Re: Bad News

[Guest guest]

In a message dated 5/2/2005 11:40:22 A.M. Eastern Daylight Time,

joyced@... writes:

What I don't understand is that with her hearing aids on, if her back

is turned to you and you call her, she will turn around and acknowledge

that you called her.

I'm so sorry about the recent news. Our son has a progressive loss and with

each audi visit he loses a little more hearing, and each time my heart aches a

bit. It's been 7 years since we learned of Ian's loss and while the

heartbreak that comes with each little drop has lessened, it never really goes

away.

As to Tameron responding, I don't know what to say except these kids have

great coping skills. Our son has a moderate loss and he will answer me from

upstairs when I holler. But I'm not hollering for him, I'm calling his sister,

. " Ian " and " " don't sound alike at all, not even when hollered up a

flight of stairs. But what he hears is something that lets him know it's me

calling, so he responds. When I'm calling him from downstairs, I flip the

hallway lights on and off. Still, the kid answers whenever he thinks he heard me

call.

Our daughter hears me perfectly, but chooses not to answer. She is in that

lovely stage of listening when it suits her and responding at her own pace. She

figured out that I am usually calling for the kids to perform a chore and if

Ian responds, then he got to do the requested task. We parents figured this

out pretty quickly and now we tell him to send her downstairs.

I know this doesn't answer your question, but I don't know what that answer

is. There is something she is noticing that tells her it's time to turn around

and look at you. It could be that your footsteps have stopped behind her and

not continued on through the room. A shadow may be cast over her and isn't

moving on ... those are things our son responds to when he doesn't have his

aids in. I know this kind of stuff confuses his grandparents.

Best -- Jill

[Guest guest]

In a message dated 5/2/2005 11:40:22 A.M. Eastern Daylight Time,

joyced@... writes:

What I don't understand is that with her hearing aids on, if her back

is turned to you and you call her, she will turn around and acknowledge

that you called her.

I'm so sorry about the recent news. Our son has a progressive loss and with

each audi visit he loses a little more hearing, and each time my heart aches a

bit. It's been 7 years since we learned of Ian's loss and while the

heartbreak that comes with each little drop has lessened, it never really goes

away.

As to Tameron responding, I don't know what to say except these kids have

great coping skills. Our son has a moderate loss and he will answer me from

upstairs when I holler. But I'm not hollering for him, I'm calling his sister,

. " Ian " and " " don't sound alike at all, not even when hollered up a

flight of stairs. But what he hears is something that lets him know it's me

calling, so he responds. When I'm calling him from downstairs, I flip the

hallway lights on and off. Still, the kid answers whenever he thinks he heard me

call.

Our daughter hears me perfectly, but chooses not to answer. She is in that

lovely stage of listening when it suits her and responding at her own pace. She

figured out that I am usually calling for the kids to perform a chore and if

Ian responds, then he got to do the requested task. We parents figured this

out pretty quickly and now we tell him to send her downstairs.

I know this doesn't answer your question, but I don't know what that answer

is. There is something she is noticing that tells her it's time to turn around

and look at you. It could be that your footsteps have stopped behind her and

not continued on through the room. A shadow may be cast over her and isn't

moving on ... those are things our son responds to when he doesn't have his

aids in. I know this kind of stuff confuses his grandparents.

Best -- Jill

[Guest guest]

In a message dated 5/2/2005 11:40:22 A.M. Eastern Daylight Time,

joyced@... writes:

What I don't understand is that with her hearing aids on, if her back

is turned to you and you call her, she will turn around and acknowledge

that you called her.

I'm so sorry about the recent news. Our son has a progressive loss and with

each audi visit he loses a little more hearing, and each time my heart aches a

bit. It's been 7 years since we learned of Ian's loss and while the

heartbreak that comes with each little drop has lessened, it never really goes

away.

As to Tameron responding, I don't know what to say except these kids have

great coping skills. Our son has a moderate loss and he will answer me from

upstairs when I holler. But I'm not hollering for him, I'm calling his sister,

. " Ian " and " " don't sound alike at all, not even when hollered up a

flight of stairs. But what he hears is something that lets him know it's me

calling, so he responds. When I'm calling him from downstairs, I flip the

hallway lights on and off. Still, the kid answers whenever he thinks he heard me

call.

