Guest guest Posted February 20, 2004 Report Share Posted February 20, 2004 > Andy, > > Do you have any experience with children with Selective Mutism? Do > you feel that it is a condition that might be caused by mercury > injury? Elaine, My son had Selective Mutism when he was toddler/preschool age. He was able to talk quite well and with extensive vocabulary, but refused to talk to anyone outside our immediate family. People were always asking whether he could talk. Our answer was always, " Yes, we can't get him to shut up at home! " What was the cause? I don't know, but his eventual diagnosis was Asperger's/high functioning autism. Lila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2004 Report Share Posted February 20, 2004 In a message dated 2/19/2004 11:52:39 PM Eastern Standard Time, cybermom@... writes: > He was > able to talk quite well and with extensive vocabulary, but refused to > talk to anyone outside our immediate family. People were always > asking whether he could talk. Our answer was always, " Yes, we can't > get him to shut up at home! " What was the cause? I don't know, but > his eventual diagnosis was Asperger's/high functioning autism. > Same with my son. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 A broadcast about selective mutism featuring SMG~CAN CEO and Medical Director Dr. Shipon- Blum will air on CNN on Monday, October 18, 2004 at 7:00 pm EDT. This is a fantastic opportunity for our organization to increase awareness of selective mutism. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 I can understand because I live with it in my son. I have to say it is getting better every week but he's been off the damn Celexa for over 3 years. I remember when he couldn't remember anything but the bad, negative parts of his childhood -- what happened before he took the Celexa. He can now. I can remember when he had no dreams or hope for the future, when he thought he would never leave the house. He has plans for a future now. He still hasn't followed through, but I believe he's getting closer every day. Baby steps, baby step.... He now sees that there are some others in this world who have a harder row to hoe than he. He has let go of his dreams of revenge on those who hurt him. He is moving on. He's starting to value himself again. We long ago quit the psychiatric/psychological professionals. I KNOW there is a therapist out there who could help, but neither of us have the energy for the painful expensive process of finding that person. They all say they understand and can help, but they're talking out their arrogant asses. We did luck out and find a hypnotherapist who was very helpful but I'm sure that was mostly luck. I often wonder if you, my son and Corey lived near each other if you could be friends or if you have had too many of the same experiences . .......if that would be the pink elephant in the living room that you could never get around. > Sara, > > > I actually didn't know what selective mutism was until I read that NY Times > article, but while reading it I kept thinking, " Crap, this sounds kind of > like me. Are there reports of SSRI induced selective mutism? " I don't > think I have selective mutism, but without a doubt I have severe social > phobia (or is commonly known by the drug companies as " social anxiety > disorder " ). It would be my guess that social phobia is on the same spectrum > as selective mutism, but to a slightly lesser degree. > > Today, April 12th, is my 23rd birthday and this has been the second > consecutive worst birthday of my entire life. To think that I was reaching > the height of my success (knowing Brazilian Portuguese, Chinese Mandarin and > being a 4.0 student) during my 2003 birthday, and now I'm in the worst > position I've ever been in is absolutely mind bending and shattering. I had > so much going for me back then and I was on my way; now I'm a pathetic piece > of crap that can't even leave his house is obsessed with trying to achieve > justice through the courts which seems highly unlikely at this point. > > The other day I was reading the " Book of Job " and realized that in certain > respects I, and others who have been screwed by their antidepressant, have > it worse than he did. I may not have lost as many material things as Job > did, but I've basically had my mind's chemicals switched up and distorted to > the point where I can barely think straight. I sincerely believe happiness > is now impossible to achieve with messed up head since I've been depressed > since August 2003. My brain is just not the same anymore; even my childhood > memories come across as totally alienating and foreign. It's so frustrating > that no matter how hard I try to get some sort of justice and vindication > for myself, I find myself running in a giant hamster wheel; going nowhere. > I'm afraid my story is in a gray-zone where 100% proof cannot be shown; just > like many other antidepressant stories thanks to the genius of the > pharmaceuticals. > > And when I try to get help from a therapist, the stupid b@#$% basically > calls me an ignorant moron and a pansy obsessed with the past. The truth > is, she has no idea the kind of hell I went through and has no idea how > demeaning and dehumanizing it is to be taken down by a 100-mg. green pill. > She has no idea how infuriating is to be at a place you've wanted to be at > (for me a good college) and to spiral into a terrible depression for no > reason, or to hallucinate in broad day light, or to feel like this reality > is " plastic fake " , along with you. I don't really expect anyone to > understand this unless they've personally survived it themselves, but > Christ, from a Therapist?!?! I at least expect some kind of understanding. > To rub it in further, she is supposed to be one of the best therapists in > this city; very dismaying. > > Anyway, enough of my rant, has anyone else gone through this crap and > understand what I'm saying? This is so incredibly frustrating and there > doesn't seem to be any solution. I've forgotten all of my Portuguese and > Chinese (years down the tubes); I don't want to go back to college (I have > no degrees), I want to throw-up when I'm around other people, I need of > years of therapy, I trust no one, I've had insomnia for a year+, and I can't > relate to anyone after this terrible experience. What is the solution to > all this because I can't figure it out – > > > F-Dogg > > > > > > Does any of this sound familiar to you? Does this sound like what you > got from taking the SSRI? Maybe not the mutism part but all the fear > and anxiety part? Sounds like my son, especially the part where the > mother says " Every place she goes, I need to smooth the way. " My son > wasn't like this before the years on Celexa but he