Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 Thanks for replying. Mel Little miracles happen everyday. >From: lrnbfry@... >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Re: Ridley update Pah! >Date: Fri, 26 Sep 2003 13:27:47 EDT > >My Dr. said the achilles tendon is not a Ponsetti method. So, either my >Dr. >is wrong or your Dr. is wrong. I have seen a lot of emails that have said >their child did not need the achilles tendon surgery. I am sure someone >else >will respond with better info. > >Does your Dr. have an email that you could reach them at and ask questions. >I think you could also email Dr. Ponseti everyone on this site has >encouraged >me to do the same. > >Wish I could be of more help. I know how frustrating and overwhelming this >all can be. > >Swede89436 >Son right CF 1/17/03 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 Thank you for replying and with so much information. I've sent an email and pictures to Dr P. So fingers crossed. Mel Little miracles happen everyday. > >Reply-To: nosurgery4clubfoot >To: <nosurgery4clubfoot > >Subject: RE: Re: Ridley update Pah! >Date: Fri, 26 Sep 2003 22:29:01 +0200 > >Mel, > >We were told the same by our first doctor, he said the Ponseti method >only worked in Iowa City and only if done by Dr Ponseti. We soon found >this out to be totally untrue, especially after we spoke to Dr Pirani in >Canada. He told us that he and Dr Penny have have trained 'hundreds of >physiotherapist nurses' in Uganda to do the Ponseti manipulations and >casting. If the tenotomy is necessary this is performed by a surgeon. >The reason they trained all these nurses is there are apparently only 7 >orthopaedic surgeons in the whole of Uganda, while they need at least >300 to service their population. > >It's not true that the tenotomy is mandatory as part of the Ponseti >method. Dr Ponseti told us that the Achilles tendon is pretty thick and >can be stiff, if this is the case the alternative would be to keep on >casting an otherwise corrected foot for much longer, just to stretch one >tendon. He told us he feels that in these cases, it's better to do it >and avoid having the baby in casts for so long. A tenotomy can sound >scary at first, but we found it was really not a big deal at all, with >the after effect probably the same as taking your baby for immunisation >shots, he may need a mild Tylenol/Calpol pain reliever - we only had to >give him this once and his discomfort was over. The tenotomy was over >in a minute, done in his rooms and the tendon regenerated to the correct >length within about 2 and a half weeks. > >I agree with , 'only in Iowa' is old fashioned thinking. It's a >pity that some doctors still have incorrect perceptions of the Ponseti >method and are misinforming people. > >When we had decided on the Ponseti method, but found out there were no >local doctors practising it yet, we were even considering going to >Uganda or Malawi from South Africa because it was closer than Iowa City. >We decided against it because was only 10 weeks old and we were >worried about him contracting a tropical disease like malaria. So we >went to Iowa, but we could have gone to Uganda, Malawi, Vancouver, >Baltimore and many other places where there are doctors getting great >results with the Ponseti method. > >Good luck in your search for the right doctor in Italy (I am half >Italian and still have a lot of family living in the Mantova area). If >Dr Ippolito has moved, could you maybe track him down through some kind >of medical register. I have a cousin there in the medical fraternity - >dentistry, he's an orthodontist, would you like me to ask him if he >knows of a way of tracking down Ippolito? > >And yes, in the meantime, send pics to Dr Ponseti, he checks emails on >Monday and Fridays. So if you send it over the weekend, you could even >try to phone him Monday afternoon US time. We did this and he came >straight on the phone and discussed 's feet with us. He is an >amazing man. His phone number and email address are on his website. > > and >(24th Jan 2003, South Africa, bilateral cf treated by Dr Ponseti in >April 2003). > > > Re: Ridley update Pah! > > > > Mel, > I'm so sorry to hear that you're not getting anywhere with >Ridley's > current doctor and that you haven't had any luck in locating the > Italian doctor. > Unfortunately, your doctor sounds like he's still " behind the >times " > in the belief that only " easy clubfeet " are treated in Iowa. >And > he's certainly mis-informed about the protocol for the tenotomy >as > well as it's usefulness in correcting the equinas of the foot. > I would recommend that you go to the files section and read the > Feldman pediatrician letter as well as the intro to Dr. >Ponseti's > book that's in 's files titled " reference information " . >This > will give you some idea of how to combat your doctor's current > stance. You could print out the list on Dr. P's site of all > the " qualified " doctors in the world and tell him that the >doctors > are required to show that they are using the method sucessfully >(not > his 50% that he quoted) just like Iowa in order to be listed. >There > are some well-reknown orthopaedic doctors on that list. >However, as > stated, it might be nearly impossible for you to convince >him > on your own. I wish I knew how the military medical system >worked so > that I might give you advice as to how to go about trying to get > another physician to help you in your quest for better treatment >for > Ridley. > Could you call/email Joyce Roller (Dr. P's secretary) and tell >her > that