Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Suzanne - I guess some of my comments in my correspondences offended you, but I'd like to assure you that even the comments on "smarter doctors" was more a comment on my child's sense of humor & keeping it "all in perspective" than meant to be an offense. I actually have good relationships with my doctors & my child's doctors -- but it is frustrating when (like this morning) -- my child has to have more blood drawn because one doctor says that the last blood draw should not have been done because of the meds that my child was on -- and the first doctor had said it would be fine. When doctor's walk into a room & say "Oh my, , what happened to your face?" it tends to make me a little nuts.... My children need to understand that everyone (including mom, doctors, teachers, etc.) can not have all the answers -- but they have learned respect -- my son (who is 20 and who has a chronic medical condition -- he has Tourette and a heart condition) -- is a strong advocate for himself - and I believe that he has learned it because I have insisted that he learn to ask the questions, communicate with the specialists, etc. and that he does it with respect, candor and a very effective sense of humor. is a "model" patient -- this morning, we went into the lab, she sat down & stuck out her arm & continued our conversation -- never missing a beat while the tech took four viles of blood. (Since I've had long-term relationships with most of the physicians who have treated me or my kids -- I am candid - succinct - direct and respectful of the amount of time a doctor has to deal with a issue -- If there are issues that will take longer than the doctor has - I've asked for calls & given my list of questions so that the doctor can respond later -- I've never had to wait more than 24 hours because for a doctor to call when this has happened). If I think that I can't have a productive working relationship with a medical professional, I wouldn't go there! I'm don't expect doctor's to have "all the answers" -- I don't think that I need to put them on a pedestal either. I think that sometimes everyone -- including doctors -- needs to be challenged to look at "the whole picture" and not just a particular set of facts on a particular day -- In a recent conversation with our pediatrician of ten years, he was saying "Well, in most cases, a cause isn't identified" -- to which I responded "Well, a cause may not be known, but I would like to..." he interrupted me & made a sarcastic comment about 'mother's intuition' to which I nicely said that he filled in the wrong blank - I was saying that "I would like to take a pragmatic approach and have a reasonable plan of action to deal with the severe angio outbreaks - he apologized for his comment (though I hadn't asked him to) and agreed to help develop an appropriate plan of action -- I am sitting here & rereading this -- and wondering if I should even send it -- but decided that the point of this story is to let you know that 1. it wasn't my intent to offend & hope that you understand that while some parents might have an "us against them" mentality -- not all of us do -- (there are good, honorable people and there are some not-so-honorable people in every profession) and that 2. the point in writing about the conversation with the pediatrician was theat communication goes both ways -- and doctors (fill in any specialist, teacher, professional who works with out kids) - needs to respect the parent's information -- the parent is looking at the whole child -- day in and day out -- and while the doctor always had the next case, the parent only has the kid & the obligation to get this kid to adulthood as a whole human being -- (and therefore, the impact of the urticaria angioedema, medical testing and treatments emotionally on my daughter is - longterm - as important to me as medical intervention in a crisis.) 3) I've asked (nicely) doctors to tell me what they would do "if this was your daughter" - and sometimes they have said that they would stay with this course of treatment -- but once in a while it has sparked a new idea.... 4) what I write in e-mail correspondence to other adults is not necessarily the way that I would present information to my child - (or how anyone would talk to a very young child) (I'm also not a lawyer -- and several of my family members are practicing attorneys -- but it doesn't keep me from making attorney jokes just as having several family members as cytologists, intensive care nurses, pharmacists, etc. - hasn't kept me from challenging the doctors -- those with medical expertise in my family have insisted that I should expect more, not less). Suzanne, each of us has a story - and the whole story can't be told in an e-mail -- the intention in the words that I write & how someone interprets them will not always mesh -- but I do appreciate the good, honest efforts of folks who have tried to assist my kids -- and more than once I've needed medical care and been glad that I live at a time when and in a place where it is available -- Regards, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Suzanne - I guess some of my comments in my correspondences offended you, but I'd like to assure you that even the comments on "smarter doctors" was more a comment on my child's sense of humor & keeping it "all in perspective" than meant to be an offense. I actually have good relationships with my doctors & my child's doctors -- but it is frustrating when (like this morning) -- my child has to have more blood drawn because one doctor says that the last blood draw should not have been done because of the meds that my child was on -- and the first doctor had said it would be fine. When doctor's walk into a room & say "Oh my, , what happened to your face?" it tends to make me a little nuts.... My children need to understand that everyone (including mom, doctors, teachers, etc.) can not have all the answers -- but they have learned respect -- my son (who is 20 and who has a chronic medical condition -- he has Tourette and a heart condition) -- is a strong advocate for himself - and I believe that he has learned it because