RE: Talk about pucker factor...

[Guest guest]

Well, Dale, here's hoping your P doesn't change to A.

Alone we can do so little. Together we can do so much.

Helen Keller (1880-1968)

[Guest guest]

Dale, now don't jump to conclusions. Lets wait (and I know its hard) until

all the jury is in..........I'll keep you and your family in my thoughts.

...........Flora

[Guest guest]

Dale,

I am sorry you and your wife are having a bad time.Dorian " s PLS has been a

rapid decline, he has weakness in he's hands and some wasting, the

nurogigist just had him retested, he had a emg a few weeks ago and PLS is

still

the dagnoses. He now has 2 mir " s set for the 31 of this month.I know how

you feel about your wife,Dorian justs hates watching me watch him going though

this PLS life.When i read your post i was wishing i could have reached

though the puter and give her a hugg.All the best to you and her .

laura mellon

[Guest guest]

Dale,

Sorry to hear about your P maybe an A. I know your feelings about

religion, but my prayers are with you and your wife.

Norton

Talk about pucker factor...

I send e-mail to my neur now and then and sent her one asking about LDN.

I

also told her about how fast I have been going downhill the last two

months.

She goes, come in today... You know that's not good... Just got back a

little while ago and have the big bugaboo of all PLSers. She doesn't

like

how it's going (I have to agree with her there) and she did the

muscle/reflex tests and for the first time she noticed weakness in my

hands... She is scheduling me for an EMG ASAP... Talk about pucker

factor.

We know it's always there but when the doc gets nervous, well it rubs

off...

So now I wait for the call back to go for the test, and we wait to see

if my

PLS has changed one letter to A... Man, it's like, can't you just leave

me

alone for a little while???

Oh, and it bugged me so much I forgot to discuss LDN... Have to send

another mail message....

Sorry, just a little dazed and had to tell someone, I actually feel

sorriest

for my wife who was there. I wish she didn't have to go through this...

thanks for listening,

dale

[Guest guest]

I want to thank everyone for the kind messages, it helps as we all know. I

just want to say , I have said over and over I have no problem with

this, your blessing me the best way you know how and for that I am very

thankful. It is from your heart and I appreciate yours and everyone's

prayers and thoughts. Lets all hope it over nothing!

thanks again,

dale

RE: Talk about pucker factor...

> Dale,

>

> Sorry to hear about your P maybe an A. I know your feelings about

> religion, but my prayers are with you and your wife.

>

> Norton

>

[Guest guest]

Dale,

Our thoughts and Prayers are with you and your family, I hope everything turns

out for the best. Sandy

[Guest guest]

Dale, I know just how you feel. I'm looking for the " A " to be

changed to a " P. " I was diagnosed with ALS last month so I'm looking

for " second opinions. " For two years, I thought I had PLS and felt

sorry for myself. Now, I only wish for PLS. Hang in there. There's

lots of support online for ALS, just like PLS. I'll pass on the site

addresses if and when you need them. My prayers are with you.

Edith

> I want to thank everyone for the kind messages, it helps as we all

know. I

> just want to say , I have said over and over I have no problem

with

> this, your blessing me the best way you know how and for that I am

very

> thankful. It is from your heart and I appreciate yours and

everyone's

> prayers and thoughts. Lets all hope it over nothing!

>

> thanks again,

> dale

>

> RE: Talk about pucker factor...

>

>

> > Dale,

> >

> > Sorry to hear about your P maybe an A. I know your feelings

about

> > religion, but my prayers are with you and your wife.

> >

> > Norton

> >

[Guest guest]

Thanks, we got home yesterday and she went out to work in the flower beds

until dark. I'm glad she has that to take her mind off of this. Hopefully

it's all a false alarm.

dale

Re: Talk about pucker factor...

> Dale,

> I am sorry you and your wife are having a bad time.Dorian " s PLS has

been a

> rapid decline, he has weakness in he's hands and some wasting, the

> nurogigist just had him retested, he had a emg a few weeks ago and

PLS is still

> the dagnoses. He now has 2 mir " s set for the 31 of this month.I know

how

> you feel about your wife,Dorian justs hates watching me watch him going

though

> this PLS life.When i read your post i was wishing i could have reached

> though the puter and give her a hugg.All the best to you and

her .

> laura mellon

>

>

>

[Guest guest]

Dale,

I am so sorry to hear of your new worry. I will pray for you too. You deserve

so much more. You are a kind and helpful soul to us all, I hope the outcome is

good.

Regards, Sue Ellen

[Guest guest]

Dale,

“….hope, as opposed to cynicism and despair, is the sole precondition for

new and better experiences. Realism demands pessimism but hope demands that

we take a dim view of the present because we hold a bright view of the

future; and hope arouses as nothing else can arouse………a passion for the

possible.”

Gene

[Guest guest]

Dale,

“….hope, as opposed to cynicism and despair, is the sole precondition for

new and better experiences. Realism demands pessimism but hope demands that

we take a dim view of the present because we hold a bright view of the

future; and hope arouses as nothing else can arouse………a passion for the

possible.”

Gene