Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 http://www.spuninfo.org/index.htm Pudendal Neuralgia Maybe this site has been mentioned before, but if not take the time to read it thoroughly, including the patient stories. There is mention in the treatment part about pelvic floor dysfunction, PT treatment, etc. I am excited today because I have just been pre-interviewed by phone by one of the PN doctors (listed on the site) who said I have eight out of ten symptoms for this condition. I am now waiting for treatment scheduling, which should happen within six weeks. As I mentioned in previous posts I am also going to have pelvic physical therapy with Raquel K. Perlis in MA starting in April. Long story short - I first developed symptoms in July with muscle spasms in my back. The vulvodynia started within a couple of weeks. Every month since then my condition has gotten worse. I am completely disabled now, on the sofa, getting up only for the bathroom, or go to the doctor. Since July, my doctor visits are 1-2 a week. I am on narcotics, which only reduce the pain down to an 8/10, but it is enough to watch TV, read, etc. I have to lie down even if I am in the car. I can not stand for more than 5-10 minutes I have the luxury (if you can call it that) to be able to devote all my time to helping myself. I spend all waking hours (with my laptop balanced on my hip) talking with women and researching on the web on what's wrong with me. It is because of the wonderful women on these groups that I have found the help that I am now getting. This help and advice has taken a few months versus years, or if at all, from these women. I can't thank them enough for what they have done for me. So hopefully I will be on the road to recovery soon. I know this won't be a quick fix or even a full recovery, but anything is better than the life I am now living. nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Thank you for the site. I read the section called " what is.. " but, I cant tell the difference between pudendal and VV/vaginismus? How do you know the difference? One thing I found interesting is that the website said post void discomfort after urination, which I feel sometimes, as soon as my stream ends, I mean IMMEADEATELY after voiding my bladder, I get an intense urge to urinate. But that has only happened a few times since my vv/vagnuismus began. I also found the part about sensation of a foreign body in the vagina is not uncommon. I have never heard of this with VV, but anytime I bring it up to the doctors (because I always feel something there when the pain hits a 10)..I was told it is from the swelling? But it is something good to bring up to the doctor, so thank you! > http://www.spuninfo.org/index.htm Pudendal Neuralgia > > Maybe this site has been mentioned before, but if not take the time > to read it thoroughly, including the patient stories. There is > mention in the treatment part about pelvic floor dysfunction, PT > treatment, etc. > > I am excited today because I have just been pre-interviewed by phone > by one of the PN doctors (listed on the site) who said I have eight > out of ten symptoms for this condition. I am now waiting for > treatment scheduling, which should happen within six weeks. As I > mentioned in previous posts I am also going to have pelvic physical > therapy with Raquel K. Perlis in MA starting in April. > > Long story short - I first developed symptoms in July with muscle > spasms in my back. The vulvodynia started within a couple of weeks. > Every month since then my condition has gotten worse. I am > completely disabled now, on the sofa, getting up only for the > bathroom, or go to the doctor. Since July, my doctor visits are 1-2 > a week. I am on narcotics, which only reduce the pain down to an > 8/10, but it is enough to watch TV, read, etc. I have to lie down > even if I am in the car. I can not stand for more than 5-10 minutes > I have the luxury (if you can call it that) to be able to devote all > my time to helping myself. I spend all waking hours (with my laptop > balanced on my hip) talking with women and researching on the web on > what's wrong with me. It is because of the wonderful women on these > groups that I have found the help that I am now getting. This help > and advice has taken a few months versus years, or if at all, from > these women. I can't thank them enough for what they have done for > me. > > So hopefully I will be on the road to recovery soon. I know this > won't be a quick fix or even a full recovery, but anything is better > than the life I am now living. > > nne > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Thank you for the site. I read the section called " what is.. " but, I cant tell the difference between pudendal and VV/vaginismus? How do you know the difference? One thing I found interesting is that the website said post void discomfort after urination, which I feel sometimes, as soon as my stream ends, I mean IMMEADEATELY after voiding my bladder, I get an intense urge to urinate. But that has only happened a few times since my vv/vagnuismus began. I also found the part about sensation of a foreign body in the vagina is not uncommon. I have never heard of this with VV, but anytime I bring it up to the doctors (because I always feel something there when the pain hits a 10)..I was told it is from the swelling? But it is something good to bring up to the doctor, so thank you! > http://www.spuninfo.org/index.htm Pudendal Neuralgia > > Maybe this site has been mentioned before, but if not take the time > to read it thoroughly, including the patient stories. There is > mention in the treatment part about pelvic floor dysfunction, PT > treatment, etc. > > I am excited today because I have just been pre-interviewed by phone > by one of the PN doctors (listed on the site) who said I have eight > out of ten symptoms for this condition. I am now waiting for > treatment scheduling, which should happen within six weeks. As I > mentioned in previous posts I am also going to have pelvic physical > therapy with Raquel K. Perlis in MA starting in April. > > Long story short - I first developed symptoms in July with muscle > spasms in my back. The vulvodynia started within a couple of weeks. > Every month since then my condition has gotten worse. I am > completely disabled now, on the sofa, getting up only for the > bathroom, or go to the doctor. Since July, my doctor visits are 1-2 > a week. I am on narcotics, which only reduce the pain down to an > 8/10, but it is enough to watch TV, read, etc. I have to lie down > even if I am in the car. I can not stand for more than 5-10 minutes > I have the luxury (if you can call it that) to be able to devote all > my time to helping myself. I spend all waking hours (with my laptop > balanced on my hip) talking with women and researching on the web on > what's wrong with me. It is because of the wonderful women on these > groups that I have found the help that I am now getting. This help > and advice has taken a few months versus years, or if at all, from > these women. I can't thank them enough for what they have done for > me. > > So hopefully I will be on the road to recovery soon. I know this > won't be a quick fix or even a full recovery, but anything is better > than the life I am now living. > > nne > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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