Re: biomedical intervention

[Guest guest]

, great idea! I've listed the interventions we use with both my

kids below.

My daughter is 3 years old - diagnosed with apraxia and PDD-NOS summer

2004. Now recovered from both, if you don't count that she still needs

much of what's listed below!

Biomed interventions: gfcf diet, Brainchild Nutritionals vitamin

liquid (spectrum support II), omega-brite fatty acids (2 caps/day),

Thorne pic-min multi-mineral, 200 mg/day coQ10, 800 mcg folinic acid,

P5P form of vitamin B6, methyl B12 injections every 3 days, Klaire

probiotics, lipoceutical glutathione (1/2 tsp/day now, needed 1/2 tsp

2x/day for the first 6 months), low dose naltrexone (3 mg transdermal

cream each night after bedtime).

Most effective (produced a " wow " reaction quickly when we started):

1. carnaware (this is l-carnosine with small amounts of vit E and zinc

added - see carnaware.com - we are no longer using this, but used it

for about 9 months, 2 caps 2x/day)

2. lipoceutical glutathione - Started on 1/4 tsp 2x/day, with no

change. Increased to 1/2 tsp 2x/day, and saw amazing changes in

language within a week. Stayed at that dose for 6 months, and now she

does fine on 1/2 tsp 2x/day.

3. low dose naltrexone (LDN) - Very helpful with language! Saw

improvement within first 2 weeks of use.

4. gfcf diet - wiped out all sensory issues.

5. methyl B12 injections

--------------------------------------------

My son is 5 1/2 - diagnosed with PDD-NOS in Dec 2003.

Biomed Interventions: gfcf diet, Klaire probiotics, Brainchild

Nutritionals vitamin liquid, zinc monomethionine, Thorne pic-min

multi-mineral, Thorne P5P - this is a form of B6, Thorne folinic acid,

60 mg/day coQ10, methyl B12 injections every 3 days, lipoceutical

glutathione (1/2 tsp/day now, 1/2 tsp 2x/day initially), B complex,

custom amino acid mix, low dose naltrexone, DMAE (for attention),

transdermal DMSA.

Fast improvements with these, though all have helped:

1. Lipoceutical glutathione

2. Methyl B12 injections

3. LDN

4. DMSA

>

> Hi,

> I noticed a lot of people on here try different supplements and

> therapies, and I wondered if maybe we could all post some of the

> things we have tried that seemed to work, maybe along with a short

> history of your child? That way we could compare notes and maybe

> learn about things that worked for others that we haven't yet tried.

> I'll go first

>

> My daughter is 2 1/2 and has been diagnosed with " moderate verbal

> and oral apraxia " (very difficult to understand, but doesn't " grope "

> for words like children with more severe apraxia). She also has

> been diagnosed with PDD-NOS, though she lacks some of the

> characteristics. She has some (still lingering after ot helped)

> sensory integration dysfunction. The terms hypotonia and global

> apraxia have also been thrown out at one time or another. She goes

> to Speech 4x/week and OT 2x/week.

>

> She is on the GFCF diet, Culturelle- a supplement mainly used

> to " repair the stomach " in kids with autism, Super Nu Thera (mega

> vitamin from Kirkman labs), and Pro-EFA 1 capsule/day. We are

> looking at DMG, has anyone tried this?

>

> I am interested to hear what other people have tried and what

> results they had. For us, the Pro-EFA has done really good stuff,

> but we still have a long way to go. I would like to learn more

> about Carnaware (mainly, what is it?) and l-glutathione (sp?)

>

> Take care,

>

>

[Guest guest]

We just started DMG 4 days ago. I was told that in some children it causes

hyperactivity. If so you have to also give Folinic acid supplement. My son may

be one of those children they're talking about. Big difference in his sleep and

activity. I'm not sure if it's just a coincidence so I'm going to stop till

he's back on track and try again.

ksolsham <kshamsey@...> wrote:

Hi,

I noticed a lot of people on here try different supplements and

therapies, and I wondered if maybe we could all post some of the

things we have tried that seemed to work, maybe along with a short

history of your child? That way we could compare notes and maybe

learn about things that worked for others that we haven't yet tried.

I'll go first

My daughter is 2 1/2 and has been diagnosed with " moderate verbal

and oral apraxia " (very difficult to understand, but doesn't " grope "

for words like children with more severe apraxia). She also has

been diagnosed with PDD-NOS, though she lacks some of the

characteristics. She has some (still lingering after ot helped)

sensory integration dysfunction. The terms hypotonia and global

apraxia have also been thrown out at one time or another. She goes

to Speech 4x/week and OT 2x/week.

She is on the GFCF diet, Culturelle- a supplement mainly used

to " repair the stomach " in kids with autism, Super Nu Thera (mega

vitamin from Kirkman labs), and Pro-EFA 1 capsule/day. We are

looking at DMG, has anyone tried this?

