Guest guest Posted May 22, 2001 Report Share Posted May 22, 2001 Hi again all..... We have just returned from another bout in hospital - this time unplanned - Finlay picked up a gastro infection from the last time we were in hospital - on Thursday/Friday - he has had diarrea ever since and has lost a total of 500grms - thats about 1.4.pounds ( i think) - in the past it has taken him up to 4 months to gain 500grms so its not good news. Anyway without going into too much detail - the hopital stay was a NIGHTMARE - we were in the isolation ward and it was literally like a prison - I couldn't leave - even to go to the loo without getting a nurse to supervise Finlay and finding a nurse was hard because I couldn't leave the room we were in......Im sure you can all imagine. Finlay was cooped up in the cot fro 18 hrs - not allowed to leave - as you can imagine we were both going a bit stir crazy - I'm usually a fairly laid back pleasant and polite individual - but I tell you - after a few hours in their I was so wound I had to bite my tongue on several occasions - especially when a junior doctor expliained to me a great lenght how it was perfectly normal; for a child to lose up to 500grms when sick and that when I got home Finlay would just put the weight back on realy quickly......... However they did finally listen to me and contacted our paediatrician who agreed something had to be done so as of today we are starting to tube feed finlay (nasal gastric) in an attaempt to regain the liost weight. Ultimately we need to give him 1000 calories per day - ie 1 litre of Pediasure (5 cans) but we will build up to it slowly. has anyone else gone down this road before....I'm a bit worried about a) him pulling the tube out gthe discomfort it will casuse him - we have to have it in for 10 days c) what happens if he vomits while it is in.... Anyway - I'm waiting for a call from the paediatric communitiy nurse to arrange to have the tube put in Thankyou so much all of you for being on the other end of a computer - I think I would be going slowly (quickly??) insane if I did not ahve you guys to vent to and shjare information with scuse typos - but I havn't had a decent nights sleep in ages.... ( mum to Finlay 18 mths 7.00 kgs :-( Quote Link to comment Share on other sites More sharing options...
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