Sandi

[Guest guest]

Sandi,

Hi Darlin, It is the Lyme. Ive done exstensive research

concerning Lyme. Lyme causes Inflammation to the nerve root itself.

I think Mononeuritis multiplex occures in late stage Lyme.

Mononeuritis multiplex could be described as:Pathophysiology:

Mononeuritis multiplex involves damage to at least 2 separate nerve

areas. This condition can become progressively worse over time. The

damage to the nerves involves destruction of the axon (ie, the part

of the nerve cell that is analogous to the copper part of a wire),

thus interfering with nerve conduction. Common causes of damage

include a lack of oxygen from decreased blood flow or inflammation

of blood vessels. Lyme in late stages also causes inflammation of

the spinal cord (myelitis).

Im positive it's Lyme thats causing the nerve dysfunction thus

causing pelvic floor dysfunction and a number of medical conditions.

Im trying to fight the Lyme and build my immune system. Ive noticed

doing this has led to improvment from my pelvic pain to my back

pain. Keep up the fight my friend. Remission is with in our reach.

Hugs, Tami

>

> Hi Molly and Arline and all,

>

> You have both hit on why this is so frustrating. I guess almost

anyone with vulvar pain has pudendal neuralgia so it doesn't tell us

that much - or it could tell us volumes. It all depends on what is

causing the nerve irritation. Is it Lyme that is irritating the

nerves with neurotoxins? Is it gluten sensitivity that is causing

an autoimmune response and attacking nerves? Is it tight pelvic

floor muscles that are impinging on the nerves?

>

> That is what drives me crazy and why I go in circles. I went to

Beyond Basics and saw that they have a great approach to PT and

Nazneen will use some techniques like skin rolling that will be new

to me. She evaluated me and noted that I have severe muscle

problems, especially with the obdurator.

>

> But then it is like a chicken and egg mystery. Did the

Lyme/spirochete cause the pain which then caused the pelvic floor to

go into spasm or is it the pelvic floor itself that went into spasm

and the initial cause went away? If the Lyme is my true problem

will treating the pelvic floor w/o treating Lyme help me? WIll

treating Lyme w/o treating the pelvic floor help me? Do I need to

do both simultaneously? No wonder why getting well is so

difficult!!!

>

> This has cost me a fortune and it looks like going out of

network for PT and the Fibro Center for Lyme treatment will be a

fortune in itself. It is sooo frustrating that this is so outside

standard medicine. One shouldn't have to go out of network to get

PT and one shouldn't have to go out of network to be treated for

Lyme properly.

>

> OK, enough venting. I guess I have Lyme and pudendal neuralgia

and have to treat both at the same time. I just hope that I can

withstand the herxing enough to get my bottom to PT in NYC. That

will be a challenge in itself.

>

> Sandi

>

>

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