Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hi Cliff, Sorry you are feeling so down. I think at some point of this whole thing we all feel down and very much alone. Have you tried the Zyrtec/Zantac combo? It is working better than anything else I took. Steroids didn't even work for me that well. I still have some breakouts, but not as bad as they were, so I feel like it is definitely helping me. I honestly didn't think any kind of drug was going to help me. I basically told my doc I wanted to try it. Take care and I hope you are feeling better soon, Ann lostnaloneuk@... wrote: > Hello everyone, I'm new here but I've been suffering from urticaria > for the past 16 years. This has led to me losing most of my self- > confidence and becoming a loner. Although I have been on > antihistamines since 1985 I still get attacks and these depress me so > much. I feel very lonely at times and just wish I could beat it. > It is brought on by heat, stress and blushing. I really dont cope > with it very well i guess. > And sometimes I dont know what to do. > Sorry for being like this, its just sometimes I hurt. > Thanks > Cliff > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > urticaria-unsubscribeegroups > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hi Cliff, Sorry you are feeling so down. I think at some point of this whole thing we all feel down and very much alone. Have you tried the Zyrtec/Zantac combo? It is working better than anything else I took. Steroids didn't even work for me that well. I still have some breakouts, but not as bad as they were, so I feel like it is definitely helping me. I honestly didn't think any kind of drug was going to help me. I basically told my doc I wanted to try it. Take care and I hope you are feeling better soon, Ann lostnaloneuk@... wrote: > Hello everyone, I'm new here but I've been suffering from urticaria > for the past 16 years. This has led to me losing most of my self- > confidence and becoming a loner. Although I have been on > antihistamines since 1985 I still get attacks and these depress me so > much. I feel very lonely at times and just wish I could beat it. > It is brought on by heat, stress and blushing. I really dont cope > with it very well i guess. > And sometimes I dont know what to do. > Sorry for being like this, its just sometimes I hurt. > Thanks > Cliff > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > urticaria-unsubscribeegroups > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hello Ann, Thank you for taking the trouble to reply to my e-mail Ann. I have been feeling a bit down recently, I guess I just wish it would go away just like it started, but I've been wishing that for 16 years now and I can see my life going by. Its silly I know, it just gets to me sometimes. Its just nice to know there are other people who are coping with it. I am taking Zyrtec now and have been for the past 2 years. Prior to that I was on terfenadine which seemed to work really well although I think I was beginning to develop a certain amount of tolerance to it because my urticaria was getting worse again just when I thought I had it under control. Anyway the best thing about the tefenadine was I was able to take extra tablets if I knew I was going into a situation where the risk of an outbreak was higher. I dont like to do that with Zirtec because I dont know if its dangerous to take more than the prescribed dose. Anyway Ann, thank you for your kind words and I hope that your urticaria continues to improve. Does it affect your life and the things you do? Thank you Cliff > > > Hello everyone, I'm new here but I've been suffering from urticaria > > for the past 16 years. This has led to me losing most of my self- > > confidence and becoming a loner. Although I have been on > > antihistamines since 1985 I still get attacks and these depress me so > > much. I feel very lonely at times and just wish I could beat it. > > It is brought on by heat, stress and blushing. I really dont cope > > with it very well i guess. > > And sometimes I dont know what to do. > > Sorry for being like this, its just sometimes I hurt. > > Thanks > > Cliff > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > If you do wish to unsubscribe then you can click on the following link: > > urticaria-unsubscribeegroups > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hello Ann, Thank you for taking the trouble to reply to my e-mail Ann. I have been feeling a bit down recently, I guess I just wish it would go away just like it started, but I've been wishing that for 16 years now and I can see my life going by. Its silly I know, it just gets to me sometimes. Its just nice to know there are other people who are coping with it. I am taking Zyrtec now and have been for the past 2 years. Prior to that I was on terfenadine which seemed to work really well although I think I was beginning to develop a certain amount of tolerance to it because my urticaria was getting worse again just when I thought I had it under control. Anyway the best thing about the tefenadine was I was able to take extra tablets if I knew I was going into a situation where the risk of an outbreak was higher. I dont like to do that with Zirtec because I dont know if its dangerous to take more than the prescribed dose. Anyway Ann, thank you for your kind words and I hope that your urticaria continues to improve. Does it affect your life and the things you do? Thank you Cliff > > > Hello everyone, I'm new here but I've been suffering from urticaria > > for the past 16 years. This has led to me losing most of my