I have insisted that he learn to ask the questions, communicate with the specialists, etc. and that he does it with respect, candor and a very effective sense of humor. is a "model" patient -- this morning, we went into the lab, she sat down & stuck out her arm & continued our conversation -- never missing a beat while the tech took four viles of blood. (Since I've had long-term relationships with most of the physicians who have treated me or my kids -- I am candid - succinct - direct and respectful of the amount of time a doctor has to deal with a issue -- If there are issues that will take longer than the doctor has - I've asked for calls & given my list of questions so that the doctor can respond later -- I've never had to wait more than 24 hours because for a doctor to call when this has happened). If I think that I can't have a productive working relationship with a medical professional, I wouldn't go there! I'm don't expect doctor's to have "all the answers" -- I don't think that I need to put them on a pedestal either. I think that sometimes everyone -- including doctors -- needs to be challenged to look at "the whole picture" and not just a particular set of facts on a particular day -- In a recent conversation with our pediatrician of ten years, he was saying "Well, in most cases, a cause isn't identified" -- to which I responded "Well, a cause may not be known, but I would like to..." he interrupted me & made a sarcastic comment about 'mother's intuition' to which I nicely said that he filled in the wrong blank - I was saying that "I would like to take a pragmatic approach and have a reasonable plan of action to deal with the severe angio outbreaks - he apologized for his comment (though I hadn't asked him to) and agreed to help develop an appropriate plan of action -- I am sitting here & rereading this -- and wondering if I should even send it -- but decided that the point of this story is to let you know that 1. it wasn't my intent to offend & hope that you understand that while some parents might have an "us against them" mentality -- not all of us do -- (there are good, honorable people and there are some not-so-honorable people in every profession) and that 2. the point in writing about the conversation with the pediatrician was theat communication goes both ways -- and doctors (fill in any specialist, teacher, professional who works with out kids) - needs to respect the parent's information -- the parent is looking at the whole child -- day in and day out -- and while the doctor always had the next case, the parent only has the kid & the obligation to get this kid to adulthood as a whole human being -- (and therefore, the impact of the urticaria angioedema, medical testing and treatments emotionally on my daughter is - longterm - as important to me as medical intervention in a crisis.) 3) I've asked (nicely) doctors to tell me what they would do "if this was your daughter" - and sometimes they have said that they would stay with this course of treatment -- but once in a while it has sparked a new idea.... 4) what I write in e-mail correspondence to other adults is not necessarily the way that I would present information to my child - (or how anyone would talk to a very young child) (I'm also not a lawyer -- and several of my family members are practicing attorneys -- but it doesn't keep me from making attorney jokes just as having several family members as cytologists, intensive care nurses, pharmacists, etc. - hasn't kept me from challenging the doctors -- those with medical expertise in my family have insisted that I should expect more, not less). Suzanne, each of us has a story - and the whole story can't be told in an e-mail -- the intention in the words that I write & how someone interprets them will not always mesh -- but I do appreciate the good, honest efforts of folks who have tried to assist my kids -- and more than once I've needed medical care and been glad that I live at a time when and in a place where it is available -- Regards, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Suzanne - I guess some of my comments in my correspondences offended you, but I'd like to assure you that even the comments on "smarter doctors" was more a comment on my child's sense of humor & keeping it "all in perspective" than meant to be an offense. I actually have good relationships with my doctors & my child's doctors -- but it is frustrating when (like this morning) -- my child has to have more blood drawn because one doctor says that the last blood draw should not have been done because of the meds that my child was on -- and the first doctor had said it would be fine. When doctor's walk into a room & say "Oh my, , what happened to your face?" it tends to make me a little nuts.... My children need to understand that everyone (including mom, doctors, teachers, etc.) can not have all the answers -- but they have learned respect -- my son (who is 20 and who has a chronic medical condition -- he has Tourette and a heart condition) -- is a strong advocate for himself - and I believe that he has learned it because I have insisted that he learn to ask the questions, communicate with the specialists, etc. and that he does it with respect, candor and a very effective sense of humor. is a "model" patient -- this morning, we went into the lab, she sat down & stuck out her arm & continued our conversation -- never missing a beat while the tech took four viles of blood. (Since I've had long-term relationships with most of the physicians who have treated me or my kids -- I am candid - succinct - direct and respectful of the amount of time a doctor has to deal with a issue -- If there are issues that will take longer than the doctor has - I've asked for calls & given my list of questions so that the doctor can respond later -- I've never had to wait more than 24 hours because for a doctor to call when this has happened). If I think that I can't have a productive working relationship with a medical professional, I wouldn't go there! I'm don't expect doctor's to have "all the answers" -- I don't think that I need to put them on a pedestal either. I think that sometimes everyone -- including