is now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 I can understand because I live with it in my son. I have to say it is getting better every week but he's been off the damn Celexa for over 3 years. I remember when he couldn't remember anything but the bad, negative parts of his childhood -- what happened before he took the Celexa. He can now. I can remember when he had no dreams or hope for the future, when he thought he would never leave the house. He has plans for a future now. He still hasn't followed through, but I believe he's getting closer every day. Baby steps, baby step.... He now sees that there are some others in this world who have a harder row to hoe than he. He has let go of his dreams of revenge on those who hurt him. He is moving on. He's starting to value himself again. We long ago quit the psychiatric/psychological professionals. I KNOW there is a therapist out there who could help, but neither of us have the energy for the painful expensive process of finding that person. They all say they understand and can help, but they're talking out their arrogant asses. We did luck out and find a hypnotherapist who was very helpful but I'm sure that was mostly luck. I often wonder if you, my son and Corey lived near each other if you could be friends or if you have had too many of the same experiences . .......if that would be the pink elephant in the living room that you could never get around. > Sara, > > > I actually didn't know what selective mutism was until I read that NY Times > article, but while reading it I kept thinking, " Crap, this sounds kind of > like me. Are there reports of SSRI induced selective mutism? " I don't > think I have selective mutism, but without a doubt I have severe social > phobia (or is commonly known by the drug companies as " social anxiety > disorder " ). It would be my guess that social phobia is on the same spectrum > as selective mutism, but to a slightly lesser degree. > > Today, April 12th, is my 23rd birthday and this has been the second > consecutive worst birthday of my entire life. To think that I was reaching > the height of my success (knowing Brazilian Portuguese, Chinese Mandarin and > being a 4.0 student) during my 2003 birthday, and now I'm in the worst > position I've ever been in is absolutely mind bending and shattering. I had > so much going for me back then and I was on my way; now I'm a pathetic piece > of crap that can't even leave his house is obsessed with trying to achieve > justice through the courts which seems highly unlikely at this point. > > The other day I was reading the " Book of Job " and realized that in certain > respects I, and others who have been screwed by their antidepressant, have > it worse than he did. I may not have lost as many material things as Job > did, but I've basically had my mind's chemicals switched up and distorted to > the point where I can barely think straight. I sincerely believe happiness > is now impossible to achieve with messed up head since I've been depressed > since August 2003. My brain is just not the same anymore; even my childhood > memories come across as totally alienating and foreign. It's so frustrating > that no matter how hard I try to get some sort of justice and vindication > for myself, I find myself running in a giant hamster wheel; going nowhere. > I'm afraid my story is in a gray-zone where 100% proof cannot be shown; just > like many other antidepressant stories thanks to the genius of the > pharmaceuticals. > > And when I try to get help from a therapist, the stupid b@#$% basically > calls me an ignorant moron and a pansy obsessed with the past. The truth > is, she has no idea the kind of hell I went through and has no idea how > demeaning and dehumanizing it is to be taken down by a 100-mg. green pill. > She has no idea how infuriating is to be at a place you've wanted to be at > (for me a good college) and to spiral into a terrible depression for no > reason, or to hallucinate in broad day light, or to feel like this reality > is " plastic fake " , along with you. I don't really expect anyone to > understand this unless they've personally survived it themselves, but > Christ, from a Therapist?!?! I at least expect some kind of understanding. > To rub it in further, she is supposed to be one of the best therapists in > this city; very dismaying. > > Anyway, enough of my rant, has anyone else gone through this crap and > understand what I'm saying? This is so incredibly frustrating and there > doesn't seem to be any solution. I've forgotten all of my Portuguese and > Chinese (years down the tubes); I don't want to go back to college (I have > no degrees), I want to throw-up when I'm around other people, I need of > years of therapy, I trust no one, I've had insomnia for a year+, and I can't > relate to anyone after this terrible experience. What is the solution to > all this because I can't figure it out – > > > F-Dogg > > > > > > Does any of this sound familiar to you? Does this sound like what you > got from taking the SSRI? Maybe not the mutism part but all the fear > and anxiety part? Sounds like my son, especially the part where the > mother says " Every place she goes, I need to smooth the way. " My son > wasn't like this before the years on Celexa but he is now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 I can understand because I live with it in my son. I have to say it is getting better every week but he's been off the damn Celexa for over 3 years. I remember when he couldn't remember anything but the bad, negative parts of his childhood -- what happened before he took the Celexa. He can now. I can remember when he had no dreams or hope for the future, when he thought he would never leave the house. He has plans for a future now. He still hasn't followed through, but I believe he's getting closer every day. Baby steps, baby step.... He now sees that there are some others in this world who have a harder row to hoe than he. He has let go of his dreams of revenge on those who hurt him. He is moving on. He's starting to value himself again. We long ago quit the psychiatric/psychological professionals. I KNOW there is a therapist out there who could help, but neither of us have the energy for the painful expensive process of finding that person. They all say they understand and can help, but they're talking out their arrogant asses. We did luck out and find a hypnotherapist who was very helpful but I'm sure that was mostly luck. I often wonder if you, my son and Corey lived near each other if you could be friends or if you have had too many of the same experiences . .......if that would be the pink elephant in the living room that you could never get around. > Sara, > > > I actually didn't know what selective mutism