Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Suzanne, Thank you so very much. I think that sounds grand. I used to envision going to fat camp and being pampered but since I've lost these 140 extra pounds myself, maybe a "treat me like a queen" thing would be great! And...I've never been to Arizona and I know it's hot and I love hot. So I think I would like to go to Arizona, oh hell, I think it would be great to go to the edge of town all by myself..... I'm not sure on the teachings thing, but what you mention is a lot like what is expected if someone really does have mercury problems. In the information I read, it stated that before any removal of mercury can be done, the patient must first follow a very rigid re-supplement lifestyle. Basically, it says that the mercury toxins pull every ounce of normal supplements that your body regularly needs and produces all by itself to normally life every day, but when you have the mercury removed, your body has to be ready for the blast attack. In other words, your supplements need to surpass the normal recommended amounts in order to sustain the trauma of the mercury toxins being removed. MMMM.... My teeth hurt so bad...I can't decide if I grit them that much in pain or am trying to mentally push these little buggers right out of my own head without me knowing about it. Did that make sense? And...the doctor I have been seeing that loves the color of green (as least my green), and he values his minutes with me a lot....but, I'm being nice and saying he is trying and has me on a lot of supplements and minerals and all. I have a hard time taking all these 80 plus pills a day...and I was becoming a little disillusioned...but I think it's okay to take those pills. I think I get it now. Not that he is right, but what is a right way to be. I need the supplements the doctor said I did...not because he is right why I have urticaria...but because he is right about what my body needs. He has no clue as to why I have Urticaria and honestly really doesn't think he needs to know why...there are all those reasons-----yeast, hormonal, adrenal etc.....he knows I need the extra supplements and extra vitamins and minerals in order to maybe get okay....to get well. He doesn't know how to get me well....but he does recognize the fact that I am not well because of the poor nutritional balance my body is in. So, my plan of action is this....take these 80+ pills a day, eat more protein in the morning and keep my carbs very very low and eat more God like foods, fresh, etc. Rest when I need rest. Read spiritual things. Remember my family. Talk to my family. Remind my family that I love them even though I push them away sometimes because...that way...when I die they won't miss me so much. And quit saying things like I'm going to die. I am going to be thankful that my husband has worked so hard and I am able to reap from his hard work and that he works for great people who have shared success with us. I am going to be thankful that my beautiful 19 year old son who feeds me and helps me get through the day loves me. I am going to be thankful that he will have his jaw surgery because he has waited two years for this realignment of his stunted bone growth of 5 mm. Small, but to him, it's a lot. I am going to be thankful because he can make me laugh more than anyone in the world. He is a budding screenplay writer and is enjoying his college years. He is going to be on TV or movies or whatever and one day you will enjoy all the funny things he says just like I do now. I am going to be thankful that my daughter, at the age of 24 is an Interior Designer with the largest Architectural firm in the world and is the most beautiful red head in the world. I am thankful that she has met a young man named Matt and they are planning a life together and that in a year or so I will be able to dance at her wedding. I am going to be thankful for the fact that I have a computer and that Bill Gates was born. I am going to be thankful that for whatever reason....a doctor named Wes showed some compassion to a stranger on the internet. I am going to be thankful that a woman named Myra loved her little girl, so much that she didn't want her to die. I am going to be thankful that I have the ability to look at pictures of people that I only know by name and that even though it's not...I can imagine that maybe that really is Phils rump. And I'm just going to try to get through this little by little and slowly move in the direction I need to take to get whole again. To slow down just a bit and think a little more before I leap. And I'm going to stop a few minutes each day and think of our friend down under and pray that an in vitro procedure may bring the type of joy in her life that I was lucky enough to have so easily. And...then I'm going to look at little Aleena's face and smile, because I like looking at little Alleena's face. And...I'm going to say thank you to a woman who held on to me from the farthest northern part of this country and wouldn't let me fall........ and for some reason....regardless of how much I wanted to go...she said, no, hang on and she cares. And I am thankful that there are so many open hearts. Love and kindness to all... Patti Hive on...........I'm the winner this time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Yipee!!!! Patti's getting her spunk back!!!!! Welcome back Patti and I am so happy you are here. I don't know if you received a message I sent a little while ago but it was a suggestion for you. I want to encourage you to look into all of the things that you mentioned on one of your latest