Re: Anyone have dwarfism in their family?-laurie

[Guest guest]

laurie,

I havent seen this woman since I was younger so I'm not sure, I asked my mom and she doesnt think she has the short webbed neck. I think the main things they were thinking was her short stature, endocrine issues, never going through puberty. I wish they would just get it checked out but like I said, these relatives are in like, no wheres land and just simple people. I've asked my mom to mention it to the woman's mother but from what I understand, shes doing bad with dementia. I think my mom's cousin might be going into a nursing home soon, they might be willing to check into it then, especially if I get a specific diagnosis. Anyways, thanks for the info, I'm gonna ask my mom again if she will talk with someone like my aunt whos a NP.

take care,

adrienne

[Guest guest]

laurie,

I havent seen this woman since I was younger so I'm not sure, I asked my mom and she doesnt think she has the short webbed neck. I think the main things they were thinking was her short stature, endocrine issues, never going through puberty. I wish they would just get it checked out but like I said, these relatives are in like, no wheres land and just simple people. I've asked my mom to mention it to the woman's mother but from what I understand, shes doing bad with dementia. I think my mom's cousin might be going into a nursing home soon, they might be willing to check into it then, especially if I get a specific diagnosis. Anyways, thanks for the info, I'm gonna ask my mom again if she will talk with someone like my aunt whos a NP.

take care,

adrienne

[Guest guest]

laurie,

I havent seen this woman since I was younger so I'm not sure, I asked my mom and she doesnt think she has the short webbed neck. I think the main things they were thinking was her short stature, endocrine issues, never going through puberty. I wish they would just get it checked out but like I said, these relatives are in like, no wheres land and just simple people. I've asked my mom to mention it to the woman's mother but from what I understand, shes doing bad with dementia. I think my mom's cousin might be going into a nursing home soon, they might be willing to check into it then, especially if I get a specific diagnosis. Anyways, thanks for the info, I'm gonna ask my mom again if she will talk with someone like my aunt whos a NP.

take care,

adrienne

[Guest guest]

Adrienne

You are welcome. I have worked with many, many students with rare syndromes

like Anglemans and Prune Belly Syndrome to mention a few. I am amazed that

an area that is mainly rural with low population density (rapidly changing)

can have so many rare things - maybe they are everywhere and my profession

just makes me aware of them.

laurie

> From: moonchild62579@...

> Reply-To:

> Date: Sat, 3 Jan 2004 19:02:41 EST

> To:

> Subject: Re: Anyone have dwarfism in their family?-laurie

>

> laurie,

> I havent seen this woman since I was younger so I'm not sure, I asked my mom

> and she doesnt think she has the short webbed neck. I think the main things

> they were thinking was her short stature, endocrine issues, never going

> through

> puberty. I wish they would just get it checked out but like I said, these

> relatives are in like, no wheres land and just simple people. I've asked my

> mom to

> mention it to the woman's mother but from what I understand, shes doing bad

> with dementia. I think my mom's cousin might be going into a nursing home

> soon,

> they might be willing to check into it then, especially if I get a specific

> diagnosis. Anyways, thanks for the info, I'm gonna ask my mom again if she

> will

> talk with someone like my aunt whos a NP.

> take care,

> adrienne

>

[Guest guest]

Adrienne

You are welcome. I have worked with many, many students with rare syndromes

like Anglemans and Prune Belly Syndrome to mention a few. I am amazed that

an area that is mainly rural with low population density (rapidly changing)

can have so many rare things - maybe they are everywhere and my profession

just makes me aware of them.

laurie

> From: moonchild62579@...

> Reply-To:

> Date: Sat, 3 Jan 2004 19:02:41 EST

> To:

> Subject: Re: Anyone have dwarfism in their family?-laurie

>

> laurie,

> I havent seen this woman since I was younger so I'm not sure, I asked my mom

> and she doesnt think she has the short webbed neck. I think the main things

> they were thinking was her short stature, endocrine issues, never going

> through

> puberty. I wish they would just get it checked out but like I said, these

> relatives are in like, no wheres land and just simple people. I've asked my

> mom to

> mention it to the woman's mother but from what I understand, shes doing bad

> with dementia. I think my mom's cousin might be going into a nursing home

> soon,

> they might be willing to check into it then, especially if I get a specific

> diagnosis. Anyways, thanks for the info, I'm gonna ask my mom again if she

> will

> talk with someone like my aunt whos a NP.

> take care,

> adrienne

>