Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Hi - I don't remember reading about this previously, but does anyone have a problem with the VOLUME of the MSA person's voice? I mean loudness, not weakness. Bob sometimes starts making sounds which he can't seem to control - like at the hospital today when we went to see our brand new grandson (son's firstborn) - we had to wait quite awhile before we could get on the elevator. I ask him to take deep breaths - that's what the speech therapist recommends - but he has difficulty when he gets out of control (ST calls this "spiralling,") I hate to get impatient with him, but sometimes it's very difficult. It seems that it might be when he's nervous, anxious, etc., like when we're getting dressed and he has to struggle, with my face right in front of his, that he starts getting loud. It's almost like a laugh in short bursts. Just wondered if this is common....and if anyone has any suggestions. Thanks so much, Elaine Elaine Grimmesey Insurance Coordinator Student Health Service UC, Santa Barbara grimmesey-e@... 805 893-2086 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Hi - I don't remember reading about this previously, but does anyone have a problem with the VOLUME of the MSA person's voice? I mean loudness, not weakness. Bob sometimes starts making sounds which he can't seem to control - like at the hospital today when we went to see our brand new grandson (son's firstborn) - we had to wait quite awhile before we could get on the elevator. I ask him to take deep breaths - that's what the speech therapist recommends - but he has difficulty when he gets out of control (ST calls this "spiralling,") I hate to get impatient with him, but sometimes it's very difficult. It seems that it might be when he's nervous, anxious, etc., like when we're getting dressed and he has to struggle, with my face right in front of his, that he starts getting loud. It's almost like a laugh in short bursts. Just wondered if this is common....and if anyone has any suggestions. Thanks so much, Elaine Elaine Grimmesey Insurance Coordinator Student Health Service UC, Santa Barbara grimmesey-e@... 805 893-2086 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 , That is a sign of cerebral involvement or the OPCA type of MSA. While there are some exercises that people say can help, it is something that you have to be careful of, since falls can severely hurt the patient. Ultimately a wheelchair will be the answer. It is also time to consider giving up driving, if he has not already done so. Take care, Bill and Charlotte ===================================== M Bruner wrote: > My father seems to be having more trouble with > balance. He says he " feels unsteady " but not dizzy. Is > this ataxia? If so, is there any medication that might > help? I'm not too familiar with that part of MSA. > > Thanks in advance! > > in OK > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 , That is a sign of cerebral involvement or the OPCA type of MSA. While there are some exercises that people say can help, it is something that you have to be careful of, since falls can severely hurt the patient. Ultimately a wheelchair will be the answer. It is also time to consider giving up driving, if he has not already done so. Take care, Bill and Charlotte ===================================== M Bruner wrote: > My father seems to be having more trouble with > balance. He says he " feels unsteady " but not dizzy. Is > this ataxia? If so, is there any medication that might > help? I'm not too familiar with that part of MSA. > > Thanks in advance! > > in OK > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Thanks, Bill. My dad gave up driving about three months ago, once he started having the problems with head flex. It's difficult to drive if you're looking at your lap. :-) He should have given it up before he did as his right leg seems to be affected quite a bit and he sometimes had difficulty getting to the brake pedal quickly enough. So is the name for he describes " ataxia " ? Thanks! in OK __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Thanks, Bill. My dad gave up driving about three months ago, once he started having the problems with head flex. It's difficult to drive if you're looking at your lap. :-) He should have given it up before he did as his right leg seems to be affected quite a bit and he sometimes had difficulty getting to the brake pedal quickly enough. So is the name for he describes " ataxia " ? Thanks! in OK __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Sounds very familiar from my experience with my husband, Ralph. My advice. Keep cool, and maybe take a deep breath yourself as you wait for his control to return. Ralph had difficulty even speaking in a soft voice sometimes. Love him through it. Barb in Arlington, where the sun is shining bright. -- "We have quit learning if we don't feel a little more ignorant every day". D. Tammeus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Sounds very familiar from my experience with my husband, Ralph. My advice. Keep cool, and maybe take a deep breath yourself as you wait for his control to return. Ralph had difficulty even speaking in a soft voice sometimes. Love him through it. Barb in Arlington, where the sun is shining bright. -- "We have quit learning if we don't feel a little more ignorant every day". D. Tammeus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 As a PWP I believe that volume is a matter of a combination of concentration and physical ability. No matter how hard you try, sometimes one can't be loud. l BandEGrimmesey@... wrote: Hi - I don't remember reading about this previously, but does anyone have a problem with the VOLUME of the MSA person's voice? I mean loudness, not weakness. Bob sometimes starts making sounds which he can't seem to control - like at the hospital today when we went to see our brand new grandson (son's firstborn) - we had to wait quite awhile before we could get on the elevator. I ask him to take deep breaths - that's what the speech therapist recommends - but he has difficulty when he gets out of control (ST calls this "spiralling,") I hate to get impatient with him, but sometimes it's very difficult. It seems that it might be when he's nervous, anxious, etc., like when we're getting dressed and he has to struggle, with my face right in front of his, that he starts getting loud. It's almost like a laugh in short bursts. Just wondered if this is common....and if anyone has any suggestions. Thanks so much, Elaine Elaine Grimmesey Insurance Coordinator Student Health Service UC, Santa Barbara grimmesey-e@... 805 893-2086 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 , My mother Joyce never felt dizzy -- just unsteady. Her balance problems put her in the hospital several times with breaks. I don't know if there is any medication to help with this. Debbie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.