postings. YEs, Yes.... But also I wanted you to know about a wonderful clinic that I found in Phoenix Arizona. They were not able to find the cause of my urticaria (I was not having breakouts while I was there), but they built me up my immune system and did wonders for my whole outlook on life. They follow the teachings of Edgar Cache and they have terrific results. I had blood testing done there too---not 17 viles--- but several and I came away with a vitimin/mineral profile. They do clonics, massage, electro-stimulation, of the spine, etc...whatever is needed (let me tell you that after that treatment I felt my back was alive for the first time in my life) It is the ARC Clinic and I can give you the address. They are not cheap, but oh it was so worth it. I care. Love, Suzanne >From: urticaria >Reply-To: urticaria >To: urticaria >Subject: Digest Number 829 >Date: 14 Jun 2001 02:13:20 -0000 > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ >If you do wish to unsubscribe then you can click on the following link: > urticaria-unsubscribeegroups >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > >This list is in the service of those who suffer from Chronic Urticaria >(hives). We strive to support and lift each other as a worldwide >cyber-family. > >We share whatever needs to be shared to help one another in our struggle >with Chronic Urticria. Information provided in this forum is not to be >taken as medical advice. Always consult your health professional before >trying anything new. > >Any posting that is off the main topic of Chronic Urticaria, we post with a >prefix of NCU -. This is done out of respect for those who do not wish to >read such postings. >------------------------------------------------------------------------ > >There are 25 messages in this issue. > >Topics in this digest: > > 1. Re: A ? for Terry > > 2. Dr. Shankland:Case History > From: titus@... > 3. Re: reply - root canal-ers & crowns, fillings > From: Barbie8051@... > 4. Re: Dr. Shankland:Case History > > 5. Re: reply - root canal-ers & crowns, fillings > > 6. Alenas Mayo Clinic Fund. > From: kelly5851@... > 7. Re: Re:NCU - List for " metals " > > 8. Re: Re: getting calcium > > 9. Re: P.S. ANYONE HAVE A SUGGESTION????? > > 10. Re: Re: A ? for Terry > > 11. To Eleanor and all re: RAST Testing and Tooth Infections > > 12. kinesology question > > 13. NCU to Maddo in Quebec and all > > 14. Re: NCU to Maddo in Quebec and all > > 15. Re: A ? for Terry > > 16. Re: P.S. ANYONE HAVE A SUGGESTION????? > From: ilikedewey@... > 17. Re: kinesology question > > 18. Re: To Eleanor and all re: RAST Testing and Tooth Infections > > 19. Re: To Eleanor and all re: RAST Testing and Tooth Infections > > 20. Re: Dr. Shankland:Case History > From: debrochelle831@... > 21. Re: To Eleanor and all re: RAST Testing and Tooth Infections > From: debrochelle831@... > 22. Re: P.S. ANYONE HAVE A SUGGESTION????? > From: we4nnm@... > 23. Re: Dr. Shankland:Case History > > 24. Dr. Shankland...THANK YOU! more info... > From: Hiveyjivey@... > 25. Research...research > From: Hiveyjivey@... > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 > Date: Wed, 13 Jun 2001 16:22:01 -0000 > >Subject: Re: A ? for Terry > >Hi Maddy ) >Glad to hear from you. Yup, I found out that doc. Hunt is leaving to >go to the University of Ga. when I saw him on Monday. I actually >cried when I found out. You see, this is the second time I've lost a >great doc. at the clinic. Anyway, we talked about it, and I thought >either Dr. Volcheck or Dr. Butterfield. Dr. Butterfield is doing >lot's of research and not much patient time so I chose Dr. Volcheck >based on other comments from folks in the group. I see him in August. > In the meantime, I'm on 3MIU of Interferron 5 times a week, same as >you. It's working for me, but kind of slow right now. Yup, the side >affects are really minimal. I don't get fever or anything like that. >Just fatigued. I just stepped down to 10mg of prednisone today. We >added 180mg of Alegra per day on Monday to help, and it is helping. >But the really big news is, I finally found a dentist that has digital >xray equiptment in St. . I saw him yesterday, and guess what we >found... a botched root canal. Severe infection that's probably been >there for years. So, we started the process and cleaned it out >yesterday. I asked about an antibiotic, and he said I could have one >if I wanted and he prescribed Clyndomicin. I already feel better >after only two doses. Gotta' be persistant. Anyway, he's a great >dentist and very gentle and kind. His name is Zollinger. So, I >go back next week for a check on the tooth to see if the meds work at >saving it. If not, it's outta' here ) > > > This is actually for Terry..... > > Hi there. I'm sorry I haven't been in touch, things have been >crazy. > > Anyway, are you still seeing Dr. Hunt? I just found out he's >leaving Mayo > > and going to Atlanta. I am so upset. Anyway, I was just wondering >if you > > have any leads on anyone new at Mayo? They referred me to a Dr. >Meier...but > > I don't know much about her. I LOVE Dr. Hunt! UGH. How is the >interferon? > > I am on 3MIU five times a week. It sounds like you don't have too >many side > > fx. I have a lot....still the fevers, nausea, diarrhea, vomiting, >etc. It > > sucks, but I really want to get off steroids. Anyway, just watned >to say > > hello and also see if you knew about dr. hutn and what you're going >to do! > > > > Thanks so much. > > also my email addy is madeline808@a... > > what's your email so i don't bother eveyrone on the list? > > > > Maddy > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 