self- > > confidence and becoming a loner. Although I have been on > > antihistamines since 1985 I still get attacks and these depress me so > > much. I feel very lonely at times and just wish I could beat it. > > It is brought on by heat, stress and blushing. I really dont cope > > with it very well i guess. > > And sometimes I dont know what to do. > > Sorry for being like this, its just sometimes I hurt. > > Thanks > > Cliff > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > If you do wish to unsubscribe then you can click on the following link: > > urticaria-unsubscribeegroups > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hi Cliff, Have you tried the Zantac along with the Zyrtec? The Zyrtec alone did not work for me, so I was SHOCKED when I added the Zantac ! It took some time, I would say over a week, but then I noticed that my breakouts were becoming less and less. I still have some major outbreaks, up to two a week, but the daily nonsense is much better. Also, I had appointments with my Allergist and Dermatologist this week and the dose I am taking of Zyrtec is one tablet, in the morning and one tablet at night, Zantac is 150 mg in the morning and 150 at night. They both said these drugs are VERY safe!! So that made me happy. Another drug that worked for me was the doxepin, the only problem with that was, it made me VERY sleepy. I will use that when I have the MAJOR outbreaks. Like I said, not even steroids worked for me. Yes, it can affect my daily life. It seems like the more physical activity I do, the more I break out, so of course I've been living a very sedentary life lately. The other day we went to an amusement park and from walking around all day and my shorts rubbing on my legs, I had huge welts. They hurt so bad that when I got home I had to put ice packs on them. I didn't realize that the bigger the welt, the more they hurt!! Also, just being out in public when I have hives, people tend to look at me like i'm diseased or something. It's a horrible feeling. People that I know truly have no clue what this is all about. I tend to not say too much when they ask how things are, because most of them really don't understand or want to hear it, so I don't say much at all. What is tefenadine? I've never heard of it and I looked it up in my drug hand book and it not there!! I hope you have some relief soon. You are not alone, there are many knowledgeable and caring people on this forum that will provide you with many ideas! This is where I learned about the ZZ combo and look what it has done for me! My docs had mentioned that at some point we may add the Zantac, but from this forum I heard such wonderful things about it, so I went and told my doc I wanted to try it! You can actually get Zantac over the counter. I had them write a prescription because of the higher dose and I can get a 90 day supply. Good luck ! Take care, Ann -- " Good friends are like stars, you don't always see them, but you know they are always there " Ann anney@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hi Cliff I am also a new member. I joined the group to find out more information about my daughter's urticaria and to share our 'long' story. I am sorry to hear that you are so down at the moment. I think that antihistamines can be hit-or-miss and it is difficult to find the right combination. I hope that you can find useful information with this group and comfort that will ease your suffering. Best Wishes Carla --- lostnaloneuk@... wrote: <HR> <html><body> <tt> Hello everyone, I'm new here but I've been suffering from urticaria <BR> for the past 16 years. This has led to me losing most of my self-<BR> confidence and becoming a loner. Although I have been on <BR> antihistamines since 1985 I still get attacks and these depress me so <BR> much. I feel very lonely at times and just wish I could beat it.<BR> It is brought on by heat, stress and blushing. I really dont cope <BR> with it very well i guess.<BR> And sometimes I dont know what to do.<BR> Sorry for being like this, its just sometimes I hurt.<BR> Thanks<BR> Cliff<BR> <BR> <BR> </tt> <br> <!-- |**|begin egp html banner|**| --> <table border=0 cellspacing=0 cellpadding=2> <tr bgcolor=#FFFFCC> <td align=center><font size= " -1 " color=#003399><b> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hi Cliff I am also a new member. I joined the group to find out more information about my daughter's urticaria and to share our 'long' story. I am sorry to hear that you are so down at the moment. I think that antihistamines can be hit-or-miss and it is difficult to find the right combination. I hope that you can find useful information with this group and comfort that will ease your suffering. Best Wishes Carla --- lostnaloneuk@... wrote: <HR> <html><body> <tt> Hello everyone, I'm new here but I've been suffering from urticaria <BR> for the past 16 years. This has led to me losing most of my self-<BR> confidence and becoming a loner. Although I have been on <BR> antihistamines since 1985 I still get attacks and these depress me so <BR> much. I feel very lonely at times and just wish I could beat it.<BR> It is brought on by heat, stress and blushing. I really dont cope <BR> with it very well i guess.<BR> And sometimes I dont know what to do.<BR> Sorry for being like this, its just sometimes I hurt.<BR> Thanks<BR> Cliff<BR> <BR> <BR> </tt> <br> <!