Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I will give a better update later, but for now .. we saw Dr Mosca today and are scheduled for 2 more cases after he gets back from England in February. It isnt anything that we did not expect, but still very disappointing since Kai just started walking Well, more later! Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 > I will give a better update later, but for now .. we saw Dr Mosca > today and are scheduled for 2 more cases after he gets back from > England in February. It isnt anything that we did not expect, but > still very disappointing since Kai just started walking > > Well, more later! > > Angel Hi Angel, Thanks for the update. Hopefully this will be the last of it. Dr. Ponseti told us that Chelsea may need more casts too when she is about a year old. She is not walking yet, but still I can imagine how you feel. Hopefully this plantaris will clear up after about a year of age. Looking forward to hearing more details! Meredith Mom to Chelsea (1/29/03) Bilateral Clubfoot DBB 14 hours/day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Hi Meredith! Now that I am home safe ... lol ... I will say a bit more! What has happened - and I knew it had - was that Kai's arch has pulled up again, although not as bad as before, and the outside toes are turning under again. I know that you know what I mean because Chelsea's did the same thing. The funny thing is, everyone keeps discounting the turning under of the toes, but I know it has something to do with it! Anyway, Dr Mosca was leaving for England shortly after our appointment, so the first cast wont go on until Feb 11 (which is a real bummer) and he is planning on keeping each cast on for 2 weeks. It was kind of funny. Since Dr M is going to England for 2 weeks or so, he is booked solid for weeks after he gets back. The scheduler says " have you ever seen Dr SoAndSo? " and we say, no we wont allow a different doctor to see Kai, and she kept making trys at us along this line ... then the cast tech came out and heard her and said " You cant schedule him with anyone else unless you clear it with Dr Mosca, and he will say no. This little guy has been from here to Iowa and back with his foot! " LOL Needless to say, she decided she would wait for the complex scheduler and the doctor before setting any appointments for us. We tried the new Markell shoes on Kai and are going to give them a try after casting (They are slowly trickling into Seattle). They seem like they may work better because the softer leather will hold the foot more closely than the old style. If they dont work well, then it will be time for the shoes. We did not get those in the first place because Kai's feet will actually stay in the other shoes, but they dont seem to hold correction. I do hope this will be the last set of casts, but I am still prepared for more - or at worst a lengthening proceedure on the ligament in one year. Kai seems to have an odd foot in that it corrects very easy, but it also relapses just as easy. On the plus side, he hasnt gone into a full relapse like before. How is Chelsea doing? I gather from what you have said recently that the shoes are working extremely well for you? Angel Re: Quick update on Kai Hi Angel, Thanks for the update. Hopefully this will be the last of it. Dr. Ponseti told us that Chelsea may need more casts too when she is about a year old. She is not walking yet, but still I can imagine how you feel. Hopefully this plantaris will clear up after about a year of age. Looking forward to hearing more details! Meredith Mom to Chelsea (1/29/03) Bilateral Clubfoot DBB 14 hours/day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2004 Report Share Posted January 11, 2004 Hi Angel! I don't think it will hurt Kai that he has to wait a few weeks for the cast. It is not a fun thing to look forward too though. At least you can plan for it a little. Chelsea is doing well. The shoes are great because they stay on - for 3 months I was waking up in the middle of the night putting her feet back in, and this is way better. I think her plantaris foot does better when it is only in the shoes 14 hours a day. Her feet are the same size which is definitely an improvement, and she seems to still have flexibility in both feet. She still has a tiny little crease. But sometimes when she stands, she stands on the outside of her left foot rather than standing flat,and sometimes she stands on her toes on her left foot instead of on her whole foot. She isn't really pulling up yet, I have to put her in a standing position. So I am not sure if she will need more casts, but it looks like a relapse. I don't know if I would call it a relapse - because it was never perfect. I don't know when the best time to do another set of casts is either. Maybe right before she starts walking so that the walking will help prevent another relapse. She had about 11 casts and she was in casts for about 3 months total, and she does have some developmental delays. She started physical therapy last week and the therapists said that she has the development of a 9 or 10 month old. She will turn 1 this month! So I'm reluctant to do more casts until she catches up a little more. And I hope that she isn't one of the 5% who needs surgery after treatment with the Ponseti method. Hang in there! Meredith > Hi Meredith! > > Now that I am home safe ... lol ... I will say a bit more! What has happened - and I knew it had - was that Kai's arch has pulled up again, although not as bad as before, and the outside toes are turning under again. I know that you know what I mean because Chelsea's did the same thing. The funny thing is, everyone keeps discounting the turning under of the toes, but I know it has something to do with it! Anyway, Dr Mosca was leaving for England shortly after our appointment, so the first cast wont go on until Feb 11 (which is a real bummer) and he is planning on keeping each cast on for 2 weeks. > > It was kind of funny. Since Dr M is going to England for 2 weeks or so, he is booked solid for weeks after he gets back. The scheduler says " have you ever seen Dr SoAndSo? " and we say, no we wont allow a different doctor to see Kai, and she kept making trys at us along this line ... then the cast tech came out and heard her and said " You cant schedule him with anyone else unless you clear it with Dr Mosca, and he will say no. This little guy has been from here to Iowa and back with his foot! " LOL Needless to say, she decided she would wait for the complex scheduler and the doctor before setting any appointments for us. > > We tried the new Markell shoes on Kai and are going to give them a try after casting (They are slowly trickling into Seattle). They seem like they may work better because the softer leather will hold the foot more closely than the old style. If they dont work well, then it will be time for the shoes. We did not get those in the first place because Kai's feet will actually stay in the other shoes, but they dont seem to hold correction. > > I do hope this will be the last set of casts, but I am still prepared for more - or at worst a lengthening proceedure on the ligament in one year. Kai seems to have an odd foot in that it corrects very easy, but it also relapses just as easy. On the plus side, he hasnt gone into a full relapse like before. > > How is Chelsea doing? I gather from what you have said recently that the shoes are working extremely well for you? > > Angel > > Re: Quick update on Kai > > Hi Angel, > > Thanks for the update. Hopefully this will be the last of it. Dr. > Ponseti told us that Chelsea may need more casts too when she is > about a year old. She is not walking yet, but still I can imagine how > you feel. Hopefully this plantaris will clear up after about a year > of age. Looking forward to hearing more details! > > Meredith > Mom to Chelsea (1/29/03) > Bilateral Clubfoot > DBB 14 hours/day > > > > Quote Link to comment Share on other sites More sharing options...
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