My daughters latest progress notes

[Guest guest]

Hello All,

It's been a long time since I last posted. Have been going

through alot. My daughter is 2years 3mos old. She has Verbal

Apraxia, some SI problems. We have in home OT, Speech & PT once a

week. We go to a speech in motion playgroup once a week where there

is an OT, PT & SLP. Well just when I started getting happy (because

she can finally say Momma and Dada)I got her progress notes from the

therapists. She is making some progress very good progress it seems

that they don't feel the same way. I have applied for assistance for

her and was turned down. The people with SSI say she is disabled but

just not by their guidelines. I am in the process of appeal. My

hubby still thinks I am wasting my time. My almost 5 year old thinks

I love her sister more than her. She has started to lash out at her

sister since she can't tell me what happens. I cry myself to sleep

at night sometimes I feel like I am at the end of my rope. I know

that I am complaning but I can't complain to my husband. Thanks for

listening.

Sheri s Mom

[Guest guest]

I know how you feel, exactly. Actually, as much as I love my son's therapists,

I don't think they're very tuned in to him. They see progress that just isn't

there. I've applied for public assistance, SSI, and everything I can think of

and I've been turned down everywhere too. Even the child support collection

enforcement folks give me the run around and I have a doggone court order for

support, for heaven's sake! In my case, it's just me and Colin, so I'm

fortunate to not have sibling rivalries to contend with but oh, how I wish I had

a spouse's income. As it is, Colin being a former micro-preemie, he is

considered " medically vulnerable " and is at very high risk for serious lower

respiratory infections. I have been advised to keep him at home and limit his

exposure to people during the cold and flu season especially. So where do they

expect my income to come from?

You and I (and probably a lot of moms here) know that we fall through the cracks

in systems that are supposed to help us. I can only write so many letters, or

make so many phone calls. I'm just one girl after all. Well, I vow that one

day, when I win the powerball or come into inheritance from some relative I

don't know, I will set up a fund to help mom's of preemies, special needs kids,

victims of domestic violence, and any moms and kids who are overlooked or turned

away when they need help. When I tell my mom that it's just not fair, she says

" life isn't fair " . That's the wrong answer. I think that anyone who has the

means, needs to do whatever they can to MAKE the world more fair. That's what I

have to say about it.

_______________________________________________

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[Guest guest]

Sheri, I spoke with our Pedi Dr. about applying for SSI and he said

do it and expect to be denied but appeal and appeal. He said the problem with

the system is that it isn't set up for kids so it will take time. I haven't

started the process yet but down loaded the info from the site. Was the

process hard? It didn't seem to difficult on what I read. Good Luck!

-Clare

[Guest guest]

no the process wasn't hard just make sure to have all info the more medical the

better. I am about to send in the latest notes and next month I will send in the

IFSP. I plan to bring her to court with me and tell the judge to tell me that

nothing is wrong with her. She has a 2 word voc. for goodness sake. The thing

that makes me so mad is the fact that if your child is add or adhd and takes a

pill yu get a check. In the school sys. here they call them crazy checks. The

day I went to fill out the appeal letters there was a lady there to apply for

her 2nd child she had stacks of behavior reports and detentions with her. She

was laughing saying this is my second child that will recieve this. That is what

is wrong with the system they don't help the ones that really need it! If I can

help you let me know

Good Luck

Sheri

Re: [ ] My daughters latest progress notes

Sheri, I spoke with our Pedi Dr. about applying for SSI and he said

do it and expect to be denied but appeal and appeal. He said the problem with

the system is that it isn't set up for kids so it will take time. I haven't

started the process yet but down loaded the info from the site. Was the

process hard? It didn't seem to difficult on what I read. Good Luck!

-Clare