Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 It sounds like they are putting the cart before the horse so to speak about her treatment. Focus on what the endo says and see what happens. good luck, med NOW WHAT??!!! My daughter Kaitlin, had her 2 yr. check up yesterday with the GP. I thought it would be uneventful and that we would just sit back and wait for her appoint. with the Ped. Endo next Monday. However, after the nurse took her report/vitals I could hear the Dr. yelling at the nurse that she had "made a mistake and this can't be right". Well to make a long story short Kaitlin has lost about 5 lbs in less than 2 mths. She is now down to 18 lbs. I thought when hypo, people generally gained weight. The Dr has already made referrals and phone calls to a cardiologist and an Oncologist (scary thought); all this prior to hearing what the endo has to say. What is going on??? In the mean time she continues to sleep 16-18 hrs/day, bouts of constipation, hair loss... Sorry to go on but this is so frustrating dealing with a child. She is just to young to tell me how she is feeling and I feel helpless getting her back on her feet. Thanks for letting me vent!!!Kaitlin's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 , Don't ever be sorry for telling us how you feel about what is going on with your child. I for one just can't imagine what you are going through I could never do it. i use to take my dad along to the Dr so he could hold my son for his shots cause I would cry just as much as my son. It just broke my heart to have him hurting and not be able to talk and say what he was thinking. I know i am a whimp when it comes to elderly folks and babies, but I don't care. I for one want to tell you you encourage me to be able to go through all this with such strength and patience. I am glad you report how she is doing. i have you and your family especially kaitlin in my prayers. Tina S wrote: My daughter Kaitlin, had her 2 yr. check up yesterday with the GP. I thought it would be uneventful and that we would just sit back and wait for her appoint. with the Ped. Endo next Monday. However, after the nurse took her report/vitals I could hear the Dr. yelling at the nurse that she had "made a mistake and this can't be right". Well to make a long story short Kaitlin has lost about 5 lbs in less than 2 mths. She is now down to 18 lbs. I thought when hypo, people generally gained weight. The Dr has already made referrals and phone calls to a cardiologist and an Oncologist (scary thought); all this prior to hearing what the endo has to say. What is going on??? In the mean time she continues to sleep 16-18 hrs/day, bouts of constipation, hair loss... Sorry to go on but this is so frustrating dealing with a child. She is just to young to tell me how she is feeling and I feel helpless getting her back on her feet. Thanks for letting me vent!!!Kaitlin's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 If she's eating less and still sleeping a lot. . her body is consuming a lot of calories with the growing her little body is doing.... It's not impossible to lose weight when hypo either, just not common. Hopefully the endo will be able to spot what needs to be done... I know it's hard... but how wonderful that you have caught this now rather than later.... She's got a lot of growing to do and this is the time that that needs to happen.. Hang in there ! Topper () On Wed, 12 Apr 2006 18:31:25 -0000 " S" writes: My daughter Kaitlin, had her 2 yr. check up yesterday with the GP. I thought it would be uneventful and that we would just sit back and wait for her appoint. with the Ped. Endo next Monday. However, after the nurse took her report/vitals I could hear the Dr. yelling at the nurse that she had "made a mistake and this can't be right". Well to make a long story short Kaitlin has lost about 5 lbs in less than 2 mths. She is now down to 18 lbs. I thought when hypo, people generally gained weight. The Dr has already made referrals and phone calls to a cardiologist and an Oncologist (scary thought); all this prior to hearing what the endo has to say. What is going on??? In the mean time she continues to sleep 16-18 hrs/day, bouts of constipation, hair loss... Sorry to go on but this is so frustrating dealing with a child. She is just to young to tell me how she is feeling and I feel helpless getting her back on her feet. Thanks for letting me vent!!!Kaitlin's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 I've jumped on the tail end, so haven't gotten to follow your daughter, but her adrenals should be tested since weight loss is a big symptom of that. Is she throwing up, getting flu symptoms, loss of appetite? Ask for a random blood cortisol and acth serum and test her glucose. I help people with adrenal tests everyday amoung other things (own Hypopituitary Support Group http://health.groups.yahoo.com/group/Hypopituitary_Support/) and would be happy to look at her tests and refer you to a group that deals with children with pituitary problems and they know kids thyroid and adrenal tests. I think taking her to an osteopathic doc would be a good idea. Try to find a peditrician osteopath. Chris > > My daughter Kaitlin, had her 2 yr. check up yesterday with the GP. I > thought it would be uneventful and that we would just sit back and wait > for her appoint. with the Ped. Endo next Monday. However, after the > nurse took her report/vitals I could hear the Dr. yelling at the nurse > that she had " made a mistake and this can't be right " . Well to make a > long story short Kaitlin has lost about 5 lbs in less than 2 mths. > She is now down to 18 lbs. I thought when hypo, people generally gained > weight. The Dr has already made referrals and phone calls to a > cardiologist and an Oncologist (scary thought); all this prior to > hearing what the endo has to say. What is going on??? In the mean > time she continues to sleep 16-18 hrs/day, bouts of constipation, hair > loss... > > Sorry to go on but this is so frustrating dealing with a child. She is > just to young to tell me how she is feeling and I feel helpless getting > her back on her feet. Thanks for letting me vent!!! > > > Kaitlin's mommy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Thanks for jumping in, Chris... you've got a strong understanding of the pituitary and adrenal aspects.... Topper () On Wed, 12 Apr 2006 21:29:53 -0000 "chrisgj@..." writes: I've jumped on the tail end, so haven't gotten to follow yourdaughter, but her adrenals should be tested since weight loss is a bigsymptom of that. Is she throwing up, getting flu symptoms, loss ofappetite?Ask for a random blood cortisol and acth serum and test her glucose.I help people with adrenal tests everyday amoung other things (ownHypopituitary Support Grouphttp://health.groups.yahoo.com/group/Hypopituitary_Support/) and would be happy to look at her tests and refer you to a group thatdeals with children with pituitary problems and they know kids thyroidand adrenal tests.I think taking her to an osteopathic doc would be a good idea. Try tofind a peditrician osteopath.Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 I'm not sure if the adrenals have been tested. This last round of tests were requested by the endo who we haven't seen yet so there has been no chance to ask what tests were run. Kaitlin has had her antibodies, TSH, T4, T3 and free T4 tested several times because the GP was convinced there had to be a mistake. Monday I will certainly ask what has been tested and what the results were. In addition to the thyroid testing, her doctor requested a full newborn screening. Since our daughter was adopted from one of the poorest provinces in China there is a good chance that normal/routine newborn screeings aren't done. We also believe that she was a home birth looking at her belly button; another indicator that the tests weren't done. The waiting is brutal... where is one of those " easy buttons " when you need one!!! Mommy to a little Chinese Princess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 > > My daughter Kaitlin, had her 2 yr. check up yesterday with the GP. I > thought it would be uneventful and that we would just sit back and wait > for her appoint. with the Ped. Endo next Monday. However, after the > nurse took her report/vitals I could hear the Dr. yelling at the nurse > that she had " made a mistake and this can't be right " . Well to make a > long story short Kaitlin has lost about 5 lbs in less than 2 mths. > She is now down to 18 lbs. I thought when hypo, people generally gained > weight. The Dr has already made referrals and phone calls to a > cardiologist and an Oncologist (scary thought); all this prior to > hearing what the endo has to say. What is going on??? In the mean > time she continues to sleep 16-18 hrs/day, bouts of constipation, hair > loss... > > Sorry to go on but this is so frustrating dealing with a child. She is > just to young to tell me how she is feeling and I feel helpless getting > her back on her feet. Thanks for letting me vent!!! > > > Kaitlin's mommy > When is the Endo's appointment? Hypothyroidism at such a young age has a higher risk of being congenital..so make sure a full blood screen is done.. You want the pituary gland hormones tests..growth hormone etc. You also want a diabetes screening done? Chances are if she is sleeping more she may not be consuming the calories her body needs.. Mind you this is also a sign of diabetics and other disorders.. The Oncologist is probabley being consulted to do blood screening for Sickle cell enemia , AIDS and a few other things that end up not reported in overseas adoptions. Best of luck and update us when you get the results. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 kats3boys, It is interesting that you mentioned the full blood work up because that was ordered including the full newborn screening. I checked with her old physicals and bloodwork done in China. Now that I am more educated about the terms and tests it confirms that she was slightly anemic at 5 mths. Kaitlin's appointment is on Monday, however I hope to have the results of all the blood work by Friday because we will be going down to my parents for the Easter weekend and staying through to Monday night. This will save us about 3-4 hrs, round trip, to the Children's hospital in Indianapolis. Kaitlin's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 > > kats3boys, > > It is interesting that you mentioned the full blood work up because > that was ordered including the full newborn screening. I checked with > her old physicals and bloodwork done in China. Now that I am more > educated about the terms and tests it confirms that she was slightly > anemic at 5 mths. > > Kaitlin's appointment is on Monday, however I hope to have the results > of all the blood work by Friday because we will be going down to my > parents for the Easter weekend and staying through to Monday night. > This will save us about 3-4 hrs, round trip, to the Children's hospital > in Indianapolis. > > > Kaitlin's mom > Keep us updated after the appointment, glad you are jumping on this and getting everything done.. not to scare you bu tthe bloodwork form China has been known to be altered or omitted in order to increase the child's adoption chances.. Kats3boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 You are correct about medical records. We found that out first hand when we were told that her immunization had been " watered down " and she needed to have them all repeated. Kaitlin's mommy > > > > kats3boys, > > > > It is interesting that you mentioned the full blood work up > because > > that was ordered including the full newborn screening. I checked > with > > her old physicals and bloodwork done in China. Now that I am more > > educated about the terms and tests it confirms that she was > slightly > > anemic at 5 mths. > > > > Kaitlin's appointment is on Monday, however I hope to have the > results > > of all the blood work by Friday because we will be going down to > my > > parents for the Easter weekend and staying through to Monday > night. > > This will save us about 3-4 hrs, round trip, to the Children's > hospital > > in Indianapolis. > > > > > > Kaitlin's mom > > > Keep us updated after the appointment, glad you are jumping on this > and getting everything done.. not to scare you bu tthe bloodwork > form China has been known to be altered or omitted in order to > increase the child's adoption chances.. > > Kats3boys > Quote Link to comment Share on other sites More sharing options...
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