Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Does anyone know what kind of abnormalities they are looking for on the MRI? I know nothing is going to show up. Anyways I will be very surprised if anything does. The doctor said she was going to order an exercise test, but she has not yet. I know that something will show up on that. Hi Dawn, I had an MRI of my leg muscle a few years ago, before mito was suspected. I have a lot of muscle pain and muscle fatigue and what the MRI showed was hyperintense signals in the muscles, indicating inflammation and muscle strain. The radiologist at the time said I had shin splints, even though I didn't have any symptoms of that. I had my mito doctor look at the MRI films with his radiologist last spring and they concluded that it was not shin splints. They said it looked like muscle breakdown and that any person who walked or ran alot would have the same changes. However, I hadn't done either one when I had it done, so they concluded that it was b/c my muscles were weak and couldn't keep up with my level of activity. So, based on that, he ordered a research test of my leg muscle called an MR spectroscopy. This is similar to the MR spectroscopy of the brain where they look at certain chemicals, but they did it with my muscle. That showed abnormal levels of phosphocreatine recovery in the muscle after "exercise". I don't think this particular test is available everywhere, but it seems like it provides useful info. specifically about the muscle and is particularly useful in disorders involving mitochondrial function. Malisa "Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee doesn't know it so it goes on flying anyway".- Kay Ash Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Dawn I know they can see the muscles and tendons on an MRI as that is what they were looking at with my shoulder (torn rotator cuff). Maybe it was to see if there is atrophy of the muscles - just guessing. laurie > > Reply-To: > Date: Thu, 18 Dec 2003 16:47:25 -0000 > To: > Subject: MRI of muscles? > > On Tuesday I had an MRI of my muscles at Milwaukee medical college. > I thought it would be a short MRI. It took them a whole hour. They > said they were basically scanning my whole body. Does anyone know > what kind of abnormalities they are looking for on the MRI? I know > nothing is going to show up. Anyways I will be very surprised if > anything does. The doctor said she was going to order an exercise > test, but she has not yet. I know that something will show up on > that. I wonder if I should call her and remind her about ordering > the test. Maybe she is waiting for the MRI results. It is pathetic > when you want a test to come back abnormal. It is not that I want to > be sick. It is that I know I am sick. I hate haveing to prove > myself. Fortunately my family is supportive and feels something is > definitely wrong with me. They don't think it is at all > psychological. I don't fill them in on everything that my neuro has > said or they would get very angry. I keep going to the same Dr. > because I believe she knows her stuff. She just made a big mistake > with me. No one is perfect. > > Dawn > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > ---------------------------------------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 http://www.spiralnotebook.org/newimproved/index.html link to article on the use of MR spectroscopy in diagnosing and monitoring CPT deficiency and other metabolic muscle disease. > In a message dated 12/18/2003 11:51:32 AM Eastern Standard Time, > manich@n... writes: > Does anyone know > what kind of abnormalities they are looking for on the MRI? I know > nothing is going to show up. Anyways I will be very surprised if > anything does. The doctor said she was going to order an exercise > test, but she has not yet. I know that something will show up on > that. > Hi Dawn, > I had an MRI of my leg muscle a few years ago, before mito was suspected. I > have a lot of muscle pain and muscle fatigue and what the MRI showed was > hyperintense signals in the muscles, indicating inflammation and muscle strain. The > radiologist at the time said I had shin splints, even though I didn't have any > symptoms of that. > I had my mito doctor look at the MRI films with his radiologist last spring > and they concluded that it was not shin splints. They said it looked like > muscle breakdown and that any person who walked or ran alot would have the same > changes. However, I hadn't done either one when I had it done, so they concluded > that it was b/c my muscles were weak and couldn't keep up with my level of > activity. > > So, based on that, he ordered a research test of my leg muscle called an MR > spectroscopy. This is similar to the MR spectroscopy of the brain where they > look at certain chemicals, but they did it with my muscle. That showed abnormal > levels of phosphocreatine