Re: reintroduce myself and Origin of CF

[Guest guest]

Torsten,

That is really interesting I have never heard of that before. Deb

[Guest guest]

Torsten,

That is really interesting I have never heard of that before. Deb

[Guest guest]

Torsten,

That is really interesting I have never heard of that before. Deb

[Guest guest]

Kathleen,

I have talked so others that don't have blue eyes and blonde hair but I just

thought it was interesting that most of the Cfers that I have meet are blue

eyes and blonde hair. Deb

[Guest guest]

I really have to jump in here because I want to be careful of people

stereotyping CFers because that's what lead to Santosh's late diagnosis (9

months). Doctors didn't believe that a half Indian child could have CF so

they ruled it out before they even sweat tested. My husband is Indian, born

in Madras India, and I am of French origin (I have brown hair and brown

eyes.) Santosh has brown hair, brown eyes, and is not what you would

consider fair. He is doubleDF508.

I know it was just a discussion and no one meant any harm (none taken) but I

just had to remind the list that CFers come in all colors.

Krishnan

mom to Santosh, 4 in August wcf and Leela, 2 in August wocf

Re: reintroduce myself and Origin of CF

Hi Janice,

that's a good idea to do. With all those newbies and the flurry of

mails it is hard to keep up with the who's who. That's why I

recommend more extended signatures, where you can tell in short who

you and your family are.

Deb, Fiona is blonde and blue eyed too. The scandinavian origin of CF

refers to the most common mutation dF508. There are other mutations

originating from other places in the world, for instance the N1303K

is the mediterrenean mutation. So sometimes you can tell from the CF-

mutation, where your pre-ancestors have come from.

Dr. Tuemmler, one of the most famous german CF researchers has done a

lot of work about CF mutations and their migration all over the world.

Bye

Torsten, dad of Fiona 4wcf

e-mail: aberdeen95@...

> Hi I have 3 girls also but two of mind have CF and the weird thing

about it

> is the two that have CF are have blonde hair and blue eyes and my

one that

> doesn't is a brunette with brown eyes. Someone once told me that CF

> originated from Scandinavia and that is why most people with CF are

blonde

> hair and blue eyes. Deb

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

I really have to jump in here because I want to be careful of people

stereotyping CFers because that's what lead to Santosh's late diagnosis (9

months). Doctors didn't believe that a half Indian child could have CF so

they ruled it out before they even sweat tested. My husband is Indian, born

in Madras India, and I am of French origin (I have brown hair and brown

eyes.) Santosh has brown hair, brown eyes, and is not what you would

consider fair. He is doubleDF508.

I know it was just a discussion and no one meant any harm (none taken) but I

just had to remind the list that CFers come in all colors.

Krishnan

mom to Santosh, 4 in August wcf and Leela, 2 in August wocf

Re: reintroduce myself and Origin of CF

Hi Janice,

that's a good idea to do. With all those newbies and the flurry of

mails it is hard to keep up with the who's who. That's why I

recommend more extended signatures, where you can tell in short who

you and your family are.

Deb, Fiona is blonde and blue eyed too. The scandinavian origin of CF

refers to the most common mutation dF508. There are other mutations

originating from other places in the world, for instance the N1303K

is the mediterrenean mutation. So sometimes you can tell from the CF-

mutation, where your pre-ancestors have come from.

Dr. Tuemmler, one of the most famous german CF researchers has done a

lot of work about CF mutations and their migration all over the world.

Bye

Torsten, dad of Fiona 4wcf

e-mail: aberdeen95@...

> Hi I have 3 girls also but two of mind have CF and the weird thing

about it

> is the two that have CF are have blonde hair and blue eyes and my

one that

> doesn't is a brunette with brown eyes. Someone once told me that CF

> originated from Scandinavia and that is why most people with CF are

blonde

> hair and blue eyes. Deb

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

I really have to jump in here because I want to be careful of people

stereotyping CFers because that's what lead to Santosh's late diagnosis (9

months). Doctors didn't believe that a half Indian child could have CF so

they ruled it out before they even sweat tested. My husband is Indian, born

in Madras India, and I am of French origin (I have brown hair and brown

eyes.) Santosh has brown hair, brown eyes, and is not what you would

consider fair. He is doubleDF508.

I know it was just a discussion and no one meant any harm (none taken) but I

just had to remind the list that CFers come in all colors.

Krishnan

mom to Santosh, 4 in August wcf and Leela, 2 in August wocf

Re: reintroduce myself and Origin of CF

Hi Janice,

that's a good idea to do. With all those newbies and the flurry of

mails it is hard to keep up with the who's who. That's why I

recommend more extended signatures, where you can tell in short who

you and your family are.

Deb, Fiona is blonde and blue eyed too. The scandinavian origin of CF

refers to the most common mutation dF508. There are other mutations

originating from other places in the world, for instance the N1303K

is the mediterrenean mutation. So sometimes you can tell from the CF-

mutation, where your pre-ancestors have come from.

Dr. Tuemmler, one of the most famous german CF researchers has done a

lot of work about CF mutations and their migration all over the world.

Bye

Torsten, dad of Fiona 4wcf

e-mail: aberdeen95@...

> Hi I have 3 girls also but two of mind have CF and the weird thing

about it

> is the two that have CF are have blonde hair and blue eyes and my

one that

> doesn't is a brunette with brown eyes. Someone once told me that CF

> originated from Scandinavia and that is why most people with CF are

blonde

> hair and blue eyes. Deb

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

And as and have correctly pointed out we are

talking about mutations here, that are ten-thousands of years old.

Much could have (and has)happened in the meantime, so like almost

everything with CF, there are no " rules " , just statistics with many

exceptions.

Bye

Torsten

> Torsten,

> That is really interesting I have never heard of that before. Deb

[Guest guest]

,

I am not sure what it is all they told me is they have one bad mutation and

the other is rare. I will have to ask, we go in next week. Deb

[Guest guest]

Hi Deb, Me again

has 1 delta f 508 and 1 rare, I don't know if they have found it yet,

but it is so rare they don't test for it yet.

M

[Guest guest]

Hi Deb, Me again

has 1 delta f 508 and 1 rare, I don't know if they have found it yet,

but it is so rare they don't test for it yet.

M

[Guest guest]

Hi Deb, Me again

has 1 delta f 508 and 1 rare, I don't know if they have found it yet,

but it is so rare they don't test for it yet.

M