Guest guest Posted May 15, 2001 Report Share Posted May 15, 2001 Hi, I found this website to be a good overall site of urticaria information about our disease and think it would be especially helpful to the " newbies " as Myra affectionally calls them. It has some good cross reference links as well. I was amazed at the statement that the largest idiopathic group was between the ages of 30 - 40, yet it seems our group is seeing a lot of women in mid 40's. Maybe the 30 something's are just too busy to find us. <A HREF= " http://www.vh.org/Providers/ClinRef/FPHandbook/Chapter13/06-13.html " > Virtual Hospital: University of Iowa Family Practice Handbook, 3rd Edition: Dermatology: Urticaria</A> AOL Users http://www.vh.org/Providers/ClinRef/FPHandbook/Chapter13/06-13.html My best to all of you, / Wilmington, NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2001 Report Share Posted May 15, 2001 ps did i mention i took massive amounts of meds massive combinations of meds all to no avail th hives NEVER went away b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2001 Report Share Posted May 15, 2001 i almost hate to type this.................i may jinx myself my hives began three years ago--non stop-NOT one day did I not have hives-at the beginning I also had lots of joint pain and intestinal problems wiht massive heartburn i went to three primary docs---had massive tests ran-at the same time i developed hematuria and vision problems--i had all sort of blood work done and was tested for everything form Lupus to werid troipcal disorders--------i went ot an immunolgist....went to an allergist and had RAST testing done--no allergies--went to an endocrinologist and also a rheumoltolgist--then the dserm and i went to a major teaching hospital for 'show and tell " -during the course of 3 HORRId years i also had Ct scans ultra sounds and on and aon and on.....at one point i did test positive for h pylori and idd gho two eradation tretaments--stomack got well BUT hives continued-massive dental chek ups-you name I got it-my doctors were caring people and we TRIED anything they could think and anything anymore on this board mentioned--did the difulcan meds--did the accolate--did it all--to NO avail-at one point massive amounts of antibiotics made it better BUT not go away finally my final dx was Severe Chronic Idiopathic Urticaria with joint and intestional involvement that is resistant to Steroids and anti histimnes Prediosne DID nothing of rme-nothing--even had skin biopsy s done it was anigthmare stress--i dont think so--it id not matter if all was great or even when my teen age son was hit by a car and almost died-they were No better BUT NO worse i did take querctin for a while and that helped even went to a BUddihst prayer thing for people with skin afflications-NOTHING about 3 weeks ago the HIVES JUST stopped--i still have itching BUT no hives and NOT the intense maddening itching i did have weird no change at all in lifestyle diet work or anything they simply went away it has been a wonderful three weeks--i am still taking 75 mg Atari--afraid to toady stop at this point afraid to even tell people--might jinx i would NEVER say i am cured But think this is a remission and i will take that for as long as it stays God help us all ] i know how you feel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2001 Report Share Posted May 15, 2001 Dear ..........This is wonderful news, I am so happy for you, I pray they will be gone forever. You made my day. Maybe there is some truth to the fact that they will just go away one day. I wish every one on this list could just have the CU go away. Love Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2001 Report Share Posted May 15, 2001 That's GREAT news, Dee and !! Hope it lasts forever!! Cara in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Hi , My name is Kim. I'm new to this group. I just started getting hives about 3 months ago. I am in my mid 30's. I don't reply to other people's mail very often. Mostly, I read to find out about new drugs or findings from other people's doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 thanks i am grateful Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Welcome to the group Kim!!!! ~Alena's Mom Re: Urticaria Website Hi , My name is Kim. I'm new to this group. I just started getting hives about 3 months ago. I am in my mid 30's. I don't reply to other people's mail very often. Mostly, I read to find out about new drugs or findings from other people's doctors. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~If you do wish to unsubscribe then you can click on the following link: urticaria-unsubscribeegroups~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new.Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
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