was until I read that NY Times > article, but while reading it I kept thinking, " Crap, this sounds kind of > like me. Are there reports of SSRI induced selective mutism? " I don't > think I have selective mutism, but without a doubt I have severe social > phobia (or is commonly known by the drug companies as " social anxiety > disorder " ). It would be my guess that social phobia is on the same spectrum > as selective mutism, but to a slightly lesser degree. > > Today, April 12th, is my 23rd birthday and this has been the second > consecutive worst birthday of my entire life. To think that I was reaching > the height of my success (knowing Brazilian Portuguese, Chinese Mandarin and > being a 4.0 student) during my 2003 birthday, and now I'm in the worst > position I've ever been in is absolutely mind bending and shattering. I had > so much going for me back then and I was on my way; now I'm a pathetic piece > of crap that can't even leave his house is obsessed with trying to achieve > justice through the courts which seems highly unlikely at this point. > > The other day I was reading the " Book of Job " and realized that in certain > respects I, and others who have been screwed by their antidepressant, have > it worse than he did. I may not have lost as many material things as Job > did, but I've basically had my mind's chemicals switched up and distorted to > the point where I can barely think straight. I sincerely believe happiness > is now impossible to achieve with messed up head since I've been depressed > since August 2003. My brain is just not the same anymore; even my childhood > memories come across as totally alienating and foreign. It's so frustrating > that no matter how hard I try to get some sort of justice and vindication > for myself, I find myself running in a giant hamster wheel; going nowhere. > I'm afraid my story is in a gray-zone where 100% proof cannot be shown; just > like many other antidepressant stories thanks to the genius of the > pharmaceuticals. > > And when I try to get help from a therapist, the stupid b@#$% basically > calls me an ignorant moron and a pansy obsessed with the past. The truth > is, she has no idea the kind of hell I went through and has no idea how > demeaning and dehumanizing it is to be taken down by a 100-mg. green pill. > She has no idea how infuriating is to be at a place you've wanted to be at > (for me a good college) and to spiral into a terrible depression for no > reason, or to hallucinate in broad day light, or to feel like this reality > is " plastic fake " , along with you. I don't really expect anyone to > understand this unless they've personally survived it themselves, but > Christ, from a Therapist?!?! I at least expect some kind of understanding. > To rub it in further, she is supposed to be one of the best therapists in > this city; very dismaying. > > Anyway, enough of my rant, has anyone else gone through this crap and > understand what I'm saying? This is so incredibly frustrating and there > doesn't seem to be any solution. I've forgotten all of my Portuguese and > Chinese (years down the tubes); I don't want to go back to college (I have > no degrees), I want to throw-up when I'm around other people, I need of > years of therapy, I trust no one, I've had insomnia for a year+, and I can't > relate to anyone after this terrible experience. What is the solution to > all this because I can't figure it out – > > > F-Dogg > > > > > > Does any of this sound familiar to you? Does this sound like what you > got from taking the SSRI? Maybe not the mutism part but all the fear > and anxiety part? Sounds like my son, especially the part where the > mother says " Every place she goes, I need to smooth the way. " My son > wasn't like this before the years on Celexa but he is now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 I can understand because I live with it in my son. I have to say it is getting better every week but he's been off the damn Celexa for over 3 years. I remember when he couldn't remember anything but the bad, negative parts of his childhood -- what happened before he took the Celexa. He can now. I can remember when he had no dreams or hope for the future, when he thought he would never leave the house. He has plans for a future now. He still hasn't followed through, but I believe he's getting closer every day. Baby steps, baby step.... He now sees that there are some others in this world who have a harder row to hoe than he. He has let go of his dreams of revenge on those who hurt him. He is moving on. He's starting to value himself again. We long ago quit the psychiatric/psychological professionals. I KNOW there is a therapist out there who could help, but neither of us have the energy for the painful expensive process of finding that person. They all say they understand and can help, but they're talking out their arrogant asses. We did luck out and find a hypnotherapist who was very helpful but I'm sure that was mostly luck. I often wonder if you, my son and Corey lived near each other if you could be friends or if you have had too many of the same experiences . .......if that would be the pink elephant in the living room that you could never get around. > Sara, > > > I actually didn't know what selective mutism was until I read that NY Times > article, but while reading it I kept thinking, " Crap, this sounds kind of > like me. Are there reports of SSRI induced selective mutism? " I don't > think I have selective mutism, but without a doubt I have severe social > phobia (or is commonly known by the drug companies as " social anxiety > disorder " ). It would be my guess that social phobia is on the same spectrum > as selective mutism, but to a slightly lesser degree. > > Today, April 12th, is my 23rd birthday and this has been the second > consecutive worst birthday of my entire life. To think that I was reaching > the height of my success (knowing Brazilian Portuguese, Chinese Mandarin and > being a 4.0 student) during my 2003 birthday, and now I'm in the worst > position I've ever been in is absolutely mind bending and shattering. I had > so much going for me back then and I was on my way; now I'm a pathetic piece > of crap that can't even leave his house is obsessed with trying to achieve > justice through the courts which seems highly unlikely at this point. > > The other day I was reading the " Book of Job " and realized that in certain > respects I, and others who have been screwed by their antidepressant, have > it worse than he did. I may not have lost as many material things as Job > did, but I've basically had my mind's chemicals switched up and distorted to > the point where I can barely think straight. I sincerely believe happiness > is now impossible to achieve