Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Hi , Since la usually only has to take her medicine twice a day we have a pretty decent schedule worked out to where the school doesn't have to deal with it much. She normally takes her meds right before school at 7am and right after school at 3pm. They do have the information regarding the CU in their medical file in case of an unexpected emergency. There have been a few occasions though where the school has had after school activities or camp outs and I have had to make it perfectly clear that she needs her medicines at specific times or she might have a major outbreak and so far they have seen to it that she has got the medicine on time. I usually just tell them that even though it has not been life threatening yet they are very uncomfortable and there is always that possibility it could one day be severe and if she starts to hive first and then takes the medicine usually it takes twice as long for the medicine to begin working. I think as long as you tell the school and caregiver up front what can happen they are more likely to work with you regarding the CU. Best Wishes, Donna (Richmond, IN) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Hi All, for those of you that have children with CU, I am wondering, how do you handle this with the school or caregiver? Alena is about to start daycare/preschool and I had a meeting with the teachers and I found myself fumbling at trying to tell them what to watch for, how to handle it and worst of all what it is in respect to them caring for her. They suggested I put together a little "fact" sheet in case of emergency. LOL I told them they were really asking for a book. Any suggestions would be greatly appreciated. ~Alena's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 , Me again. If you are having trouble writing this letter, may I suggest you have Alena's Dad or uncle or a friend help you write this with you. Other than feeding, nurturing and loving this little one, this is probably one of the most important things you can do for her. People who care for little ones with problems can be very nervous about caring for them. But if there are explanations and good guidelines for them they can do a more competent job of caring for your little one. > >Reply-To: urticaria >To: <urticaria > >Subject: A question?? >Date: Wed, 9 May 2001 19:00:35 -0400 > >Hi All, for those of you that have children with CU, I am wondering, how do >you handle this with the school or caregiver? Alena is about to start >daycare/preschool and I had a meeting with the teachers and I found myself >fumbling at trying to tell them what to watch for, how to handle it and >worst of all what it is in respect to them caring for her. They suggested >I put together a little " fact " sheet in case of emergency. LOL I told them >they were really asking for a book. Any suggestions would be greatly >appreciated. ~Alena's Mom _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 , Me again. If you are having trouble writing this letter, may I suggest you have Alena's Dad or uncle or a friend help you write this with you. Other than feeding, nurturing and loving this little one, this is probably one of the most important things you can do for her. People who care for little ones with problems can be very nervous about caring for them. But if there are explanations and good guidelines for them they can do a more competent job of caring for your little one. > >Reply-To: urticaria >To: <urticaria > >Subject: A question?? >Date: Wed, 9 May 2001 19:00:35 -0400 > >Hi All, for those of you that have children with CU, I am wondering, how do >you handle this with the school or caregiver? Alena is about to start >daycare/preschool and I had a meeting with the teachers and I found myself >fumbling at trying to tell them what to watch for, how to handle it and >worst of all what it is in respect to them caring for her. They suggested >I put together a little " fact " sheet in case of emergency. LOL I told them >they were really asking for a book. Any suggestions would be greatly >appreciated. ~Alena's Mom _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Hi Kristi started having problems 9/98 at the beginning of the school year in 3rd grade. She'll be entering 6th in the fall. She takes her meds in the AM before school and at bedtime. Homeopathic remedy is given every two hours if symptomatic and I have been known to make trips to school several times in a day. She's been instructed in use of the epi-pen and we keep one in the office at school. If she's having problems and needs a med or remedy she calls me on my pager. She missed 14 days of school last year. This year has been better since she's on Medrol. She's missed a few days for doctor appts. Maybe just a couple of other days (1 or 2) due to illness. How much time will Alena be spending at daycare/preschool? Will the teachers need to administer regularly scheduled meds? Kristi's school requires a form from the doctor which says administration during school hours is necessary. Sharon >Hi All, for those of you that have children with CU, I am wondering, how do >you handle this with the school or caregiver? Alena is about to start >daycare/preschool and I had a meeting with the teachers and I found myself >fumbling at trying to tell them what to watch for, how to handle it and >worst of all what it is in respect to them caring for her. They suggested >I put together a little " fact " sheet in case of emergency. LOL I told them >they were really asking for a book. Any