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Re: autistic, appraxic or just developmentally delayed?!!1

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You are correct, Elveera, it sounds like he needs much more

attention to his speech development. What I recommend is an

exhaustive speech evaluation at a teaching hospital or Univeristy

that has a unit JUST FOR SPEECH AND LANGUAGE! It will be costly

(ours was $900 at Children's in Seattle)and you might have to argue

with insurance to pay for it (we did; but prevailed!). At the

beginning of the eval, you can ask the SLP to include a

recommendation for # of speech hours/type of speech hours (1:1 or

group?) necessary for 's progress. Then, take it to the

district and set up an IEP review to demand more hours. I've seen

districts pay for SLPs to come to the home.

I don't think he is too young to diagnose, but perhaps his speech is

too immature to diagnose reliably?

Curious: do you see ABA as a positive program for ? It can

be good as long as the therapists tailor their programs for 's

non-Autistic strengths. Not all kids with Autism toe walk; not all

with Autism toe walk (can be an indication of constipation, too).

It happens to be one of those stereotypical behaviors of Autism that

can freak others out! Don't worry about it if you don't see other

concerns. The high pitched noise? It can mean lots of things.

is likely aware that his speech is different than other

kids. At 3.6 yrs, it is possible. He knows people can't understand

him and he prefers to avoid talking. Maybe it takes so much

concentration to form words at this point that he is unable to

actively play/speak at the same time? We take for granted our

abilities to communicate.

How about OT? Do you see any need for that? My husband made a

platform swing for Ian when he was two: it increased his truncal

strength which increased his ability to breathe properly which

probably increased his ability to speak over time. The same with

the scooter board we made (attached it to a rope and had Ian lay on

his belly, hold up his head and legs while we pulled him around).

Can blow out candles? If not, try making games out of cotton

balls... blow them around the kitchen table or even off of your hand

to his hand. Take a tissue and put it in front of your face;

say " Where's Mommy? " and blow the tissue up to reveal your face.

Laugh like you think it is the funniest thing you've ever seen when

does it (you can say the " Where's ? " part)!

Elveera, keep that Russian language going in your home. It is true

that children with multiple language might lag in certain areas of

language, but it is NOT TRUE that speaking multiple languages is the

cause of 's delays. Don't let that valuable skill of a second

language slip away. You can be restricted in when you use it, but

don't let him lose it!!!!! If anyone hear speaks multiple languages

with their Apraxic kids and has any advice, please offer it!

Wow. Time to help the kids get ready for school. I shouldn't get

on the computer in the morning!!!

Take care,

Pam

>

>

> Hi everyone.I'm new to this board and so glad that it exists. My

son

> is 3,6 and he was diagnosed by a pediatric neurologist as having

> developmental language delay. However at the school district 3

> months ago they said that has autistic like characteristics

> due to his lack of language, toe walking and high pitch noses that

> he was making.Since then he's been in preschool and getting ABA

for

> about a month now.Yes one detail, was exposed to Russian

and

> English till this last October. Anyways,i started speaking just

> English to him and he went to school and he started talking using

> single words for his needs and wants, labeling things, pointing to

> things.But he can't hardly pronounce any words right, he is very

> inconsistent, he'll say different words for the same object. He

> substitutes n for m, t for k, d for g and usually just says either

> the first part of the word or the last.Some days he doesn't say

> anything, other days he says more and he always thinks so hard

> before saying a word.He is an affectionate, personable boy with

very

> appropriate play skills, not obsessed with things, likes new toys,

> always welcomes the change, likes to go places. His receptive

> language is much better than expressive .They say he has no

> behaviours at school and hardly any during his ABA. But SLP at

> school thinks that he is " showing signs of appraxia, however it's

> too early to tell " . does ignore you sometimes when you call

> his name, and usually doesn't answer questions unless it's

like " do

> you want to go to sleep? " then he thinks realy hard and says " no " .

> We went to my mother-in-law and he was very quet when there was a

> lot of people,however he did joined the kids in physical

> activities,but then all of a sudden he got more comfortable when

> everyone left and started talking more. I don't know what to make

of

> all of it. Everyday i think differently about what diagnosis he

> has. I know for sure though that he doesn't fit the diagnostic

> criteria for autism, even though he has some characteristics but

his

> speech is so strange. Can appraxic child be toe walking sometimes?