with messed up head since I've been depressed > since August 2003. My brain is just not the same anymore; even my childhood > memories come across as totally alienating and foreign. It's so frustrating > that no matter how hard I try to get some sort of justice and vindication > for myself, I find myself running in a giant hamster wheel; going nowhere. > I'm afraid my story is in a gray-zone where 100% proof cannot be shown; just > like many other antidepressant stories thanks to the genius of the > pharmaceuticals. > > And when I try to get help from a therapist, the stupid b@#$% basically > calls me an ignorant moron and a pansy obsessed with the past. The truth > is, she has no idea the kind of hell I went through and has no idea how > demeaning and dehumanizing it is to be taken down by a 100-mg. green pill. > She has no idea how infuriating is to be at a place you've wanted to be at > (for me a good college) and to spiral into a terrible depression for no > reason, or to hallucinate in broad day light, or to feel like this reality > is " plastic fake " , along with you. I don't really expect anyone to > understand this unless they've personally survived it themselves, but > Christ, from a Therapist?!?! I at least expect some kind of understanding. > To rub it in further, she is supposed to be one of the best therapists in > this city; very dismaying. > > Anyway, enough of my rant, has anyone else gone through this crap and > understand what I'm saying? This is so incredibly frustrating and there > doesn't seem to be any solution. I've forgotten all of my Portuguese and > Chinese (years down the tubes); I don't want to go back to college (I have > no degrees), I want to throw-up when I'm around other people, I need of > years of therapy, I trust no one, I've had insomnia for a year+, and I can't > relate to anyone after this terrible experience. What is the solution to > all this because I can't figure it out – > > > F-Dogg > > > > > > Does any of this sound familiar to you? Does this sound like what you > got from taking the SSRI? Maybe not the mutism part but all the fear > and anxiety part? Sounds like my son, especially the part where the > mother says " Every place she goes, I need to smooth the way. " My son > wasn't like this before the years on Celexa but he is now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 F-Dogg, Bless Your Heart, man, and birthday good wishes, may God grant you many more (all of them happier than this one was) I do not for a minute doubt anything you say about your misery, but still one thing shines through, or maybe several. You are obviously highly intelligent, very articulate, and you have shown yourself to be a person of extreme compassion for others, in spite of, or maybe as a result of, your suffering. You have better times ahead of you. Right now, you are not meant to be socially active, because you need to heal, and your soul needs space and maybe some spiritual cultivation, in solitude. But things will not stay the same. I know that because I am 61, so with my 38 years ahead of yours, I can look back on the blackest of times, that seemed like they could never be better, but things happen, good things, especially when you have the kind of talents you have. Right now, I am really wishing, at least with part of my utterly scandalized being that my doped-up, brain-impaired, totally insensitive, self-absorbed, irresponsible, lazy, disastrous excuse for a husband would drop dead and be done with it. But that's my sin, not his. (He has plenty of his own.) And the part of me that knows it's true that sooner or later the sun comes out again, keeps reminding me of that. promise of better times, either with or without him, I do not yet know. None of us ever knows until later what the meaning or purpose of our tribulations is. You will be in my prayers, and things will be better for you, some day (not too far off). gertie Selective Mutism > > Sara, > > > I actually didn’t know what selective mutism was until I read that NY Times > article, but while reading it I kept thinking, “Crap, this sounds kind of > like me. Are there reports of SSRI induced selective mutism?” I don’t > think I have selective mutism, but without a doubt I have severe social > phobia (or is commonly known by the drug companies as “social anxiety > disorder”). It would be my guess that social phobia is on the same spectrum > as selective mutism, but to a slightly lesser degree. > > Today, April 12th, is my 23rd birthday and this has been the second > consecutive worst birthday of my entire life. To think that I was reaching > the height of my success (knowing Brazilian Portuguese, Chinese Mandarin and > being a 4.0 student) during my 2003 birthday, and now I’m in the worst > position I’ve ever been in is absolutely mind bending and shattering. I had > so much going for me back then and I was on my way; now I’m a pathetic piece > of crap that can’t even leave his house is obsessed with trying to achieve > justice through the courts which seems highly unlikely at this point. > > The other day I was reading the “Book of Job” and realized that in certain > respects I, and others who have been screwed by their antidepressant, have > it worse than he did. I may not have lost as many material things as Job > did, but I’ve basically had my mind’s chemicals switched up and distorted to > the point where I can barely think straight. I sincerely believe happiness > is now impossible to achieve with messed up head since I’ve been depressed > since August 2003. My brain is just not the same anymore; even my childhood > memories come across as totally alienating and foreign. It’s so frustrating > that no matter how hard I try to get some sort of justice and vindication > for myself, I find myself running in a giant hamster wheel; going nowhere. > I’m afraid my story is in a gray-zone where 100% proof cannot be shown; just > like many other antidepressant stories thanks to the genius of the > pharmaceuticals. > > And when I try to get help from a therapist, the stupid b@#$% basically > calls me an ignorant moron and a pansy obsessed with the past. The truth > is, she has no idea the kind of hell I went through and has no idea how > demeaning and dehumanizing it is to be taken down by a 100-mg. green pill. > She has no idea how infuriating is to be at a place you’ve wanted to be at > (for me a good college) and to spiral into a terrible depression for no > reason, or to hallucinate in broad day light, or to feel like this reality > is “plastic fake”, along with you. I don’t really expect anyone to > understand this unless they’ve personally survived it themselves, but > Christ, from a Therapist?!?! I at least expect some kind of understanding. > To rub it in further, she is supposed to be one of the best therapists in > this city; very dismaying. > > Anyway, enough of my rant, has anyone else gone through this crap and > understand what I’m saying? This is so incredibly frustrating and there > doesn’t seem to be any solution. I’ve forgotten all of my Portuguese and > Chinese (years down the tubes); I don’t want to go back to college (I have > no degrees), I want to throw-up when I’m around other people, I need of > years of therapy, I trust no one, I’ve had insomnia for a year+, and I can ’t > relate to anyone after this terrible experience. What is the solution to > all this because I can’t figure it out – > > > F-Dogg > > > > > > Does any of this sound familiar to you? Does this sound like what you > got from taking the SSRI? Maybe not the mutism part but all the fear > and anxiety part? Sounds like my son, especially the part where the > mother says " Every place she goes, I need to smooth the way. " My son > wasn't like this before the years on Celexa but he is now. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 F-Dogg, Bless Your Heart, man, and birthday good wishes, may God grant you many more (all of them happier than this one was) I do not for a minute doubt anything you say about your misery, but still one thing shines through, or maybe several. You are obviously highly intelligent, very articulate, and you have shown yourself to be a person of extreme compassion for others, in spite of, or maybe as a result of, your suffering. You have better times ahead of you. Right now, you are not meant to be socially active, because you need to heal, and your soul needs space and maybe some spiritual cultivation, in solitude. But things will not stay the same. I know that because I am 61, so with my 38 years ahead of yours, I can look back on the blackest of times, that seemed like they could never be better, but things happen, good things, especially when you have the kind of talents you have. Right now, I am really wishing, at least with part of my utterly scandalized being that my doped-up, brain-impaired, totally insensitive, self-absorbed, irresponsible, lazy, disastrous excuse for a husband would drop dead and be done with it. But that's my sin, not his. (He has plenty of his own.) And the part of me that knows it's true that sooner or later the sun comes out again, keeps reminding me of that. promise of better times, either with or without him, I do not yet know. None of us ever knows until later what the meaning or purpose of our tribulations is. You will be in my prayers, and things will be better for you, some day (not too far off). gertie Selective Mutism > > Sara, > > > I actually didn’t know what selective mutism was until I read that NY Times > article, but while reading it I kept thinking, “Crap, this sounds kind of > like me. Are there reports of SSRI induced selective mutism?” I don’t > think I have selective mutism, but without a doubt I have severe social > phobia (or is commonly known by the drug companies as “social anxiety > disorder”). It would be my guess that social phobia is on the same spectrum > as selective mutism, but to a slightly lesser degree. > > Today, April 12th, is my 23rd birthday and this has been the second > consecutive worst birthday of my entire life. To think that I was reaching > the height of my success (knowing Brazilian Portuguese, Chinese Mandarin and > being a 4.0 student) during my 2003 birthday, and now I’m in the worst > position I’ve ever been in is absolutely mind bending and shattering. I had > so much going for me back then and I was on my way; now I’m a pathetic piece > of crap that can’t even leave his house is obsessed with trying to achieve > justice through the courts which seems highly unlikely at this point. > > The other day I was reading the “Book of Job” and realized that in certain > respects I, and others who have been screwed by their antidepressant, have > it worse than he did. I may not have lost as many material things as Job > did, but I’ve basically had my mind’s chemicals switched up and distorted to > the point where I can barely think straight. I sincerely believe happiness > is now impossible to achieve with messed up head since I’ve been depressed > since August 2003. My brain is just not the same anymore; even my childhood > memories come across as totally alienating and foreign. It’s so frustrating > that no matter how hard I try to get some sort of justice and vindication > for myself, I find myself running in a giant hamster wheel; going nowhere. > I’m afraid my story is in a gray-zone where 100% proof cannot be shown; just > like many other antidepressant stories thanks to the genius of the > pharmaceuticals. > > And when I try to get help from a therapist, the stupid b@#$% basically > calls me an ignorant moron and a pansy obsessed with the past. The truth > is, she has no idea the kind of hell I went through and has no idea how > demeaning and dehumanizing it is to be taken down by a 100-mg. green pill. > She has no idea how infuriating is to be at a place you’ve wanted to be at > (for me a good college) and to spiral into a terrible depression for no > reason, or to hallucinate in broad day light, or to feel like this reality > is “plastic fake”, along with you. I don’t really expect anyone to > understand this unless they’ve personally survived it themselves, but > Christ, from a Therapist?!?! I at least expect some kind of understanding. > To rub it in further, she is supposed to be one of the best therapists in > this city; very dismaying. > > Anyway, enough of my rant, has anyone else gone through this crap and > understand what I’m saying? This is so incredibly frustrating and there > doesn’t seem to be any solution. I’ve forgotten all of my Portuguese and > Chinese (years down the tubes); I don’t want to go back to college (I have > no degrees), I want to throw-up when I’m around other people, I need of > years of therapy, I trust no one, I’ve had insomnia for a year+, and I can ’t > relate to anyone after this terrible experience. What is the solution to > all this because I can’t figure it out – > > > F-Dogg > > > > > > Does any of this sound familiar to you? Does this sound like what you > got from taking the SSRI? Maybe not the mutism part but all the fear > and anxiety part? Sounds like my son, especially the part where the > mother says " Every place she goes, I need to smooth the way. " My son > wasn't like this before the years on Celexa but he is now. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 I have twin 5 yr old boys, both on the spectrum. One of my boys does not talk at school, I mean not a sound. At home his language is very good, he has some echolalia but speaks in sentences. The school and I have been trying to figure out what may be causing it. We recently put him in the class with his brother ( they were not in the same class). He still does not speak in class, but will now whisper in speech therapy. My guess is some anxiety associated with school. Its been very difficult to figure out. I'd be happy to share more, just let me know. -- McGee Advocacy/Education Specialist The Reardon Center PO BOX 14669 Savannah, GA 31416 912-355-9098 www.matthewreardoncenter.org -------------- Original message -------------- From: jksspot@... Does anyone know of anyone with Selective Mutism or have any experience with it. I have a daughter on the Spectrum ho may be suffering from this. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 I have twin 5 yr old boys, both on the spectrum. One of my boys does not talk at school, I mean not a sound. At home his language is very good, he has some echolalia but speaks in sentences. The school and I have been trying to figure out what may be causing it. We recently put him in the class with his brother ( they were not in the same class). He still does not speak in class, but will now whisper in speech therapy. My guess is some anxiety associated with school. Its been very difficult to figure out. I'd be happy to share more, just let me know. -- McGee Advocacy/Education Specialist The Reardon Center PO BOX 14669 Savannah, GA 31416 912-355-9098 www.matthewreardoncenter.org -------------- Original message -------------- From: jksspot@... Does anyone know of anyone with Selective Mutism or have any experience with it. I have a daughter on the Spectrum ho may be suffering from this. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi , Thanks and yes I would love to hear everything you have to say. My daughters speech is exactly like your sons. She just quit talking one day at school so we are all really baffled! You can email me off list if you like jhixon@... or jksspot@... Thanks!! Re: Selective Mutism I have twin 5 yr old boys, both on the spectrum. One of my boys does not talk at school, I mean not a sound. At home his language is very good, he has some echolalia but speaks in sentences. The school and I have been trying to figure out what may be causing it. We recently put him in the class with his brother ( they were not in the same class). He still does not speak in class, but will now whisper in speech therapy. My guess is some anxiety associated with school. Its been very difficult to figure out. I'd be happy to share more, just let me know. -- McGee Advocacy/Education Specialist The Reardon Center PO BOX 14669 Savannah, GA 31416 912-355-9098 www.matthewreardoncenter.org -------------- Original message -------------- From: jksspotaol Does anyone know of anyone with Selective Mutism or have any experience with it. I have a daughter on the Spectrum ho may be suffering from this. Thanks, Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Hi , Thanks and yes I would love to hear everything you have to say. My daughters speech is exactly like your sons. She just quit talking one day at school so we are all really baffled! You can email me off list if you like jhixon@... or jksspot@... Thanks!! Re: Selective Mutism I have twin 5 yr old boys, both on the spectrum. One of my boys does not talk at school, I mean not a sound. At home his language is very good, he has some echolalia but speaks in sentences. The school and I have been trying to figure out what may be causing it. We recently put him in the class with his brother ( they were not in the same class). He still does not speak in class, but will now whisper in speech therapy. My guess is some anxiety associated with school. Its been very difficult to figure out. I'd be happy to share more, just let me know. -- McGee Advocacy/Education Specialist The Reardon Center PO BOX 14669 Savannah, GA 31416 912-355-9098 www.matthewreardoncenter.org -------------- Original message -------------- From: jksspotaol Does anyone know of anyone with Selective Mutism or have any experience with it. I have a daughter on the Spectrum ho may be suffering from this. Thanks, Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Has anyone dealt with selective mutism? An 8 year old male child who got teased about his language as well as frustrated with being asked to 'say that again - we cannot understand you' has chosen to NOT talk at school. Any suggestions? Diane in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 You may want to talk to his mom about how her pregnancy with him was. In the one boy I worked with, his mom had been very stressed at having to speak at staff developments(which she dreaded)while pregnant with him. When we muscle checked, it noted we needed to clear mom's transference of this to him before we could deal with clearing his blockages around speaking. You can use any technique you know that will release this tie to mom and balance his own energy. And it may be a reflex integration that it asks for. Or if you have other tools you use, it may request one of those. Then you can begin asking his system through muscle checking what it needs to release his own traumatic response and begin to build coping/integrated responses. I hope this might be useful. Joni in MINN Re: Selective Mutism Has anyone dealt with selective mutism? An 8 year old male child who got teased about his language as well as frustrated with being asked to 'say that again - we cannot understand you' has chosen to NOT talk at school. Any suggestions? Diane in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2007 Report Share Posted November 28, 2007 Hi Diane, I have had excellent results with a 11 year-old boy with selective mutism using Svetlana's techniques. Ricky is now speaking fluently, even at school and getting very good grades. I used Reflex Integration and Tactile Therapy. Feel free to contact me if you have any questions. 