suggestions would be greatly >appreciated. ~Alena's Mom _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Hi Kristi started having problems 9/98 at the beginning of the school year in 3rd grade. She'll be entering 6th in the fall. She takes her meds in the AM before school and at bedtime. Homeopathic remedy is given every two hours if symptomatic and I have been known to make trips to school several times in a day. She's been instructed in use of the epi-pen and we keep one in the office at school. If she's having problems and needs a med or remedy she calls me on my pager. She missed 14 days of school last year. This year has been better since she's on Medrol. She's missed a few days for doctor appts. Maybe just a couple of other days (1 or 2) due to illness. How much time will Alena be spending at daycare/preschool? Will the teachers need to administer regularly scheduled meds? Kristi's school requires a form from the doctor which says administration during school hours is necessary. Sharon >Hi All, for those of you that have children with CU, I am wondering, how do >you handle this with the school or caregiver? Alena is about to start >daycare/preschool and I had a meeting with the teachers and I found myself >fumbling at trying to tell them what to watch for, how to handle it and >worst of all what it is in respect to them caring for her. They suggested >I put together a little " fact " sheet in case of emergency. LOL I told them >they were really asking for a book. Any suggestions would be greatly >appreciated. ~Alena's Mom _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 I don't have a child with CU but I was a preschool teacher. The only suggestion I have is they encourage Alena to wash her hands obssesively. After playing with toys other children handle, after coloring with crayons other children handle, after outside and of course after potty breaks. I, unfortunately, had to quit my job because I seemed to catch every virus that came along and we all know that colds and such are impossible to avoid anytime alot of little ones are together. I don't know about Alena but my CU always got worse anytime I had an infection. I know that you can't isolate Alena but maybe with the teachers constant reminders for her to keep her hands washed you can avoid some problems. Good luck in Texas A question?? Hi All, for those of you that have children with CU, I am wondering, how do you handle this with the school or caregiver? Alena is about to start daycare/preschool and I had a meeting with the teachers and I found myself fumbling at trying to tell them what to watch for, how to handle it and worst of all what it is in respect to them caring for her. They suggested I put together a little "fact" sheet in case of emergency. LOL I told them they were really asking for a book. Any suggestions would be greatly appreciated. ~Alena's Mom~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~If you do wish to unsubscribe then you can click on the following link: <mailto:urticaria-unsubscribeegroups>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new.Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 I don't have a child with CU but I was a preschool teacher. The only suggestion I have is they encourage Alena to wash her hands obssesively. After playing with toys other children handle, after coloring with crayons other children handle, after outside and of course after potty breaks. I, unfortunately, had to quit my job because I seemed to catch every virus that came along and we all know that colds and such are impossible to avoid anytime alot of little ones are together. I don't know about Alena but my CU always got worse anytime I had an infection. I know that you can't isolate Alena but maybe with the teachers constant reminders for her to keep her hands washed you can avoid some problems. Good luck in Texas A question?? Hi All, for those of you that have children with CU, I am wondering, how do you handle this with the school or caregiver? Alena is about to start daycare/preschool and I had a meeting with the teachers and I found myself fumbling at trying to tell them what to watch for, how to handle it and worst of all what it is in respect to them caring for her. They suggested I put together a little "fact" sheet in case of emergency. LOL I told them they were really asking for a book. Any suggestions would be greatly appreciated. ~Alena's Mom~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~If you do wish to unsubscribe then you can click on the following link: <mailto:urticaria-unsubscribeegroups>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new.Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Hi, -- For five years I tried to explain 's reactions to child care givers & school personnel with limited results -- when I'd talk about her symptoms, I was looked at as though I have just dropped off from another planet (school personnel usually think that parents are "overstating the case" & that there is nothing that they haven't seen before!) From kindergarten til 4th grade, I would give them the info verbally & in writing (both from me & from the doctor), & the school nurse happened to really like my kids, so she paid attention but didn't really understand (she paid attention enough to call if needed a doctor). I can understand your concerns about Alena starting school -- for a while I actually thought about the home schooling option, but thought that needs as "normalized" life as possible..... I have finally hit on the one thing that makes the babysitter, school nurse & teachers understand! Pictures! I keep a loaded camera on hand at all times & without making a big deal of anything, I take pictures of my kids (focusing on Ms. 