Re: ProEFA questions and Preschool questions

[Guest guest]

Hi, -

You might want to give the ProEFA a try again but let keep giving it for

several days to a few weeks. There are people on line, including myself, who

didn't see a response for almost three weeks. A couple of days might not have

been enough time especially if he stopped the coromega - the system has to

adjust.

Sherry

<shannon777@...> wrote:

Hi all,

My almost-three-year old son has been unofficially diagnosed with apraxia by his

speech therapists (and his developmental ped. says he " has the signs of

apraxia " ). He

has almost no language that lasts. He has had words and lost them. He will

attempt

words, but usually only if prompted, and then they are unintelligible. He does

babble

a good bit nowadays. He appears to have good receptive language skills. He

also has

mild hypotonia in his mouth/face and upper trunk/shoulders. I'm sure you all

know

this well from your own children -- he is a wonderful, bright little person whom

his

family and friends all love and we all wish we could hear his voice.

Here's my question:

We have been trying coromega for about a month now. At first Jonah was making

more sounds, but now he seems to have reached a plateau. We bought some ProEFA

and tried it for a few days (while stopping the coromega). During those days he

stopped making ANY sounds at all -- AT ALL!!!

We decided to stop the ProEFA (also, it was virtually impossible to get him to

take it)

after just a few days, but now are confused about how to proceed. I've now

read a

lot of great ideas on how to hide the ProEFA in foods and we may try some more

of

those, but if anyone has had experience with Coromega or can explain why he

might

have stopped talking on the ProEFA I would be so grateful!!! Any suggestions on

how

to proceed from here would be welcome.

ALSO, if anyone has experience with putting their apraxic child in " normal "

preschool

vs. a segregated preschool. Jonah has been accepted in the Intermediate Unit

preschool -- all children have some special needs, but he's pretty normal in

other

ways so we're not sure what would be best for a child with a language disorder.

Many thanks!

[Guest guest]

Hi,

Just wanted to write a few quick comments.

First of all, anything that made my apraxic child stop making any sounds at

all I would throw straight in the trash! All of these supplements have

different effects on each child, but that one is pretty serious!

Also, in regards to school…

I would definitely advise you to place your son in a classroom that is going

to best accommodate his needs. With apraxia, there is definitely a motor

planning issue that almost always is accompanied by a processing delay. To

expect him to keep up with a “typical” classroom would most likely be

setting him up to fail. Whenever I put my son in a situation like that, he

gets frustrated and upset and you can tell he is sad and loses confidence in

himself. He will be five at the end of August and will be attending a

developmental kindergarten with an individualized education plan. Don’t

rush to mainstream is my advice. Especially at this young age.

Take care!!

Cheryl Butterworth

Cheryl@...

_____

From: [mailto:shannon777@...]

Sent: Thursday, July 01, 2004 6:16 PM

Subject: [ ] ProEFA questions and Preschool questions

Hi all,

My almost-three-year old son has been unofficially diagnosed with apraxia by

his

speech therapists (and his developmental ped. says he " has the signs of

apraxia " ). He

has almost no language that lasts. He has had words and lost them. He will

attempt

words, but usually only if prompted, and then they are unintelligible. He

does babble

a good bit nowadays. He appears to have good receptive language skills. He

also has

mild hypotonia in his mouth/face and upper trunk/shoulders. I'm sure you

all know

this well from your own children -- he is a wonderful, bright little person

whom his

family and friends all love and we all wish we could hear his voice.

Here's my question:

We have been trying coromega for about a month now. At first Jonah was

making

more sounds, but now he seems to have reached a plateau. We bought some

ProEFA

and tried it for a few days (while stopping the coromega). During those

days he

stopped making ANY sounds at all -- AT ALL!!!

We decided to stop the ProEFA (also, it was virtually impossible to get him

to take it)

after just a few days, but now are confused about how to proceed. I've

now read a

lot of great ideas on how to hide the ProEFA in foods and we may try some

more of

those, but if anyone has had experience with Coromega or can explain why he

might

have stopped talking on the ProEFA I would be so grateful!!! Any

suggestions on how

to proceed from here would be welcome.

ALSO, if anyone has experience with putting their apraxic child in " normal "

preschool

vs. a segregated preschool. Jonah has been accepted in the Intermediate

Unit

preschool -- all children have some special needs, but he's pretty normal in

other

ways so we're not sure what would be best for a child with a language

disorder.

Many thanks!

[Guest guest]

Cheryl,

Although many of our kids have other issues including fine and gross

motor issues, ADHD and low tone I have never heard that it is " almost

always " accompanied by processing issues. Can you elaborate on that?

Also, I think the whole school thing is very dependent on the child.

My son spent 2 years in the special-ed pre-school and for

kindergarten they were almost insistent that he would fail if we put

him in an included class for 1/2 of the day and a self contained

class the other 1/2. I fought and placed him in an included class and

a private kindergarten 2X a week in addition to many activities at

the local YMCA. The end result was fantastic and he had a very

succesful academic year. Aside from speech issues and some minor fine

motor skills socially he seems to be more immature than his peers. He

made great progress this year b/c of all the typical exposure but I

can't help but wonder if not putting him in a regular pre-school at

least a few days a week would have helped his pre-school skills

develop better from a younger age.

I guess at the end of the day I think if a child can handle a typical

pre-school or you can opt for an integrated class then I think it is

a great way to go.

denise

> Hi,

>

> Just wanted to write a few quick comments.

>

> First of all, anything that made my apraxic child stop making any

sounds at

> all I would throw straight in the trash! All of these supplements

have

> different effects on each child, but that one is pretty serious!

>

> Also, in regards to school…

>

> I would definitely advise you to place your son in a classroom that

is going

> to best accommodate his needs. With apraxia, there is definitely a

motor

> planning issue that almost always is accompanied by a processing

delay. To

> expect him to keep up with a " typical " classroom would most likely

be

> setting him up to fail. Whenever I put my son in a situation like

that, he

> gets frustrated and upset and you can tell he is sad and loses

confidence in

> himself. He will be five at the end of August and will be

attending a

> developmental kindergarten with an individualized education plan.

Don't

> rush to mainstream is my advice. Especially at this young age.

>

> Take care!!

>

> > Cheryl Butterworth

>

> Cheryl@b...

>

>