Our daughter hears me perfectly, but chooses not to answer. She is in that

lovely stage of listening when it suits her and responding at her own pace. She

figured out that I am usually calling for the kids to perform a chore and if

Ian responds, then he got to do the requested task. We parents figured this

out pretty quickly and now we tell him to send her downstairs.

I know this doesn't answer your question, but I don't know what that answer

is. There is something she is noticing that tells her it's time to turn around

and look at you. It could be that your footsteps have stopped behind her and

not continued on through the room. A shadow may be cast over her and isn't

moving on ... those are things our son responds to when he doesn't have his

aids in. I know this kind of stuff confuses his grandparents.

Best -- Jill

[Guest guest]

--- You wrote:

Thanks for responding. I was talking to my co-worker before I read

your email and she was telling me that her cousin moved from La. to St.

Louis also.

Thanks for the info on the Moog Center. I'm going to log on and see

what I can find out. Tameron's mother called to let me know that she

has an appointment on 5/11 with the doctor that does the implants. So

stay tuned....

--- end of quote ---

Hi Joyce - where does your granddaughter get her services - in Baton Rouge? I

understand that the dept of Audiology at LSU in New Orleans is excellent. Just

a thought that maybe you'd want to seek a second opinion there?

Good luck - I'm sorry you're going through this. :-(

Barbara

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

--- You wrote:

Thanks Barbara. I will check them out. I know we are going to Ochsner

in N.O. on the 11th to see a Dr. Moloney. If I am not satisfied, I will

go to the next person - until. You know what they say about

grandmothers and boy do I have the energy.

--- end of quote ---

I used to work at Ochsner! my husband and I lived in NOLA for 17 years, then

moved up here to New Hampshire (talk about deep south to deep north!). My

older son was born in New Orleans but we moved when he was 18 months old so

I've not ever had audiological services in NOLA. But know that folks at LSU

audiology are supposed to be some of the best. I think Chuck Berlin has

retired - he's known everywhere. I didn't know Ochsner had an audiology

department.

Keep us posted?

Take care!

Barbara

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

--- You wrote:

Thanks Barbara. I will check them out. I know we are going to Ochsner

in N.O. on the 11th to see a Dr. Moloney. If I am not satisfied, I will

go to the next person - until. You know what they say about

grandmothers and boy do I have the energy.

--- end of quote ---

I used to work at Ochsner! my husband and I lived in NOLA for 17 years, then

moved up here to New Hampshire (talk about deep south to deep north!). My

older son was born in New Orleans but we moved when he was 18 months old so

I've not ever had audiological services in NOLA. But know that folks at LSU

audiology are supposed to be some of the best. I think Chuck Berlin has

retired - he's known everywhere. I didn't know Ochsner had an audiology

department.

Keep us posted?

Take care!

Barbara

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

--- You wrote:

Barbara,

How's the weather up there? Of course, you know how it is down here.

This weekend they had the Jazz Festival in N.O. and Fest for All here in

B.R. Saturday it rained, but Sunday it was beautiful and so is today.

This doctor is a Moloney and I hear he is pretty good. My

neighbor across the street had an implant done last year at Ochsner.

They moved away so I don't know how his is doing.

I'm going to go on Tulane's website and see what's out there so I'll

know. Tameron's audio. here in B.R. sent her to this dr. I'm going to

look on Tulane's website now. Thanks.

--- end of quote ---

ha ha ha - don't be confusing Tulane and LSU now!

We've really loved living up here - we've been here now for 11 years. One of

the reasons we left NOLA was feeling like the options for educating our kids

weren't great (and that was before we knew we had kids who couldn't hear!).

For that reason alone, moving here was an excellent decision.

The weather? Well, it snows up here! The first winter we moved it, they had

record breaking snow. I'm sure that's why Sam was born in October! Summers

are gorgeous, falls are breathtaking - I do enjoy the change of seasons.

I really miss the people, the food and the music in NOLA - especially jazzfest!

Take care

Barbara

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

--- You wrote:

I did a websearch for LSU dept of audio and it popped up on Ochsner.

Did one for Tulane and it popped up Ochsner. When you get a chance go

to their audio section. Dr. Moloney is under the Tulane - Ochsner - LSU

thingie(?). It says he is the only House fellow trained neurotologist

(?) in the Gulf South.

If I recall correctly, he saw Tameron when she was 9 mo. old and said

if her hearing worsened she would be a candidate for the implant.

