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Shirley,

I don't know how you do it, but you deserve a crown for the loving care you give

to your husband. You'll both be in my thoughts and prayers. Take care of

yourself too.

Hugs,

Laurel

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Shirley,

I don't know how you do it, but you deserve a crown for the loving care you give

to your husband. You'll both be in my thoughts and prayers. Take care of

yourself too.

Hugs,

Laurel

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---Shirley,I have been thinking of you lately. I know how frustrating

it can be to get a definate diagnosis. It took me 15 years. I will

pray for you two. Carolyn In PLS-FRIENDS , " maggie "

<mrs47@a...> wrote:

> hi shirley,

> i knew you hadn't written in sometime. i am so sorry that you have

> been going through so much. those of us " with " the disease can

> never truly understand what you caregivers go through on a daily

> basis.

> i hope that you are getting some help and some time for yourself.

> don't forget that you deserve rest and care also.

> you and your husband will be in my thoughts.

> maggie

>

>

>

>

> >. He has been ill for almost 8 years now and has

> > only gone from bad tow worse he also has wasting in the hands,

> arms, legs, he

> > also no longer has anything that works right anymore. He is full

> time in a

> > wheelchair now. Bowels don't work bladder, arms, legs, voice,

> swallow, so much

> > don't really know how he goes on. But with all this and all that

> said the doctors

> > still say PLS. He is also in constant pain with his bladder

> prostrate and

> > bowels. He just crys sometimes from the pain. Have not posted in

a

> long time have

> > really had my hands full. Thanks Shirley

> > P.S. Don't know if any of this helps but sure felt good to get

> it off my

> > chest. ( Sorry )

> >

> >

> >

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Hi Shirley,

I am sorry to hear that john hasent gotten any better and every thing is

still downhill.I think about you offten . if you care to talk to me you have

me on your instant messaging .I always see when your on line but dont want

to intrude but i like talking to you ,so feel free any time to im me

laura

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