30 year old woman looking for an adult with RSS to chat with

[Guest guest]

Hi I am Debby. I cant belive I have found a place for adultswith RSS

to talk to " other adults " with RSS. This is a dream come true for me

and please anyone contact me I will answer all! I guess i could

start by telling everyone about me. I am 4'6 " which shocked my doc's.

I have asthma, short limbs, my right side is bigger then my left side

even my organs are slightly enlarged. My bone age is 1 year older

then me. I have learning disabilities (not bad thou) I have trobule

with my ears (20%in right ear 40% in left. I wear glasses my eyes

cannot see togeather but can do seperetly. *WHEW* *LOL* The reason I

am rambbling on here is that I live in Vermont and when I was

diagnossed at the age of 18 months there were only 2 people in the

state of Vermont who had RSS me and another little boy. I was lucky

he wasent. He was severly mentally retarded. So, I just want to know

is there any adult,child anyone out there who would talk to me? I am

begging i have always felt so alone and the thought of finding

someone to chat to who has this stupid thing with me would really

lift my spirits. So if i have not frightened you please email or post

a message. Thanks Debby