--- end of quote ---

Oh no - Ochsner is taking over all of New Orleans ! LOL

I don't know if LSU has ENT surgeons or not but they do have a good dept of

audiology...

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

[Guest guest]

Good morning everybody. Tameron went for a hearing test (ABR, I think

this is the one when they put them to sleep) Thursday. The audiologist

told us that her one ear that she could hear out of had bottomed out

and they did not detect on the test that she could hear anymore.

Everybody kept assuring us that she was just

stubborn and would talk eventually.

What I don't understand is that with her hearing aids on, if her back

is turned to you and you call her, she will turn around and acknowledge

that you called her.

Dear Tameron's Grandma,

I am sorry you have to go through this loss. Each time you learn that a child's

hearing has worsened you start the grief cycle all over again. I can remember

it like yesterday (it has been 5 years now).

It is amazing how well many kids can hear with Cochlear implants.

Regarding turning around, she probably hears something and looks but to learn to

talk you have to hear frequencies across the board.

The Moog Center for Deaf Education holds summer workshops that helped me

greatly. Eventually, I gave up on the system of " professionals " in Little Rock.

Cut our losses and moved to St. Louis. Mapping implants is critical and after

family support the most crucial determining factor of success.

www.oraldeaf.org has a link to Moog and others schools. There is also a

location in Dallas that goes up to 5 years old (at least it did if I remember

right).

Mom to 12 (my biggest challenge now), 8 (n24 4/00) and 5

next week.

All messages posted to this list are private and confidential. Each post is the

intellectual property of the author and therefore subject to copyright

restrictions.

[Guest guest]

Jill, thanks for responding. It made me laugh to see how your kids

respond to being called. I guess what is so frustrating to me is that

it seems we have been going in circles in Louisiana trying to find an

answer to why she was not talking and it has taken three years. My

daughter just called to let me know Tameron has an appointment 5/11 to

see about the implants. Thanks.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> JillcWood@... 05/02/05 12:49PM >>>

In a message dated 5/2/2005 11:40:22 A.M. Eastern Daylight Time,

joyced@... writes:

What I don't understand is that with her hearing aids on, if her back

is turned to you and you call her, she will turn around and

acknowledge

that you called her.

I'm so sorry about the recent news. Our son has a progressive loss and

with

each audi visit he loses a little more hearing, and each time my heart

aches a

bit. It's been 7 years since we learned of Ian's loss and while the

heartbreak that comes with each little drop has lessened, it never

really goes away.

As to Tameron responding, I don't know what to say except these kids

have

great coping skills. Our son has a moderate loss and he will answer me

from

upstairs when I holler. But I'm not hollering for him, I'm calling his

sister,

. " Ian " and " " don't sound alike at all, not even when

hollered up a

flight of stairs. But what he hears is something that lets him know

it's me

calling, so he responds. When I'm calling him from downstairs, I flip

the

hallway lights on and off. Still, the kid answers whenever he thinks he

heard me

call.

Our daughter hears me perfectly, but chooses not to answer. She is in

that

lovely stage of listening when it suits her and responding at her own

pace. She

figured out that I am usually calling for the kids to perform a chore

and if

Ian responds, then he got to do the requested task. We parents figured

this

out pretty quickly and now we tell him to send her downstairs.

I know this doesn't answer your question, but I don't know what that

answer

is. There is something she is noticing that tells her it's time to turn

around

and look at you. It could be that your footsteps have stopped behind

her and

not continued on through the room. A shadow may be cast over her and

isn't

moving on ... those are things our son responds to when he doesn't

have his

aids in. I know this kind of stuff confuses his grandparents.

Best -- Jill

[Guest guest]

Jill, thanks for responding. It made me laugh to see how your kids

respond to being called. I guess what is so frustrating to me is that

it seems we have been going in circles in Louisiana trying to find an

answer to why she was not talking and it has taken three years. My

daughter just called to let me know Tameron has an appointment 5/11 to

see about the implants. Thanks.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> JillcWood@... 05/02/05 12:49PM >>>

In a message dated 5/2/2005 11:40:22 A.M. Eastern Daylight Time,

joyced@... writes:

What I don't understand is that with her hearing aids on, if her back

is turned to you and you call her, she will turn around and

acknowledge

that you called her.

I'm so sorry about the recent news. Our son has a progressive loss and

with

each audi visit he loses a little more hearing, and each time my heart

aches a

bit. It's been 7 years since we learned of Ian's loss and while the

heartbreak that comes with each little drop has lessened, it never

really goes away.

