can anyone comment on whether someone with Mito, who is unable to work, can claim Social Security disability benefits when they reach age 18?

Hi Jim,

I started getting SSI when I was 19. We applied when I was 18 and it took awhile, but once I got it they paid me back from the date that I applied. I had never worked, so I did not qualify for social security disability. I only qualified for SSI since SSD is dependent upon how much someone has worked. With the SSI, I also got medical assistance as a secondary insurance, which has been great and has covered most of the vitamins and supplements that I need, along with all of my prescriptions.

Malisa

"Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know it so it goes on flying anyway".- Kay Ash

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Hello everyone:

Can anyone comment on whether someone with Mito, who is unable to

work, can claim Social Security disability benefits when they reach

age 18? My son, who is presently 17, is unable to have a part time

job, (primarily because he cannot know in advance how he would feel

on a day to day basis and secondarily due to his chronic diarreha).

He has been home tutored, but this has stopped just recently because

he does not have the stamina for school work. Needless to say, I was

disappointed, but I think that without the stress from school work,

it may help to get him healthy. Anyway, he assures me that a GED is

not all that bad.

Jim

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Hi Hanna:

That's a great web site - thanks. It appears that he may qualify for

some form of disability benefits when he turns 18 because the SSA

will not consider my salary at that age. But they will also have to

determine if he has a disability that can prevent him from performing

certain functions. That's what we won't know until we apply. So

that's why I asked if anybody with Mito is obtaining disability

income.

He's doing fine after his muscle biospy- thanks for asking. He's

going to see Dr Plunkett this afternoon for a followup but he really

did not have any problems with the incision. In fact, he did not even

take any pain medication. He's a tough kid - so I know that his mito

disorder must surely affect him bad when he's having a bad day

because he usually can endure a lot!! We were told that we will not

get all the results for up to three months. Dr Ambrus upped his Co Q-

10 to 400mg (half in the am and the other half at night). He is still

taking 800iu's of Vit E and 1000 mg of Vitamin C. Dr Ambrus did not

have an answer for what the stretch marks are caused by.

I hope that you are well and that this recent snow storm didn't

affect you too much

Jim

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Jim

You might want to apply for SSI for your son before he turns 18. It is then

usually easier to get SSI benefits after 18. The big kicker in this is if

your income is high.

laurie

>

> Reply-To:

> Date: Thu, 18 Dec 2003 16:48:17 -0000

> To:

> Subject: disability benefits

>

> Hello everyone:

>

> Can anyone comment on whether someone with Mito, who is unable to

> work, can claim Social Security disability benefits when they reach

> age 18? My son, who is presently 17, is unable to have a part time

> job, (primarily because he cannot know in advance how he would feel

> on a day to day basis and secondarily due to his chronic diarreha).

> He has been home tutored, but this has stopped just recently because

> he does not have the stamina for school work. Needless to say, I was

> disappointed, but I think that without the stress from school work,

> it may help to get him healthy. Anyway, he assures me that a GED is

> not all that bad.

>

> Jim

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

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> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

> ----------------------------------------------------------------------------

>

>

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