Re: Touching moment I wanted to share

April 6, 2004

Oh Liz..

What a moving post. I needed a tissue alert. Happy tears. I am so thrilled to

hear that Madison is doing well but even happier to see that she REALIZES how

much her hard work is paying off. What a wonderful, strong, courageous child.

Congrats to both of you!

Michele aka " Mommy " to Jordan Ann, Reid Hallie YuNiang, Kennedy FuBing

and Skylar Grace

> Hi everyone,

>

> Last night my husband and oldest daugther were downstairs playing.

> Madison and I were upstairs in my room. Madison was playing with

> her farm set while I was putting clothes away. There has never been

> any little side chatter with Madison, you know how a " typical " child

> will just yack away about anything at anytime. Well with Madison it

> is usually me trying to ask her questions and then trying hard to

> understand what she is saying.

>

> Anyway last night was so special to me because Madison all on her

> own put away her farm set(yes that was a big deal also because I

> have been on her to clean up after herself)sat on my bed and

> said " mama lets talk " I was so thrilled, I stopped doing what I was

> doing and said " ok Madison what would you like to talk about " her

> reply was " speech " So for half an hour her and I spoke about her

> progress in speech, the words she was not able to say before we met

> our current SLP and the words she can say now...Madison had no " back

> sounds " when we first started ©and (k) now she can say CAT. She

> also replaced alot of letters with the " s " sound so we were talking

> about how that " tricky " little S doesn't come out to play as much

> anymore and lets every else have a turn. (I always try to break

> down her speech eval into kid friendly terms for her)

>

> It was really interesting to me that she wanted to have a discussion

> on speech and some of the things she brought up ...an SLP that was

> not the right fit for us, she was mentioning how she didn't like

> going to her. I felt that she wanted/needed to hear from the very

> beginning, how we came upon her " speech journey " so I broke it down

> from the first time I asked her doctor about her speech (almost

> three years ago) to our visit with the ped. neurologist(a year ago)

> and how she told us about apraxia of speech. It was also a great

> time to let her know next Monday we will be revisting that same

> doctor and I would love for Madison to use her voice when we see her

> so she can hear how far she has come.

>

> Madison wanting to have this talk with me also proved once again

> that she is always thinking of her speech and how she can't keep up

> with the other children she knows. Which is the self confidence

> issue we have been dealing with.

>

> I wanted to share with you all this story because just two weeks ago

> I was so depressed feeling the " why us " and " its not fair " crying

> for the struggle my little girl has just to communicate with the

> world. Then I found this wonderful support group, had a progress

> report meeting with our SLP and when we sat down and looked at were

> Madison is at now on paper it made me realize how far she has come.

> It is a very long journey with alot of ups and downs but if we fight

> and work hard our children will benefit from all our and their hard

> work.

>

> Keep the faith, keep up the speech therapy and even on your down

> days don't give up, reach out for support instead.

>

> Madison and I still have a long road ahead, our SLP thinks two more

> years of intense therapy. Having Madison want to talk with me last

> night was a major sign to me that she has overcome alot already for

> an almost five year old. I am very proud of her.

>

> Liz in NH

April 7, 2004

Liz you had me crying when I read that! I hope this is just the beginning of

many more " mommy daughter " chats for you!

Yesterday when I left that doc's office, FURIOUS as I was, I even found myself

mad at Jordan for his behavior. Part of me felt like he was acting out, because

he was just being downright " bratty. " I drove out of the parking lot, and was

very quiet. About 3 minutes later he said " Mom, speak to me. " My heart just

broke. I realized at that very moment, that he didn't respond to that doctor,

because he COULDNT. And his behavior was the only way he had, to make that

clear. And shame on me for thinking it was bad behavior! Even WORSE, shame on

a doctor who did not RECOGNIZE THAT.

The things that are so little to other parents with children who don't have

speech and language disabilities, are HUGE to parents like us. I'm saddened at

the ignorance of many, but so happy to hear wonderful stories, and hear about

children doing so well.......

Been off list for a while, I've had just way too many things to juggle here, but

seems it's all calmed down for a time. HOpe everyone is well.

~Karyn

[ ] Touching moment I wanted to share

Hi everyone,

Last night my husband and oldest daugther were downstairs playing.

Madison and I were upstairs in my room. Madison was playing with

her farm set while I was putting clothes away. There has never been

any little side chatter with Madison, you know how a " typical " child

will just yack away about anything at anytime. Well with Madison it

is usually me trying to ask her questions and then trying hard to

understand what she is saying.

Anyway last night was so special to me because Madison all on her

own put away her farm set(yes that was a big deal also because I

have been on her to clean up after herself)sat on my bed and

said " mama lets talk " I was so thrilled, I stopped doing what I was

doing and said " ok Madison what would you like to talk about " her

reply was " speech " So for half an hour her and I spoke about her

progress in speech, the words she was not able to say before we met

our current SLP and the words she can say now...Madison had no " back

sounds " when we first started ©and (k) now she can say CAT. She

also replaced alot of letters with the " s " sound so we were talking

about how that " tricky " little S doesn't come out to play as much

anymore and lets every else have a turn. (I always try to break

down her speech eval into kid friendly terms for her)

It was really interesting to me that she wanted to have a discussion

on speech and some of the things she brought up ...an SLP that was

not the right fit for us, she was mentioning how she didn't like

going to her. I felt that she wanted/needed to hear from the very

beginning, how we came upon her " speech journey " so I broke it down

from the first time I asked her doctor about her speech (almost

three years ago) to our visit with the ped. neurologist(a year ago)

and how she told us about apraxia of speech. It was also a great

time to let her know next Monday we will be revisting that same

doctor and I would love for Madison to use her voice when we see her

so she can hear how far she has come.

Madison wanting to have this talk with me also proved once again

that she is always thinking of her speech and how she can't keep up

with the other children she knows. Which is the self confidence

issue we have been dealing with.

I wanted to share with you all this story because just two weeks ago

I was so depressed feeling the " why us " and " its not fair " crying

for the struggle my little girl has just to communicate with the

world. Then I found this wonderful support group, had a progress

report meeting with our SLP and when we sat down and looked at were

Madison is at now on paper it made me realize how far she has come.

It is a very long journey with alot of ups and downs but if we fight

and work hard our children will benefit from all our and their hard

work.

Keep the faith, keep up the speech therapy and even on your down

days don't give up, reach out for support instead.

Madison and I still have a long road ahead, our SLP thinks two more

years of intense therapy. Having Madison want to talk with me last

night was a major sign to me that she has overcome alot already for

an almost five year old. I am very proud of her.

Liz in NH

April 7, 2004

Liz,

That was a very sweet story. I'm very happy Madison is making such good

progress and that she can share her feelings with you. -KIM