Re: Pudendal Neuralgia/Vulvadynia

[Guest guest]

Here is an excellent site that is very up-to-date and describes

prudendal neuralgia and mentions vuladynia as a symptom.

http://www.pudendal.com/

>

> Thank you for the site.

>

> I read the section called " what is.. " but, I cant tell the

difference

> between pudendal and VV/vaginismus? How do you know the difference?

> One thing I found interesting is that the website said post void

> discomfort after urination, which I feel sometimes, as soon as my

> stream ends, I mean IMMEADEATELY after voiding my bladder, I get an

> intense urge to urinate. But that has only happened a few times

since

> my vv/vagnuismus began. I also found the part about sensation of a

> foreign body in the vagina is not uncommon. I have never heard of

this

> with VV, but anytime I bring it up to the doctors (because I always

> feel something there when the pain hits a 10)..I was told it is

from

> the swelling?

>

> But it is something good to bring up to the doctor, so thank you!

>

>

>

>

> > http://www.spuninfo.org/index.htm Pudendal Neuralgia

> >

> > Maybe this site has been mentioned before, but if not take the

time

> > to read it thoroughly, including the patient stories. There is

> > mention in the treatment part about pelvic floor dysfunction, PT

> > treatment, etc.

> >

> > I am excited today because I have just been pre-interviewed by

phone

> > by one of the PN doctors (listed on the site) who said I have

eight

> > out of ten symptoms for this condition. I am now waiting for

> > treatment scheduling, which should happen within six weeks. As I

> > mentioned in previous posts I am also going to have pelvic

physical

> > therapy with Raquel K. Perlis in MA starting in April.

> >

> > Long story short - I first developed symptoms in July with

muscle

> > spasms in my back. The vulvodynia started within a couple of

weeks.

> > Every month since then my condition has gotten worse. I am

> > completely disabled now, on the sofa, getting up only for the

> > bathroom, or go to the doctor. Since July, my doctor visits are

1-2

> > a week. I am on narcotics, which only reduce the pain down to an

> > 8/10, but it is enough to watch TV, read, etc. I have to lie

down

> > even if I am in the car. I can not stand for more than 5-10

minutes

> > I have the luxury (if you can call it that) to be able to devote

all

> > my time to helping myself. I spend all waking hours (with my

laptop

> > balanced on my hip) talking with women and researching on the

web on

> > what's wrong with me. It is because of the wonderful women on

these

> > groups that I have found the help that I am now getting. This

help

> > and advice has taken a few months versus years, or if at all,

from

> > these women. I can't thank them enough for what they have done

for

> > me.

> >

> > So hopefully I will be on the road to recovery soon. I know this

> > won't be a quick fix or even a full recovery, but anything is

better

> > than the life I am now living.

> >

> > nne

> >

> >

> >

> >

> >

> > __________________________________________________

> >