Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 , I found this fascinating. Do you remember where you found this info? So many of us with adrenal/thyroid problems have trouble sleeping and could be unknowingly using sleep aids that are making us far worse. If true, this info needs to be disseminated to the whole thyroid/adrenal community. > > Holy crap I just found this: > > If you take too much melatonin, you may experience the following effects: > > If you take too much melatonin, you may experience the following effects: > > * Drowsiness upon arising > * Wild, not just vivid, (bad) dreams > * An excess of the thyroid hormone (T3), resulting in waking up > nervous, sweating, and with palpitations > > Maybe I've been doing this to myself by taking these herbal sleep > remedies. I guess I know one thing to stop taking. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 , does it say how much is too much? Can you post a link to where you read it? thanks, sol jasrich wrote: > If you take too much melatonin, you may experience the following effects: > > * Drowsiness upon arising > * Wild, not just vivid, (bad) dreams > * An excess of the thyroid hormone (T3), resulting in waking up > nervous, sweating, and with palpitations > > Maybe I've been doing this to myself by taking these herbal sleep > remedies. I guess I know one thing to stop taking. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 I had the exact same thing happen to me when I started out with Melatonin. I took 2 mg. about 2 hours later I had what I think was a panic attack. I felt very altered, shaky, I felt like I could not breathe and my pulse was flying. I wrote the board (NTH) about it and someone there, who is a chemist answered my post. He explained to me that melatonin can, indeed cause this reaction if your body has really low thyroid and or low cortisol. He advised me to drop to 1/2 of 1 mg. and slowly increase (like 1/4 mg every few weeks) all the while doing what I needed to do the address the thyroid/ adrenal issues. His advise made sense to me and I dropped back to 1/2 and never had that reaction again. I currently take 1 mg and don't intend to increase this until my adrenals are healthy again. Hope this helps, in TN Had another attack last night This one was as bad as the first several weeks ago and came on exactly the same way. I took my bed-time dose of 5mg of HC at 11PM, with a piece of cheese, read until around 11:30, turned off the light and immediately fell asleep. At 12:30 I woke up all of a sudden, sweating, panicking, with my hands and feet tingling, pain in the stomach, nausea, short of breath, palps, etc. I tried to ride out the panic by reasoning with myself that I knew what this was and that it would go away, but it was too intense so I got up and took a Xanax. I fell back to sleep eventually, but I feel tired and pretty much awful today as I always do after I have these things. I just don't understand what is causing these as I can't be going low cortisol and hypogly less than an hour after taking HC. It's different from how I wake up at 5AM hungry and sweating. I know when that happens that I have to get up and eat which is what I have been doing this past week to deal with the middle of the night hypogly. One thing that I noticed last night is that the label on my melatonin/valerian root/gaba herbal sleep aid warns about taking it if one has endocrine disorders. Maybe the melatonin is doing this? Holy crap I just found this: If you take too much melatonin, you may experience the following effects: If you take too much melatonin, you may experience the following effects: * Drowsiness upon arising * Wild, not just vivid, (bad) dreams * An excess of the thyroid hormone (T3), resulting in waking up nervous, sweating, and with palpitations Maybe I've been doing this to myself by taking these herbal sleep remedies. I guess I know one thing to stop taking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Found it here - http://www.diagnose-me.com/treat/T77232.html . I was taking the full boat of 3mg but I have no intention of tempting another attack by taking it again at lower doses - Klonopin and Lunesta work fine (I alternate them, I don't take them together). I'm starting to think that much of the night time cortisol trouble that I have been having has been as a result of melatonin b/c I have been taking it almost the entire time that I was taking Iso and now HC. I spoke to my sister tonight and learned that my 11 year old niece, who I believe has an undiagnosed thyroid condition, had the same reaction when my sister gave her melatonin once. It doesn't completely explain the lingering reaction in my hands and feet, but I believe that those symptoms are also mostly thyroid related. > > , > I found this fascinating. > > Do you remember where you found this info? So many of us with > adrenal/thyroid problems have trouble sleeping and could be > unknowingly using sleep aids that are making us far worse. If true, > this info needs to be disseminated to the whole thyroid/adrenal community. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Thanks , it helps a lot to know what has probably been causing these attacks and that I'm not the only one. At 1AM when you're panicking it feels awfully lonely. I'm not going to risk it with melatonin anymore so hopefully I'm done waking up like that. > > I had the exact same thing happen to me when I started out with Melatonin. > I took 2 mg. about 2 hours later I had what I think was a panic attack. I > felt very altered, shaky, I felt like I could not breathe and my pulse was > flying. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 jasrich wrote: > Found it here - http://www.diagnose-me.com/treat/T77232.html . I was > taking the full boat of 3mg but I have no intention of tempting > another attack by taking it again at lower doses - Klonopin and > Lunesta work fine (I alternate them, I don't take them together). Do you get the awful rotten taste in the mouth from the Lunesta? I don't think I could stand to take it even if it had worked for me. It made even plain water taste like steeped sewage. Not only did Lunesta not work for me, if I recall correctly (having tried so many sleep meds) I got literally zero sleep the nights I took it. It was so bad, I couldn't keep on though supposedly most of these things work better the longer you take them. sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 I heard that the metallic/fish taste is common with Lunesta but, surprisingly, since I usually get to experience every nasty side-effect of everything I take, I don't get that one and it does seem to help me sleep. Klonopin seems to work the best for me, but I don't want to take it every night. BTW everyone, I did NOT take the melatonin !@#$ last night and, wonder of wonders, I slept straight through from 11:30PM to 6:30AM without waking up at all (I did take the Klonopin). After the past two weeks, 7 hours of uninterrupted sleep, let alone interrupted with a panic attack and heart palps, was like a gift from the gods. I'll withhold judgment for the next week or so as I test this theory, but I think I found at least that problem. I still had to get up at 6:30AM to eat after getting up to go to the bathroom b/c I was definitely low cortisol, hypogly by then, but I can live with that for now. Thanks to all who helped me figure this out and everyone beware of melatonin, at least at the 3mg dose that most of these herbal remedies come in. > > Found it here - http://www.diagnose-me.com/treat/T77232.html . I was > > taking the full boat of 3mg but I have no intention of tempting > > another attack by taking it again at lower doses - Klonopin and > > Lunesta work fine (I alternate them, I don't take them together). > Do you get the awful rotten taste in the mouth from the Lunesta? I don't > think I could stand to take it even if it had worked for me. It made > even plain water taste like steeped sewage. Not only did Lunesta not > work for me, if I recall correctly (having tried so many sleep meds) I > got literally zero sleep the nights I took it. It was so bad, I couldn't > keep on though supposedly most of these things work better the longer > you take them. > sol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 Had another tonight, not quite as bad, but came on exactly as they all do, 30 - 45 minutes after I fell asleep. I haven't taken the melatonin in three nights so can't blame that this time. I don't see how this could be a low cortisol issue since I'm taking 5mg of HC right before bed, but I just took 2.5mg more like I would if I woke up at 4 or 5AM. I'm really at my wits end with these attacks. I'm going to call my doc tomorrow, but my DO doesn't think that I should be on HC so I know where that call will lead if I get to talk to him which is doubtful. I couldn't get my Top Doc to focus when I tried to talk to him about these attacks a couple of weeks ago, but he's the one that prescribed the HC so I guess that I'll call and blame it on that and see what he says, but I'm not hopeful that he'll have an answer. I know that I had never experienced anything like this before I started taking Iso or HC so it seems like cortisol must be involved, but I don't understand what the problem is. The only change in meds or supplements over the past few days is stopping the melatonin at night, and adding 1/4 grain of Armour two days ago. In addition to the 20 - 25mg of HC and now 1 1/4 grain of Armour, I'm taking 1000mg of flax seed oil, vitamins B-50, and B-12 2X/day, vitamin B-5 1X/day, and 5000IU of vitamin D 3x/week. I'm also going to do as Val advised someone else today and discontinue the supplements and add them back in one at a time - I was going to do that anyway as the GI upset over the past two weeks has been almost continuous. Thanks in advance for any thoughts or advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 - I also get this, and I don't take melatonin. Do you eat something before you go to bed? I found that this could bring on these 'attacks' - and after much research I found it was gastroparesis - delayed stomach emptying, which causes blood sugar