doctors -- needs to be challenged to look at "the whole picture" and not just a particular set of facts on a particular day -- In a recent conversation with our pediatrician of ten years, he was saying "Well, in most cases, a cause isn't identified" -- to which I responded "Well, a cause may not be known, but I would like to..." he interrupted me & made a sarcastic comment about 'mother's intuition' to which I nicely said that he filled in the wrong blank - I was saying that "I would like to take a pragmatic approach and have a reasonable plan of action to deal with the severe angio outbreaks - he apologized for his comment (though I hadn't asked him to) and agreed to help develop an appropriate plan of action -- I am sitting here & rereading this -- and wondering if I should even send it -- but decided that the point of this story is to let you know that 1. it wasn't my intent to offend & hope that you understand that while some parents might have an "us against them" mentality -- not all of us do -- (there are good, honorable people and there are some not-so-honorable people in every profession) and that 2. the point in writing about the conversation with the pediatrician was theat communication goes both ways -- and doctors (fill in any specialist, teacher, professional who works with out kids) - needs to respect the parent's information -- the parent is looking at the whole child -- day in and day out -- and while the doctor always had the next case, the parent only has the kid & the obligation to get this kid to adulthood as a whole human being -- (and therefore, the impact of the urticaria angioedema, medical testing and treatments emotionally on my daughter is - longterm - as important to me as medical intervention in a crisis.) 3) I've asked (nicely) doctors to tell me what they would do "if this was your daughter" - and sometimes they have said that they would stay with this course of treatment -- but once in a while it has sparked a new idea.... 4) what I write in e-mail correspondence to other adults is not necessarily the way that I would present information to my child - (or how anyone would talk to a very young child) (I'm also not a lawyer -- and several of my family members are practicing attorneys -- but it doesn't keep me from making attorney jokes just as having several family members as cytologists, intensive care nurses, pharmacists, etc. - hasn't kept me from challenging the doctors -- those with medical expertise in my family have insisted that I should expect more, not less). Suzanne, each of us has a story - and the whole story can't be told in an e-mail -- the intention in the words that I write & how someone interprets them will not always mesh -- but I do appreciate the good, honest efforts of folks who have tried to assist my kids -- and more than once I've needed medical care and been glad that I live at a time when and in a place where it is available -- Regards, Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Dear Irene and , Hi. I sure don't want to sound preachy and I know you are beginning to feel more exasperated all the time about your children, but I would like to say a kind word for the doctors. Chronic urticaria is probably one of the hardest conditions to figure out (as we all know) and one of the most frustrating for everyone parents, children and all. But we have to be kind to the doctors, they are doing all that they know at the time we are there. They see upwards of 40-50 patients a day and they are hammered. When I see a physician, I insure that he spend some time with we until my questions are answered. When I leave to pay my bill I request copies of the tests that are done so that I have a record of the findings. My suggestion if you are not having any success is to go to a specialist (i.e, allergist, immunologist, etc.) and be kind to them too. There is an answer. And you and they will find the answer. Children need to learn respect for the people in the medical field. Children learn from their parents attitudes how to act toward caregivers, doctors, teachers, police, etc. Although medical people are paid well, I feel that most of them are in that line of work because they care and want to help. I have been in the medical field most of my adult life and other family members are too. We really feel for our patients problems, but sometimes an immediate answer can not be found. Patience and encouragement toward the Dr. can really help in the treatment. Keep checking in this on helpful web site and keep your heart on the goal of health and it will happen. I have great faith. I love you all and am rooting for you so much. Love, Suzanne in Juneau, Alaska > >Reply-To: urticaria >To: <urticaria > >Subject: Re: [To ] Question on Angioedema >Date: Sat, 12 May 2001 21:06:46 -0400 > >Irene, First of all a very big HAPPY BELATED BIRTHDAY TO >RACHEL!!!!!!!!!!!!!!!! You are quite welcome on the steriod warning, I >NEVER want anyone to suffer with broken bones like Alena and most of all >NOT be told the side effects. No one told us either and three different >doctors prescribed it for her and three different pharmacies filled them. >(GRRRRRRRRRR) Why are they doing urine tests? Alena has never had any >done, I always wondered why, only answer I ever got is we don't need them >(UGH) I hope can put on her very brave face for Monday. I hope >they get it in the first stick. One time a nurse stuck Alena SIX times!! >That poor girl was in tears before it was over, she felt so bad. And to > telling her doctor she wants a " smarter " one, I LOVE THE >HONESTY!!!!! What a smart girl, give them heck is what I say!!! Maybe he >will try to impress her in the weeks to follow!!! My oldest daughter, >Kaitlin was listening to me read off your email to my husband and she said > " WOW Mom she is so lucky she got a ball, all we ever get at the doctors >office is leftover Halloween stickers!! " I guess that is an HMO for ya, >hee hee. I will keep you and in my prayers as I know how hard it >is to wait for blood tests. Keep me posted ) A big hug to for >her upcoming bravery from Alena. Take Care~~Alena's Mom PS try to >find the Viactiv calcium chews, I swear they are the best. > Re: [To ] Question on Angioedema > > > Dear - > > I've been reading this weekend's communications for the group & want to >say > thanks for the " heads up " on calcium & use of prednazone. Neither >doctor who > prescribed this for has mentioned this -- and I thought that I >knew a > bit about Prednazone because my mother was on it for the seven months of >her > life -- I have to pick up Pred tonight at the local pharmacy, and I'll >be > picking up the calcium right along with it -- > > The allergist is rerunning the bloodwork that the pediatrician took -- >and > we're midway through 48 hours of urine collection -- I've never seen > containers that big & I hate the thought that hydrochoric acid - even in >a > container is in my refridgerator! Monday morning we are headed for the > vampire's lab at 7:00 a.m. -- tried to be really good at the >doctor's > office, but the more he asked, the more upset she became until she took >on > her " faucet face " persona -- and she just couldn't help herself -- she >told > him that she hoped that he would be smart, but he wasn't (he said " I >don't > know " one too many times) and said - " Do you know any smarter doctors? " > > He's investigating possibilities -- and he didn't dismiss my thought >that > this could be hormonally related -- so we're doing the journal thing to >keep > a calendar -- I'm hoping for answers or at least enough relief so that I > won't come away from this office thinking that the only thing my child >got > from this was a bright pink ball to match the shirt she was wearing! >(at > least he gives the kids presents!) > > (And he asked me if he could keep the pictures!) > > Hope Alena's doing well. > > Irene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Dear Irene and , Hi. I sure don't want to sound preachy and I know you are beginning to feel more exasperated all the time about your children, but I would like to say a kind word for the doctors. Chronic urticaria is probably one of the hardest conditions to figure out (as we all know) and one of the most frustrating for everyone parents, children and all. But we have to be kind to the doctors, they are doing all that they know at the time we are there. They see upwards of 40-50 patients a day and they are hammered. When I see a physician, I insure that he spend some time with we until my questions are answered. When I leave to pay my bill I request copies of the tests that are done so that I have a record of the findings. My suggestion if you are not having any success is to go to a specialist (i.e, allergist, immunologist, etc.) and be kind to them too. There is an answer. And you and they will find the answer. Children need to learn respect for the people in the medical field. Children learn from their parents attitudes how to act toward caregivers, doctors, teachers, police, etc. Although medical people are paid well, I feel that most of them are in that line of work because they care and want to help. I have been in the medical field most of my adult life and other family members are too. We really feel for our patients problems, but sometimes an immediate answer can not be found. Patience and encouragement toward the Dr. can really help in the treatment. Keep checking in this on helpful web site and keep your heart on the goal of health and it will happen. I have great faith. I love you all and am rooting for you so much. Love, Suzanne in Juneau, Alaska > >Reply-To: urticaria >To: <urticaria > >Subject: Re: [To ] Question on Angioedema >Date: Sat, 12 May 2001 21:06:46 -0400 > >Irene, First of all a very big HAPPY BELATED BIRTHDAY TO >RACHEL!!!!!!!!!!!!!!!! You are quite welcome on the steriod warning, I >NEVER want anyone to suffer with broken bones like Alena and most of all >NOT be told the side effects. No one told us either and three different >doctors prescribed it for her and three different pharmacies filled them. >(GRRRRRRRRRR) Why are they doing urine tests? Alena has never had any >done, I always wondered why, only answer I ever got is we don't need them >(UGH) I hope can put on her very brave face for Monday. I hope >they get it in the first stick. One time a nurse stuck Alena SIX times!! >That poor girl was in tears before it was over, she felt so bad. And to > telling her doctor she wants a " smarter " one, I LOVE THE >HONESTY!!!!! What a smart girl, give them heck is what I say!!! Maybe he >will try to impress her in the weeks to follow!!! My oldest daughter, >Kaitlin was listening to me read off your email to my husband and she said > " WOW Mom she is so lucky she got a ball, all we ever get at the doctors >office is leftover Halloween stickers!! " I guess that is an HMO for ya, >hee hee. I will keep you and in my prayers as I know how hard it >is to wait for blood tests. Keep me posted ) A big hug to for >her upcoming bravery from Alena. Take Care~~Alena's Mom PS try to >find the Viactiv calcium chews, I swear they are the best. > Re: [To ] Question on Angioedema > > > Dear - > > I've been reading this weekend's communications for the group & want to >say > thanks for the " heads up " on calcium & use of prednazone. Neither >doctor who > prescribed this for has mentioned this -- and I thought that I >knew a > bit about Prednazone because my mother was on it for the seven months of >her > life -- I have to pick up Pred tonight at the local pharmacy, and I'll >be > picking up the calcium right along with it -- > > The allergist is rerunning the bloodwork that the pediatrician took -- >and > we're midway through 48 hours of urine collection -- I've never seen > containers that big & I hate the thought that hydrochoric acid - even in >a > container is in my refridgerator! Monday morning we are headed for the > vampire's lab at 7:00 a.m. -- tried to be really good at the >doctor's > office, but the more he asked, the more upset she became until she took >on > her " faucet face " persona -- and she just couldn't help herself -- she >told > him that she hoped that he would be smart, but he wasn't (he said " I >don't > know " one too many times) and said - " Do you know any smarter doctors? " > > He's investigating possibilities -- and he didn't dismiss my thought >that > this could be hormonally related -- so we're doing the journal thing to >keep > a calendar -- I'm hoping for answers or at least enough relief so that I > won't come away from this office thinking that the only thing my child >got > from this was a bright pink ball to match the shirt she was wearing! >(at > least he gives the kids presents!) > > (And he asked me if he could keep the pictures!) > > Hope Alena's doing well. > > Irene > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Suzanne, I appreciate your comments. I think that the medical community has some incredibly talented members. Some that I have encountered have been nothing less than a blessing. To the Emergency Room doctor that recognized that she was shocking I am forever grateful, to many many in the medical field I am forever grateful. However, my frustration comes from the fact that the few bad specialists that have been unwilling to TRY to help, the few bad ones that have dismissed CU as anything important, the few bad ones that have been rude and unprofessional, the ones that order blood work and don't call back until FOUR months later!!! I think as with any profession the few " bad " doctors but huge scuff marks on all the wonderfully talented ones. I do believe that most of us would agree when it comes to CU finding those very good doctors are like finding a needle in a haystack. I think it is also frustrating to find that needle when you are limited to what the insurance will allow you to see, and those specialist have failed you. I from the bottom of my heart believe that there are not enough thanks to the wonderful doctors, nurses and others in the medical field that are not given the thanks and acknowledgement they deserve. I am more than willing to respectfully listen to what any doctor has to say, however, what they say should make sense and be respectful to the patient as well. Ohhhhhh, how the world would be a better place if we all followed the golden rule ) Thank you again for your comments~~Alena's Mom To: <urticaria > Sent: Monday, May 14, 2001 9:39 AM Subject: Re: A Thought > Dear Irene and , > > Hi. I sure don't want to sound preachy and I know you are beginning to feel > more exasperated all the time about your children, but I would like to say a > kind word for the doctors. Chronic urticaria is probably one of the hardest > conditions to figure out (as we all know) and one of the most frustrating > for everyone parents, children and all. But we have to be kind to the > doctors, they are doing all that they know at the time we are there. They > see upwards of 40-50 patients a day and they are hammered. When I see a > physician, I insure that he spend some time with we until my questions are > answered. When I leave to pay my bill I request copies of the tests that > are done so that I have a record of the findings. My suggestion if you are > not having any success is to go to a specialist (i.e, allergist, > immunologist, etc.) and be kind to them too. There is an answer. And you > and they will find the answer. > > Children need to learn respect for the people in the medical field. Children > learn from their parents attitudes how to act toward caregivers, doctors, > teachers, police, etc. Although medical people are paid well, I feel that > most of them are in that line of work because they care and want to help. > > I have been in the medical field most of my adult life and other family > members are too. We really feel for our patients problems, but sometimes an > immediate answer can not be found. Patience and encouragement toward the > Dr. can really help in the treatment. > > Keep checking in this on helpful web site and keep your heart on the goal of > health and it will happen. I have great faith. > > I love you all and am rooting for you so much. > > Love, Suzanne in Juneau, Alaska > > > > > >Reply-To: urticaria > >To: <urticaria > > >Subject: Re: [To ] Question on Angioedema > >Date: Sat, 12 May 2001 21:06:46 -0400 > > > >Irene, First of all a very big HAPPY BELATED BIRTHDAY TO > >RACHEL!!!!!!!!!!!!!!!! You are quite welcome on the steriod warning, I > >NEVER want anyone to suffer with broken bones like Alena and most of all > >NOT be told the side effects. No one told us either and three different > >doctors prescribed it for her and three different pharmacies filled them. > >(GRRRRRRRRRR) Why are they doing urine tests? Alena has never had any > >done, I always wondered why, only answer I ever got is we don't need them > >(UGH) I hope can put on her very brave face for Monday. I hope > >they get it in the first stick. One time a nurse stuck Alena SIX times!! > >That poor girl was in tears before it was over, she felt so bad. And to > > telling her doctor she wants a " smarter " one, I LOVE THE > >HONESTY!!!!! What a smart girl, give them heck is what I say!!! Maybe he > >will try to impress her in the weeks to follow!!! My oldest daughter, > >Kaitlin was listening to me read off your email to my husband and she said > > " WOW Mom she is so lucky she got a ball, all we ever get at the doctors > >office is leftover Halloween stickers!! " I guess that is an HMO for ya, > >hee hee. I will keep you and in my prayers as I know how hard it > >is to wait for blood tests. Keep me posted ) A big hug to for > >her upcoming bravery from Alena. Take Care~~Alena's Mom PS try to > >find the Viactiv calcium chews, I swear they are the best. > > Re: [To ] Question on Angioedema > > > > > > Dear - > > > > I've been reading this weekend's communications for the group & want to > >say > > thanks for the " heads up " on calcium & use of prednazone. Neither > >doctor who > > prescribed this for has mentioned this -- and I thought that I > >knew a > > bit about Prednazone because my mother was on it for the seven months of > >her > > life -- I have to pick up Pred tonight at the local pharmacy, and I'll > >be > > picking up the calcium right along with it -- > > > > The allergist is rerunning the bloodwork that the pediatrician took -- > >and > > we're midway through 48 hours of urine collection -- I've never seen > > containers that big & I hate the thought that hydrochoric acid - even in > >a > > container