Dr. Ippolito is no longer at the address listed on their >website > and tell her that you need assistance in trying to locate him as >soon > as possible? Maybe Dr. Ponseti can help you find another doctor >in > Italy?! > Is there any way that you can bring Ridley back to the states >for > treatment? > My heart goes out to you.....please keep us posted with your > progress. That brace that they've given Ridley sounds like one >crazy > contraption! > > --- In nosurgery4clubfoot , " Melitsa Avila " > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 Thank you for replying and with so much information. I've sent an email and pictures to Dr P. So fingers crossed. Mel Little miracles happen everyday. > >Reply-To: nosurgery4clubfoot >To: <nosurgery4clubfoot > >Subject: RE: Re: Ridley update Pah! >Date: Fri, 26 Sep 2003 22:29:01 +0200 > >Mel, > >We were told the same by our first doctor, he said the Ponseti method >only worked in Iowa City and only if done by Dr Ponseti. We soon found >this out to be totally untrue, especially after we spoke to Dr Pirani in >Canada. He told us that he and Dr Penny have have trained 'hundreds of >physiotherapist nurses' in Uganda to do the Ponseti manipulations and >casting. If the tenotomy is necessary this is performed by a surgeon. >The reason they trained all these nurses is there are apparently only 7 >orthopaedic surgeons in the whole of Uganda, while they need at least >300 to service their population. > >It's not true that the tenotomy is mandatory as part of the Ponseti >method. Dr Ponseti told us that the Achilles tendon is pretty thick and >can be stiff, if this is the case the alternative would be to keep on >casting an otherwise corrected foot for much longer, just to stretch one >tendon. He told us he feels that in these cases, it's better to do it >and avoid having the baby in casts for so long. A tenotomy can sound >scary at first, but we found it was really not a big deal at all, with >the after effect probably the same as taking your baby for immunisation >shots, he may need a mild Tylenol/Calpol pain reliever - we only had to >give him this once and his discomfort was over. The tenotomy was over >in a minute, done in his rooms and the tendon regenerated to the correct >length within about 2 and a half weeks. > >I agree with , 'only in Iowa' is old fashioned thinking. It's a >pity that some doctors still have incorrect perceptions of the Ponseti >method and are misinforming people. > >When we had decided on the Ponseti method, but found out there were no >local doctors practising it yet, we were even considering going to >Uganda or Malawi from South Africa because it was closer than Iowa City. >We decided against it because was only 10 weeks old and we were >worried about him contracting a tropical disease like malaria. So we >went to Iowa, but we could have gone to Uganda, Malawi, Vancouver, >Baltimore and many other places where there are doctors getting great >results with the Ponseti method. > >Good luck in your search for the right doctor in Italy (I am half >Italian and still have a lot of family living in the Mantova area). If >Dr Ippolito has moved, could you maybe track him down through some kind >of medical register. I have a cousin there in the medical fraternity - >dentistry, he's an orthodontist, would you like me to ask him if he >knows of a way of tracking down Ippolito? > >And yes, in the meantime, send pics to Dr Ponseti, he checks emails on >Monday and Fridays. So if you send it over the weekend, you could even >try to phone him Monday afternoon US time. We did this and he came >straight on the phone and discussed 's feet with us. He is an >amazing man. His phone number and email address are on his website. > > and >(24th Jan 2003, South Africa, bilateral cf treated by Dr Ponseti in >April 2003). > > > Re: Ridley update Pah! > > > > Mel, > I'm so sorry to hear that you're not getting anywhere with >Ridley's > current doctor and that you haven't had any luck in locating the > Italian doctor. > Unfortunately, your doctor sounds like he's still " behind the >times " > in the belief that only " easy clubfeet " are treated in Iowa. >And > he's certainly mis-informed about the protocol for the tenotomy >as > well as it's usefulness in correcting the equinas of the foot. > I would recommend that you go to the files section and read the > Feldman pediatrician letter as well as the intro to Dr. >Ponseti's > book that's in 's files titled " reference information " . >This > will give you some idea of how to combat your doctor's current > stance. You could print out the list on Dr. P's site of all > the " qualified " doctors in the world and tell him that the >doctors > are required to show that they are using the method sucessfully >(not > his 50% that he quoted) just like Iowa in order to be listed. >There > are some well-reknown orthopaedic doctors on that list. >However, as > stated, it might be nearly impossible for you to convince >him > on your own. I wish I knew how the military medical system >worked so > that I might give you advice as to how to go about trying to get > another physician to help you in your quest for better treatment >for > Ridley. > Could you call/email Joyce Roller (Dr. P's secretary) and tell >her > that Dr. Ippolito is no longer at the address listed on their >website > and tell her that you need assistance in trying to locate him as >soon > as possible? Maybe Dr. Ponseti can help you find another doctor >in > Italy?! > Is there any way that you can bring Ridley back to the states >for > treatment? > My heart goes