2 > Date: Wed, 13 Jun 2001 17:20:52 -0000 > From: titus@... >Subject: Dr. Shankland:Case History > > >Dear Dr. Shankland, >Welcome to our group. I was one of the first people on this list to >find a " dental connection " to urticaria. I will briefly tell you of >the case history of my daughter. While camping, when my daughter was >8, she fell and broke off and loosened her two front teeth..... she >was treated at an ER, there were suspected minor facial >fractures...... She was seen, by her pediatric dentist and a >pediatric oral surgeon the next day, who dismissed the facial >fractures. We were advised by both dentists that the two front teeth >had severe trauma and only time would tell if they would be viable. >Later composite reconstruction was done. Three years later we were >advised by the pediatric dentist that one of these teeth, tooth # 8 >was " dead " and had a large abscess and was in need of a root canal. >Which was done. Subsequently, the second tooth involved with this >accident, had to be root canalled because of abscess, was tooth #9 >and almost concurrently tooth #10 had to be root canalled because of >the spreading infection. Concurrent with these events started >experiencing other medical conditions. She began hiving in response >to heavy exercise. She had been a competitive swimmer who had to >quit swimming in the Spring of 1995 because her hiving had bordered >on anaphylaxis every time she went into the water. For the next four >years her medical condition would continue to deteriorate. Along >with exercise, heat, would cause her to hive become anaphylactic and >then finally cold was added to this list of " triggers " . Her life >became more and more restrictive. Just walking from the car to a >store could cause her to hive and to begin to shock. Also going >outside into the heat or coming back inside from the heat to a cool >house would cause the same reaction. Her hiving and anaphylaxis had >become absolutely predictable and reproducible.......with known >triggers, that is; heat, cold and exercise. Every time she took a >warm shower she would quickly hive all over and experience a radical >blood pressure drop and a heart rate elevation with generalized >swelling, mouth and throat involvement. Over the course of time >she was tested for allergies, endocrine problems, lupus and other >immune system problems without result. In the Fall of 1999, she >started seeing an immunologist from Stanford Univ. who diagnosed her >with " systemic anaphylaxis " . Even though this was the first time >someone had put a name to the condition, it didn't give us any >satisfying answers as to the cause. I, about a year earlier had >decided to read everything I could about urticaria, anaphylaxis and >other mast cell activation disorders. I read very medical text I >could get my hands on, as well as almost every article published by >Pub Med, literally 1000's. 's case seemed like a positive for >systemic mastocytosis, except for the fact that she did not have >Upper GI and Lower GI involvement, which made me think that this >could not be a differential diagnosis. About this time a man from >this board, Dave, suspected that his urticaria/anaphylaxis was tooth >related. We went all over the net trying to find supporting >information for him, with little result..... except for a little >information which was now coming down the pike about the relationship >between mast cells and infection. But Dave was persistent and he had >and epicoectomy. He went through several different antibiotics and >then finally was greatly improved after taking two rounds of >clindamycin. He urged me to take to a dentist. I called my >personal dentist who was VERY sympathetic and listened to my >explanation of her medical condition and the roll of mast cells in >infection. He made her an appointment with an endodontist who was >also very sympathetic. He found that she was feeling pain in a root >canalled tooth and saw some dark clouding over the tooth in x-ray. I >told him of something that I had remembered the pediatric dentist >saying when she had that first root canal.... He had said this tooth >root had an unusual presentation, a double root. I questioned the >endodontist about this in length. It wasn't seen in the first x- >rays. He took further x-rays and found that she had an axillary >palatal root. The next week, after discussing with her immunologist >the pros and cons of types of anesthetics, because we didn't want her >to go into anaphylaxis while because of anesthetic, he removed the >packing material in this root to find LOTS of infection. The palatal >root had never been addressed. He then packed the tooth with >antibiotic, put her on clindamycin and sent home while he did some >consulting. We debated long and hard about what to do. The >endodontist wanted to do an epicoectomy, but my mother's heart >said " what if this is the cause and there is further infection in the >bone, we may get in the position of dismissing this is the cause and >go on looking for years. " My husband and I thought that if the tooth >was removed and she didn't get better..... at least we would have >ruled out this cause forever. In the meantime ALL her symptoms >stopped while on the clindamycin. This was the same girl who for 5 >years went into anaphylaxis with triggers and had to use rescue meds >to recover. She was then sent on to a peridontist who removed this >tooth. He too was very sympathetic and very knowledgeable about mast >cells. For your info he took pictures of this whole procedure >because of the unusual presentation. went on two rounds