Introduction Into Group!

[Guest guest]

Hello everyone..

I thought it was about time i post an intro..I have been quitley

reading posts..for a couple of weeks..i found you all by Debbie

DiAnni's recomendation..She has been very supportive and a listening

ear many of nights now..and i am also on Illinois hands and

voices..which has also been a great wealth of info..thanks !

I am mom to Dakota ..he is 5 years old and has had a cochlear

implant for 1 year now..we found out he was profoundly deaf at the

age of 1..but of course i knew " something " was wrong and couldn't

convience his pediatrician until he was 11 months old..until then

every month that i would go into the dr with my same concerns..doc..

dakota doesn't turn to the sound of my voice or doesn't wake up with

his sisters yelling or screaming..or turn towards his daddy's voice

after being at work all day..loud music playing or pots

banging...never phased him abit..his dr would jingle keys,slam the

door..drop heavy books..all the while dakota was " watching " this

strangers every move of course..me being a nieve mom..thought Dr

knows best?? Boy if only i could go back..but here we are..4 and 1/2

years later with a cochlear implant..his ABR that i finnaly got a

recomendation to get..showed a 93 decibl loss in both ears..so we

immediatley got bi-lateral hearing aides..started at home with sign

langauge services..Dakota learned quickley..and i took 2 sign

classes at the local college..and began to teach our family..we then

looked into an implant a couple years later..We are a Total

Communication family.. after facing the fact that the aides were of

no help..and here we are..now " beginning " what looks like to be the

fight of our lives... " THE SCHOOL DISTRICT " ..

I HAVE LOTS OF QUESTIONS AND LOTS MORE TO SAY..BUT WILL TYPE PART 2

LATER...

In Illinois

[Guest guest]

Welcome ! We're glad you found us.

Some schools do the right thing for our kids just because it's the right

thing to do. Unfortunately, I think that's the exception rather than the

norm. It is my wish that ALL schools did the right thing. My son, now 18 and

a Jr in high school is in one school that does it right. He's on a 504 plan,

but if he feels he needs something extra/different, all he has to do is walk

into his coordinator's office and it's either done, or a meeting is

scheduled and if I agree with my son, then it's done.

It's a nice change from his early years in school when it took me 5 years of

fighting with them to even get them to provide an FM unit for him - and he

had a profound hearing loss!

So please ask us your questions - many of us have been there and learned how

to make the laws work.

Hugs,

-Kay

[Guest guest]

Kay wrote..

> Some schools do the right thing for our kids just because it's the

right

> thing to do. > It's a nice change from his early years in school

when it took me 5 years of

> fighting with them to even get them to provide an FM unit for him -

and he

> had a profound hearing loss!

Hi Kay,

well my question is..if schools do the right thing most of the

time..why does my son still not have an interpreter? He is profoundly

Deaf..i have tried to get one in school for him for 3 years in a roll

now..i guess I am where you were ..that it will take 5 years to get

this..but why should i have to wait that long..for my son to get what

he needs?

[Guest guest]

Kay wrote..

> Some schools do the right thing for our kids just because it's the

right

> thing to do. > It's a nice change from his early years in school

when it took me 5 years of

> fighting with them to even get them to provide an FM unit for him -

and he

> had a profound hearing loss!

Hi Kay,

well my question is..if schools do the right thing most of the

time..why does my son still not have an interpreter? He is profoundly

Deaf..i have tried to get one in school for him for 3 years in a roll

now..i guess I am where you were ..that it will take 5 years to get

this..but why should i have to wait that long..for my son to get what

he needs?