As to Tameron responding, I don't know what to say except these kids

have

great coping skills. Our son has a moderate loss and he will answer me

from

upstairs when I holler. But I'm not hollering for him, I'm calling his

sister,

. " Ian " and " " don't sound alike at all, not even when

hollered up a

flight of stairs. But what he hears is something that lets him know

it's me

calling, so he responds. When I'm calling him from downstairs, I flip

the

hallway lights on and off. Still, the kid answers whenever he thinks he

heard me

call.

Our daughter hears me perfectly, but chooses not to answer. She is in

that

lovely stage of listening when it suits her and responding at her own

pace. She

figured out that I am usually calling for the kids to perform a chore

and if

Ian responds, then he got to do the requested task. We parents figured

this

out pretty quickly and now we tell him to send her downstairs.

I know this doesn't answer your question, but I don't know what that

answer

is. There is something she is noticing that tells her it's time to turn

around

and look at you. It could be that your footsteps have stopped behind

her and

not continued on through the room. A shadow may be cast over her and

isn't

moving on ... those are things our son responds to when he doesn't

have his

aids in. I know this kind of stuff confuses his grandparents.

Best -- Jill

[Guest guest]

Jill, thanks for responding. It made me laugh to see how your kids

respond to being called. I guess what is so frustrating to me is that

it seems we have been going in circles in Louisiana trying to find an

answer to why she was not talking and it has taken three years. My

daughter just called to let me know Tameron has an appointment 5/11 to

see about the implants. Thanks.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> JillcWood@... 05/02/05 12:49PM >>>

In a message dated 5/2/2005 11:40:22 A.M. Eastern Daylight Time,

joyced@... writes:

What I don't understand is that with her hearing aids on, if her back

is turned to you and you call her, she will turn around and

acknowledge

that you called her.

I'm so sorry about the recent news. Our son has a progressive loss and

with

each audi visit he loses a little more hearing, and each time my heart

aches a

bit. It's been 7 years since we learned of Ian's loss and while the

heartbreak that comes with each little drop has lessened, it never

really goes away.

As to Tameron responding, I don't know what to say except these kids

have

great coping skills. Our son has a moderate loss and he will answer me

from

upstairs when I holler. But I'm not hollering for him, I'm calling his

sister,

. " Ian " and " " don't sound alike at all, not even when

hollered up a

flight of stairs. But what he hears is something that lets him know

it's me

calling, so he responds. When I'm calling him from downstairs, I flip

the

hallway lights on and off. Still, the kid answers whenever he thinks he

heard me

call.

Our daughter hears me perfectly, but chooses not to answer. She is in

that

lovely stage of listening when it suits her and responding at her own

pace. She

figured out that I am usually calling for the kids to perform a chore

and if

Ian responds, then he got to do the requested task. We parents figured

this

out pretty quickly and now we tell him to send her downstairs.

I know this doesn't answer your question, but I don't know what that

answer

is. There is something she is noticing that tells her it's time to turn

around

and look at you. It could be that your footsteps have stopped behind

her and

not continued on through the room. A shadow may be cast over her and

isn't

moving on ... those are things our son responds to when he doesn't

have his

aids in. I know this kind of stuff confuses his grandparents.

Best -- Jill

[Guest guest]

Hi ,

Thanks for responding. I was talking to my co-worker before I read

your email and she was telling me that her cousin moved from La. to St.

Louis also.

Thanks for the info on the Moog Center. I'm going to log on and see

what I can find out. Tameron's mother called to let me know that she

has an appointment on 5/11 with the doctor that does the implants. So

stay tuned....

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> cmcmurtrey@... 05/02/05 11:30AM >>>

Good morning everybody. Tameron went for a hearing test (ABR, I think

this is the one when they put them to sleep) Thursday. The audiologist

told us that her one ear that she could hear out of had bottomed out

and they did not detect on the test that she could hear anymore.

Everybody kept assuring us that she was just

stubborn and would talk eventually.

What I don't understand is that with her hearing aids on, if her back

is turned to you and you call her, she will turn around and acknowledge

that you called her.

Dear Tameron's Grandma,

I am sorry you have to go through this loss. Each time you learn that

a child's hearing has worsened you start the grief cycle all over again.

I can remember it like yesterday (it has been 5 years now).

It is amazing how well many kids can hear with Cochlear implants.