352-795-0410 Bonnie in FL www.reflexintegration.net Re: Selective Mutism Has anyone dealt with selective mutism? An 8 year old male child who got teased about his language as well as frustrated with being asked to 'say that again - we cannot understand you' has chosen to NOT talk at school. Any suggestions? Diane in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 Joni, This is so interesting. My son's biggest challenge is lack of language, which also inhibits his reading comprehension. At many times in my life I've not spoken up for myself when I should have. Maybe if I can clear whatever surrounded that it would help my son? Do I need to look specifically at my pregnancy? You may want to talk to his mom about how her pregnancy with him was. In the one boy I worked with, his mom had been very stressed at having to speak at staff developments(which she dreaded)while pregnant with him. When we muscle checked, it noted we needed to clear mom's transference of this to him before we could deal with clearing his blockages around speaking. You can use any technique you know that will release this tie to mom and balance his own energy. And it may be a reflex integration that it asks for. Or if you have other tools you use, it may request one of those. Then you can begin asking his system through muscle checking what it needs to release his own traumatic response and begin to build coping/integrated responses. I hope this might be useful. Joni in MINN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2007 Report Share Posted December 2, 2007 : Twenty years ago when I discovered I am dyslexic my mother said to me she felt she might have caused the dyslexia. She reported to me that she had a major emotional trauma when I was in the third trimester. At the time I had no reference to feel that this could be true. However, three years ago I began taking courses from Svetlana Masgutova. I learned that her studies in Russia indicated that some mothers of dyslexics and children of other challenges had emotional trauma during the pregnancy which hindered the normal development of some of the reflexes. When I heard this I knew I had the key I needed to over come my dyslexia/hyperlexia. My process of correcting the reflexes (matching the emotional issue with the reflexes) took about two years. Yes, there are times when it ventures into my life, but not with the intensity of the past. So, yes, I would explore what happened during your pregnancy. It might offer insight into your son's issue. All the best Ann Farris Author: The Other Side of Dyslexia www.dyslexiadiscovery.com <http://www.dyslexiadiscovery.com/> 415-552-6330 _____ From: [mailto: ] On Behalf Of Sent: Thursday, November 29, 2007 9:16 AM Subject: Re: Selective Mutism Joni, This is so interesting. My son's biggest challenge is lack of language, which also inhibits his reading comprehension. At many times in my life I've not spoken up for myself when I should have. Maybe if I can clear whatever surrounded that it would help my son? Do I need to look specifically at my pregnancy? You may want to talk to his mom about how her pregnancy with him was. In the one boy I worked with, his mom had been very stressed at having to speak at staff developments(which she dreaded)while pregnant with him. When we muscle checked, it noted we needed to clear mom's transference of this to him before we could deal with clearing his blockages around speaking. You can use any technique you know that will release this tie to mom and balance his own energy. And it may be a reflex integration that it asks for. Or if you have other tools you use, it may request one of those. Then you can begin asking his system through muscle checking what it needs to release his own traumatic response and begin to build coping/integrated responses. I hope this might be useful. Joni in MINN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2007 Report Share Posted December 3, 2007 Ann, Thanks for your post. How interesting your mom said that to you! I think on some level all of us moms of kids with challenges feel responsible... I had forgotten, my dad died during my 8th month of pregnancy. He had had a long illness, it was no surprise, but I wonder if that figures into any of my son's difficulties. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Dear Bonnie - Nice to have contact with you. It sounds like you are keeping very busy. Did you use any other therapies with this boy?? I wanted to contact you about the necklace clasps. When I came back to HK the shop did not have them in stock. I went back today and found they were in stock. There are 2 sizes, small and large. The small set (hook and eye) costs $2.00 and the large set costs $2.50. I can send you a couple of samples if you would like to see them. Hope that you are continuing with your necklace making and can show me a few things when our paths next cross. Hope that all is well with you. All the best, Donna Re: Selective Mutism Has anyone dealt with selective mutism? An 8 year old male child who got teased about his language as well as frustrated with being asked to 'say that again - we cannot understand you' has chosen to NOT talk at school. Any suggestions? Diane in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Hi Kim, I am an occupational therapist in Minnesota. I have been using the MNRI approach for a little over a year with a 5 year old girl with a diagnosis of Selective Mutism. I see her twice a week and her parents follow through with the therapy at home, and we have seen amazing and wonderful changes! MNRI has been very effective in reducing her level of anxiety, and with that, she is talking more, withdrawing/freezing less, has become more independent with self-care skills, and is showing more willingness to try new things. She has also become very interested in playing with her peers. Where do you live? If there is an MNRI practitioner near you, I would recommend that you meet with him or her, and see if you can get some help in setting up a therapy program for your son. I would also recommend, if at all possible, that you try to attend a Family Educational Conference, Mini-Conference, or Mini-Clinic, where your son would be assessed by Dr. Masgutova and would work intensively with MNRI specialists. You would also receive training in how to continue with this work at home. If you are interested, I would be happy to talk more with you about this. Jo Anne Tierney, OTR/L tierneyj@... Selective Mutism My name is Kim and my 14 year old son has been diagnosed with Selective Mutism. I have declined any pharmaceutical methods to "treat" my son. I have heard that the MNrI method has been effective for children with SM. I do not live in an area that is holding a course but have ordered the manual and disc. Anything I can glean from this group will be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2011 Report Share Posted May 29, 2011 Thanks. I am in Southern Ontario and as far as I know, there are no practitioners close by. Perhaps someone in this group is aware as I was not able to find anything on the website. I am a registered nurse and will certainly study on this topic before I proceed with anything. Much of this type of therapy is very new to me. Kim > > > > Hi Kim, > > I am an occupational therapist in Minnesota. I have been using the MNRI approach for a little over a year with a 5 year old girl with a diagnosis of Selective Mutism. I see her twice a week and her parents follow through with the therapy at home, and we have seen amazing and wonderful changes! MNRI has been very effective in reducing her level of anxiety, and with that, she is talking more, withdrawing/freezing less, has become more independent with self-care skills, and is showing more willingness to try new things.  