Free Software for Kids With CF

[Guest guest]

On Wed, 25 Jul 2001 21:33:02 -0400, Ron Trueworthy

wrote:

> " Fitting Cystic Fibrosis Into Your Life Everyday " prepares teens and

>pre-teens for the challenges and benefits of taking control of their

>treatments. Featuring information on breathing and eating, as well

as

a CF

>question and answer session, this program offers a comprehensive

look

at

>some of the issues most important to teens with CF: understanding

their

>condition and CF management, making smart and creative choices about

>treatments, fitting in with friends, and handling disease-related

>situations with minimal embarrassment. Designed for teens and

pre-teens

>ages 10 to 15.

>

>This CD is free of charge to children and teens with CF and their

families,

>who reside within the U.S. or Canada. For all others, a donation of

$25

>per CD-ROM is requested. To order please call 1- ext.3.

>

>This CD is produced by the Starbright Foundation. The STARBRIGHT

>Foundation is dedicated to the development of projects that empower

>seriously ill children to combat the medical and emotional

challenges

they

>face on a daily basis. STARBRIGHT projects do more than educate or

>entertain: they address the core issues that accompany illness –

the

pain,

>fear, loneliness, and depression that can be as damaging as the

sickness

>itself.

>

>Through the efforts of STARBRIGHT Chairmen Spielberg and

General H.

>Norman Schwarzkopf, an innovative combination of leaders from the

worlds of

>technology, medicine, and entertainment have come together to ensure

that

>no child need sacrifice quality of life to an illness.

>http://www.starbright.org/

>

>

>--

>Check out the CYSTIC-L Homepage at http://www.Cystic-L.org

>_____________________________________________________________________

___

>Ron Trueworthy . . . CYSTIC-L Administrator/Slave . . .

Ron@...

>

>*-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,

..-*

>

> WARNING: Consult a trusted doctor before ANY change to your

treatment.

>

> @}->- @}->- @}->-

>

> Visit us at Http://Cystic-L.org and see our extensive Handbook

on-line

> (contains much CF information, and references to other CF

resources),

> the Photo Archives (people with CF, parents with CF, subscribers to

> Cystic-L, and a memorial page), the CF Shop, the world's largest

> cystic fibrosis bookstore (in the CF Shop), and much more!

>

> @}->- @}->- @}->-

>

> KNOWLEDGE IS POWER!

>

>*-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,.-**-.,,

..-*

[Guest guest]

Hi Torsten,

Thanks for the link, i will try to get the cd either

through paris or directly to here...how unfair to read

" only for us or canda residents " anyways thanks

again..still waiting for the two addressess you're

gonna send (the donation lady and yours/the sand box

is waiting and ready to go)..hope fiona, dad and mom

are in good health

bye

oya

=====

__________________________________________________

[Guest guest]

Thank you for this information, Torsten! I ordered one for Sanotsh when he

gets older.

Krishnan

mom to Santosh, almost 4 wcf and Leela, almost 2 wocf

[Guest guest]

Soad,

Where do you live ?

I am going to Europe in a few weeks (I live in L.A) you could order the CD

with my adress and then I could send it to you from Switzerland ?

(Yes I am back) mom to Leo 2 1/2 wcf and Colin 3 months wo cf

Re: Free software for Kids with CF

Hi Torsten,

Thanks for the link, i will try to get the cd either

through paris or directly to here...how unfair to read

" only for us or canda residents " anyways thanks

again..still waiting for the two addressess you're

gonna send (the donation lady and yours/the sand box

is waiting and ready to go)..hope fiona, dad and mom

are in good health

bye

oya

=====

__________________________________________________

[Guest guest]

WELCOME BACK We missed you .How are you all

doing back

in the states and with that precious new one.

has Leo gotten

used to it yet.?it is good to see you hear .fill

us all in . Have a

great trip whoever you go.I bet your taking

those kids to see all

the family there too..

LOVE & HUGS, grandmomBEV

Re: Free software for Kids

with CF

Hi Torsten,

Thanks for the link, i will try to get the cd

either

through paris or directly to here...how unfair

to read

" only for us or canda residents " anyways thanks

again..still waiting for the two addressess

you're

gonna send (the donation lady and yours/the sand

box

is waiting and ready to go)..hope fiona, dad and

mom

are in good health

bye

oya

=====

__________________________________________________

[Guest guest]

Do you know why this is for kids 10 to 15 only? Is there anything on

this that my 19year old could benefit from? She missed the CD during those

years!

FG, mom of Shantell

Free software for Kids

with CF

Hi,

found this on another list.

Just wanted to share this and drop ya'all the link to ask for the

software

(remember, it's free). This page actually tells about all their

software

including the CF one:

http://www.starbright.org/projects/hes/index.html

Bye

Torsten, dad of Fiona 4wcf

e-mail: aberdeen95@...

[Guest guest]

You might look for Walgreen's Home Health Care service. I have the

800 number at work. I'm not in California, but right next door to you in

Arizona. Walgreen's is an awesome company nationwide. They deliver

24/24 no charge too, but they also provide an absolutely wonderful home health

care service if you get stuck doing home IV's like me. If you are

interested in the number, email me at work at .Fox@... and I

will give it to you.

FG, mom of Shantell 19yr wcf

Re: Free software for

Kids

with CF

Hi Torsten,

Thanks for the link, i will try to get the cd

either

through paris or directly to here...how

unfair

to read

" only for us or canda residents " anyways

thanks

again..still waiting for the two addressess

you're

gonna send (the donation lady and yours/the

sand

box

is waiting and ready to go)..hope fiona, dad

and

mom

are in good health

bye

oya

=====

__________________________________________________

[Guest guest]

Wow - thanks I just ordered one for my son. I'll let you know how it is.

Wende mom to Joe 9wcf

Free software for Kids with CF

> Hi,

>

> found this on another list.

>

> >>Just wanted to share this and drop ya'all the link to ask for the

software

> (remember, it's free). This page actually tells about all their software

> including the CF one:

>

> http://www.starbright.org/projects/hes/index.html<<

>

>

> Bye

> Torsten, dad of Fiona 4wcf

> e-mail: aberdeen95@...

>

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>