-- |**|begin egp html banner|**| --> <table border=0 cellspacing=0 cellpadding=2> <tr bgcolor=#FFFFCC> <td align=center><font size= " -1 " color=#003399><b> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hello Ann, I havent tried Zantac as well as Zirtec I didnt know it existed. My breakouts are no where near as bad as they used to be but they still distress me in fact just the knowledge that they could come back is enough to depress me. When it first started about 16 years ago, I used to have terrible attacks sometimes 3 or 4 times a day all over my face and body and for someone who has always lacked self-confidence it was a crushing blow. I'm sorry I spelt the drug I used to take wrongly, it was Terfenadine which is also marketed as Triludan and Terfinax 60mg. Your comments about having attacks in public....my goodness thats exactly what its like for me. I feel so uncomfortable with peolple looking at me I just wish the ground would swallow me up. The number of times I've had to give up and leave so that I can be on my own with no-one to see me - it makes me cry on the inside. This is why I have become such a loner. Do you have friends and family to help you through Ann? Have you made new friends who understand the condition? Thank you for writing Ann, it helps to know there are other people who have to cope with this awful thing. Thanks Cliff > Hi Cliff, > Have you tried the Zantac along with the Zyrtec? The Zyrtec alone did not work for me, so I was SHOCKED when I added the Zantac ! It took some time, I would say over a week, but then I noticed that my breakouts were becoming less and > less. I still have some major outbreaks, up to two a week, but the daily nonsense is much better. > Also, I had appointments with my Allergist and Dermatologist this week and the dose I am taking of Zyrtec is one tablet, in the morning and one tablet at night, Zantac is 150 mg in the morning and 150 at night. They both said these drugs > are VERY safe!! So that made me happy. Another drug that worked for me was the doxepin, the only problem with that was, it made me VERY sleepy. I will use that when I have the MAJOR outbreaks. Like I said, not even steroids worked for > me. > > Yes, it can affect my daily life. It seems like the more physical activity I do, the more I break out, so of course I've been living a very sedentary life lately. The other day we went to an amusement park and from walking around all day > and my shorts rubbing on my legs, I had huge welts. They hurt so bad that when I got home I had to put ice packs on them. I didn't realize that the bigger the welt, the more they hurt!! Also, just being out in public when I have hives, > people tend to look at me like i'm diseased or something. It's a horrible feeling. People that I know truly have no clue what this is all about. I tend to not say too much when they ask how things are, because most of them really don't > understand or want to hear it, so I don't say much at all. > > What is tefenadine? I've never heard of it and I looked it up in my drug hand book and it not there!! > > I hope you have some relief soon. You are not alone, there are many knowledgeable and caring people on this forum that will provide you with many ideas! This is where I learned about the ZZ combo and look what it has done for me! My docs > had mentioned that at some point we may add the Zantac, but from this forum I heard such wonderful things about it, so I went and told my doc I wanted to try it! You can actually get Zantac over the counter. I had them write a > prescription because of the higher dose and I can get a 90 day supply. > > Good luck ! Take care, Ann > > > -- > " Good friends are like stars, you don't always see them, > but you know they are always there " > Ann > anney@p... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hello Ann, I havent tried Zantac as well as Zirtec I didnt know it existed. My breakouts are no where near as bad as they used to be but they still distress me in fact just the knowledge that they could come back is enough to depress me. When it first started about 16 years ago, I used to have terrible attacks sometimes 3 or 4 times a day all over my face and body and for someone who has always lacked self-confidence it was a crushing blow. I'm sorry I spelt the drug I used to take wrongly, it was Terfenadine which is also marketed as Triludan and Terfinax 60mg. Your comments about having attacks in public....my goodness thats exactly what its like for me. I feel so uncomfortable with peolple looking at me I just wish the ground would swallow me up. The number of times I've had to give up and leave so that I can be on my own with no-one to see me - it makes me cry on the inside. This is why I have become such a loner. Do you have friends and family to help you through Ann? Have you made new friends who understand the condition? Thank you for writing Ann, it helps to know there are other people who have to cope with this awful thing. Thanks Cliff > Hi Cliff, > Have you tried the Zantac along with the Zyrtec? The Zyrtec alone did not work for me, so I was SHOCKED when I added the Zantac ! It took some time, I would say over a week, but then I noticed that my breakouts were becoming less and > less. I still have some major outbreaks, up to two a week, but the daily nonsense is much better. > Also, I had appointments with my Allergist and Dermatologist this week and the dose I am taking of Zyrtec is one tablet, in the morning and one tablet at night, Zantac is 150 mg in the morning and 150 at night. They both said these drugs > are VERY safe!! So that made me happy. Another drug that worked for me was the doxepin, the only problem with that was, it made me VERY sleepy. I will use that when I have the MAJOR outbreaks. Like I said, not even steroids worked for > me. > > Yes, it can