GFCF Diets...testing?

[Guest guest]

Hi,

I have been reading with great interest the recents threads on GFCF

Diet. I have toyed with the idea of trying it, but, like other of

your children, my son's diet is already somewhat limited. He eats

fruit, but no meat and veggies are rare. He will eat rice, but other

than that, he eats grains, dairy and sweets. So, the GFCF diet would

be very difficult for us. I would try it, however, if it was likely

to work. Apparently, there is a test to see if it is needed. I

think it is called the Urine Peptide Test. Have most of you who have

your kids on GFCF diets had your kids take this test? Or are you

trying it without having had the test? Just wondering.

Thanks.

Laurel, mom to Evan (30 mo, PRS, non-verbal but undiagnosed)

[Guest guest]

Hi,

We tried it as a suggestion from the allergist/immunologist we took

our son top, and MD said due to his symptoms,inattention slow

response and the day we had the appointment my son had eaten

cupcakes w/blue icing (his kindergarten teacher's baby shower) and

boy was he " typical " of what we had only recently been seeing after

he ate those types of foods.Just a glassy eyed blank stare. MD looked

at him and said he is typical allergenic child. We did a whole bunch

of bloods/urines and we started the diet. Urine peptides was one of

them, he showed mildy positive, but like MD said the proof was in his

response, more so than the test. MD said children that have problems

with those foods crave them and will self-limit their diets to feed

the need as he said, it is like an addiction to them, bread type

products and dairy, a morphine like response to them so they will

only eat those to keep the " high " they get.My son would get dilated

pupils after eating a meal that had alot of those type foods, he was

really out of it if he ate grilled cheese on whole wheat bread, a

total mess, for about a day, cranky crabby, and very frustrated with

everything he tried to do.

I also read that the tests can be somewhat misleading that trying the

diet for a month even without testing can tell you enough if they do

well. Another positive to the diet, is my son is way more willing to

try new foods, before he would just refuse, now we got him

actually " asking for broccoli and carrots " it is like music to our

ears. He will eat a big bunch of broccoli no problem now.We went cold

turkey from day one, no dairy no wheat/gluten from day one, never saw

any really horrible behaviour, a little snippy for a few days, but

nothing like his typical " meltdowns " we had experienced since he was

a toddler.There are quite a few good gf/cf pancake mixes we have

tried, if your child likes the carbohydrates at least, they also have

some breads available in the freezer section at health food stores so

it is possible and check the gf/cf kids site, alot of good info

there as far as brands available.

> Hi,

>

> I have been reading with great interest the recents threads on GFCF

> Diet. I have toyed with the idea of trying it, but, like other of

> your children, my son's diet is already somewhat limited. He eats

> fruit, but no meat and veggies are rare. He will eat rice, but

other

> than that, he eats grains, dairy and sweets. So, the GFCF diet

would

> be very difficult for us. I would try it, however, if it was

likely

> to work. Apparently, there is a test to see if it is needed. I

> think it is called the Urine Peptide Test. Have most of you who

have

> your kids on GFCF diets had your kids take this test? Or are you

> trying it without having had the test? Just wondering.

>

> Thanks.

>

> Laurel, mom to Evan (30 mo, PRS, non-verbal but undiagnosed)

[Guest guest]

We had a test done, but we're in the UK so that's probably no help to

you. But if no one else can tell you where to get it done in the US,

try emailing the British site and asking them if they know. Its the ARU

at Sunderland University. Google finds it!

On the even-more- limited diet, though, I certainly wouldn't worry

about that, as the pickiness is probably a symptom of the intolerance

itself. . The GFCF diet cured that in my now ten year old son. He had

reduced what he would eat to about three things before we started, and

barely mouthfuls at that. Within a few weeks on GFCF he was eating

almost everything offered to him and now he eats loads and is actually

growing. He's at the 25th centile of the height chart for his age. He

wasn't even on the chart for years, and we're a tall family.

Good luck.

Sara

[Guest guest]

We started it without the test. Hope's doctors all agreed that it couldnt

hurt to give it a try and if nothing happened, no problem. Once we started

it we found that she's had an intolerance to gluten and casein the whole

time and we never picked up on it. The symptoms she had were easily

dismissed as caused by something else, so it wasn't until the gluten and

casein were gone and the symptoms were too that we made the connection.

Before we started Hope's diet consisted of milk, chicken nuggets, any bread

product with peanut butter, mac and cheese, sweets, and occasionally rice.

I found substitures for all the things she used to eat that she can't have

now, and she's doing pretty well. She's getting a little more variety in

her diet since she's started eating a little speghetti, french fries, fruit,

and the other day ate cheeseburger mac for the first time. She wouldnt

touch it before because of the meat in it, but now she ate it. We still

have a long way to go before she's eating a lot better, but any improvement

is good.

She was resistant to cereal yesterday until I took a couple of the puffs and

told her they were good for her tummy. Then she tasted it, and was hooked.

I had found GFCF peanut butter puffs. The look like Kix and taste like

Captain Crunch Peanut Butter Crunch. :-)

Toni W. - BP mom to

Hope, 4, Seizure disorder, Verbal apraxia, Migraines, Austim

and

Faith, 2, Mild CP, Hypotonia, Asthma, Sensory Integration Dysfunction

Sponsor Hope for the NAAR walk on June 6th

http://www.justgiving.com/PFP/hope

themartones@... wrote:

Hi,

I have been reading with great interest the recents threads on GFCF

Diet. I have toyed with the idea of trying it, but, like other of

your children, my son's diet is already somewhat limited. He eats

fruit, but no meat and veggies are rare. He will eat rice, but other

than that, he eats grains, dairy and sweets. So, the GFCF diet would

be very difficult for us. I would try it, however, if it was likely

to work. Apparently, there is a test to see if it is needed. I

think it is called the Urine Peptide Test. Have most of you who have

your kids on GFCF diets had your kids take this test? Or are you

trying it without having had the test? Just wondering.

Thanks.

Laurel, mom to Evan (30 mo, PRS, non-verbal but undiagnosed)