's outbreak or angio....)....A picture is worth a thousand words ....in my daughter's school file, there are pictures....(give benedryl if she looks like picture # 1, give benedryl & call mom if she looks like picture # 2, Call 911 & then call Mom if she looks like picture # 3, etc. and a good picture of "this is what this beautiful child looks like when she is not hiving or having an angio-attack" -- I make copies of whatever pictures I give the school) (School doesn't call Dad unless they have to - my husband is very emotional around 's health issues & reacts emotionally instead of practically) I also take pictures of on Good Days so that I won't only have this horrible pictures when she grows up -- I have actually explained to why I am taking pictures of her now that she is older & a little more sensitive than she used to be about the way she looks. When we get pictures back from being developed, I take out the "history of hives & angio" pictures & put them in a picture box with a date on them & only show & relatives the "good pictures". These pictures never make it into the family photo albums & I've put all of the school staff on notice that they are not to discuss these pictures with . The doctor and the the school staff have told me that this has been a really good idea for them to really "get the picture" -- I try not to limit 's activities unless I really have to, because I don't want her growing up to think she can't do things because of this, but sometimes she really can't & the staff have been accommodating when she's needed to be excused from an activity - (like keep her out of the school greenhouse because her skins starts to resemble hamburger meat after she's been there!) The picture approach seems to work for us at the moment....this year - especially since 's symptomatology has gotten worse - the staff has yet to "under-react" - Just wanted to share what is working for us -- Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Hi, -- For five years I tried to explain 's reactions to child care givers & school personnel with limited results -- when I'd talk about her symptoms, I was looked at as though I have just dropped off from another planet (school personnel usually think that parents are "overstating the case" & that there is nothing that they haven't seen before!) From kindergarten til 4th grade, I would give them the info verbally & in writing (both from me & from the doctor), & the school nurse happened to really like my kids, so she paid attention but didn't really understand (she paid attention enough to call if needed a doctor). I can understand your concerns about Alena starting school -- for a while I actually thought about the home schooling option, but thought that needs as "normalized" life as possible..... I have finally hit on the one thing that makes the babysitter, school nurse & teachers understand! Pictures! I keep a loaded camera on hand at all times & without making a big deal of anything, I take pictures of my kids (focusing on Ms. 's outbreak or angio....)....A picture is worth a thousand words ....in my daughter's school file, there are pictures....(give benedryl if she looks like picture # 1, give benedryl & call mom if she looks like picture # 2, Call 911 & then call Mom if she looks like picture # 3, etc. and a good picture of "this is what this beautiful child looks like when she is not hiving or having an angio-attack" -- I make copies of whatever pictures I give the school) (School doesn't call Dad unless they have to - my husband is very emotional around 's health issues & reacts emotionally instead of practically) I also take pictures of on Good Days so that I won't only have this horrible pictures when she grows up -- I have actually explained to why I am taking pictures of her now that she is older & a little more sensitive than she used to be about the way she looks. When we get pictures back from being developed, I take out the "history of hives & angio" pictures & put them in a picture box with a date on them & only show & relatives the "good pictures". These pictures never make it into the family photo albums & I've put all of the school staff on notice that they are not to discuss these pictures with . The doctor and the the school staff have told me that this has been a really good idea for them to really "get the picture" -- I try not to limit 's activities unless I really have to, because I don't want her growing up to think she can't do things because of this, but sometimes she really can't & the staff have been accommodating when she's needed to be excused from an activity - (like keep her out of the school greenhouse because her skins starts to resemble hamburger meat after she's been there!) The picture approach seems to work for us at the moment....this year - especially since 's symptomatology has gotten worse - the staff has yet to "under-react" - Just wanted to share what is working for us -- Irene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Sharon, Thank you so much for your response. To answer your question, I decided to only take one class this summer to see how Alena does, so she will only be in preschool for 2 1/2 hours twice a week. So thank heavens she will not have to be given meds by anyone there. (Whew, I say, she always spits them out and I have to chase her around the house, so it could be a nightmare