hearing test results

[Guest guest]

,

Why don't you call the ENT office regarding Ricky's test results? You should be

able to talk to an audiologist on the phone. They should be there to answer

your questions. They may not be available at the time you call but you should be

able to leave a message so they can call you in between appointments. That will

be the best way to get your questions answered. They should be able to pull

your son's chart and discuss the results with you.

I have a very " need to know " personality and I wouldn't be able to sit around

wondering. Give them a call and see what happens.

K

's mom, 4 years, MED-EL CI @ 20 months

www.caringbridge.org/va/ryanbay

[Guest guest]

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I don't get a chance to post very often, but thought that our story might

help you. My daughter, 7, also has conductive loss with possible SNL. She

has had speech issues since she was 2 that just weren't getting better, was

struggling in school, and her speech therapist recommended we retest her

hearing (it was tested when she was 2). So, her first " new " hearing test

since toddlerhood was last November- she showed moderate hearing loss, then

mild loss, then moderate loss in three tests over five weeks (they were

baffled, it was a university doing the testing, and they saw here 3x in 5

weeks because her tests just don't make sense). Two of the tests indicated

SNL, one of the tests just conductive. She had lots of fluid on both ears,

so we had tubes last December. Much better hearing- only a very very mild

loss right after tubes. Then the tubes fell out and we were back to square

one. Had tubes again in May. Going well all summer- then in August her

hearing was back down into the moderate loss range but there was NO fluid.

October was the same- moderate loss but no fluid, so we got hearing aids to

correct for the conductive? loss (no one is really sure what it is/was).

Got hearing aids in November, but her hearing loss was better- more mild

loss- at least for that moment. However, the aids have made a TREMENDOUS

difference for speech therapy and school. In two months Ellyssa has jumped

2 grade levels in reading and is excelling in the first grade (she repeated

kindergarten and really struggled for two years). She even had a SPEAKING

part in the first grade play. Given that there is a very strong history of

otosclerosis, including early onset, in my family, the ENT THINKS that this

might be what she has....in the mean time her tests continue to vary like

crazy- she seems to be able to hear at anywhere from 45db to 10db depending

on the moment and the situation. Yes, this is frustrating, but this list

has been a tremendous help. Bottom line- we gave in and admitted that she

has some kind of hearing loss, that the aids help, and that she needs to

wear them. So far, she has been a real trooper and we see NO signs of

social stigma or teasing from her peers (in fact- its been the opposite,

her best friend's mom called and said that Lyssa's friend was upset because

she couldn't get aids too!).

I do wonder if the variablility in testing is due to students testing

Lyssa, and her ability to lip read/watch the tester. I think she guesses a

lot and gets a higher score than she can hear- especially given the

classroom data that were taken by the school district. But, bottom line-

she is making progress and we are coming to terms with the loss and the

uncertainty of it all. Guess my kid just likes to keep the specialists on

their toes!

Good luck and stay with this list. Many a night when I was tired and

frustrated I found this list a lifesaver.

Val FD

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