New Member

[Guest guest]

Hi , my 2 year old son Collin had surgery at 8 weeks old at AI

Dupont in Wilmingon, DE with Dr. Jay. I know I told that to someone

recently so it could of been you, sorry if I'm repeating myself. We

stopped seeing Dr. Jay around the time Collin started to walk, we

started seeing Dr. Herzenberg this month and it was the best decsion

that I have made so far. Dr. H said Collin's foot is stiff from the

surgery he had at 8 weeks old, and he avoids that way of doing

things. Dupont was about a 45 min drive for me Dr. H is about a 2

hour drive for me and that extra hour is so worth it!!! Also Collin

just started to relapse recently, and DR. H has just put him into a

corrective cast, Dr. Jay only used long leg casts on Collin after

his surgery, he had Collin in a few short leg casts before the

surgery, and in no casts for a few weeks before the surgery, I

trusted him because he had 20 + years of clubfoot treatment

experience, but I don't think he even tried to treat Collin with

just corrective casts, I think he planned on doing the suregery at 8

weeks old from the day we met him. I didn't know anything about

clubfoot at the time, and was rushing to do research, etc. I can't

change the past but if I could, I would of held off on the surgery

and tried to find someone that used a ponsieti method, and tried to

treat his feet with casting before quickly jumping to surgery. I

hope this helps, also ask Dr. Jay how many of the babies he treats

relapse by a few years old, because now you deffienaly know of one.

Maybe the relapse rate will be less with Dr. H, I don 't know but it

would be a good question to ask both of them. I am a very involved

parent and have done everything like all of the dr.'s have

instructed me, so I know the relapse isn't because I didn't put his

DBB on him on anything like that, I did everything exactly as they

all told me. Dr. H did tell me that Dr. Jay attended one of his

recent seminars so maybe Dr. Jay is thinking about switching

methods, or second guessing what he has been doing. I use to ask

him if he was doing the ponsieti method, and he never quite told me

no, but he was deffianlty just doing his own variation of it from

what I know and understand now. I even asked some med students a

few times, and they never told me either that it was just him own

vatiation of the method. I hope it doesn't seem like I'm bashing

him because he is a very smart man with a lot of experience, and

everyone at the hopital was very nice and it was clean, had indoor &

outdoor playgrounds, etc there but alls I'm trying to say, is if I

could go back in time I would not have seen him, I would of seen Dr.

H and used Dr. Jay as a backup plan if I didn't like the treatment

Dr. H was given, etc.

Michele

Collin 8-24-01

[Guest guest]

Hello! My wife and I (more my wife) gave birth to our first

daughter 3 weeks ago. We found out that our daughter may have

clubbed feet at an ultrasound around 7 months. The doctor requested

that we revisit to confirm but, after much discussion, we decided

against it because it would do us no good to revisit so we prayed

and awaited the birth.

As soon as the our daughter was born, my eyes shot toward her feet

and, to my surprise, she had bilateral clubbed feet. While

saddened, I was more determined than anything else and spent the

next few days investigating possible treatments. It was then that I

came accross this board and spent hours reading.

Luckily, we have a physician 2 miles from our small town in land

who specialized in the Ponsetti method (Dr. Tuck). We made our

first appointment 4 days after her birth and she was casted. Dr.

Tuck stated that her feet responded well to massaging and started

her at level 3 casts. We have since gone back twice and our

daughter was able to go from level 3 to level 6 casts within 2

weeks. On Monday her casts were removed and we ordered the DBB

shoes.

Shoes arrived today and Dr. Tuck put them on. This is the first

time our daughter has been fussy as she is still getting used to

them. We continue to pray and would like to thank everybody who

contributes to this board.

[Guest guest]

Hi christina welcome to the group,we see Dr.Dobbs also. My daughter

Isabella was born october 6,2002 bilateral clubbed feet. She was

corrected by Dr.Bonar but we had to move because of my husbands new

job so now we see Dr.Dobbs. Even though he wasn't the doctor who

corrected Isabella he now sees her and I am very pleased with him. I

am so glad we are able to see him now. I feel very confident that he

will treat my daughters feet correctly. It sounds like you have been

through alot. I feel you are in great hands. Just follow Dr.Dobbs

instructions and do as he says and everything will be fine. I don't

know what to tell you about the head deformity. My first daughter

would always hold her head to the right and the doctor made me lay

her on her belly so her neck would get stronger. I did that and in a

few months she was just fine. I don't know if that was what you were

refering to on your son favoring the right side.

As for my clubbed foot child. Isabella is doing great. She is 15

months old and is running around like crazy. She started walking at

12 months. Her left clubbed foot was alot stiffer than her right foot

but since she has been walking Dr.Dobbs was amazed that her left foot

is alot looser now. He said the more walking she does the better so

we have her walk everywhere. Well good luck. If you need anything

just email me at lemikha@... We go back to Dr.Dobbs on March

4th maybe we will see you one day there. It would be great to meet

parents who are going through the same thing as I.

(Isabella 10-12-02 bilateral cf)

> Hi my name is Kramer I am from Belleville, IL. My son

has

> congenital bilateral Clubfoot. He was born 7 weeks prematue. He

sees

> Dr. Dobbs at Shriner's in St. Louis, MO. I think that he is a

> wonderful DR. He has put my son first. He won't cast him until

his

> feet are big enough. What I mean by that is that only weigh

> 3lbs. 8oz. at birth. He was casted three times while he was in the

> NICU. When he went to see DR.DOBBS he wouldn't recast him until he

> thinks that his feet is big enough for the shoes.

>

> So please anyone who's child has seen Dr. Dobbs I would like some

> info. Who's child has had a positional head deformity. My son

really

> favors his R side.

>

> He is 3 months old now and is hopefully getting casted Jan.15, 2004.

>

> Kramer

[Guest guest]

Hi ,

Jordan was born 4-9-00 with bilateral clubfoot and his head tilted

slightly to one side. This was a serious problem when breastfeeding

him. He screamed bloody murder whenever I tried to feed him on my right

side. I assumed it was because the shortened tendon in his neck (?)

hurt when trying to bend into me. I can't remember how long it was

before he stopped favoring that side. Probably when he was six months

old it ceased to be an issue.

Neither of his doctors (original hospital orthopedic surgeon, and then

Ponseti Method Dr. we saw when he was four months old) seemed to think

it was related to clubfoot. I had a cousin born with a similar tilt

though. Thanks to Dr. Colburn Jordan's feet are perfect. Again,

nothing was done to address his tilted head. It disappeared as he

matured.

Hope this helps a bit. Congrats on your baby boy!

Eddie and Jordan

new member

Hi my name is Kramer I am from Belleville, IL. My son has

congenital bilateral Clubfoot. He was born 7 weeks prematue. He sees

Dr. Dobbs at Shriner's in St. Louis, MO. I think that he is a

wonderful DR. He has put my son first. He won't cast him until his

feet are big enough. What I mean by that is that only weigh

3lbs. 8oz. at birth. He was casted three times while he was in the

NICU. When he went to see DR.DOBBS he wouldn't recast him until he

thinks that his feet is big enough for the shoes.

So please anyone who's child has seen Dr. Dobbs I would like some

info. Who's child has had a positional head deformity. My son really

favors his R side.

He is 3 months old now and is hopefully getting casted Jan.15, 2004.

Kramer