Guest guest Posted March 28, 2003 Report Share Posted March 28, 2003 treezaw wrote: > Hello, > My name is , and I am new to writing, although I have been > reading messages for a few weeks. > Can anybody tell me what is going to happen from here? Will I need > another scan, or RAI. Sorry that this letter is so long, but I really > do not know who I can talk to other that the Endo that seems to try > to allay fears without really answering questions. Hi, , welcome to the group! Jeez, if it weren't your body and your health we're talking about, I'd say that your treatment has been a comedy of errors. It's a good thing you've been researching thyca protocols; sounds like they really need your help :-) I'm assuming that you haven't been given any T4 replacement, in which case you'll slowly become increasingly hypothyroid. At the very least, they should perform an RAI scan, and most likely will do another RAI treatment, to fully ablate the remnant from last week's surgery, along with any rogue cells that might be lingering in your system. Basically, what will happen to you from here will be very familiar from your previous experience, although hopefully this time they'll get it right :-) I'm amazed you didn't have any problems from the RAI with a full lobe; do you know what dose you received? Did anyone mention a low iodine diet? It's a good idea to go on the famous LID for two weeks before your scan, in order to enhance RAI uptake. See http://www.thyca.org/rai.htm#diet for more info. Also, it sounds like you've been getting copies of your reports, which is great. Maintaining your own set of your medical records is an important part of understanding our health issues (and staying on top of the care we're receiving). Hope this answers your questions - if not, or if you've got any more, ask away! - NYC TT 2/99 dx pap/foll; RAI 100 mCi 3/99 & 4/00; clean scan 3/02; current TSH ~.06 on .225 levothyroxine (for help in deciphering this, and for other frequently used abbreviations, see http://groups.yahoo.com/group/Thyca/message/21248 ) BTW - Regarding differentiation, that's what you want. As thyroid cancer becomes dedifferentiated, it loses its ability to take up RAI, making treatment more complicated. Quote Link to comment Share on other sites More sharing options...
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