Regarding turning around, she probably hears something and looks but to

learn to talk you have to hear frequencies across the board.

The Moog Center for Deaf Education holds summer workshops that helped

me greatly. Eventually, I gave up on the system of " professionals " in

Little Rock. Cut our losses and moved to St. Louis. Mapping implants

is critical and after family support the most crucial determining factor

of success.

www.oraldeaf.org has a link to Moog and others schools. There is also

a location in Dallas that goes up to 5 years old (at least it did if I

remember right).

Mom to 12 (my biggest challenge now), 8 (n24 4/00) and

5 next week.

All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

[Guest guest]

Hi ,

Thanks for responding. I was talking to my co-worker before I read

your email and she was telling me that her cousin moved from La. to St.

Louis also.

Thanks for the info on the Moog Center. I'm going to log on and see

what I can find out. Tameron's mother called to let me know that she

has an appointment on 5/11 with the doctor that does the implants. So

stay tuned....

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> cmcmurtrey@... 05/02/05 11:30AM >>>

Good morning everybody. Tameron went for a hearing test (ABR, I think

this is the one when they put them to sleep) Thursday. The audiologist

told us that her one ear that she could hear out of had bottomed out

and they did not detect on the test that she could hear anymore.

Everybody kept assuring us that she was just

stubborn and would talk eventually.

What I don't understand is that with her hearing aids on, if her back

is turned to you and you call her, she will turn around and acknowledge

that you called her.

Dear Tameron's Grandma,

I am sorry you have to go through this loss. Each time you learn that

a child's hearing has worsened you start the grief cycle all over again.

I can remember it like yesterday (it has been 5 years now).

It is amazing how well many kids can hear with Cochlear implants.

Regarding turning around, she probably hears something and looks but to

learn to talk you have to hear frequencies across the board.

The Moog Center for Deaf Education holds summer workshops that helped

me greatly. Eventually, I gave up on the system of " professionals " in

Little Rock. Cut our losses and moved to St. Louis. Mapping implants

is critical and after family support the most crucial determining factor

of success.

www.oraldeaf.org has a link to Moog and others schools. There is also

a location in Dallas that goes up to 5 years old (at least it did if I

remember right).

Mom to 12 (my biggest challenge now), 8 (n24 4/00) and

5 next week.

All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

[Guest guest]

Thanks Barbara. I will check them out. I know we are going to Ochsner

in N.O. on the 11th to see a Dr. Moloney. If I am not satisfied, I will

go to the next person - until. You know what they say about

grandmothers and boy do I have the energy.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> Barbara.T.Mellert@... 05/02/05 01:12PM >>>

--- You wrote:

Thanks for responding. I was talking to my co-worker before I read

your email and she was telling me that her cousin moved from La. to

St.

Louis also.

Thanks for the info on the Moog Center. I'm going to log on and see

what I can find out. Tameron's mother called to let me know that she

has an appointment on 5/11 with the doctor that does the implants. So

stay tuned....

--- end of quote ---

Hi Joyce - where does your granddaughter get her services - in Baton

Rouge? I

understand that the dept of Audiology at LSU in New Orleans is

excellent. Just

a thought that maybe you'd want to seek a second opinion there?

Good luck - I'm sorry you're going through this. :-(

Barbara

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

[Guest guest]

Thanks Barbara. I will check them out. I know we are going to Ochsner

in N.O. on the 11th to see a Dr. Moloney. If I am not satisfied, I will

go to the next person - until. You know what they say about

grandmothers and boy do I have the energy.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> Barbara.T.Mellert@... 05/02/05 01:12PM >>>

--- You wrote:

Thanks for responding. I was talking to my co-worker before I read

your email and she was telling me that her cousin moved from La. to

St.

Louis also.

Thanks for the info on the Moog Center. I'm going to log on and see

what I can find out. Tameron's mother called to let me know that she

has an appointment on 5/11 with the doctor that does the implants. So

stay tuned....

--- end of quote ---

Hi Joyce - where does your granddaughter get her services - in Baton

Rouge? I

understand that the dept of Audiology at LSU in New Orleans is

excellent. Just

a thought that maybe you'd want to seek a second opinion there?

Good luck - I'm sorry you're going through this. :-(

Barbara

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

[Guest guest]

Barbara,

How's the weather up there? Of course, you know how it is down here.

This weekend they had the Jazz Festival in N.O. and Fest for All here in

B.R. Saturday it rained, but Sunday it was beautiful and so is today.