I

> will welcome any input you guys have. The only thing from his

> childhood besides his language not developping is that he wouldn't

> respond to his name all the time from the first time and he loved

> playing with mudd,but not anymore. He pottytrained by the age of

> 3.He is always very connected and aware of the surroundings but

then

> he still uses jargon all the time and he is dreamy at times. ABA

is

> helping him to be more compliant and i did warn them to accept any

> approximation of a word, but i do know that he needs more

individual

> speech therapy( he is getting only 75 min. at school group one) to

> learn sounds. Isn't that funny that our district pays for him to

get

> ABA 15 hours a week and they refuse to give more speech therapy.

> Anyways, thank you for listening.Elveera

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Hi there,

How funny that you get 15 hours of ABA. My son Seth

3.6 also gets 5 hours aba 4 of them in school. Yet he

only gets 2 hours of Speech. He has been diagnosed

with everything from MR to apraxia. I'm thinking that

these children are so angry because they cannot

comunicate their wan'ts and needs. Maybee with more

time for speech therapy they wouldn't need so much

behavior. Just a thought:)

--- elveeraridenour <elveeraridenour@...> wrote:

> He is always very connected and aware of the

> surroundings but then

> he still uses jargon all the time and he is dreamy

> at times. ABA is

> helping him to be more compliant and i did warn them

> to accept any

> approximation of a word, but i do know that he needs

> more individual

> speech therapy( he is getting only 75 min. at school

> group one) to

> learn sounds. Isn't that funny that our district

> pays for him to get

> ABA 15 hours a week and they refuse to give more

> speech therapy.

> Anyways, thank you for listening.Elveera

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he seems like my who is diagnosed with apraxia and is developmentally

delayed as well. I don't see autism from what you wrote me here. hope this

helps

chris

elveeraridenour <elveeraridenour@...> wrote:

Hi everyone.I'm new to this board and so glad that it exists. My son

is 3,6 and he was diagnosed by a pediatric neurologist as having

developmental language delay. However at the school district 3

months ago they said that has autistic like characteristics

due to his lack of language, toe walking and high pitch noses that

he was making.Since then he's been in preschool and getting ABA for

about a month now.Yes one detail, was exposed to Russian and

English till this last October. Anyways,i started speaking just

English to him and he went to school and he started talking using

single words for his needs and wants, labeling things, pointing to

things.But he can't hardly pronounce any words right, he is very

inconsistent, he'll say different words for the same object. He

substitutes n for m, t for k, d for g and usually just says either

the first part of the word or the last.Some days he doesn't say

anything, other days he says more and he always thinks so hard

before saying a word.He is an affectionate, personable boy with very

appropriate play skills, not obsessed with things, likes new toys,

always welcomes the change, likes to go places. His receptive

language is much better than expressive .They say he has no

behaviours at school and hardly any during his ABA. But SLP at

school thinks that he is " showing signs of appraxia, however it's

too early to tell " . does ignore you sometimes when you call

his name, and usually doesn't answer questions unless it's like " do

you want to go to sleep? " then he thinks realy hard and says " no " .

We went to my mother-in-law and he was very quet when there was a

lot of people,however he did joined the kids in physical

activities,but then all of a sudden he got more comfortable when

everyone left and started talking more. I don't know what to make of

all of it. Everyday i think differently about what diagnosis he

has. I know for sure though that he doesn't fit the diagnostic

criteria for autism, even though he has some characteristics but his

speech is so strange. Can appraxic child be toe walking sometimes? I

will welcome any input you guys have. The only thing from his

childhood besides his language not developping is that he wouldn't

respond to his name all the time from the first time and he loved

playing with mudd,but not anymore. He pottytrained by the age of

3.He is always very connected and aware of the surroundings but then

he still uses jargon all the time and he is dreamy at times. ABA is

helping him to be more compliant and i did warn them to accept any

approximation of a word, but i do know that he needs more individual

speech therapy( he is getting only 75 min. at school group one) to

learn sounds. Isn't that funny that our district pays for him to get

ABA 15 hours a week and they refuse to give more speech therapy.

Anyways, thank you for listening.Elveera

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