I am interested to hear what other people have tried and what

results they had. For us, the Pro-EFA has done really good stuff,

but we still have a long way to go. I would like to learn more

about Carnaware (mainly, what is it?) and l-glutathione (sp?)

Take care,

[Guest guest]

,

Will your child ever be off these medications?

I have a son who I am planning to start on some of these and wonder what the

future holds.

Thank you.

Abid

maryebe <eberlein@...> wrote:

, great idea! I've listed the interventions we use with both my

kids below.

My daughter is 3 years old - diagnosed with apraxia and PDD-NOS summer

2004. Now recovered from both, if you don't count that she still needs

much of what's listed below!

Biomed interventions: gfcf diet, Brainchild Nutritionals vitamin

liquid (spectrum support II), omega-brite fatty acids (2 caps/day),

Thorne pic-min multi-mineral, 200 mg/day coQ10, 800 mcg folinic acid,

P5P form of vitamin B6, methyl B12 injections every 3 days, Klaire

probiotics, lipoceutical glutathione (1/2 tsp/day now, needed 1/2 tsp

2x/day for the first 6 months), low dose naltrexone (3 mg transdermal

cream each night after bedtime).

Most effective (produced a " wow " reaction quickly when we started):

1. carnaware (this is l-carnosine with small amounts of vit E and zinc

added - see carnaware.com - we are no longer using this, but used it

for about 9 months, 2 caps 2x/day)

2. lipoceutical glutathione - Started on 1/4 tsp 2x/day, with no

change. Increased to 1/2 tsp 2x/day, and saw amazing changes in

language within a week. Stayed at that dose for 6 months, and now she

does fine on 1/2 tsp 2x/day.

3. low dose naltrexone (LDN) - Very helpful with language! Saw

improvement within first 2 weeks of use.

4. gfcf diet - wiped out all sensory issues.

5. methyl B12 injections

--------------------------------------------

My son is 5 1/2 - diagnosed with PDD-NOS in Dec 2003.

Biomed Interventions: gfcf diet, Klaire probiotics, Brainchild

Nutritionals vitamin liquid, zinc monomethionine, Thorne pic-min

multi-mineral, Thorne P5P - this is a form of B6, Thorne folinic acid,

60 mg/day coQ10, methyl B12 injections every 3 days, lipoceutical

glutathione (1/2 tsp/day now, 1/2 tsp 2x/day initially), B complex,

custom amino acid mix, low dose naltrexone, DMAE (for attention),

transdermal DMSA.

Fast improvements with these, though all have helped:

1. Lipoceutical glutathione

2. Methyl B12 injections

3. LDN

4. DMSA

>

> Hi,

> I noticed a lot of people on here try different supplements and

> therapies, and I wondered if maybe we could all post some of the

> things we have tried that seemed to work, maybe along with a short

> history of your child? That way we could compare notes and maybe

> learn about things that worked for others that we haven't yet tried.

> I'll go first

>

> My daughter is 2 1/2 and has been diagnosed with " moderate verbal

> and oral apraxia " (very difficult to understand, but doesn't " grope "

> for words like children with more severe apraxia). She also has

> been diagnosed with PDD-NOS, though she lacks some of the

> characteristics. She has some (still lingering after ot helped)

> sensory integration dysfunction. The terms hypotonia and global

> apraxia have also been thrown out at one time or another. She goes

> to Speech 4x/week and OT 2x/week.

>

> She is on the GFCF diet, Culturelle- a supplement mainly used

> to " repair the stomach " in kids with autism, Super Nu Thera (mega

> vitamin from Kirkman labs), and Pro-EFA 1 capsule/day. We are

> looking at DMG, has anyone tried this?

>

> I am interested to hear what other people have tried and what

> results they had. For us, the Pro-EFA has done really good stuff,

> but we still have a long way to go. I would like to learn more

> about Carnaware (mainly, what is it?) and l-glutathione (sp?)

>

> Take care,

>

>

[Guest guest]

Hopefully we'll eventually be off of most of it. We no longer use

carnaware, and the DMSA is definitely not a long-term thing (probably

2 years). I hope at some point to move to a more basic multi-vitamin

and mineral supp only, along with glutathione. The methyl B12 shots

are recommended for 2-3 years, I think. I don't know about the LDN

either. Most children's guts improve as they get older, so hopefully

we won't have to use regular probiotics forever.

My children have a genuine (IgE antibody) reaction to dairy, so they

probably won't be able to add dairy back to their diet. Hopefully they

will be able to consume gluten at some point, though I now am starting

to suspect that I am gluten intolerant or have celiac, so that's

uncertain as well.

>

> ,

>

> Will your child ever be off these medications?

>

> I have a son who I am planning to start on some of these and wonder

what the future holds.

>

>

> Thank you.

>

>

> Abid