for the school, hee hee) Thank you again!! ~Alena's Mom Re: A question?? > Hi > Kristi started having problems 9/98 at the beginning of the school year in > 3rd grade. She'll be entering 6th in the fall. She takes her meds in the AM > before school and at bedtime. Homeopathic remedy is given every two hours if > symptomatic and I have been known to make trips to school several times in a > day. She's been instructed in use of the epi-pen and we keep one in the > office at school. > If she's having problems and needs a med or remedy she calls me on my pager. > She missed 14 days of school last year. This year has been better since > she's on Medrol. She's missed a few days for doctor appts. Maybe just a > couple of other days (1 or 2) due to illness. > How much time will Alena be spending at daycare/preschool? Will the > teachers need to administer regularly scheduled meds? Kristi's school > requires a form from the doctor which says administration during school > hours is necessary. > Sharon > > >Hi All, for those of you that have children with CU, I am wondering, how do > >you handle this with the school or caregiver? Alena is about to start > >daycare/preschool and I had a meeting with the teachers and I found myself > >fumbling at trying to tell them what to watch for, how to handle it and > >worst of all what it is in respect to them caring for her. They suggested > >I put together a little " fact " sheet in case of emergency. LOL I told them > >they were really asking for a book. Any suggestions would be greatly > >appreciated. ~Alena's Mom > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Sharon, Thank you so much for your response. To answer your question, I decided to only take one class this summer to see how Alena does, so she will only be in preschool for 2 1/2 hours twice a week. So thank heavens she will not have to be given meds by anyone there. (Whew, I say, she always spits them out and I have to chase her around the house, so it could be a nightmare for the school, hee hee) Thank you again!! ~Alena's Mom Re: A question?? > Hi > Kristi started having problems 9/98 at the beginning of the school year in > 3rd grade. She'll be entering 6th in the fall. She takes her meds in the AM > before school and at bedtime. Homeopathic remedy is given every two hours if > symptomatic and I have been known to make trips to school several times in a > day. She's been instructed in use of the epi-pen and we keep one in the > office at school. > If she's having problems and needs a med or remedy she calls me on my pager. > She missed 14 days of school last year. This year has been better since > she's on Medrol. She's missed a few days for doctor appts. Maybe just a > couple of other days (1 or 2) due to illness. > How much time will Alena be spending at daycare/preschool? Will the > teachers need to administer regularly scheduled meds? Kristi's school > requires a form from the doctor which says administration during school > hours is necessary. > Sharon > > >Hi All, for those of you that have children with CU, I am wondering, how do > >you handle this with the school or caregiver? Alena is about to start > >daycare/preschool and I had a meeting with the teachers and I found myself > >fumbling at trying to tell them what to watch for, how to handle it and > >worst of all what it is in respect to them caring for her. They suggested > >I put together a little " fact " sheet in case of emergency. LOL I told them > >they were really asking for a book. Any suggestions would be greatly > >appreciated. ~Alena's Mom > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2001 Report Share Posted May 11, 2001 Pictures...what an absolutely excellent idea! I could have used that kind of a tool when I was a school nurse. Thank you so much Love, Suzanne >From: ifsaul@... >Reply-To: urticaria >To: urticaria >Subject: Re: A question?? >Date: Thu, 10 May 2001 10:53:26 EDT > >Hi, -- > >For five years I tried to explain 's reactions to child care givers & >school personnel with limited results -- when I'd talk about her symptoms, >I >was looked at as though >From: ifsaul@... >Reply-To: urticaria >To: urticaria >Subject: Re: A question?? >Date: Thu, 10 May 2001 10:53:26 EDT > >Hi, -- > >For five years I tried to explain 's reactions to child care givers & >school personnel with limited results -- when I'd talk about her symptoms, >I >was looked at as though I have just dropped off from another planet (school >personnel usually think that parents are " overstating the case " & that >there >is nothing that they haven't seen before!) From kindergarten til 4th >grade, >I would give them the info verbally & in writing (both from me & from the >doctor), & the school nurse happened to really like my kids, so she paid >attention but didn't really understand (she paid attention enough to call >if > needed a doctor). > >I can understand your concerns about Alena starting school -- for a while I >actually thought about the home schooling option, but thought that >needs as " normalized " life as possible..... > >I have finally hit on the one thing that makes the babysitter, school nurse > & >teachers understand! Pictures! I keep a loaded camera on hand at all >times & > without making a big deal of anything, I take pictures of my kids >(focusing >on Ms. 's outbreak or angio....)....A picture is worth a thousand >words >....in my daughter's school file, there are pictures....