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Hi !

Welcome to the group. Isn’t the internet great? We can live all over and

still support each other and share info via the internet! Just in case you

did not know, you can look up support groups (and other regional resources)

by going here:

http://www.speech-express.com/regional-resources.html

I think that late potty training has been a common theme on this list. Like

all characteristics of kids with apraxia, some have it some don’t. My son

did not potty train until he was a few months short of 4 years old. Some

kids with apraxia have sensory issues which make potty training difficult.

Does your child have sensory issues?

As far as being read to. I remember when my son was young and he would just

run around the room when I read. I was so worried about this so I made a

point of trying to get him to sit for reading in short intervals at first (5

min at a time) and we worked our way up (longer time intervals). I remember

it being a long, hard process but now he loves books and would listen to

stories indefinitely if I would continue to read. I can’t wait until he

becomes a proficient reader as he will love it. Today he looks at books on

his own quite a bit.

Take care and I look forward to your posts!

Tricia Morin

North Carolina

wrote:

Hi everyone--

I have a 3 year old who has been in speech therepy for 7-8 months now

for Apraxia. We have seen great improvement since he began therepy,

although some things are still very difficult and according to our

therepist he is about 6 months behind where he should be. I have

been so happy with his progress and have seen the little boy who was

so angry and frustrated all the time change into a huggy, lovey,

little boy.

I still have questions though and I certainly need support and some

help from others who have been or are in this situation. There is no

one in my area that has a support group like this, and I have no one

to talk to. Our therapist seems to think he is at a road block

because he suddenly isn't doing anything during the sessions anymore

and I'm afraid he is not going to progress anymore. We are currently

taking a month off to give him a break and have him come back fresh.

We'll see what happens.

I look forward to reading the messages here. It's going to be nice

to find people who know what I'm talking about!

2 questions:

Has anyone found that kids with apraxia have trouble potty training?

My son doesn't even like to sit on the toilet, whereas his older

brother decided to go potty on his own at about 17 months. He just

seems to hold it and hold it until he can hardly walk anymore and

then is in pain when he finally goes. Maybe I'm reading too much

into it, but I'm wondering if this is common for apraxia kids.

Also, does anyone find that kids with apraxia don't like to read/be

read to? I can't for the life of me get him to look at a book and

take an interest. He will listen to me read a book out loud while he

plays, but he won't look at it or look at the words. Is this common?

Thanks!

laura bisel

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Thank you all for the quick responses. I do believe there are

sensory issues, although that has never been brought up by the

therapist and I've been told he is fine when I asked. Do you think I

should ask about that or is that something I should have evaluated by

someone else? I don't know where to start in this situation. It's

getting so expensive and we have fought and fought with our insurance

company (and still are) with no avail. It makes me sick that they

won't pay at least half of this.

Also, has anyone ever run into the problem of their child not

participating in therepy anymore? All he wants to do is play and he

doesn't want to do anything. This is new, he has always done great

up to this point and now he won't do anything. How did you work

through it?

Thanks

Bisel

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Hi ,

Our almost three-year old son is somewhat interested in the potty

now, but is just as

pleased when he just sits on the potty as he is when he uses it. He

won't even

consider pull-ups or training pants so we are nowhere near potty

training. He does

like getting stickers to put on the potty when he successfully uses

it, but it's not

enough of an incentive. Since it's gotten warmer we've been letting

him run around

outside with no pants or diapers on -- we want to help him get a

better sense of what

happens and associate the feeling of needing to pee with actually

peeing. We're

hoping that this will help him with potty training. (It worked well

with our first son,

as did cloth diapers). In any case, he's very interested in the

workings of his body,

which we view as a positive thing. Our issue is that he has no way

of telling us that

he needs to go except to very discreetly point to his diaper -- and

most of the time

he's just indicating that he's already gone.

Regarding reading... Jonah didn't like reading when he was littler,

but we found that

books we could sing to him really appealed to him (Down by the Bay,

Baby Beluga,

etc.) also books that have nice rhymes (Tumble Bumble, Jamberry, and

Mother Goose

are all favorites). He is fascinated with trucks and trains, so we

have scoured libraries

and bookstores for books about trucks and trains -- anything from

books of photos

and the Usborne series of very detailed drawings and descriptions to

counting books

that count trucks. This more than anything has gotten him to love

books. He will

now sit next to his brother and both of them will be looking through

books on the

sofa.

I hope this is helpful.

Spencer

Pennsylvania

> wrote:

> 2 questions:

>

> Has anyone found that kids with apraxia have trouble potty training?

> My son doesn't even like to sit on the toilet, whereas his older

> brother decided to go potty on his own at about 17 months. He just

> seems to hold it and hold it until he can hardly walk anymore and

> then is in pain when he finally goes. Maybe I'm reading too much

> into it, but I'm wondering if this is common for apraxia kids.

>

> Also, does anyone find that kids with apraxia don't like to read/be

> read to? I can't for the life of me get him to look at a book and

> take an interest. He will listen to me read a book out loud while

he

> plays, but he won't look at it or look at the words. Is this

common?

>

> Thanks!

>

> laura bisel

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