out to you.....please keep us posted with your > progress. That brace that they've given Ridley sounds like one >crazy > contraption! > > --- In nosurgery4clubfoot , " Melitsa Avila " > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 Thank you for replying and with so much information. I've sent an email and pictures to Dr P. So fingers crossed. Mel Little miracles happen everyday. > >Reply-To: nosurgery4clubfoot >To: <nosurgery4clubfoot > >Subject: RE: Re: Ridley update Pah! >Date: Fri, 26 Sep 2003 22:29:01 +0200 > >Mel, > >We were told the same by our first doctor, he said the Ponseti method >only worked in Iowa City and only if done by Dr Ponseti. We soon found >this out to be totally untrue, especially after we spoke to Dr Pirani in >Canada. He told us that he and Dr Penny have have trained 'hundreds of >physiotherapist nurses' in Uganda to do the Ponseti manipulations and >casting. If the tenotomy is necessary this is performed by a surgeon. >The reason they trained all these nurses is there are apparently only 7 >orthopaedic surgeons in the whole of Uganda, while they need at least >300 to service their population. > >It's not true that the tenotomy is mandatory as part of the Ponseti >method. Dr Ponseti told us that the Achilles tendon is pretty thick and >can be stiff, if this is the case the alternative would be to keep on >casting an otherwise corrected foot for much longer, just to stretch one >tendon. He told us he feels that in these cases, it's better to do it >and avoid having the baby in casts for so long. A tenotomy can sound >scary at first, but we found it was really not a big deal at all, with >the after effect probably the same as taking your baby for immunisation >shots, he may need a mild Tylenol/Calpol pain reliever - we only had to >give him this once and his discomfort was over. The tenotomy was over >in a minute, done in his rooms and the tendon regenerated to the correct >length within about 2 and a half weeks. > >I agree with , 'only in Iowa' is old fashioned thinking. It's a >pity that some doctors still have incorrect perceptions of the Ponseti >method and are misinforming people. > >When we had decided on the Ponseti method, but found out there were no >local doctors practising it yet, we were even considering going to >Uganda or Malawi from South Africa because it was closer than Iowa City. >We decided against it because was only 10 weeks old and we were >worried about him contracting a tropical disease like malaria. So we >went to Iowa, but we could have gone to Uganda, Malawi, Vancouver, >Baltimore and many other places where there are doctors getting great >results with the Ponseti method. > >Good luck in your search for the right doctor in Italy (I am half >Italian and still have a lot of family living in the Mantova area). If >Dr Ippolito has moved, could you maybe track him down through some kind >of medical register. I have a cousin there in the medical fraternity - >dentistry, he's an orthodontist, would you like me to ask him if he >knows of a way of tracking down Ippolito? > >And yes, in the meantime, send pics to Dr Ponseti, he checks emails on >Monday and Fridays. So if you send it over the weekend, you could even >try to phone him Monday afternoon US time. We did this and he came >straight on the phone and discussed 's feet with us. He is an >amazing man. His phone number and email address are on his website. > > and >(24th Jan 2003, South Africa, bilateral cf treated by Dr Ponseti in >April 2003). > > > Re: Ridley update Pah! > > > > Mel, > I'm so sorry to hear that you're not getting anywhere with >Ridley's > current doctor and that you haven't had any luck in locating the > Italian doctor. > Unfortunately, your doctor sounds like he's still " behind the >times " > in the belief that only " easy clubfeet " are treated in Iowa. >And > he's certainly mis-informed about the protocol for the tenotomy >as > well as it's usefulness in correcting the equinas of the foot. > I would recommend that you go to the files section and read the > Feldman pediatrician letter as well as the intro to Dr. >Ponseti's > book that's in 's files titled " reference information " . >This > will give you some idea of how to combat your doctor's current > stance. You could print out the list on Dr. P's site of all > the " qualified " doctors in the world and tell him that the >doctors > are required to show that they are using the method sucessfully >(not > his 50% that he quoted) just like Iowa in order to be listed. >There > are some well-reknown orthopaedic doctors on that list. >However, as > stated, it might be nearly impossible for you to convince >him > on your own. I wish I knew how the military medical system >worked so > that I might give you advice as to how to go about trying to get > another physician to help you in your quest for better treatment >for > Ridley. > Could you call/email Joyce Roller (Dr. P's secretary) and tell >her > that Dr. Ippolito is no longer at the address listed on their >website > and tell her that you need assistance in trying to locate him as >soon > as possible? Maybe Dr. Ponseti can help you find another doctor >in > Italy?! > Is there any way that you can bring Ridley back to the states >for > treatment? > My heart goes out to you.....please keep us posted with your > progress. That brace that they've given Ridley sounds like one >crazy > contraption! > > --- In nosurgery4clubfoot , " Melitsa Avila " > > > > > Quote Link to comment Share on other sites More sharing options...
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