swings. The condition is related to hypothyroidism (simply - the stomach doesn't empty quickly enough, and diabetes, where high glucose over the years has damaged the vagus nerve which controls the stomach and other nervous system functions). It eases when I am on the right dose of thyroid, which for me is a mixture of Armour and T3 (still finding the right combination). Too much thyroid will also give me this - you have just increased your Armour? Stressed adrenals also. Maybe the HC isn't strong enough for you at nighttime? May be you need something that is stronger and lasts longer like prednisolone. Hope this helps a bit. Nicola -- In NaturalThyroidHormonesADRENALS , " jasrich " wrote: > > Had another tonight, not quite as bad, but came on exactly as they all > do, 30 - 45 minutes after I fell asleep. I haven't taken the > melatonin in three nights so can't blame that this time. I don't see > how this could be a low cortisol issue since I'm taking 5mg of HC > right before bed, but I just took 2.5mg more like I would if I woke up > at 4 or 5AM. I'm really at my wits end with these attacks. I'm going > to call my doc tomorrow, but my DO doesn't think that I should be on > HC so I know where that call will lead if I get to talk to him which > is doubtful. I couldn't get my Top Doc to focus when I tried to talk > to him about these attacks a couple of weeks ago, but he's the one > that prescribed the HC so I guess that I'll call and blame it on that > and see what he says, but I'm not hopeful that he'll have an answer. > I know that I had never experienced anything like this before I > started taking Iso or HC so it seems like cortisol must be involved, > but I don't understand what the problem is. The only change in meds or > supplements over the past few days is stopping the melatonin at night, > and adding 1/4 grain of Armour two days ago. In addition to the 20 - > 25mg of HC and now 1 1/4 grain of Armour, I'm taking 1000mg of flax > seed oil, vitamins B-50, and B-12 2X/day, vitamin B-5 1X/day, and > 5000IU of vitamin D 3x/week. I'm also going to do as Val advised > someone else today and discontinue the supplements and add them back > in one at a time - I was going to do that anyway as the GI upset over > the past two weeks has been almost continuous. > > Thanks in advance for any thoughts or advice. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 Hi Nicola, I do eat before I go to bed b/c I take HC at that time so that I can sleep. I know that I'm not on enough thyroid hormone and everything that I'm doing with adrenal support is aimed at making it possible for me to increase my dose of Armour, but I just can't seem to get there - one set back after another. I probably do need more cortisol and I had already decided to increase the HC today to a total dose of 22.5mg or maybe even 25mg (from 20mg). Maybe I do need something stronger, but it was hard enough to find a doc to prescribe the HC, I don't know how I would get one to give me something more. Do you take your HC at night? How did you get around the need to eat with it? Thanks for responding, > > - > > I also get this, and I don't take melatonin. Do you eat something > before you go to bed? I found that this could bring on > these 'attacks' - and after much research I found it was > gastroparesis - delayed stomach emptying, which causes blood sugar > swings. The condition is related to hypothyroidism (simply - the > stomach doesn't empty quickly enough, and diabetes, where high > glucose over the years has damaged the vagus nerve which controls the > stomach and other nervous system functions). It eases when I am on > the right dose of thyroid, which for me is a mixture of Armour and T3 > (still finding the right combination). > > Too much thyroid will also give me this - you have just increased > your Armour? Stressed adrenals also. > > Maybe the HC isn't strong enough for you at nighttime? May be you > need something that is stronger and lasts longer like prednisolone. > > Hope this helps a bit. > > Nicola Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 You will get there with the thyroid, but it takes time. I'm almost 2 years in, and still haven't found the right dose for me, although I think I'm close. The 3-5 grain Armour thing did not work for me - I got up to 3 grains and overdosed on T4. Then I switched to T3. I do not know what causes this, but I think it is just that everything has slowed down from being hypo. I haven't found anything that works, guaranteed, every time, but thyroid hormone comes the closest. How do you sleep for the rest of the night? Does the bedtime dose of HC see you through? Why do you eat before you go to bed - is it because you are hypoglycemic? This was the case with me for a good 18 months, and I am still not clear of it now, but getting there. My adrenals are a basketcase - HC does nothing for me. I take 1.5mg Prednisolone before I go to bed, and eat, and it still happens to me. It is a mystery. Let me know how you go. Sorry I can't be of more help. Nicola - In NaturalThyroidHormonesADRENALS , " jasrich " wrote: > > Hi Nicola, I do eat before I go to bed b/c I take HC at that time so > that I can sleep. I know that I'm not on enough thyroid hormone and > everything that I'm doing with adrenal support is aimed at making it > possible for me to increase my dose of Armour, but I just can't seem > to get there - one set back after another. I probably do need more > cortisol and I had already decided to increase the HC today to a total > dose of 22.5mg or maybe even 25mg (from 20mg). Maybe I do need > something stronger, but it was hard enough to find a doc to prescribe > the HC, I don't know how I would get one to give me something more. > > Do you take your HC at night? How did you get around the need to eat > with it? > > Thanks for responding, > > > > > > > > - > > > > I also get this, and I don't take melatonin. Do you eat something > > before you go to bed? I found that this could bring on > > these 'attacks' - and after much research I found it was > > gastroparesis - delayed stomach emptying, which causes blood sugar > > swings. The condition is related to hypothyroidism (simply - the > > stomach doesn't empty quickly enough, and diabetes, where high > > glucose over the years has damaged the vagus nerve which controls the > > stomach and other nervous system functions). It eases when I am on > > the right dose of thyroid, which for me is a mixture of Armour and T3 > > (still finding the right combination). > > > > Too much thyroid will also give me this - you have just increased > > your Armour? Stressed adrenals also. > > > > Maybe the HC isn't strong enough for you at nighttime? May be you > > need something that is stronger and lasts longer like prednisolone. > > > > Hope this helps a bit. > > > > Nicola > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 have oyu ever been told you snore? I am wondering if you have sleep apnea. It is very common with hypothyoriism and when you have an apnea attack your throat closes and that could certainly trigger an adrenaline dump that could wake you feeling like this. -- Artistic Grooming- Hurricane WV http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 Nope, no snoring (at least not much) or apnea - even did a sleep study a couple of years ago to make sure although I certainly didn't sleep much with all of that gear on me. I spoke to my Top Doc's nurse (also his wife) for almost 30 minutes this morning, describing my problem. She promised to get back to me with the doc's advice before the end of the day. > > have oyu ever been told you snore? I am wondering if you have > sleep apnea. It is very common with hypothyoriism and when you have an > apnea attack your throat closes and that could certainly trigger an > adrenaline dump that could wake you feeling like this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 For the past two nights I slept through the night - 11PM to 6 or 6:30AM which was a rare gift. Typically, since starting on Iso two months ago, and now HC, I wake up at around 5AM to go to the bathroom and then I have to eat something because my stomach starts with intense hunger pangs. My understanding is that my cortisol is dropping in the middle of the night and that I am then going hypogly. I eat right before bed b/c I have to take that bed-time dose of 5mg of HC and I can't take it on an empty stomach. Until last night I really thought that I had the night-time attack thing figured out, blaming it on the melatonin. I still think that it had something to do with it, but there is obviously something else going on and I agree with you that it is GI and blood sugar related. My stomach still isn't good this morning. I took 10mg of HC this morning for the first time so maybe that's accounting for some of it. 18 months of this for you so far huh? That's tough. I don't see how I will last that long but I don't know what else to do. There doesn't seem to be a path " back " from here once you start this so I guess we just keep on. > > > > You will get there with the thyroid, but it takes time. I'm almost 2 > years in, and still haven't found the right dose for me, although I > think I'm close. The 3-5 grain Armour thing did not work for me - I > got up to 3 grains and overdosed on T4. Then I switched to T3. > > I do not know what causes this, but I think it is just that > everything has slowed down from being hypo. I haven't found anything > that works, guaranteed, every time, but thyroid hormone comes the > closest. > > How do you sleep for the rest of the night? Does the bedtime dose of > HC see you through? Why do you eat before you go to bed - is it > because you are hypoglycemic? This was the case with me for a good > 18 months, and I am still not clear of it now, but getting there. My > adrenals are a basketcase - HC does nothing for me. I take 1.5mg > Prednisolone before I go to bed, and eat, and it still happens to me. > > It is a mystery. Let me know how you go. Sorry I can't be of more > help. > > Nicola Quote Link to comment Share on other sites More sharing options...
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