of >clindamycin after the surgery..... her symptoms were greatly >improved. She no longer shocked and over time the residual symptoms >faded. She had about 70% loss to the bone over the top of the tooth >and has been going through bone augmentation for the last year in >preparation for implant. The implant screw was set last Jan. and she >is awaiting the mounting of the new tooth in August. This will bring >to closure a 7 year long battle. I hope this is informative to you. >Sincerely, Myra > >PS, I have tooth #8 and can scan it if you are interested. > > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 3 > Date: Wed, 13 Jun 2001 13:36:26 EDT > From: Barbie8051@... >Subject: Re: reply - root canal-ers & crowns, fillings > >Wesley - > >As of when (date) does does a dentist have to inform his or her patient >that >amalgam is a toxic substance? Curious since we do go to the dentist every >6 >months and my daughter had a filling (amalgam) earlier this year. Is >there >a dental site or ??? where this is stated? > >Oh, I know about the breaking of a thermometer in a school ... and >evacuations. > >Thank you again for you wonderful and informative replies. >Barbara -- CA > >In a message dated 06/13/2001 1:41:44 AM Pacific Daylight Time, >drwes@... writes: > > Just this week alone, the California Dental Association was sued by a > > consumer group because amalgam is still being used. A few weeks ago, a > > class-action suit was filed in Washington, DC, against the ADA and all > > dentists who have used amalgam in the last 3 years. Maine, land and > > New York are also considering banning the use of amalgam. Today in > > California, a dentist must inform his or her patient that amalgam, which >is > > approximately 50% or so mercury, is a toxic substance. Amalgam is on >its > > way out due to the toxicity issue. Mercury is a poison. Just look what > > happens when a kid in chemistry class breaks a thermometer . . . the >entire > > school is evacuated and the EPA has to come in and clean the school. >Why > > > > > > >[This message contained attachments] > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 4 > Date: Wed, 13 Jun 2001 13:53:35 -0400 > >Subject: Re: Dr. Shankland:Case History > >Dear Myra, > >Thanks so much for the complete history of your daughter's problems. Yes, >please scan the tooth's image and email it to me. > >You've confirmed what I've been thinking for a long time. I'm so glad your >daughter is doing better. God bless her and the doctors who finally >listened to a persist ant mother! > >Wesley Shankland > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 5 > Date: Wed, 13 Jun 2001 13:55:14 -0400 > >Subject: Re: reply - root canal-ers & crowns, fillings > >Barbara, > >To my knowledge, the need to inform patients has been law in California for >some time, but I could be wrong. > >You might call the California Dental Board (don't report the doc!), and ask >them if there is such a law and if so, when did it go into effect. Please >let me know. > >Thanks. > >Wesley Shankland > > > >[This message contained attachments] > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 6 > Date: Wed, 13 Jun 2001 14:37:45 EDT > From: kelly5851@... >Subject: Alenas Mayo Clinic Fund. > >Hi Everyone, This is an update of donations to send our little Alena to >the Mayo Clinic. Total to date is $ 305.00. Anyone wanting to contribute >the address is: National City Bank, C/o Alena's Fund Euclid Avenue, >Willoughby, OH 44094 or Alena/ ilgar home address-7554 Chardon Road, >Kirtland OH 44094 or paypal.com and the e-mail address to send into is >ilgar@.... Fondly, New Jersey. > > >[This message contained attachments] > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 7 > Date: Wed, 13 Jun 2001 14:58:05 -0400 > >Subject: Re: Re:NCU - List for " metals " > >Thanks I would appreciate any information your husband has on the >subject of metals.It seems to me the group of us may uncover something >quite profound someday about all of this swelling if we keep exploring all >these avenues for causes.I have always had the idea that there must be one >common factor even though all of our cases are unique. I hope it is >discovered in our lifetime Eleanor > Re: NCU - List for " metals " > > > > NCU --- > > I found a list for " metals " on a dental/amalgam-type site. I am >going to try > it for a bit. Anyone interested in the information, email me. I am >not sure > if posting the list information is allowed ... > > Barbara -- CA > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following >link: > urticaria-unsubscribeegroups > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic >Urticaria (hives). We strive to support and lift each other as a worldwide >cyber-family. > > We share whatever needs to be shared to help one another in our >struggle with Chronic Urticria. Information provided in this forum is not >to be taken as medical advice. Always consult your health professional >before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post >with a prefix of NCU -. This is done out of respect for those who do not >wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Yipee!!!! Patti's getting her spunk back!!!!! Welcome back Patti and I am so happy you are here. I don't know if you received a message I sent a little while ago but it was a suggestion for you. I want to encourage you to look into all of the things that you mentioned on one of your latest postings. YEs, Yes.... But also I wanted you to know about a wonderful clinic that I found in Phoenix Arizona. They were not able to find the cause of my urticaria (I was not having