She has also become very interested in playing with her peers. > > > > Where do you live? If there is an MNRI practitioner near you, I would recommend that you meet with him or her, and see if you can get some help in setting up a therapy program for your son. I would also recommend, if at all possible, that you try to attend a Family Educational Conference, Mini-Conference, or Mini-Clinic, where your son would > > be  assessed by Dr. Masgutova and would  work intensively  with MNRI  specialists. You would also receive training in how to continue with this work at home. > > > > If you are interested, I would be happy to talk more with you about this. > > > > Jo Anne Tierney, OTR/L > > t ierneyj@...      > > > Selective Mutism > >  > > > > > My name is Kim and my 14 year old son has been diagnosed with Selective Mutism. I have declined any pharmaceutical methods to " treat " my son. I have heard that the MNrI method has been effective for children with SM. I do not live in an area that is holding a course but have ordered the manual and disc. Anything I can glean from this group will be appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2011 Report Share Posted May 30, 2011 I am writing as I too am an occupational therapist in MN and am working with a little boy with Elective Mutism. Would greatly appreciate connecting with you JoAnne and sharing more details on your work with you client. Hope to hear from you. Thanks, Cheryl On Sun, May 29, 2011 at 4:10 PM, kimvalentine3940 <kimvalentine@...> wrote: Thanks. I am in Southern Ontario and as far as I know, there are no practitioners close by. Perhaps someone in this group is aware as I was not able to find anything on the website. I am a registered nurse and will certainly study on this topic before I proceed with anything. Much of this type of therapy is very new to me. Kim > > > > Hi Kim, > > I am an occupational therapist in Minnesota. I have been using the MNRI approach for a little over a year with a 5 year old girl with a diagnosis of Selective Mutism. I see her twice a week and her parents follow through with the therapy at home, and we have seen amazing and wonderful changes! MNRI has been very effective in reducing her level of anxiety, and with that, she is talking more, withdrawing/freezing less, has become more independent with self-care skills, and is showing more willingness to try new things.  She has also become very interested in playing with her peers. > > > > Where do you live? If there is an MNRI practitioner near you, I would recommend that you meet with him or her, and see if you can get some help in setting up a therapy program for your son. I would also recommend, if at all possible, that you try to attend a Family Educational Conference, Mini-Conference, or Mini-Clinic, where your son would > > be  assessed by Dr. Masgutova and would  work intensively  with MNRI  specialists. You would also receive training in how to continue with this work at home. > > > > If you are interested, I would be happy to talk more with you about this. > > > > Jo Anne Tierney, OTR/L > > t ierneyj@...      > > > Selective Mutism > >  > > > > > My name is Kim and my 14 year old son has been diagnosed with Selective Mutism. I have declined any pharmaceutical methods to " treat " my son. I have heard that the MNrI method has been effective for children with SM. I do not live in an area that is holding a course but have ordered the manual and disc. Anything I can glean from this group will be appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2011 Report Share Posted May 30, 2011 Hi Kim Welcome to the wonderful world of MNRI. It can definately help with selective mutism. I saw you are looking for someone in Southern Ontario. It is large but there are 3 of us around the Toronto area. Joan Agosta joan@..., core specialist is in Guelph and holds many courses in this. Birchall hbirchall@...,(core in training)is in Newmarket and I am in Barrie, daphneduckworth@.... I have been studying and living the MNRI method for 9 years now and love it. Where are you? be well JOY Daphne > > > > > > > > Hi Kim, > > > > I am an occupational therapist in Minnesota. I have been using the MNRI approach for a little over a year with a 5 year old girl with a diagnosis of Selective Mutism. I see her twice a week and her parents follow through with the therapy at home, and we have seen amazing and wonderful changes! MNRI has been very effective in reducing her level of anxiety, and with that, she is talking more, withdrawing/freezing less, has become more independent with self-care skills, and is showing more willingness to try new things.  She has also become very interested in playing with her peers. > > > > > > > > Where do you live? If there is an MNRI practitioner near you, I would recommend that you meet with him or her, and see if you can get some help in setting up a therapy program for your son. I would also recommend, if at all possible, that you try to attend a Family Educational Conference, Mini-Conference, or Mini-Clinic, where your son would > > > > be  assessed by Dr. Masgutova and would  work intensively  with MNRI  specialists. You would also receive training in how to continue with this work at home. > > > > > > > > If you are interested, I would be happy to talk more with you about this. > > > > > > > > Jo Anne Tierney, OTR/L > > > > t ierneyj@      > > > > > > Selective Mutism > > > >  > > > > > > > > > > My name is Kim and my 14 year old son has been diagnosed with Selective Mutism. I have declined any pharmaceutical methods to " treat " my son. I have heard that the MNrI method has been effective for children with SM. I do not live in an area that is holding a course but have ordered the manual and disc. Anything I can glean from this group will be appreciated. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2011 Report Share Posted June 3, 2011 Hi Cheryl, Sorry I didn't get back to you sooner... I would love to connect with you and share thoughts on how to work with kids with selective mutism. I would be interested in knowing what has worked for you. My e-mail is tierneyj@.... Talk to you soon ~ Jo Selective Mutism > > Â > > > > > My name is Kim and my 14 year old son has been diagnosed with Selective Mutism. I have declined any pharmaceutical methods to "treat" my son. I have heard that the MNrI method has been effective for children with SM. I do not live in an area that is holding a course but have ordered the manual and disc. Anything I can glean from this group will be appreciated.> Quote Link to comment Share on other sites More sharing options...
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