is in my refridgerator! Monday morning we are headed for the > > vampire's lab at 7:00 a.m. -- tried to be really good at the > >doctor's > > office, but the more he asked, the more upset she became until she took > >on > > her " faucet face " persona -- and she just couldn't help herself -- she > >told > > him that she hoped that he would be smart, but he wasn't (he said " I > >don't > > know " one too many times) and said - " Do you know any smarter doctors? " > > > > He's investigating possibilities -- and he didn't dismiss my thought > >that > > this could be hormonally related -- so we're doing the journal thing to > >keep > > a calendar -- I'm hoping for answers or at least enough relief so that I > > won't come away from this office thinking that the only thing my child > >got > > from this was a bright pink ball to match the shirt she was wearing! > >(at > > least he gives the kids presents!) > > > > (And he asked me if he could keep the pictures!) > > > > Hope Alena's doing well. > > > > Irene > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 , My heart goes out to you in your loss. I cannot even imagine how that doctor can live with himself!! Love, Re: [To ] Question on Angioedema> >> >> > Dear -> >> > I've been reading this wee! kend's communications for the group & wantto> >say> > thanks for the "heads up" on calcium & use of prednazone. Neither> >doctor who> > prescribed this for has mentioned this -- and I thought that I> >knew a> > bit about Prednazone because my mother was on it for the seven monthsof> >her> > life -- I have to pick up Pred tonight at the local pharmacy, and I'll> >be> > picking up the calcium right along with it --> >> > The allergist is rerunning the bloodwork that the pediatrician took --> >and> > we're midway through 48 hours of urine collection -- I've never seen> > containers that big & I hate the thought that hydrochoric acid - evenin> >a> > container is in my r! efridgerator! Monday morning we are headed forthe> > vampire's lab at 7:00 a.m. -- tried to be really good at the> >doctor's> > office, but the more he asked, the more upset she became until shetook> >on> > her "faucet face" persona -- and she just couldn't help herself -- she> >told> > him that she hoped that he would be smart, but he wasn't (he said "I> >don't> > know" one too many times) and said - "Do you know any smarterdoctors?"> >> > He's investigating possibilities -- and he didn't dismiss my thought> >that> > this could be hormonally related -- so we're doing the journal thingto> >keep> > a calendar -- I'm hoping for answers or at least enough relief so thatI> > won't co! me away from this office thinking that the only thing my child> >got> > from this was a bright pink ball to match the shirt she was wearing!> >(at> > least he gives the kids presents!)> >> > (And he asked me if he could keep the pictures!)> >> > Hope Alena's doing well.> >> > Irene> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 , My heart goes out to you in your loss. I cannot even imagine how that doctor can live with himself!! Love, Re: [To ] Question on Angioedema> >> >> > Dear -> >> > I've been reading this wee! kend's communications for the group & wantto> >say> > thanks for the "heads up" on calcium & use of prednazone. Neither> >doctor who> > prescribed this for has mentioned this -- and I thought that I> >knew a> > bit about Prednazone because my mother was on it for the seven monthsof> >her> > life -- I have to pick up Pred tonight at the local pharmacy, and I'll> >be> > picking up the calcium right along with it --> >> > The allergist is rerunning the bloodwork that the pediatrician took --> >and> > we're midway through 48 hours of urine collection -- I've never seen> > containers that big & I hate the thought that hydrochoric acid - evenin> >a> > container is in my r! efridgerator! Monday morning we are headed forthe> > vampire's lab at 7:00 a.m. -- tried to be really good at the> >doctor's> > office, but the more he asked, the more upset she became until shetook> >on> > her "faucet face" persona -- and she just couldn't help herself -- she> >told> > him that she hoped that he would be smart, but he wasn't (he said "I> >don't> > know" one too many times) and said - "Do you know any smarterdoctors?"> >> > He's investigating possibilities -- and he didn't dismiss my thought> >that> > this could be hormonally related -- so we're doing the journal thingto> >keep> > a calendar -- I'm hoping for answers or at least enough relief so thatI> > won't co! me away from this office thinking that the only thing my child> >got> > from this was a bright pink ball to match the shirt she was wearing!> >(at> > least he gives the kids presents!)> >> > (And he asked me if he could keep the pictures!)> >> > Hope Alena's doing well.> >> > Irene> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 , My heart goes out to you in your loss. I cannot even imagine how that doctor can live with himself!! Love, Re: [To ] Question on Angioedema> >> >> > Dear -> >> > I've been reading this wee! kend's communications for the group & wantto> >say> > thanks for the "heads up" on calcium & use of prednazone. Neither> >doctor who> > prescribed this for has mentioned this -- and I thought that I> >knew a> > bit about Prednazone because my mother was on it for the seven monthsof> >her> > life -- I have to pick up Pred tonight at the local pharmacy, and I'll> >be> > picking up the calcium right along with it --> >> > The allergist is rerunning the bloodwork that the pediatrician took --> >and> > we're midway through 48 hours of urine collection -- I've never seen> > containers that big & I hate the thought that hydrochoric acid - evenin> >a> > container is in my r! efridgerator! Monday morning we are headed forthe> > vampire's lab at 7:00 a.m. -- tried to be really good at the> >doctor's> > office, but the more he asked, the more upset she became until shetook> >on> > her "faucet face" persona -- and she just couldn't help herself -- she> >told> > him that she hoped that he would be smart, but he wasn't (he said "I> >don't> > know" one too many times) and said - "Do you know any smarterdoctors?"