breakouts while I was there), but they built me up my immune system and did wonders for my whole outlook on life. They follow the teachings of Edgar Cache and they have terrific results. I had blood testing done there too---not 17 viles--- but several and I came away with a vitimin/mineral profile. They do clonics, massage, electro-stimulation, of the spine, etc...whatever is needed (let me tell you that after that treatment I felt my back was alive for the first time in my life) It is the ARC Clinic and I can give you the address. They are not cheap, but oh it was so worth it. I care. Love, Suzanne >From: urticaria >Reply-To: urticaria >To: urticaria >Subject: Digest Number 829 >Date: 14 Jun 2001 02:13:20 -0000 > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ >If you do wish to unsubscribe then you can click on the following link: > urticaria-unsubscribeegroups >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > >This list is in the service of those who suffer from Chronic Urticaria >(hives). We strive to support and lift each other as a worldwide >cyber-family. > >We share whatever needs to be shared to help one another in our struggle >with Chronic Urticria. Information provided in this forum is not to be >taken as medical advice. Always consult your health professional before >trying anything new. > >Any posting that is off the main topic of Chronic Urticaria, we post with a >prefix of NCU -. This is done out of respect for those who do not wish to >read such postings. >------------------------------------------------------------------------ > >There are 25 messages in this issue. > >Topics in this digest: > > 1. Re: A ? for Terry > > 2. Dr. Shankland:Case History > From: titus@... > 3. Re: reply - root canal-ers & crowns, fillings > From: Barbie8051@... > 4. Re: Dr. Shankland:Case History > > 5. Re: reply - root canal-ers & crowns, fillings > > 6. Alenas Mayo Clinic Fund. > From: kelly5851@... > 7. Re: Re:NCU - List for " metals " > > 8. Re: Re: getting calcium > > 9. Re: P.S. ANYONE HAVE A SUGGESTION????? > > 10. Re: Re: A ? for Terry > > 11. To Eleanor and all re: RAST Testing and Tooth Infections > > 12. kinesology question > > 13. NCU to Maddo in Quebec and all > > 14. Re: NCU to Maddo in Quebec and all > > 15. Re: A ? for Terry > > 16. Re: P.S. ANYONE HAVE A SUGGESTION????? > From: ilikedewey@... > 17. Re: kinesology question > > 18. Re: To Eleanor and all re: RAST Testing and Tooth Infections > > 19. Re: To Eleanor and all re: RAST Testing and Tooth Infections > > 20. Re: Dr. Shankland:Case History > From: debrochelle831@... > 21. Re: To Eleanor and all re: RAST Testing and Tooth Infections > From: debrochelle831@... > 22. Re: P.S. ANYONE HAVE A SUGGESTION????? > From: we4nnm@... > 23. Re: Dr. Shankland:Case History > > 24. Dr. Shankland...THANK YOU! more info... > From: Hiveyjivey@... > 25. Research...research > From: Hiveyjivey@... > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 > Date: Wed, 13 Jun 2001 16:22:01 -0000 > >Subject: Re: A ? for Terry > >Hi Maddy ) >Glad to hear from you. Yup, I found out that doc. Hunt is leaving to >go to the University of Ga. when I saw him on Monday. I actually >cried when I found out. You see, this is the second time I've lost a >great doc. at the clinic. Anyway, we talked about it, and I thought >either Dr. Volcheck or Dr. Butterfield. Dr. Butterfield is doing >lot's of research and not much patient time so I chose Dr. Volcheck >based on other comments from folks in the group. I see him in August. > In the meantime, I'm on 3MIU of Interferron 5 times a week, same as >you. It's working for me, but kind of slow right now. Yup, the side >affects are really minimal. I don't get fever or anything like that. >Just fatigued. I just stepped down to 10mg of prednisone today. We >added 180mg of Alegra per day on Monday to help, and it is helping. >But the really big news is, I finally found a dentist that has digital >xray equiptment in St. . I saw him yesterday, and guess what we >found... a botched root canal. Severe infection that's probably been >there for years. So, we started the process and cleaned it out >yesterday. I asked about an antibiotic, and he said I could have one >if I wanted and he prescribed Clyndomicin. I already feel better >after only two doses. Gotta' be persistant. Anyway, he's a great >dentist and very gentle and kind. His name is Zollinger. So, I >go back next week for a check on the tooth to see if the meds work at >saving it. If not, it's outta' here ) > > > This is actually for Terry..... > > Hi there. I'm sorry I haven't been in touch, things have been >crazy. > > Anyway, are you still seeing Dr. Hunt? I just found out he's >leaving Mayo > > and going to Atlanta. I am so upset. Anyway, I was just wondering >if you > > have any leads on anyone new at Mayo? They referred me to a Dr. >Meier...but > > I don't know much about her. I LOVE Dr. Hunt! UGH. How is the >interferon? > > I am on 3MIU five times a week. It sounds like you don't have too >many side > > fx. I have a lot....still the fevers, nausea, diarrhea, vomiting, >etc. It > > sucks, but I really want to get off steroids. Anyway, just watned >to say > > hello and also see if you knew about dr. hutn and what you're going >to do! > > > > Thanks so much. > > also my email addy is madeline808@a... > > what's your email so i don't bother eveyrone on the list? > > > > Maddy > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 2 > Date: Wed, 13 Jun 2001 17:20:52 -0000 > From: titus@... >Subject: Dr. Shankland:Case History > > >Dear Dr. Shankland, >Welcome to our group. I was one of the first