recovery in the muscle after " exercise " . I don't > think this particular test is available everywhere, but it seems like it provides > useful info. specifically about the muscle and is particularly useful in > disorders involving mitochondrial function. > Malisa > > " Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee > doesn't know it so it goes on flying anyway " . > - Kay Ash Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Malisa Thanks for sharing. I find this really interesting. laurie > From: Malilibear@... > Reply-To: > Date: Thu, 18 Dec 2003 15:38:52 EST > To: > Subject: Re: MRI of muscles? > > In a message dated 12/18/2003 11:51:32 AM Eastern Standard Time, > manich@... writes: > Does anyone know > what kind of abnormalities they are looking for on the MRI? I know > nothing is going to show up. Anyways I will be very surprised if > anything does. The doctor said she was going to order an exercise > test, but she has not yet. I know that something will show up on > that. > Hi Dawn, > I had an MRI of my leg muscle a few years ago, before mito was suspected. I > have a lot of muscle pain and muscle fatigue and what the MRI showed was > hyperintense signals in the muscles, indicating inflammation and muscle > strain. The > radiologist at the time said I had shin splints, even though I didn't have any > symptoms of that. > I had my mito doctor look at the MRI films with his radiologist last spring > and they concluded that it was not shin splints. They said it looked like > muscle breakdown and that any person who walked or ran alot would have the > same > changes. However, I hadn't done either one when I had it done, so they > concluded > that it was b/c my muscles were weak and couldn't keep up with my level of > activity. > > So, based on that, he ordered a research test of my leg muscle called an MR > spectroscopy. This is similar to the MR spectroscopy of the brain where they > look at certain chemicals, but they did it with my muscle. That showed > abnormal > levels of phosphocreatine recovery in the muscle after " exercise " . I don't > think this particular test is available everywhere, but it seems like it > provides > useful info. specifically about the muscle and is particularly useful in > disorders involving mitochondrial function. > Malisa > > " Aerodynamically, the bumble bee shouldn't be able to fly, but the bumble bee > doesn't know it so it goes on flying anyway " . > - Kay Ash > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Barbara Thanks for the link. laurie > > Reply-To: > Date: Thu, 18 Dec 2003 20:45:57 -0000 > To: > Subject: Re: MRI of muscles? > > http://www.spiralnotebook.org/newimproved/index.html > > link to article on the use of MR spectroscopy in diagnosing and > monitoring CPT deficiency and other metabolic muscle disease. > > > >> In a message dated 12/18/2003 11:51:32 AM Eastern Standard Time, >> manich@n... writes: >> Does anyone know >> what kind of abnormalities they are looking for on the MRI? I know >> nothing is going to show up. Anyways I will be very surprised if >> anything does. The doctor said she was going to order an exercise >> test, but she has not yet. I know that something will show up on >> that. >> Hi Dawn, >> I had an MRI of my leg muscle a few years ago, before mito was > suspected. I >> have a lot of muscle pain and muscle fatigue and what the MRI > showed was >> hyperintense signals in the muscles, indicating inflammation and > muscle strain. The >> radiologist at the time said I had shin splints, even though I > didn't have any >> symptoms of that. >> I had my mito doctor look at the MRI films with his radiologist > last spring >> and they concluded that it was not shin splints. They said it > looked like >> muscle breakdown and that any person who walked or ran alot would > have the same >> changes. However, I hadn't done either one when I had it done, so > they concluded >> that it was b/c my muscles were weak and couldn't keep up with my > level of >> activity. >> >> So, based on that, he ordered a research test of my leg muscle > called an MR >> spectroscopy. This is similar to the MR spectroscopy of the brain > where they >> look at certain chemicals, but they did it with my muscle. That > showed abnormal >> levels of phosphocreatine recovery in the muscle after " exercise " . > I don't >> think this particular test is available everywhere, but it seems > like it provides >> useful info. specifically about the muscle and is particularly > useful in >> disorders involving mitochondrial function. >> Malisa >> >> " Aerodynamically, the bumble bee shouldn't be able to fly, but the > bumble bee >> doesn't know it so it goes on flying anyway " . >> - Kay Ash > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > ---------------------------------------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
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