This doctor is a Moloney and I hear he is pretty good. My

neighbor across the street had an implant done last year at Ochsner.

They moved away so I don't know how his is doing.

I'm going to go on Tulane's website and see what's out there so I'll

know. Tameron's audio. here in B.R. sent her to this dr. I'm going to

look on Tulane's website now. Thanks.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> Barbara.T.Mellert@... 05/02/05 01:21PM >>>

--- You wrote:

Thanks Barbara. I will check them out. I know we are going to

Ochsner

in N.O. on the 11th to see a Dr. Moloney. If I am not satisfied, I

will

go to the next person - until. You know what they say about

grandmothers and boy do I have the energy.

--- end of quote ---

I used to work at Ochsner! my husband and I lived in NOLA for 17

years, then

moved up here to New Hampshire (talk about deep south to deep north!).

My

older son was born in New Orleans but we moved when he was 18 months

old so

I've not ever had audiological services in NOLA. But know that folks

at LSU

audiology are supposed to be some of the best. I think Chuck Berlin

has

retired - he's known everywhere. I didn't know Ochsner had an

audiology

department.

Keep us posted?

Take care!

Barbara

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

[Guest guest]

I'm sorry I meant LSU.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> joyced@... 05/02/05 01:29PM >>>

Barbara,

How's the weather up there? Of course, you know how it is down here.

This weekend they had the Jazz Festival in N.O. and Fest for All here

in

B.R. Saturday it rained, but Sunday it was beautiful and so is today.

This doctor is a Moloney and I hear he is pretty good. My

neighbor across the street had an implant done last year at Ochsner.

They moved away so I don't know how his is doing.

I'm going to go on Tulane's website and see what's out there so I'll

know. Tameron's audio. here in B.R. sent her to this dr. I'm going

to

look on Tulane's website now. Thanks.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> Barbara.T.Mellert@... 05/02/05 01:21PM >>>

--- You wrote:

Thanks Barbara. I will check them out. I know we are going to

Ochsner

in N.O. on the 11th to see a Dr. Moloney. If I am not satisfied, I

will

go to the next person - until. You know what they say about

grandmothers and boy do I have the energy.

--- end of quote ---

I used to work at Ochsner! my husband and I lived in NOLA for 17

years, then

moved up here to New Hampshire (talk about deep south to deep north!).

My

older son was born in New Orleans but we moved when he was 18 months

old so

I've not ever had audiological services in NOLA. But know that folks

at LSU

audiology are supposed to be some of the best. I think Chuck Berlin

has

retired - he's known everywhere. I didn't know Ochsner had an

audiology

department.

Keep us posted?

Take care!

Barbara

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject

to

copyright restrictions.

[Guest guest]

Barbara,

I did a websearch for LSU dept of audio and it popped up on Ochsner.

Did one for Tulane and it popped up Ochsner. When you get a chance go

to their audio section. Dr. Moloney is under the Tulane - Ochsner - LSU

thingie(?). It says he is the only House fellow trained neurotologist

(?) in the Gulf South.

If I recall correctly, he saw Tameron when she was 9 mo. old and said

if her hearing worsened she would be a candidate for the implant.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> Barbara.T.Mellert@... 05/02/05 01:48PM >>>

--- You wrote:

Barbara,

How's the weather up there? Of course, you know how it is down here.

This weekend they had the Jazz Festival in N.O. and Fest for All here

in

B.R. Saturday it rained, but Sunday it was beautiful and so is today.

This doctor is a Moloney and I hear he is pretty good. My

neighbor across the street had an implant done last year at Ochsner.

They moved away so I don't know how his is doing.

I'm going to go on Tulane's website and see what's out there so I'll

know. Tameron's audio. here in B.R. sent her to this dr. I'm going

to

look on Tulane's website now. Thanks.

--- end of quote ---

ha ha ha - don't be confusing Tulane and LSU now!

We've really loved living up here - we've been here now for 11 years.

One of

the reasons we left NOLA was feeling like the options for educating our

kids

weren't great (and that was before we knew we had kids who couldn't

hear!).

For that reason alone, moving here was an excellent decision.

The weather? Well, it snows up here! The first winter we moved it,

they had

record breaking snow. I'm sure that's why Sam was born in October!

Summers

are gorgeous, falls are breathtaking - I do enjoy the change of

seasons.

