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Sandy -

I don't know about the " best " place but you can contact the Nordic Naturals

website and look up your area to find a store or you can order directly from NN

- I've called them many times to place orders (rather than do it over the net)

and they have been very helpful and good at explaining things. How old is your

child? What weight, etc. - all of that could be helpful in determining initial

dosages. We have put the ProEFA in Josh's milk, his juice, on his applesauce,

in yogurt, some people just squeeze it into their child's mouth - you have to

find a way that your child will handle - and then find a back-up method for when

that one fails ; - )

sherry

momof2girlz2002 <asredden@...> wrote:

Where is the best place to purchase ProEFA? How do you determine the

dosage for your child? Also, what are some of the ways you've gotten

your child to take it? We are wanting to begin this and were not

sure about these things.

Sandy

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  • 4 months later...

Hello. I am new to the apraxia diagnosis. My son is 2 years old and

his speech therapist is thinking he has verbal apraxia and has

recommended fish oils. Does anyone know where you can purchase them

and what is a proper starting dose? Any help would be appreciated.

Melinda

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Hi Melinda and welcome!

Here are some archives to help!

Below is a new member archived message, and an " EFA 101 basics "

archived message to hopefully answer more of your

questions for now (did you read The Late Talker yet?)

What type of apraxic like speech behaviors are you seeing that makes

you and the SLP suspect your child has apraxia vs. a simple delay in

speech? Is your child talking at all yet? At your child's age -

without speech, it's difficult to diagnose verbal apraxia -they

could " suspect " verbal apraxia and begin treatment just in case,

which wouldn't hurt your child if he ended up just having a simple

delay. Just a few questions before we could provide more accurate

answers:

Does your child have signs of oral apraxia? (for example, can he on

command smile, imitate funny faces, blow bubbles...if you put peanut

butter anywhere around his mouth can he lick it off no matter where

it is?)

http://www.cherab.org/information/speechlanguage/oralapraxia.html

Does your child have any neurological " soft signs " such as hypotonia

or sensory integration dysfunction?

http://www.cherab.org/information/speechlanguage/parentfriendlysoftsigns.html

Who else evaluated your child? Was it only the SLP through your

town school or was he also in Early Intervention through the state?

(birth to three) Was he evaluated by both a speech pathologist as

well as an occupational therapist? Was/were they knowledgeable

about apraxia? (If your child wasn't diagnosed by an occupational

therapist as well and professionals suspect apraxia -I highly

recommend you request that too either through both the school as

well as private through insurance for many reasons)

To answer any questions you may have about taking your child to see a

neurodevelopmental MD if he has not yet been to one and apraxia is

suspected... in one word - " Yes!!! " I would have your child diagnosed

(private) by a neurodevelopmental medical doctor (developmental

pediatrician or pediatric neurologist) who is knowledgeable about

apraxia and other neurologically based multi-faceted communication

impairments for numerous reasons. Reasons include (but not limited

to)

*having a " hero " on the outside of the school who can assist in a

therapeutic plan and oversee your child's development over the years

*advocacy support with the insurance company

* ruling out or confirming any neurological soft signs or any other

reasons for the delay in speech

*help those that ask " why isn't he talking yet " understand this is a

medical condition -and has nothing to do with your child's cognitive

ability. (if in your child's case it doesn't. Apraxia in itself

does not affect a child's cognitive ability -and speaking early or

late is no indication of a child's intelligence. Also contrary to

popular belief -most who have speech impairments have average to

above average intelligence)

I would also have at least one private " out of pocket " (if possible)

exam with a knowledgeable speech pathologist as well. This SLP can

coordinate with your child's MD, and school therapist and other

professionals, and again be there to assist in a therapeutic plan,

help set goals and oversee your child's development over the years

if needed.

Networking with parents of other speech-impaired children is also

possibly one of the best moves you could make in your child's

recovery. Others will steer you to the " right " professionals and

programs in your area -and you won't feel so alone. I would HIGHLY

recommend joining a whose goal is to unite parents and

professionals. This group

/ is through CHERAB

http://www.cherab.org

The speechville website also has message boards so that you can talk

to other parents on particular topics.

http://www.speech-express.com/boards/

Check your state resources at Speechville to find local support

groups and resources.

http://www.speech-express.com/regional-resources.html

http://www.speech-express.com/communication-station/regional-support-groups.html

(BTW -for anyone who is either running or starting a support group -

due to The Late Talker book and the many who will see your group,

please make sure your info is up at this website and accurate)

For all your other questions including what type of testing -just

read " The Late Talker " . (Nike said 'Just Do It!' -I say 'Just Read

It!') At Amazon.com you can even start today and read sample pages

of the book online!

" The first book to show parents how to tell whether a child has a

speech

delay -or a more serious speech disorder

Every parent eagerly awaits the day his or her child will speak for

the fist

time. For millions of mothers and fathers, however, anticipation

turns to

anxiety when those initial, all-important words are a long time

coming. Many

worried parents are reassured that their child is " just a late

talker, " but

unfortunately, that is not always the case. Co-author

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  • 3 weeks later...

Hey Sherry...thanks for the info. He has been on the OTC for about

two months and really its hard to tell if his progress is due to

that or just him working really hard, you know. He is 4 and has

many words and even sentences but a stranger might only understand

him say 40% of the time (that might even be generous). Although now

that I think of it he has made gains in preschool type areas ie

learning to spell his name and all of a sudden he draws pictures

that actually somewhat look like what it is supposed to be (before

just scibbled). He wasn't doing that two months ago...wow maybe the

supp has actually been working. It so hard to tell if some of it is

just plain old development. The changes have not been what I would

call overnight but I'll take it however it comes!!! Anyhow I should

be getting my proefa soon and I'm hoping that the OTC just didn't

have exactly the right formula and we'll see better results.

Thanks for listening I'm sure I seem like a total flake:)

Jill

>

> Hi, Jill -

> You might want to start with one ProEFA for a bit until your

son gets used to it, although since you've been on another supp it

shouldn't be a difficult switch-over. How long was he on the other

one? You might want to add the second one slowly and build up to a

full two caps a day rather than jumping right into it. There seems

to be results within 3 weeks or so but some kids take a bit longer,

some have results sooner - and, unfortunately and truthfully, some

have no results. Josh had results within 3 weeks - had started out

only saying " bababa " for everything (except " mama " and

sometimes " dada " ) at 3 1/2 years old when we started him on fish oil

supps (used OTC for a long time until ran into a rancidity problem,

then switched to ProEFA) - at 3 weeks into the supps, he was

approximating words and had already added about 25 words to his

lexicon. Now, at 6 1/2 years old we can't shut him up! As my dh

jokingly says, be careful what you wish! ;-)

>

> Sherry

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