Re: Anybody out there without a thyroid?

February 25, 2006

Not me but one of my friends had a daughter who was born without one, they

picked it up when she was 10 days old.........Meleese xxx

----- Original Message -----

>I was just curious if there was anyone out there besides me who was born

>without a

> thyroid...but it wasn't discovered until a lot later?

February 25, 2006

Not me but one of my friends had a daughter who was born without one, they

picked it up when she was 10 days old.........Meleese xxx

----- Original Message -----

>I was just curious if there was anyone out there besides me who was born

>without a

> thyroid...but it wasn't discovered until a lot later?

February 25, 2006

Wow Niki that is ver interesting I have never heard of anyone born with out a thyroid either, I was born with mine in the wrong place mine is behind my sternum and close to my heart . and they only found that cause I had a stroke and they were checking my heart and my chest xray looked funny to them and so they did an MRI and found outt it was not a tumor on my heart as they suspect it it was my thryoid. Wow I don't know what to tell you either this is rare I think. Tina Teague

wrote: Niki I don't know what to tell you love... I definitely know since you do not have a thyroid gland that your body is very defficient with the t4 only as armour has all the hormones. Have your adrenal glands ever been tested? They can cause people to be manic and have mood swings. That is worth looking into... your adrenal glands and thyroid gland help to regulate each other... so there's no wonder why you're so off kilter. For starters you're deficient in everything. You need something with more than just t4 in it. I recommend taking a natural adrenal gland supplement (made from adrenal glands) and armour or some other 'whole' supplement. I was a vegetarian for about 8 years or so and I'm allergic to pigs but

armour is the one thing I will not skimp on. It saved my life. Also, have allergy tests done as allergies can cause reactions that will make your body mimic symptoms of depression, manic, bipolar, add, etc. I'm willing to bet once you get a balanced thyroid 'diet' and adrenals working together you will do well. good luck, Anybody out> there without a thyroid?> > > I was just curious if there was anyone out there> besides me who was born without a > thyroid...but it wasn't discovered until a lot> later? > > > > > >

> > > > >

February 25, 2006

Wow Niki that is ver interesting I have never heard of anyone born with out a thyroid either, I was born with mine in the wrong place mine is behind my sternum and close to my heart . and they only found that cause I had a stroke and they were checking my heart and my chest xray looked funny to them and so they did an MRI and found outt it was not a tumor on my heart as they suspect it it was my thryoid. Wow I don't know what to tell you either this is rare I think. Tina Teague

wrote: Niki I don't know what to tell you love... I definitely know since you do not have a thyroid gland that your body is very defficient with the t4 only as armour has all the hormones. Have your adrenal glands ever been tested? They can cause people to be manic and have mood swings. That is worth looking into... your adrenal glands and thyroid gland help to regulate each other... so there's no wonder why you're so off kilter. For starters you're deficient in everything. You need something with more than just t4 in it. I recommend taking a natural adrenal gland supplement (made from adrenal glands) and armour or some other 'whole' supplement. I was a vegetarian for about 8 years or so and I'm allergic to pigs but

armour is the one thing I will not skimp on. It saved my life. Also, have allergy tests done as allergies can cause reactions that will make your body mimic symptoms of depression, manic, bipolar, add, etc. I'm willing to bet once you get a balanced thyroid 'diet' and adrenals working together you will do well. good luck, Anybody out> there without a thyroid?> > > I was just curious if there was anyone out there> besides me who was born without a > thyroid...but it wasn't discovered until a lot> later? > > > > > >

> > > > >

February 25, 2006

Wow Niki that is ver interesting I have never heard of anyone born with out a thyroid either, I was born with mine in the wrong place mine is behind my sternum and close to my heart . and they only found that cause I had a stroke and they were checking my heart and my chest xray looked funny to them and so they did an MRI and found outt it was not a tumor on my heart as they suspect it it was my thryoid. Wow I don't know what to tell you either this is rare I think. Tina Teague

wrote: Niki I don't know what to tell you love... I definitely know since you do not have a thyroid gland that your body is very defficient with the t4 only as armour has all the hormones. Have your adrenal glands ever been tested? They can cause people to be manic and have mood swings. That is worth looking into... your adrenal glands and thyroid gland help to regulate each other... so there's no wonder why you're so off kilter. For starters you're deficient in everything. You need something with more than just t4 in it. I recommend taking a natural adrenal gland supplement (made from adrenal glands) and armour or some other 'whole' supplement. I was a vegetarian for about 8 years or so and I'm allergic to pigs but

armour is the one thing I will not skimp on. It saved my life. Also, have allergy tests done as allergies can cause reactions that will make your body mimic symptoms of depression, manic, bipolar, add, etc. I'm willing to bet once you get a balanced thyroid 'diet' and adrenals working together you will do well. good luck, Anybody out> there without a thyroid?> > > I was just curious if there was anyone out there> besides me who was born without a > thyroid...but it wasn't discovered until a lot> later? > > > > > >

> > > > >

February 26, 2006

Niki

Let me ask again, how much are you on for thyroid? Remember, your whole

gland is missing, so you would need full replacement of all that a normal

gland can make. It's not like the " shared " thing of supplementing (except

with Hashi's people like me). Too many endos and other doctors just don't

understand that when AlL the gland is missing, then ALL needs to be

replaced. Think about and supposing this: If your gland hasn't been there,

then could there be a problem with the transmission of ALL

electrical-chemical messengers, like all the way from the adrenals to the

hypothalamus to the pituitary and so-on? If they are only going by TSH,

then they are REALLY playing a dangerous game with your particular health,

since there isn't even a part of a thyroid to pick up the pace inbetween.