affect my daily life. It seems like the more physical activity I do, the more I break out, so of course I've been living a very sedentary life lately. The other day we went to an amusement park and from walking around all day > and my shorts rubbing on my legs, I had huge welts. They hurt so bad that when I got home I had to put ice packs on them. I didn't realize that the bigger the welt, the more they hurt!! Also, just being out in public when I have hives, > people tend to look at me like i'm diseased or something. It's a horrible feeling. People that I know truly have no clue what this is all about. I tend to not say too much when they ask how things are, because most of them really don't > understand or want to hear it, so I don't say much at all. > > What is tefenadine? I've never heard of it and I looked it up in my drug hand book and it not there!! > > I hope you have some relief soon. You are not alone, there are many knowledgeable and caring people on this forum that will provide you with many ideas! This is where I learned about the ZZ combo and look what it has done for me! My docs > had mentioned that at some point we may add the Zantac, but from this forum I heard such wonderful things about it, so I went and told my doc I wanted to try it! You can actually get Zantac over the counter. I had them write a > prescription because of the higher dose and I can get a 90 day supply. > > Good luck ! Take care, Ann > > > -- > " Good friends are like stars, you don't always see them, > but you know they are always there " > Ann > anney@p... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hello Carla, Thank you for your kind thoughts it is nice to know there are so many caring people out there. Thanks Cliff > <HR> > <html><body> > <tt> > Hello everyone, I'm new here but I've been suffering > from urticaria <BR> > for the past 16 years. This has led to me losing most > of my self-<BR> > confidence and becoming a loner. Although I have been > on <BR> > antihistamines since 1985 I still get attacks and > these depress me so <BR> > much. I feel very lonely at times and just wish I > could beat it.<BR> > It is brought on by heat, stress and blushing. I > really dont cope <BR> > with it very well i guess.<BR> > And sometimes I dont know what to do.<BR> > Sorry for being like this, its just sometimes I > hurt.<BR> > Thanks<BR> > Cliff<BR> > <BR> > <BR> > </tt> > > <br> > > <!-- |**|begin egp html banner|**| --> > > <table border=0 cellspacing=0 cellpadding=2> > <tr bgcolor=#FFFFCC> > <td align=center><font size= " -1 " > color=#003399><b> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hi Cliff, Zantac's generic name is ranitidine hydrochloride. It's worth a shot if it will help keep them away!! Yes, I have people to help me through, but I tend to try not to complain about it. My husband has been great. He knows how bad it can get and tries to boost my self esteem. I do not have good self-esteem to begin with and then have these things all over, so I know exactly what you mean by it being a blow! Like I said, people surrounding me have been pretty good, but I tend to try not to complain about it, I guess I feel like no one really wants to hear it, you can tell when people are truly interested in what you are talking about and most of the time I feel like I'm boring them, so when they ask how i'm doing, I usually say " fine " or " i'm under control " ! I still couldn't locate that drug in my handbook, maybe it's not released here in the US?? Take care, Ann -- " Good friends are like stars, you don't always see them, but you know they are always there " Ann anney@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 Hello Cliff, You are not alone! I discovered this when I found this list 3 months ago. The support from everyone is just fantastic. You are not alone! > Hello everyone, I'm new here but I've been suffering from urticaria > for the past 16 years. This has led to me losing most of my self- > confidence and becoming a loner. Although I have been on > antihistamines since 1985 I still get attacks and these depress me so > much. I feel very lonely at times and just wish I could beat it. > It is brought on by heat, stress and blushing. I really dont cope > with it very well i guess. > And sometimes I dont know what to do. > Sorry for being like this, its just sometimes I hurt. > Thanks > Cliff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Thank you , I'm beginning to see that there are a lot of super people out there. It really makes such a big difference knowing that others are going through the same sort of thing. Thank you for posting a response. Cliff >From: manheimbc@... >Reply-To: urticaria >To: urticaria >Subject: Re: Hello Cliff >Date: Sun, 17 Jun 2001 01:33:40 -0000 > >Hello Cliff, >You are not alone! I discovered this when I found this list 3 months >ago. The support from everyone is just fantastic. You are not alone! > > > > > Hello everyone, I'm new here but I've been suffering from urticaria > > for the past 16 years. This has led to me losing most of my self- > > confidence and becoming a loner. Although I have been on > > antihistamines since 1985 I still get attacks and these depress me >so > > much. I feel very lonely at times and just wish I could beat it. > > It is brought on by heat, stress and blushing. I really dont cope > > with it very well i guess. > > And sometimes I dont know what to do. > > Sorry for being like this, its just sometimes I hurt. > > Thanks > > Cliff > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
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