(give benedryl if >she >looks like picture # 1, give benedryl & call mom if she looks like picture ># >2, Call 911 & then call Mom if she looks like picture # 3, etc. and a good >picture of " this is what this beautiful child looks like when she is not >hiving or having an angio-attack " -- I make copies of whatever pictures I >give the school) (School doesn't call Dad unless they have to - my husband >is very emotional around 's health issues & reacts emotionally >instead >of practically) I also take pictures of on Good Days so that I >won't >only have this horrible pictures when she grows up -- I have actually >explained to why I am taking pictures of her now that she is older & >a >little more sensitive than she used to be about the way she looks. When we >get pictures back from being developed, I take out the " history of hives & >angio " pictures & put them in a picture box with a date on them & only show > & relatives the " good pictures " . > >These pictures never make it into the family photo albums & I've put all of >the school staff on notice that they are not to discuss these pictures with >. The doctor and the the school staff have told me that this has >been >a really good idea for them to really " get the picture " -- I try not to >limit >'s activities unless I really have to, because I don't want her >growing >up to think she can't do things because of this, but sometimes she really >can't & the staff have been accommodating when she's needed to be excused >from an activity - (like keep her out of the school greenhouse because her >skins starts to resemble hamburger meat after she's been there!) > >The picture approach seems to work for us at the moment....this year - >especially since 's symptomatology has gotten worse - the staff has >yet >to " under-react " - Just wanted to share what is working for us -- > >Irene _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2001 Report Share Posted May 11, 2001 Pictures...what an absolutely excellent idea! I could have used that kind of a tool when I was a school nurse. Thank you so much Love, Suzanne >From: ifsaul@... >Reply-To: urticaria >To: urticaria >Subject: Re: A question?? >Date: Thu, 10 May 2001 10:53:26 EDT > >Hi, -- > >For five years I tried to explain 's reactions to child care givers & >school personnel with limited results -- when I'd talk about her symptoms, >I >was looked at as though >From: ifsaul@... >Reply-To: urticaria >To: urticaria >Subject: Re: A question?? >Date: Thu, 10 May 2001 10:53:26 EDT > >Hi, -- > >For five years I tried to explain 's reactions to child care givers & >school personnel with limited results -- when I'd talk about her symptoms, >I >was looked at as though I have just dropped off from another planet (school >personnel usually think that parents are " overstating the case " & that >there >is nothing that they haven't seen before!) From kindergarten til 4th >grade, >I would give them the info verbally & in writing (both from me & from the >doctor), & the school nurse happened to really like my kids, so she paid >attention but didn't really understand (she paid attention enough to call >if > needed a doctor). > >I can understand your concerns about Alena starting school -- for a while I >actually thought about the home schooling option, but thought that >needs as " normalized " life as possible..... > >I have finally hit on the one thing that makes the babysitter, school nurse > & >teachers understand! Pictures! I keep a loaded camera on hand at all >times & > without making a big deal of anything, I take pictures of my kids >(focusing >on Ms. 's outbreak or angio....)....A picture is worth a thousand >words >....in my daughter's school file, there are pictures....(give benedryl if >she >looks like picture # 1, give benedryl & call mom if she looks like picture ># >2, Call 911 & then call Mom if she looks like picture # 3, etc. and a good >picture of " this is what this beautiful child looks like when she is not >hiving or having an angio-attack " -- I make copies of whatever pictures I >give the school) (School doesn't call Dad unless they have to - my husband >is very emotional around 's health issues & reacts emotionally >instead >of practically) I also take pictures of on Good Days so that I >won't >only have this horrible pictures when she grows up -- I have actually >explained to why I am taking pictures of her now that she is older & >a >little more sensitive than she used to be about the way she looks. When we >get pictures back from being developed, I take out the " history of hives & >angio " pictures & put them in a picture box with a date on them & only show > & relatives the " good pictures " . > >These pictures never make it into the family photo albums & I've put all of >the school staff on notice that they are not to discuss these pictures with >. The doctor and the the school staff have told me that this has >been >a really good idea for them to really " get the picture " -- I try not to >limit >'s activities unless I really have to, because I don't want her >growing >up to think she can't do things because of this, but sometimes she really >can't & the staff have been accommodating when she's needed to be excused >from an activity - (like keep her out of the school greenhouse because her >skins starts to resemble hamburger meat after she's been there!) > >The picture approach seems to work for us at the moment....this year - >especially since 's symptomatology has gotten worse - the staff has >yet >to " under-react " - Just wanted to share what is working for us -- > >Irene _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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