I really miss the people, the food and the music in NOLA - especially

jazzfest!

Take care

Barbara

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

[Guest guest]

Ok, I'll go back and re-read. I did see something about their audio

dept., but it was for students. Thanks.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> Barbara.T.Mellert@... 05/02/05 02:09PM >>>

--- You wrote:

I did a websearch for LSU dept of audio and it popped up on Ochsner.

Did one for Tulane and it popped up Ochsner. When you get a chance go

to their audio section. Dr. Moloney is under the Tulane - Ochsner -

LSU

thingie(?). It says he is the only House fellow trained neurotologist

(?) in the Gulf South.

If I recall correctly, he saw Tameron when she was 9 mo. old and said

if her hearing worsened she would be a candidate for the implant.

--- end of quote ---

Oh no - Ochsner is taking over all of New Orleans ! LOL

I don't know if LSU has ENT surgeons or not but they do have a good

dept of audiology...

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc

All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

[Guest guest]

Thanks , your encouragment brought tears to my eyes.

Joyce G. Spears, Field Agent

Crime Information Management Unit

LA Commission on Law Enforcement

1885 Wooddale Blvd.

Baton Rouge, LA 70806

(fax)

joyced@...

>>> lisabates@... 05/02/05 02:33PM >>>

Good afternoon... I can understand your grief of the news of the

worsening of her hearing. I have a now five year old who was

diagnosed moderate to severe at birth... wore hearing aids and

suddenly at the age of three I got a call from her school daying they

had tested her hearing and believed it was no gone. Sure enough an

ASSR test confirmed the loss to a now profound state in both ears.

She suddenly became a CI candidate after three years of being told

she was not a candidate because of the residual hearing she still

maintained. I remember my father taking it the hardest of everyone...

well, now two years later, we have a five year who is learning verbal

language and is clearer each day. She does still sign but also

verbalizes with her signs. She will be in mainstream kindergarten

next year with all hearing peers for the first time. We also have a

second daughter who was born profound and was implanted at 11 months

with Med El. She is now 20 months and jabbering all the time with not

as much signing.

We live in the Houston area and had both CI surgeries at Texas

Childrens. The team is great and very careful to insure as positive

of an outcome possible for the family as well as the ci candidate. My

oldest daughter attends a week long summer camp in Dallas through the

Callier Center for Hearing and Communication Disorders that is

specifically for kids with cochlear implants. I know the brief time

we thought we were moving to Dallas I researched the center and the

girls would go to their program had we moved. My oldest LOVES the

camp and it gives her a chance to see others kids as super special as

she is...

Just remember to take a deep breath every now and then and be

thankful for the happiness your granddaughter seems to feel...

(mommy to 5 yrs. and Beth 20 mo. both profound SNHL,

CI w/ Med El)

> Good morning everybody. Tameron went for a hearing test (ABR, I

think

> this is the one when they put them to sleep) Thursday. The

audiologist

> told us that her one ear that she could hear out of had bottomed

out

> and they did not detect on the test that she could hear anymore.

They

> told us that she is a canidate to the implant. At that point I was

so

> upset until I started crying. I knew inside that something was

wrong

> because she had not been saying any new words since she started her

new

> school in January. Everybody kept assuring us that she was just

> stubborn and would talk eventually.

>

> What I don't understand is that with her hearing aids on, if her

back

> is turned to you and you call her, she will turn around and

acknowledge

> that you called her. I am so confused. We live in Louisiana and I

> must say the help and information that is being presented to us

here

> has been terrible. All I want is for Tameron to be able to

> communicate. So far, she seems to be a happy go lucky little girl

that

> has no clue that anything is wrong.

All messages posted to this list are private and confidential. Each

post is the intellectual property of the author and therefore subject to

copyright restrictions.

[Guest guest]

Good afternoon... I can understand your grief of the news of the

worsening of her hearing. I have a now five year old who was

diagnosed moderate to severe at birth... wore hearing aids and

suddenly at the age of three I got a call from her school daying they

had tested her hearing and believed it was no gone. Sure enough an

ASSR test confirmed the loss to a now profound state in both ears.

She suddenly became a CI candidate after three years of being told

she was not a candidate because of the residual hearing she still

maintained. I remember my father taking it the hardest of everyone...

well, now two years later, we have a five year who is learning verbal

language and is clearer each day. She does still sign but also

verbalizes with her signs. She will be in mainstream kindergarten

next year with all hearing peers for the first time. We also have a

second daughter who was born profound and was implanted at 11 months

with Med El. She is now 20 months and jabbering all the time with not

as much signing.