people on this list to >find a " dental connection " to urticaria. I will briefly tell you of >the case history of my daughter. While camping, when my daughter was >8, she fell and broke off and loosened her two front teeth..... she >was treated at an ER, there were suspected minor facial >fractures...... She was seen, by her pediatric dentist and a >pediatric oral surgeon the next day, who dismissed the facial >fractures. We were advised by both dentists that the two front teeth >had severe trauma and only time would tell if they would be viable. >Later composite reconstruction was done. Three years later we were >advised by the pediatric dentist that one of these teeth, tooth # 8 >was " dead " and had a large abscess and was in need of a root canal. >Which was done. Subsequently, the second tooth involved with this >accident, had to be root canalled because of abscess, was tooth #9 >and almost concurrently tooth #10 had to be root canalled because of >the spreading infection. Concurrent with these events started >experiencing other medical conditions. She began hiving in response >to heavy exercise. She had been a competitive swimmer who had to >quit swimming in the Spring of 1995 because her hiving had bordered >on anaphylaxis every time she went into the water. For the next four >years her medical condition would continue to deteriorate. Along >with exercise, heat, would cause her to hive become anaphylactic and >then finally cold was added to this list of " triggers " . Her life >became more and more restrictive. Just walking from the car to a >store could cause her to hive and to begin to shock. Also going >outside into the heat or coming back inside from the heat to a cool >house would cause the same reaction. Her hiving and anaphylaxis had >become absolutely predictable and reproducible.......with known >triggers, that is; heat, cold and exercise. Every time she took a >warm shower she would quickly hive all over and experience a radical >blood pressure drop and a heart rate elevation with generalized >swelling, mouth and throat involvement. Over the course of time >she was tested for allergies, endocrine problems, lupus and other >immune system problems without result. In the Fall of 1999, she >started seeing an immunologist from Stanford Univ. who diagnosed her >with " systemic anaphylaxis " . Even though this was the first time >someone had put a name to the condition, it didn't give us any >satisfying answers as to the cause. I, about a year earlier had >decided to read everything I could about urticaria, anaphylaxis and >other mast cell activation disorders. I read very medical text I >could get my hands on, as well as almost every article published by >Pub Med, literally 1000's. 's case seemed like a positive for >systemic mastocytosis, except for the fact that she did not have >Upper GI and Lower GI involvement, which made me think that this >could not be a differential diagnosis. About this time a man from >this board, Dave, suspected that his urticaria/anaphylaxis was tooth >related. We went all over the net trying to find supporting >information for him, with little result..... except for a little >information which was now coming down the pike about the relationship >between mast cells and infection. But Dave was persistent and he had >and epicoectomy. He went through several different antibiotics and >then finally was greatly improved after taking two rounds of >clindamycin. He urged me to take to a dentist. I called my >personal dentist who was VERY sympathetic and listened to my >explanation of her medical condition and the roll of mast cells in >infection. He made her an appointment with an endodontist who was >also very sympathetic. He found that she was feeling pain in a root >canalled tooth and saw some dark clouding over the tooth in x-ray. I >told him of something that I had remembered the pediatric dentist >saying when she had that first root canal.... He had said this tooth >root had an unusual presentation, a double root. I questioned the >endodontist about this in length. It wasn't seen in the first x- >rays. He took further x-rays and found that she had an axillary >palatal root. The next week, after discussing with her immunologist >the pros and cons of types of anesthetics, because we didn't want her >to go into anaphylaxis while because of anesthetic, he removed the >packing material in this root to find LOTS of infection. The palatal >root had never been addressed. He then packed the tooth with >antibiotic, put her on clindamycin and sent home while he did some >consulting. We debated long and hard about what to do. The >endodontist wanted to do an epicoectomy, but my mother's heart >said " what if this is the cause and there is further infection in the >bone, we may get in the position of dismissing this is the cause and >go on looking for years. " My husband and I thought that if the tooth >was removed and she didn't get better..... at least we would have >ruled out this cause forever. In the meantime ALL her symptoms >stopped while on the clindamycin. This was the same girl who for 5 >years went into anaphylaxis with triggers and had to use rescue meds >to recover. She was then sent on to a peridontist who removed this >tooth. He too was very sympathetic and very knowledgeable about mast >cells. For your info he took pictures of this whole procedure >because of the unusual presentation. went on two rounds of >clindamycin after the surgery..... her symptoms were greatly >improved. She no longer shocked and over time the residual symptoms >faded. She had about 70% loss to the bone over the