No wonder you're manic! Thyroid is very highly involved with the brain

chemistry and all those electrical transmissions all feed off of each other.

You need to be with a doctor who understands ALL phases of hormonal activity

and isn't a $ynthroid worshipper. Our healthy thyroid glands normally put

out a LOT of T4 with a tiny amt of T3. Of course, all of it turns into T3,

then T3, then T1, but IF, during that time up to 18 months, your body cells

got sick and became thyroid hormone receptor sick, then it could be that

your body cells aren't accepting very much of the hormone into the cells and

are turning it away. Have you ever had a Reverse T3 test done? This

certainly doesn't paint the whole picture, but it gives a clue to that,

though we can't tell HOW nonreceptive those cells are. You need much more

than just the routine thyroid testing, IMO. Have you ever seen a pituitary

specialist? Have you had antibodies testing? Forgive me if you've already

said, but there are soooo many of us, lol.

P.S. I had a period of " mania " or " hypomania " back during the time I was

hyperthyroid, but remember, the Hashi's antibodies do some very peculiar

things. I have saved one article on the psychological aspects of Hashi's,

and it gives at least 4 proven case histories of our craziness during the

worst times of it all. I'm going looking for that now.

Re: Anybody out there without a

thyroid?

> Well, I'm not doing so well. Here is my strange story:

>

> I was born in Iowa in 1968, and that state was the

> last state to mandate thyroid tests in newborns. I

> slipped by without notice, unfortunately.

> I was very sick as a baby... but the doctors wouldn't

> listen to my mom when she brought me into the doctors

> office every month. Finally, when I was 18 months old,

> they did a blood test....and we found out I was

> severely hypothryoid. I was 18 months old, but my bone

> age was only half of what it should have been.... 9

> months.

>

> But they never did an ultrasound on me as a baby when

> my blood tests came back abnormal...they just assumed

> that part of my thyroid wasn't working very well. I

> just found out 2 months ago that I don't have a

> thyroid gland. I don't know how I survived for 18

> months as a baby without a thyroid...I don't know how

> I didn't end up mentally retarded! Thank God my mom

> kept feeding me every 2 hours just to get some food in

> me, otherwise I probably would be retarded.

>

> So, they started me on Armour when I was 18 months

> old. I was fine as a child...very smart...very

> creative...but then I started getting kind of wild and

> crazy and manic when I was 17....and I was pretty

> hypomanic all throughout high school and college.

>

> Then, when I was 22, I swtiched to Synthroid because

> I went vegetarian. And immediately, I had my first

> depression....although I dind't realize it was due to

> switching to Synthroid at the time.

>

> When I was 32, I ended up in the psych hospital from

> mania and psychosis... and they diagnosed me as

> bipolar, but they never did an endocrinology workhop

> even though my TSH was high...it was 27. Problem

> is....the medications they gave me for bipolar

> disorder don't work on me! I would still get manic

> while taking my medications.

>

> For some reason, I'm backwards. Most people get

> depressed when they are hypothyroid, but I get manic!

> The first endocrinologist I went to a few years ago

> told me to stay on Synthroid, even though I asked if I

> should switch back to Armour. She said not to change

> back...so I didn't.

>

> Finally a couple of months ago...after yet another

> attack of mania... I knew my TSH was high, so I asked

> another endocrinologist to do a thyroid ultrasound to

> rule out a nodule or something......and that's when we

> found out I don't have a thyroid gland.

>

> We trired switching to Thyrolar, but it gets me manic

> and psychotic. We tried adding Cytomel but it gets me

> manic. Armour thyroid made me manic in high school and

> college. I don't know what to do. I'm afraid I'm going

> to fry my brain if I keep getting manic. I'm ok when

> I'm on synthroid...part of the time. But on Synthroid,

> I seem to have one big manic episode a year, which

> I'm getting really tired of. It totally disrupts my

> life.

>

> The only way I have kept my sanity the last couple of

> years is by learning how to do self-hypnosis. But that

> only works to a point...

>

> So, I don't know what the hell to do at this point. I

> was hoping to find someone who may have had this

> problem, too. But I can't find anyone. Almost

> everyone I've read about who was born without a

> thyroid got diagnosed within a month of birth...except

> me.

February 26, 2006