> >> > He's investigating possibilities -- and he didn't dismiss my thought> >that> > this could be hormonally related -- so we're doing the journal thingto> >keep> > a calendar -- I'm hoping for answers or at least enough relief so thatI> > won't co! me away from this office thinking that the only thing my child> >got> > from this was a bright pink ball to match the shirt she was wearing!> >(at> > least he gives the kids presents!)> >> > (And he asked me if he could keep the pictures!)> >> > Hope Alena's doing well.> >> > Irene> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 What a tragedy, , My heart goes out to you. Losing a baby is the saddest thing, but to think it could have been prevented if the physican has listened to you. Oh dear! Love, Suzanne > >Reply-To: urticaria >To: <urticaria > >Subject: Re: A Thought >Date: Mon, 14 May 2001 09:57:34 -0500 > >Everyone- > >I have been going to my Primary Care Physician for ten years now. >When my hive began he didn't have any anwers for me but he never hesitated >to send me to specialists and to follow their recommendations. During my >last appointment I told him about this group and what I had learned about >taking Zantac along with Zyrtec. He was thrilled that I was trying to take >charge of my condition and I left his office with a prescription for >Zantac. This has been a learning experience for both of us. So despite >the fact that he is no expert on CU, I wouldn't consider changing doctors >for anything. He works with me and is open to suggestions. > >I learned the hard way though that there are just plain terrible doctors >out there. I had a placenta previa with my first pregancy and 30 days >alltogether and despite the odds delivered a full term healthy baby by >C-Section. By the time my second pregnancy came along I had moved so I was >forced to find a new OB. Late in my pregnancy I had some bleeding and it >was discovered I had problems with my placenta again. I was three weeks >from my due date. I begged that SOB to go ahead and deliver the baby by >C-section and he refused. He said that no woman should ever want a >C-Section. He was forced to deliver my 8lb stillborn son two weeks later. >The bad thing about it I knew he was wrong. I tried to get another doctor, >but at that stage of a problem pregancy noone would take me. > >Most doctors are good caring people but we have to constantly be on guard >for the bad ones. Sorry about the rambling, but I will follow my instincts >from now on and I will never trust any doctor blindly. > > in Texas > > > > Re: [To ] Question on Angioedema > > > > > > > > > Dear - > > > > > > I've been reading this weekend's communications for the group & want >to > > >say > > > thanks for the " heads up " on calcium & use of prednazone. Neither > > >doctor who > > > prescribed this for has mentioned this -- and I thought that >I > > >knew a > > > bit about Prednazone because my mother was on it for the seven >months >of > > >her > > > life -- I have to pick up Pred tonight at the local pharmacy, and >I'll > > >be > > > picking up the calcium right along with it -- > > > > > > The allergist is rerunning the bloodwork that the pediatrician took >-- > > >and > > > we're midway through 48 hours of urine collection -- I've never seen > > > containers that big & I hate the thought that hydrochoric acid - >even >in > > >a > > > container is in my refridgerator! Monday morning we are headed for >the > > > vampire's lab at 7:00 a.m. -- tried to be really good at the > > >doctor's > > > office, but the more he asked, the more upset she became until she >took > > >on > > > her " faucet face " persona -- and she just couldn't help herself -- >she > > >told > > > him that she hoped that he would be smart, but he wasn't (he said " I > > >don't > > > know " one too many times) and said - " Do you know any smarter >doctors? " > > > > > > He's investigating possibilities -- and he didn't dismiss my thought > > >that > > > this could be hormonally related -- so we're doing the journal thing >to > > >keep > > > a calendar -- I'm hoping for answers or at least enough relief so >that >I > > > won't come away from this office thinking that the only thing my >child > > >got > > > from this was a bright pink ball to match the shirt she was wearing! > > >(at > > > least he gives the kids presents!) > > > > > > (And he asked me if he could keep the pictures!) > > > > > > Hope Alena's doing well. > > > > > > Irene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 What a tragedy, , My heart goes out to you. Losing a baby is the saddest thing, but to think it could have been prevented if the physican has listened to you. Oh dear! Love, Suzanne > >Reply-To: urticaria >To: <urticaria > >Subject: Re: A Thought >Date: Mon, 14 May 2001 09:57:34 -0500 > >Everyone- > >I have been going to my Primary Care Physician for ten years now. >When my hive began he didn't have any anwers for me but he never hesitated >to send me to specialists and to follow their recommendations. During my >last appointment I told him about this group and what I had learned about >taking Zantac along with Zyrtec. He was thrilled that I was trying to take >charge of my condition and I left his office with a prescription for >Zantac. This has been a learning experience for both of us. So despite >the fact that he is no expert on CU, I wouldn't consider changing doctors >for anything. He works with me and is open to suggestions. > >I learned the hard way though that there are just plain terrible doctors >out there. I had a placenta previa with my first pregancy and 30 days >alltogether and despite the odds delivered a full term healthy baby by >C-Section. By the time my second pregnancy came along I had moved so I was >forced to find a new OB. Late in my pregnancy I had some bleeding and it >was discovered I had problems with my placenta again. I was three weeks >from my due date. I begged that SOB to go ahead and deliver the baby by >C-section and he refused. He said that no woman should ever want a >C-Section. He was forced to deliver my 8lb stillborn son two weeks later. >The bad thing about it I knew he was wrong. I tried to get another doctor, >but at that stage of a problem pregancy noone