top of the tooth >and has been going through bone augmentation for the last year in >preparation for implant. The implant screw was set last Jan. and she >is awaiting the mounting of the new tooth in August. This will bring >to closure a 7 year long battle. I hope this is informative to you. >Sincerely, Myra > >PS, I have tooth #8 and can scan it if you are interested. > > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 3 > Date: Wed, 13 Jun 2001 13:36:26 EDT > From: Barbie8051@... >Subject: Re: reply - root canal-ers & crowns, fillings > >Wesley - > >As of when (date) does does a dentist have to inform his or her patient >that >amalgam is a toxic substance? Curious since we do go to the dentist every >6 >months and my daughter had a filling (amalgam) earlier this year. Is >there >a dental site or ??? where this is stated? > >Oh, I know about the breaking of a thermometer in a school ... and >evacuations. > >Thank you again for you wonderful and informative replies. >Barbara -- CA > >In a message dated 06/13/2001 1:41:44 AM Pacific Daylight Time, >drwes@... writes: > > Just this week alone, the California Dental Association was sued by a > > consumer group because amalgam is still being used. A few weeks ago, a > > class-action suit was filed in Washington, DC, against the ADA and all > > dentists who have used amalgam in the last 3 years. Maine, land and > > New York are also considering banning the use of amalgam. Today in > > California, a dentist must inform his or her patient that amalgam, which >is > > approximately 50% or so mercury, is a toxic substance. Amalgam is on >its > > way out due to the toxicity issue. Mercury is a poison. Just look what > > happens when a kid in chemistry class breaks a thermometer . . . the >entire > > school is evacuated and the EPA has to come in and clean the school. >Why > > > > > > >[This message contained attachments] > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 4 > Date: Wed, 13 Jun 2001 13:53:35 -0400 > >Subject: Re: Dr. Shankland:Case History > >Dear Myra, > >Thanks so much for the complete history of your daughter's problems. Yes, >please scan the tooth's image and email it to me. > >You've confirmed what I've been thinking for a long time. I'm so glad your >daughter is doing better. God bless her and the doctors who finally >listened to a persist ant mother! > >Wesley Shankland > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 5 > Date: Wed, 13 Jun 2001 13:55:14 -0400 > >Subject: Re: reply - root canal-ers & crowns, fillings > >Barbara, > >To my knowledge, the need to inform patients has been law in California for >some time, but I could be wrong. > >You might call the California Dental Board (don't report the doc!), and ask >them if there is such a law and if so, when did it go into effect. Please >let me know. > >Thanks. > >Wesley Shankland > > > >[This message contained attachments] > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 6 > Date: Wed, 13 Jun 2001 14:37:45 EDT > From: kelly5851@... >Subject: Alenas Mayo Clinic Fund. > >Hi Everyone, This is an update of donations to send our little Alena to >the Mayo Clinic. Total to date is $ 305.00. Anyone wanting to contribute >the address is: National City Bank, C/o Alena's Fund Euclid Avenue, >Willoughby, OH 44094 or Alena/ ilgar home address-7554 Chardon Road, >Kirtland OH 44094 or paypal.com and the e-mail address to send into is >ilgar@.... Fondly, New Jersey. > > >[This message contained attachments] > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 7 > Date: Wed, 13 Jun 2001 14:58:05 -0400 > >Subject: Re: Re:NCU - List for " metals " > >Thanks I would appreciate any information your husband has on the >subject of metals.It seems to me the group of us may uncover something >quite profound someday about all of this swelling if we keep exploring all >these avenues for causes.I have always had the idea that there must be one >common factor even though all of our cases are unique. I hope it is >discovered in our lifetime Eleanor > Re: NCU - List for " metals " > > > > NCU --- > > I found a list for " metals " on a dental/amalgam-type site. I am >going to try > it for a bit. Anyone interested in the information, email me. I am >not sure > if posting the list information is allowed ... > > Barbara -- CA > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following >link: > urticaria-unsubscribeegroups > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic >Urticaria (hives). We strive to support and lift each other as a worldwide >cyber-family. > > We share whatever needs to be shared to help one another in our >struggle with Chronic Urticria. Information provided in this forum is not >to be taken as medical advice. Always consult your health professional >before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post >with a prefix of NCU -. This is done out of respect for those who do not >wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2001 Report Share Posted July 20, 2001 Please tell me more about the clinic. I do not want to take Predisone. I would like to call this clinic and go as soon as possible. Please send it to me. Thanks Zion. --- " S. H. " wrote: > Yipee!!!! Patti's getting her spunk back!!!!! > Welcome back Patti and I am > so happy you are here. I don't know if you received > a message I sent a > little while ago but it was a suggestion for you. I > want to encourage you > to look into all of the things that you mentioned on > one of your latest > postings. YEs, Yes.... But also I wanted you to > know about a wonderful > clinic that I found in Phoenix Arizona. They were > not