We live in the Houston area and had both CI surgeries at Texas

Childrens. The team is great and very careful to insure as positive

of an outcome possible for the family as well as the ci candidate. My

oldest daughter attends a week long summer camp in Dallas through the

Callier Center for Hearing and Communication Disorders that is

specifically for kids with cochlear implants. I know the brief time

we thought we were moving to Dallas I researched the center and the

girls would go to their program had we moved. My oldest LOVES the

camp and it gives her a chance to see others kids as super special as

she is...

Just remember to take a deep breath every now and then and be

thankful for the happiness your granddaughter seems to feel...

(mommy to 5 yrs. and Beth 20 mo. both profound SNHL,

CI w/ Med El)

> Good morning everybody. Tameron went for a hearing test (ABR, I

think

> this is the one when they put them to sleep) Thursday. The

audiologist

> told us that her one ear that she could hear out of had bottomed

out

> and they did not detect on the test that she could hear anymore.

They

> told us that she is a canidate to the implant. At that point I was

so

> upset until I started crying. I knew inside that something was

wrong

> because she had not been saying any new words since she started her

new

> school in January. Everybody kept assuring us that she was just

> stubborn and would talk eventually.

>

> What I don't understand is that with her hearing aids on, if her

back

> is turned to you and you call her, she will turn around and

acknowledge

> that you called her. I am so confused. We live in Louisiana and I

> must say the help and information that is being presented to us

here

> has been terrible. All I want is for Tameron to be able to

> communicate. So far, she seems to be a happy go lucky little girl

that

> has no clue that anything is wrong.

[Guest guest]

Joyce -

I am sorry to hear about the news.

Small world.....we live in Prairieville. Our son has mild/moderate loss so

I don't know if our circles are the same. I am quite happy with our audi

(at Woman's). Also, he receives EI from Early Steps, which is free to

anyone regardless of income. He receives speech once a week now (thanks to

the support from this group it increased from once a month!).

Let me know if you are interested in any of the people that we are using.

Wish you all the best.

Dianne

Mama to Jack, 3 and hearing; Liam, 16 months, mild/mod SNHL; expecting

8/4/05

Bad News

> Good morning everybody. Tameron went for a hearing test (ABR, I think

> this is the one when they put them to sleep) Thursday. The audiologist

> told us that her one ear that she could hear out of had bottomed out

> and they did not detect on the test that she could hear anymore. They

> told us that she is a canidate to the implant. At that point I was so

> upset until I started crying. I knew inside that something was wrong

> because she had not been saying any new words since she started her new

> school in January. Everybody kept assuring us that she was just

> stubborn and would talk eventually.

>

> What I don't understand is that with her hearing aids on, if her back

> is turned to you and you call her, she will turn around and acknowledge

> that you called her. I am so confused. We live in Louisiana and I

> must say the help and information that is being presented to us here

> has been terrible. All I want is for Tameron to be able to

> communicate. So far, she seems to be a happy go lucky little girl that

> has no clue that anything is wrong.

>

>

>

>

>

>

> All messages posted to this list are private and confidential. Each post

> is the intellectual property of the author and therefore subject to

> copyright restrictions.

>

[Guest guest]

Joyce,

Does her cousin have with twin boys? One with hearing loss?

Tameron still is young enough to learn to talk. was almost 3 before we

figured out she couldn't hear. We spent 2 years working very hard with lots of

guilt (especially directed at her and me by professionals). Once we got her to

Moog and got her implant mapped appropriately she took off. She has made close

to 2 years progress each year at Moog.

Your daughter and Tameron are fortunate to have you in their corner.

----- Original Message -----

I was talking to my co-worker before I read

your email and she was telling me that her cousin moved from La. to St.

Louis also.

[Guest guest]

--- You wrote:

Hearing loss has nothing to do with intelligence.

--- end of quote ---

Isn't that the truth? My older son has a genius IQ, which coupled with his

hearing loss and ADHD makes him quite the guy! Some days I feel like I'm

running just to keep up with him...

******************************

Barbara Mellert

Manager, Social Science Computing

Kiewit Computing Services

Dartmouth College

Hanover NH 03755

Tel: 603/646-2877

URL: http://www.dartmouth.edu/~ssc