would take me. > >Most doctors are good caring people but we have to constantly be on guard >for the bad ones. Sorry about the rambling, but I will follow my instincts >from now on and I will never trust any doctor blindly. > > in Texas > > > > Re: [To ] Question on Angioedema > > > > > > > > > Dear - > > > > > > I've been reading this weekend's communications for the group & want >to > > >say > > > thanks for the " heads up " on calcium & use of prednazone. Neither > > >doctor who > > > prescribed this for has mentioned this -- and I thought that >I > > >knew a > > > bit about Prednazone because my mother was on it for the seven >months >of > > >her > > > life -- I have to pick up Pred tonight at the local pharmacy, and >I'll > > >be > > > picking up the calcium right along with it -- > > > > > > The allergist is rerunning the bloodwork that the pediatrician took >-- > > >and > > > we're midway through 48 hours of urine collection -- I've never seen > > > containers that big & I hate the thought that hydrochoric acid - >even >in > > >a > > > container is in my refridgerator! Monday morning we are headed for >the > > > vampire's lab at 7:00 a.m. -- tried to be really good at the > > >doctor's > > > office, but the more he asked, the more upset she became until she >took > > >on > > > her " faucet face " persona -- and she just couldn't help herself -- >she > > >told > > > him that she hoped that he would be smart, but he wasn't (he said " I > > >don't > > > know " one too many times) and said - " Do you know any smarter >doctors? " > > > > > > He's investigating possibilities -- and he didn't dismiss my thought > > >that > > > this could be hormonally related -- so we're doing the journal thing >to > > >keep > > > a calendar -- I'm hoping for answers or at least enough relief so >that >I > > > won't come away from this office thinking that the only thing my >child > > >got > > > from this was a bright pink ball to match the shirt she was wearing! > > >(at > > > least he gives the kids presents!) > > > > > > (And he asked me if he could keep the pictures!) > > > > > > Hope Alena's doing well. > > > > > > Irene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 What a tragedy, , My heart goes out to you. Losing a baby is the saddest thing, but to think it could have been prevented if the physican has listened to you. Oh dear! Love, Suzanne > >Reply-To: urticaria >To: <urticaria > >Subject: Re: A Thought >Date: Mon, 14 May 2001 09:57:34 -0500 > >Everyone- > >I have been going to my Primary Care Physician for ten years now. >When my hive began he didn't have any anwers for me but he never hesitated >to send me to specialists and to follow their recommendations. During my >last appointment I told him about this group and what I had learned about >taking Zantac along with Zyrtec. He was thrilled that I was trying to take >charge of my condition and I left his office with a prescription for >Zantac. This has been a learning experience for both of us. So despite >the fact that he is no expert on CU, I wouldn't consider changing doctors >for anything. He works with me and is open to suggestions. > >I learned the hard way though that there are just plain terrible doctors >out there. I had a placenta previa with my first pregancy and 30 days >alltogether and despite the odds delivered a full term healthy baby by >C-Section. By the time my second pregnancy came along I had moved so I was >forced to find a new OB. Late in my pregnancy I had some bleeding and it >was discovered I had problems with my placenta again. I was three weeks >from my due date. I begged that SOB to go ahead and deliver the baby by >C-section and he refused. He said that no woman should ever want a >C-Section. He was forced to deliver my 8lb stillborn son two weeks later. >The bad thing about it I knew he was wrong. I tried to get another doctor, >but at that stage of a problem pregancy noone would take me. > >Most doctors are good caring people but we have to constantly be on guard >for the bad ones. Sorry about the rambling, but I will follow my instincts >from now on and I will never trust any doctor blindly. > > in Texas > > > > Re: [To ] Question on Angioedema > > > > > > > > > Dear - > > > > > > I've been reading this weekend's communications for the group & want >to > > >say > > > thanks for the " heads up " on calcium & use of prednazone. Neither > > >doctor who > > > prescribed this for has mentioned this -- and I thought that >I > > >knew a > > > bit about Prednazone because my mother was on it for the seven >months >of > > >her > > > life -- I have to pick up Pred tonight at the local pharmacy, and >I'll > > >be > > > picking up the calcium right along with it -- > > > > > > The allergist is rerunning the bloodwork that the pediatrician took >-- > > >and > > > we're midway through 48 hours of urine collection -- I've never seen > > > containers that big & I hate the thought that hydrochoric acid - >even >in > > >a > > > container is in my refridgerator! Monday morning we are headed for >the > > > vampire's lab at 7:00 a.m. -- tried to be really good at the > > >doctor's > > > office, but the more he asked, the more upset she became until she >took > > >on > > > her " faucet face " persona -- and she just couldn't help herself -- >she > > >told > > > him that she hoped that he would be smart, but he wasn't (he said " I > > >don't > > > know " one too many times) and said - " Do you know any smarter >doctors? " > > > > > > He's investigating possibilities -- and he didn't dismiss my thought > > >that > > > this could be hormonally related -- so we're doing the journal thing >to > > >keep > > > a calendar -- I'm hoping for answers or at least enough relief so >that >I > > > won't come away from this office thinking that the only thing my >child > > >got > > > from this was a bright pink ball to match the shirt she was wearing! > > >(at > > > least he gives the kids presents!) > > > > > > (And he asked me if he could keep the pictures!) > > > > > > Hope Alena's doing well. > > > > > > Irene > > > > > > Quote Link to comment Share on other sites More sharing options...
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