able to find the > cause of my urticaria (I was not having breakouts > while I was there), but > they built me up my immune system and did wonders > for my whole outlook on > life. They follow the teachings of Edgar Cache and > they have terrific > results. I had blood testing done there too---not 17 > viles--- but several > and I came away with a vitimin/mineral profile. > They do clonics, massage, > electro-stimulation, of the spine, etc...whatever is > needed (let me tell > you that after that treatment I felt my back was > alive for the first time in > my life) It is the ARC Clinic and I can give you the > address. They are not > cheap, but oh it was so worth it. > > I care. > > Love, Suzanne > > > >From: urticaria > >Reply-To: urticaria > >To: urticaria > >Subject: Digest Number 829 > >Date: 14 Jun 2001 02:13:20 -0000 > > > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > >If you do wish to unsubscribe then you can click on > the following link: > > urticaria-unsubscribeegroups > >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > > >This list is in the service of those who suffer > from Chronic Urticaria > >(hives). We strive to support and lift each other > as a worldwide > >cyber-family. > > > >We share whatever needs to be shared to help one > another in our struggle > >with Chronic Urticria. Information provided in this > forum is not to be > >taken as medical advice. Always consult your health > professional before > >trying anything new. > > > >Any posting that is off the main topic of Chronic > Urticaria, we post with a > >prefix of NCU -. This is done out of respect for > those who do not wish to > >read such postings. > >------------------------------------------------------------------------ > > > >There are 25 messages in this issue. > > > >Topics in this digest: > > > > 1. Re: A ? for Terry > > From: " Terrence Forrest " > > > 2. Dr. Shankland:Case History > > From: titus@... > > 3. Re: reply - root canal-ers & crowns, > fillings > > From: Barbie8051@... > > 4. Re: Dr. Shankland:Case History > > From: " Dr Wesley Shankland " > > > 5. Re: reply - root canal-ers & crowns, > fillings > > From: " Dr Wesley Shankland " > > > 6. Alenas Mayo Clinic Fund. > > From: kelly5851@... > > 7. Re: Re:NCU - List for " metals " > > From: " Eleanor Connors " > > > 8. Re: Re: getting calcium > > From: " Eleanor Connors " > > > 9. Re: P.S. ANYONE HAVE A SUGGESTION????? > > From: " Eleanor Connors " > > > 10. Re: Re: A ? for Terry > > > > 11. To Eleanor and all re: RAST Testing and > Tooth Infections > > > > 12. kinesology question > > > > 13. NCU to Maddo in Quebec and all > > From: " sadlersweb " > > > 14. Re: NCU to Maddo in Quebec and all > > > > 15. Re: A ? for Terry > > From: " Terrence Forrest " > > > 16. Re: P.S. ANYONE HAVE A SUGGESTION????? > > From: ilikedewey@... > > 17. Re: kinesology question > > From: " Terrence Forrest " > > > 18. Re: To Eleanor and all re: RAST Testing > and Tooth Infections > > From: " Eleanor Connors " > > > 19. Re: To Eleanor and all re: RAST Testing > and Tooth Infections > > From: " Jackie Vaughan " > > > 20. Re: Dr. Shankland:Case History > > From: debrochelle831@... > > 21. Re: To Eleanor and all re: RAST Testing > and Tooth Infections > > From: debrochelle831@... > > 22. Re: P.S. ANYONE HAVE A SUGGESTION????? > > From: we4nnm@... > > 23. Re: Dr. Shankland:Case History > > From: " Dr. Wesley Shankland " > > > 24. Dr. Shankland...THANK YOU! more > info... > > From: Hiveyjivey@... > > 25. Research...research > > From: Hiveyjivey@... > > > > > >________________________________________________________________________ > >________________________________________________________________________ > > > >Message: 1 > > Date: Wed, 13 Jun 2001 16:22:01 -0000 > > From: " Terrence Forrest " > > >Subject: Re: A ? for Terry > > > >Hi Maddy ) > >Glad to hear from you. Yup, I found out that doc. > Hunt is leaving to > >go to the University of Ga. when I saw him on > Monday. I actually > >cried when I found out. You see, this is the > second time I've lost a > >great doc. at the clinic. Anyway, we talked about > it, and I thought > >either Dr. Volcheck or Dr. Butterfield. Dr. > Butterfield is doing > >lot's of research and not much patient time so I > chose Dr. Volcheck > >based on other comments from folks in the group. I > see him in August. > > In the meantime, I'm on 3MIU of Interferron 5 > times a week, same as > >you. It's working for me, but kind of slow right > now. Yup, the side > >affects are really minimal. I don't get fever or > anything like that. > >Just fatigued. I just stepped down to 10mg of > prednisone today. We > >added 180mg of Alegra per day on Monday to help, > and it is helping. > >But the really big news is, I finally found a > dentist that has digital > >xray equiptment in St. . I saw him yesterday, > and guess what we > >found... a botched root canal. Severe infection > that's probably been > >there for years. So, we started the process and > cleaned it out > >yesterday. I asked about an antibiotic, and he > said I could have one > >if I wanted and he prescribed Clyndomicin. I > already feel better > >after only two doses. Gotta' be persistant. > Anyway, he's a great > >dentist and very gentle and kind. His name is > Zollinger. So, I > >go back next week for a check on the tooth to see > if the meds work at > >saving it. If not, it's outta' here ) > > > > > This is actually for Terry..... > > > Hi there. I'm sorry I haven't been in touch, > things have been > >crazy. > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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